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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Exercise ???

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Exercise ???

Post  zarli on Sat Dec 14, 2013 9:25 am

Hi Girls
Before 'V' I used to walk 5km everyday and was a healthy weight...6 years on I've put on nearly 20kg which is frightening and I can't exercise at all. Every couple of months I have a head rush and try to walk very slowly BUT the next day I'm in excruciating pain. Does any one else have trouble with exercise ???
Also my feet get just as sore as my vagina they burn and the pain is throbbing.

I feel like I don't know what to do anymore...my life is very hard going at present.

I mean the meds control the pain as long as I wear loose pants, don't sit for long, don't stand for long and don't exercise.
I wonder how fat I'll end up being ???
I know I'm lucky the meds work but I just can't imagine what my life is going to be like in another 5,10,15 years??
The pain is so bad at present just from a little walk 2 days ago.

That's my negative rant for the day...sorry.

zarli

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Location : Australia

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Re: Exercise ???

Post  alessandria on Sat Dec 14, 2013 11:03 pm

Hey Zarli! I imagine it'd be quite frustrating to have things get worse with exercise, I'll see what I can suggest here to help out Smile

1) You can get a lot of the health benefits of exercise from things that are less likely to cause vulvodynia flares. I recommend trying something like yoga or pilates which are virtually zero impact exercises, but still will allow you to maintain your fitness and reduce your stress levels. While things like biking and swimming are frequently totally out of the question with vulvodynia, elliptical trainers are a good zero impact way to get an intense cardiovascular workout.

2) Possibly a totally dumb question, but what do you wear to exercise? I very specifically must wear all-cotton, loose underwear and loose shorts when I exercise, or I will definitely get an increase in vulvodynia pain due to the friction and irritation.

3) The wonderful thing about losing weight is that anyone can do it. Seriously, anyone. It is very hard sometimes to reform how we eat, but I promise you that it can be done. Exercise has been shown by a huge body of research to be non-essential to the weight loss process, even though it has a ton of other health benefits. My recommendation is to use tools like MyFitnessPal or CalorieCount to determine how much you should be eating a day as a sedentary person, and you should not gain weight so long as you stick to the guidelines. (Plus, those apps/websites can provide a very useful opportunity for any vulvodynia sufferer to make a food diary. Start keeping track of your pain levels along with the food diary, and you might even discover that there is a food trigger that causes your pain that you hadn't even been aware of previously.) Even if you're unable to exercise, you can get back down to a weight where you feel healthy and happy with your body, it's just a matter of scaling your food intake down to your new energy needs. I know it sounds like a pretty crappy thing to have to do, on top of already having vulvodynia, but I'm sure you'll find before long that eating healthy and losing weight makes you feel better physically. I know it has hugely helped my pain levels to lose weight; though I still have it, it's not nearly as bad as it used to be.

Anyway, I am so sorry you are having a hard time, I know we've all been there before. It definitely can get better, just do whatever you can to remain positive and keep trying new things, okay?

alessandria

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Re: Exercise ???

Post  zarli on Sun Dec 15, 2013 4:04 am

Thank you Alessandria
I am so grateful for your wise words and the trouble you went to respond to my post.
I have taken on board your advise. I am going to start a food diary.
I just can't work out why every time I have followed strictly to a healthy diet eg. the dukan diet, my vulvodynia neauralgia pain is unbearable. I wonder how psychological this factors on my thinking ?? I lasted 5 weeks on this particular diet I lost 5kg with no exercise but the pain ended up beating me and I gave up. My normal diet is healthy I seldom eat fatty foods although I do indulge in chocolate and breads and pastas at times.

I will look into yoga as I haven't tried this while I have had Vulvodynia.

When I exercise I ware loose pants and I have tried tighter pants but they react the same way. I am just going to stay away from exercise that involves impact.

Once again I thank you for your response, it meant a lot to me while on this journey of hope.
Take Care
Zxxx

zarli

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Re: Exercise ???

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