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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 12

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

New and unsure!

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New and unsure!

Post  mollyashlie on Tue Dec 17, 2013 6:20 am

Hey ladies,
I just got diagnosed with vvs after seeing countless doctors and finally a gyno. All my swabs for yeast and bv have come back negative in the past 6 months since my symptoms started... although sometimes (like now) my symptoms feel more like a yeast infection than vulvodynia. I just wonder what you ladies have for symptoms..
I certainly have the tell tale signs like intense pain during intercourse - but sometimes it subsides if I "ride it out" (pun not intended), I also have localized pain in my vaginal entrance, which can be really severe.
but then I have intense intense itching almost non stop... and sometimes I even have a white discharge, nothing bad just... not normal.
My gyno gave me a lidocaine prescription which I will start tomorrow... I've been applying coconut oil but it barely does anything, still taking probiotics just to be sure... was taking them when doctors kept telling me "its probably yeast", even had one doctor assume bv so treated myself for that too. Boric acid would help me for a little bit before... maybe a day before I started feeling itching, but now that doesn't work. Baking soda baths help for a couple hours, I even had three whole days without any symptoms last week, which I think was thanks to two baking soda baths in two days. But mostly trying to keep away from applying to much gunk to my lady parts, because I've been doing that for 6 months straight and nothing has been effective in the long run. My gyno says she thinks its a nerve problem because it started 6 months ago which was when my and my partner got together - and she thinks it was a "traumatic vaginal event" which would make sense because my new partner gave me genital HSV-1 (which is pretty traumatic vaginally and mentally.)
I'm just at a loss and was hoping you could give me feed back on your symptoms!


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Re: New and unsure!

Post  alessandria on Tue Dec 17, 2013 7:14 am

Hey mollyashlie!

Everyone with VVS has unique symptoms, to the point I'd think that each person on this site probably has a slightly different story. For me, I currently have provoked vaginal opening pain only, and only with penetration (however, I used to be much different, and had generalized pain with inflammation at all times). VVS has a zillion different etiologies, with the only common feature being that it results in pain. A few considerations for your specific case, though:

1) Have you ever gotten your vaginal pH assessed? A too-low vaginal pH can indicate an overabundance of the ordinarily good vaginal flora, lactobacilli acidophilus, and cause something called cytolytic vaginosis. This is a disorder in which the surface layer of vaginal skin (epithelium) is irritated so much by the excessive acidity of the bacteria, it becomes chemically burned and sloughs off. Discharge in this condition looks a lot like yeast discharge, but for an entirely different reason -- it is full of dead epithelial cells, which also have a white and chunky appearance. This is alleviated by sitz baths, which work to elevate vaginal pH. I'd consider finding out if you have any alterations in pH or lactobacillus, if the sitz baths work for you.

2) HSV-1 can be a source of nerve pain, because all herpes viruses make neurons their home upon infection. I don't think there's any body of research on HSV and vulvodynia, but it would make sense for it to cause inflammation to the nerves upon first infection. This may clear up on its own depending on how HSV and your body interact (it is almost always most intense on initial flare, and will stabilize over time; though there are exceptions).

3) Find a doctor you trust and who doesn't trivialize your symptoms, VVS is a challenging experience and you need a good team to work with. Don't be afraid of trying new things, like physical therapy, acupuncture, or changing your diet, because every single person will have a different trigger and therefore most likely a different solution, too. Some people also use surgery, and this is amazingly effective for some women. There is help out there and a light at the end of the tunnel, the key is not giving up.


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Re: New and unsure!

Post  tinkerbelle2 on Tue Dec 17, 2013 9:42 am

Hey molly,

Welcome to the forum! I don't have much to suggest to you yet as but im in the same boat as you hun. I've not been able to shed much light on the cause of my own pain (unprovoked burning in vaginal opening & a little inside). It really is horrible, the fact it is constant and a really burning stinging acidic sore pain. It almost feels like a wound. Sad I'm so sick of living with it now. Just know you are not alone and we will get answers. Above poster had some really great suggestions! , I too will take those on board.

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Re: New and unsure!

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