Log in

I forgot my password

Latest topics
» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


New and unsure!

View previous topic View next topic Go down

New and unsure!

Post  mollyashlie on Tue Dec 17, 2013 6:20 am

Hey ladies,
I just got diagnosed with vvs after seeing countless doctors and finally a gyno. All my swabs for yeast and bv have come back negative in the past 6 months since my symptoms started... although sometimes (like now) my symptoms feel more like a yeast infection than vulvodynia. I just wonder what you ladies have for symptoms..
I certainly have the tell tale signs like intense pain during intercourse - but sometimes it subsides if I "ride it out" (pun not intended), I also have localized pain in my vaginal entrance, which can be really severe.
but then I have intense intense itching almost non stop... and sometimes I even have a white discharge, nothing bad just... not normal.
My gyno gave me a lidocaine prescription which I will start tomorrow... I've been applying coconut oil but it barely does anything, still taking probiotics just to be sure... was taking them when doctors kept telling me "its probably yeast", even had one doctor assume bv so treated myself for that too. Boric acid would help me for a little bit before... maybe a day before I started feeling itching, but now that doesn't work. Baking soda baths help for a couple hours, I even had three whole days without any symptoms last week, which I think was thanks to two baking soda baths in two days. But mostly trying to keep away from applying to much gunk to my lady parts, because I've been doing that for 6 months straight and nothing has been effective in the long run. My gyno says she thinks its a nerve problem because it started 6 months ago which was when my and my partner got together - and she thinks it was a "traumatic vaginal event" which would make sense because my new partner gave me genital HSV-1 (which is pretty traumatic vaginally and mentally.)
I'm just at a loss and was hoping you could give me feed back on your symptoms!

mollyashlie

Posts : 1
Join date : 2013-12-17

View user profile

Back to top Go down

Re: New and unsure!

Post  alessandria on Tue Dec 17, 2013 7:14 am

Hey mollyashlie!

Everyone with VVS has unique symptoms, to the point I'd think that each person on this site probably has a slightly different story. For me, I currently have provoked vaginal opening pain only, and only with penetration (however, I used to be much different, and had generalized pain with inflammation at all times). VVS has a zillion different etiologies, with the only common feature being that it results in pain. A few considerations for your specific case, though:

1) Have you ever gotten your vaginal pH assessed? A too-low vaginal pH can indicate an overabundance of the ordinarily good vaginal flora, lactobacilli acidophilus, and cause something called cytolytic vaginosis. This is a disorder in which the surface layer of vaginal skin (epithelium) is irritated so much by the excessive acidity of the bacteria, it becomes chemically burned and sloughs off. Discharge in this condition looks a lot like yeast discharge, but for an entirely different reason -- it is full of dead epithelial cells, which also have a white and chunky appearance. This is alleviated by sitz baths, which work to elevate vaginal pH. I'd consider finding out if you have any alterations in pH or lactobacillus, if the sitz baths work for you.

2) HSV-1 can be a source of nerve pain, because all herpes viruses make neurons their home upon infection. I don't think there's any body of research on HSV and vulvodynia, but it would make sense for it to cause inflammation to the nerves upon first infection. This may clear up on its own depending on how HSV and your body interact (it is almost always most intense on initial flare, and will stabilize over time; though there are exceptions).

3) Find a doctor you trust and who doesn't trivialize your symptoms, VVS is a challenging experience and you need a good team to work with. Don't be afraid of trying new things, like physical therapy, acupuncture, or changing your diet, because every single person will have a different trigger and therefore most likely a different solution, too. Some people also use surgery, and this is amazingly effective for some women. There is help out there and a light at the end of the tunnel, the key is not giving up.

alessandria

Posts : 39
Join date : 2013-12-07

View user profile

Back to top Go down

Re: New and unsure!

Post  tinkerbelle2 on Tue Dec 17, 2013 9:42 am

Hey molly,

Welcome to the forum! I don't have much to suggest to you yet as but im in the same boat as you hun. I've not been able to shed much light on the cause of my own pain (unprovoked burning in vaginal opening & a little inside). It really is horrible, the fact it is constant and a really burning stinging acidic sore pain. It almost feels like a wound. Sad I'm so sick of living with it now. Just know you are not alone and we will get answers. Above poster had some really great suggestions! , I too will take those on board.
avatar
tinkerbelle2

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: New and unsure!

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum