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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


My Christmas Wish

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My Christmas Wish

Post  zarli on Sun Dec 15, 2013 10:26 am

My wish for Christmas is for all of us to have a pain free festive season. For all of us to try and keep our stress levels low and our minds positive. I know while shopping, paying bills, attending graduations ( my third child) work functions and general running around after my beautiful children my stress levels are excessive. My main priority these next couple of weeks is to put my health first. Learning to say NO is hard for me. I am learning that now I have to be positive and well rested. Whether you have children or not our lives can be so busy. Women take on so much and I would take a bet that most of us on here are probably feeling the stress of living with chronic pain as well as normal stress of life. We are all in this together and must be proactive with our positivity where ever possible.

Wishing you all well lovely ladies
Much Love Z xxx

zarli

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Re: My Christmas Wish

Post  tinkerbelle2 on Sun Dec 15, 2013 1:02 pm

I couldn't have said it better Smile exactly my feelings. I care about all of you on this forum! Sending love and best wishes!
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Re: My Christmas Wish

Post  zarli on Thu Dec 19, 2013 11:37 am

Hey Tink
Could you let me know if you get my pm reply to you. I sent it but it is not in my sent box.
xx

zarli

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Re: My Christmas Wish

Post  Fingerscrossed on Fri Dec 20, 2013 4:20 am

I also hope that for everyone. I just had a vestibulectomy on Tuesday, so I'm trying to make some progress with my vulvodynia. I know I won't know if it worked for several weeks yet, but I've been lucky so far this week. The pain has been manageable.

Fingerscrossed

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Re: My Christmas Wish

Post  Alana3 on Fri Dec 20, 2013 1:09 pm

I told you! Congrats you wont start feeling better until 6 weeks after the stitches are out so PATIENCE. Lay low and you'll have good results!

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Re: My Christmas Wish

Post  tinkerbelle2 on Fri Dec 20, 2013 7:08 pm

Congrats on the surgery! Hope it continues to improve.
Zarli - I did get it sorry only just saw it , just replied Smile
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Re: My Christmas Wish

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