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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Exercise ???

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Exercise ???

Post  zarli on Sat Dec 14, 2013 9:25 am

Hi Girls
Before 'V' I used to walk 5km everyday and was a healthy weight...6 years on I've put on nearly 20kg which is frightening and I can't exercise at all. Every couple of months I have a head rush and try to walk very slowly BUT the next day I'm in excruciating pain. Does any one else have trouble with exercise ???
Also my feet get just as sore as my vagina they burn and the pain is throbbing.

I feel like I don't know what to do anymore...my life is very hard going at present.

I mean the meds control the pain as long as I wear loose pants, don't sit for long, don't stand for long and don't exercise.
I wonder how fat I'll end up being ???
I know I'm lucky the meds work but I just can't imagine what my life is going to be like in another 5,10,15 years??
The pain is so bad at present just from a little walk 2 days ago.

That's my negative rant for the day...sorry.

zarli

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Location : Australia

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Re: Exercise ???

Post  alessandria on Sat Dec 14, 2013 11:03 pm

Hey Zarli! I imagine it'd be quite frustrating to have things get worse with exercise, I'll see what I can suggest here to help out Smile

1) You can get a lot of the health benefits of exercise from things that are less likely to cause vulvodynia flares. I recommend trying something like yoga or pilates which are virtually zero impact exercises, but still will allow you to maintain your fitness and reduce your stress levels. While things like biking and swimming are frequently totally out of the question with vulvodynia, elliptical trainers are a good zero impact way to get an intense cardiovascular workout.

2) Possibly a totally dumb question, but what do you wear to exercise? I very specifically must wear all-cotton, loose underwear and loose shorts when I exercise, or I will definitely get an increase in vulvodynia pain due to the friction and irritation.

3) The wonderful thing about losing weight is that anyone can do it. Seriously, anyone. It is very hard sometimes to reform how we eat, but I promise you that it can be done. Exercise has been shown by a huge body of research to be non-essential to the weight loss process, even though it has a ton of other health benefits. My recommendation is to use tools like MyFitnessPal or CalorieCount to determine how much you should be eating a day as a sedentary person, and you should not gain weight so long as you stick to the guidelines. (Plus, those apps/websites can provide a very useful opportunity for any vulvodynia sufferer to make a food diary. Start keeping track of your pain levels along with the food diary, and you might even discover that there is a food trigger that causes your pain that you hadn't even been aware of previously.) Even if you're unable to exercise, you can get back down to a weight where you feel healthy and happy with your body, it's just a matter of scaling your food intake down to your new energy needs. I know it sounds like a pretty crappy thing to have to do, on top of already having vulvodynia, but I'm sure you'll find before long that eating healthy and losing weight makes you feel better physically. I know it has hugely helped my pain levels to lose weight; though I still have it, it's not nearly as bad as it used to be.

Anyway, I am so sorry you are having a hard time, I know we've all been there before. It definitely can get better, just do whatever you can to remain positive and keep trying new things, okay?

alessandria

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Re: Exercise ???

Post  zarli on Sun Dec 15, 2013 4:04 am

Thank you Alessandria
I am so grateful for your wise words and the trouble you went to respond to my post.
I have taken on board your advise. I am going to start a food diary.
I just can't work out why every time I have followed strictly to a healthy diet eg. the dukan diet, my vulvodynia neauralgia pain is unbearable. I wonder how psychological this factors on my thinking ?? I lasted 5 weeks on this particular diet I lost 5kg with no exercise but the pain ended up beating me and I gave up. My normal diet is healthy I seldom eat fatty foods although I do indulge in chocolate and breads and pastas at times.

I will look into yoga as I haven't tried this while I have had Vulvodynia.

When I exercise I ware loose pants and I have tried tighter pants but they react the same way. I am just going to stay away from exercise that involves impact.

Once again I thank you for your response, it meant a lot to me while on this journey of hope.
Take Care
Zxxx

zarli

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Re: Exercise ???

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