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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

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New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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Exercise ???

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Exercise ???

Post  zarli on Sat Dec 14, 2013 9:25 am

Hi Girls
Before 'V' I used to walk 5km everyday and was a healthy weight...6 years on I've put on nearly 20kg which is frightening and I can't exercise at all. Every couple of months I have a head rush and try to walk very slowly BUT the next day I'm in excruciating pain. Does any one else have trouble with exercise ???
Also my feet get just as sore as my vagina they burn and the pain is throbbing.

I feel like I don't know what to do anymore...my life is very hard going at present.

I mean the meds control the pain as long as I wear loose pants, don't sit for long, don't stand for long and don't exercise.
I wonder how fat I'll end up being ???
I know I'm lucky the meds work but I just can't imagine what my life is going to be like in another 5,10,15 years??
The pain is so bad at present just from a little walk 2 days ago.

That's my negative rant for the day...sorry.


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Re: Exercise ???

Post  alessandria on Sat Dec 14, 2013 11:03 pm

Hey Zarli! I imagine it'd be quite frustrating to have things get worse with exercise, I'll see what I can suggest here to help out Smile

1) You can get a lot of the health benefits of exercise from things that are less likely to cause vulvodynia flares. I recommend trying something like yoga or pilates which are virtually zero impact exercises, but still will allow you to maintain your fitness and reduce your stress levels. While things like biking and swimming are frequently totally out of the question with vulvodynia, elliptical trainers are a good zero impact way to get an intense cardiovascular workout.

2) Possibly a totally dumb question, but what do you wear to exercise? I very specifically must wear all-cotton, loose underwear and loose shorts when I exercise, or I will definitely get an increase in vulvodynia pain due to the friction and irritation.

3) The wonderful thing about losing weight is that anyone can do it. Seriously, anyone. It is very hard sometimes to reform how we eat, but I promise you that it can be done. Exercise has been shown by a huge body of research to be non-essential to the weight loss process, even though it has a ton of other health benefits. My recommendation is to use tools like MyFitnessPal or CalorieCount to determine how much you should be eating a day as a sedentary person, and you should not gain weight so long as you stick to the guidelines. (Plus, those apps/websites can provide a very useful opportunity for any vulvodynia sufferer to make a food diary. Start keeping track of your pain levels along with the food diary, and you might even discover that there is a food trigger that causes your pain that you hadn't even been aware of previously.) Even if you're unable to exercise, you can get back down to a weight where you feel healthy and happy with your body, it's just a matter of scaling your food intake down to your new energy needs. I know it sounds like a pretty crappy thing to have to do, on top of already having vulvodynia, but I'm sure you'll find before long that eating healthy and losing weight makes you feel better physically. I know it has hugely helped my pain levels to lose weight; though I still have it, it's not nearly as bad as it used to be.

Anyway, I am so sorry you are having a hard time, I know we've all been there before. It definitely can get better, just do whatever you can to remain positive and keep trying new things, okay?


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Re: Exercise ???

Post  zarli on Sun Dec 15, 2013 4:04 am

Thank you Alessandria
I am so grateful for your wise words and the trouble you went to respond to my post.
I have taken on board your advise. I am going to start a food diary.
I just can't work out why every time I have followed strictly to a healthy diet eg. the dukan diet, my vulvodynia neauralgia pain is unbearable. I wonder how psychological this factors on my thinking ?? I lasted 5 weeks on this particular diet I lost 5kg with no exercise but the pain ended up beating me and I gave up. My normal diet is healthy I seldom eat fatty foods although I do indulge in chocolate and breads and pastas at times.

I will look into yoga as I haven't tried this while I have had Vulvodynia.

When I exercise I ware loose pants and I have tried tighter pants but they react the same way. I am just going to stay away from exercise that involves impact.

Once again I thank you for your response, it meant a lot to me while on this journey of hope.
Take Care


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Re: Exercise ???

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