Vulvodynia Support
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» Hope to all my suffering ladies
New & feeling lost! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New & feeling lost! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New & feeling lost! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New & feeling lost! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New & feeling lost! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New & feeling lost! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New & feeling lost! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New & feeling lost! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New & feeling lost! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


New & feeling lost!

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Post  Molly_ Tue Dec 03, 2013 3:43 pm

I'm 21 and have been suffering with vulvodynia for over 6 months now.
It started when i kept getting UTIs and cystitis frequently which I had become used to until I met my current partner and started experiencing really painful intercourse too.
I'd never had problems before and after visiting the doctors several times they told me nothing was wrong psychically. I decided to see a gynaecologist who then told me about vulvodynia. He put me on 10mg of amitriptyline for two months which made no difference. I was also given instillagel to use before sex which helps!
I've now been put on 25mg of amitriptyline and been told to be patient.... Wondering if anyone else has a successful amitriptyline story or any other helpful advice? I'm not too knowledgeable about it all!
Thanks! Smile

Molly_

Posts : 5
Join date : 2013-12-03

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Post  Lms911 Tue Dec 03, 2013 4:11 pm

I don't have much advice for you love but I'm in the same boat as you. This forum is wonderful for advise and help! Stay strong and praying for relief for us ALL!

Lms911

Posts : 30
Join date : 2013-11-07

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Post  Molly_ Tue Dec 03, 2013 4:18 pm

Yeah I'm glad I'm not alone! Ill have a good look through for advice Smile thanks!

Molly_

Posts : 5
Join date : 2013-12-03

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Post  mary jane Tue Dec 03, 2013 4:57 pm

I'm on amitriptyline 50 mg at the moment, my pain was also triggered by a small infection (of the bartholin glands)....
it works for me right now, my pain went from 7/10 to a 2/10..however, mine is a nerve pain...
but at 10/20 mg it did nothing for me!

unfortunately, not everyone reacts the same. I tolerate it very well, but I know others are comatose from this drug....
then again, I am desperate and I would take anything to cope with daily school life.

anyway, just so you know, lyrica is a great drug (efficiency wise) for vulvodynia if ami does not work
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  Molly_ Tue Dec 03, 2013 6:00 pm

Glad its working for you! I'm hoping 25mg will work but if not ill have to ask about this lyrica Smile thanks for the help

Molly_

Posts : 5
Join date : 2013-12-03

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Post  zarli Tue Dec 03, 2013 11:06 pm

Please try Lyrica it works..and keep positive this forum is wonderful, read read read info on here Smile 

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  tinkerbelle2 Sun Dec 08, 2013 8:18 pm

Hey Molly welcome to the forum! My vulvodynia also started after a bad urine infection, but there were also other things like being on antibiotics and starting the pill. I'm the same age as you. I have had it since I was 17 and I was so so sad and lost. Finding this forum has helped me so much! I also have a bit of relief with a numbing gel during sex and in general but it does burn the skin a bit at first and the effect wears off quickly. I was put on Gabapentin which I initially thought was helping but think the soreness was just lower coincidentally. What type of pain/irritation do you feel?
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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Post  Molly_ Tue Dec 10, 2013 8:14 pm

Thankyou! It's so good to see other people's advice and thanks for sharing your situation with me! Smile
It's painful both inside and outside :/ It's a constant throbbing pain and is really sensitive to touch on the outside. I get cystitis a lot but its mostly pain during intercourse which is the worst! It just came on all of a sudden. I'm thankful for the gel at the minute for that even if its sore afterwards. How about you?

Molly_

Posts : 5
Join date : 2013-12-03

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Post  tinkerbelle2 Thu Dec 12, 2013 11:14 am

I have a constant stinging and burning of the opening of the vagina and around it and inside Sad jeans and tight trousers irritate me and I never wear thongs now - granny pants all the way! - This forum has been the best thing to come out of having this. Talking can be therapeutic! The girls on here have helped me out millions more than any 'healthcare professional'. It's nice to just have people there that care and show interest
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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Post  Molly_ Thu Dec 12, 2013 11:18 am

I hear you there! I always find cotton underwear being the best or sometimes none at all! It is nice! I've been reading every day, glad I found it too Smile just hoping the amitriptyline will help soon!

Molly_

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