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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New and unsure!

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New and unsure!

Post  mollyashlie on Tue Dec 17, 2013 6:20 am

Hey ladies,
I just got diagnosed with vvs after seeing countless doctors and finally a gyno. All my swabs for yeast and bv have come back negative in the past 6 months since my symptoms started... although sometimes (like now) my symptoms feel more like a yeast infection than vulvodynia. I just wonder what you ladies have for symptoms..
I certainly have the tell tale signs like intense pain during intercourse - but sometimes it subsides if I "ride it out" (pun not intended), I also have localized pain in my vaginal entrance, which can be really severe.
but then I have intense intense itching almost non stop... and sometimes I even have a white discharge, nothing bad just... not normal.
My gyno gave me a lidocaine prescription which I will start tomorrow... I've been applying coconut oil but it barely does anything, still taking probiotics just to be sure... was taking them when doctors kept telling me "its probably yeast", even had one doctor assume bv so treated myself for that too. Boric acid would help me for a little bit before... maybe a day before I started feeling itching, but now that doesn't work. Baking soda baths help for a couple hours, I even had three whole days without any symptoms last week, which I think was thanks to two baking soda baths in two days. But mostly trying to keep away from applying to much gunk to my lady parts, because I've been doing that for 6 months straight and nothing has been effective in the long run. My gyno says she thinks its a nerve problem because it started 6 months ago which was when my and my partner got together - and she thinks it was a "traumatic vaginal event" which would make sense because my new partner gave me genital HSV-1 (which is pretty traumatic vaginally and mentally.)
I'm just at a loss and was hoping you could give me feed back on your symptoms!

mollyashlie

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Re: New and unsure!

Post  alessandria on Tue Dec 17, 2013 7:14 am

Hey mollyashlie!

Everyone with VVS has unique symptoms, to the point I'd think that each person on this site probably has a slightly different story. For me, I currently have provoked vaginal opening pain only, and only with penetration (however, I used to be much different, and had generalized pain with inflammation at all times). VVS has a zillion different etiologies, with the only common feature being that it results in pain. A few considerations for your specific case, though:

1) Have you ever gotten your vaginal pH assessed? A too-low vaginal pH can indicate an overabundance of the ordinarily good vaginal flora, lactobacilli acidophilus, and cause something called cytolytic vaginosis. This is a disorder in which the surface layer of vaginal skin (epithelium) is irritated so much by the excessive acidity of the bacteria, it becomes chemically burned and sloughs off. Discharge in this condition looks a lot like yeast discharge, but for an entirely different reason -- it is full of dead epithelial cells, which also have a white and chunky appearance. This is alleviated by sitz baths, which work to elevate vaginal pH. I'd consider finding out if you have any alterations in pH or lactobacillus, if the sitz baths work for you.

2) HSV-1 can be a source of nerve pain, because all herpes viruses make neurons their home upon infection. I don't think there's any body of research on HSV and vulvodynia, but it would make sense for it to cause inflammation to the nerves upon first infection. This may clear up on its own depending on how HSV and your body interact (it is almost always most intense on initial flare, and will stabilize over time; though there are exceptions).

3) Find a doctor you trust and who doesn't trivialize your symptoms, VVS is a challenging experience and you need a good team to work with. Don't be afraid of trying new things, like physical therapy, acupuncture, or changing your diet, because every single person will have a different trigger and therefore most likely a different solution, too. Some people also use surgery, and this is amazingly effective for some women. There is help out there and a light at the end of the tunnel, the key is not giving up.

alessandria

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Re: New and unsure!

Post  tinkerbelle2 on Tue Dec 17, 2013 9:42 am

Hey molly,

Welcome to the forum! I don't have much to suggest to you yet as but im in the same boat as you hun. I've not been able to shed much light on the cause of my own pain (unprovoked burning in vaginal opening & a little inside). It really is horrible, the fact it is constant and a really burning stinging acidic sore pain. It almost feels like a wound. Sad I'm so sick of living with it now. Just know you are not alone and we will get answers. Above poster had some really great suggestions! , I too will take those on board.
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tinkerbelle2

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Re: New and unsure!

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