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» UK Vulvodynia Clinics
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» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


New and unsure!

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New and unsure!

Post  mollyashlie on Tue Dec 17, 2013 6:20 am

Hey ladies,
I just got diagnosed with vvs after seeing countless doctors and finally a gyno. All my swabs for yeast and bv have come back negative in the past 6 months since my symptoms started... although sometimes (like now) my symptoms feel more like a yeast infection than vulvodynia. I just wonder what you ladies have for symptoms..
I certainly have the tell tale signs like intense pain during intercourse - but sometimes it subsides if I "ride it out" (pun not intended), I also have localized pain in my vaginal entrance, which can be really severe.
but then I have intense intense itching almost non stop... and sometimes I even have a white discharge, nothing bad just... not normal.
My gyno gave me a lidocaine prescription which I will start tomorrow... I've been applying coconut oil but it barely does anything, still taking probiotics just to be sure... was taking them when doctors kept telling me "its probably yeast", even had one doctor assume bv so treated myself for that too. Boric acid would help me for a little bit before... maybe a day before I started feeling itching, but now that doesn't work. Baking soda baths help for a couple hours, I even had three whole days without any symptoms last week, which I think was thanks to two baking soda baths in two days. But mostly trying to keep away from applying to much gunk to my lady parts, because I've been doing that for 6 months straight and nothing has been effective in the long run. My gyno says she thinks its a nerve problem because it started 6 months ago which was when my and my partner got together - and she thinks it was a "traumatic vaginal event" which would make sense because my new partner gave me genital HSV-1 (which is pretty traumatic vaginally and mentally.)
I'm just at a loss and was hoping you could give me feed back on your symptoms!

mollyashlie

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Re: New and unsure!

Post  alessandria on Tue Dec 17, 2013 7:14 am

Hey mollyashlie!

Everyone with VVS has unique symptoms, to the point I'd think that each person on this site probably has a slightly different story. For me, I currently have provoked vaginal opening pain only, and only with penetration (however, I used to be much different, and had generalized pain with inflammation at all times). VVS has a zillion different etiologies, with the only common feature being that it results in pain. A few considerations for your specific case, though:

1) Have you ever gotten your vaginal pH assessed? A too-low vaginal pH can indicate an overabundance of the ordinarily good vaginal flora, lactobacilli acidophilus, and cause something called cytolytic vaginosis. This is a disorder in which the surface layer of vaginal skin (epithelium) is irritated so much by the excessive acidity of the bacteria, it becomes chemically burned and sloughs off. Discharge in this condition looks a lot like yeast discharge, but for an entirely different reason -- it is full of dead epithelial cells, which also have a white and chunky appearance. This is alleviated by sitz baths, which work to elevate vaginal pH. I'd consider finding out if you have any alterations in pH or lactobacillus, if the sitz baths work for you.

2) HSV-1 can be a source of nerve pain, because all herpes viruses make neurons their home upon infection. I don't think there's any body of research on HSV and vulvodynia, but it would make sense for it to cause inflammation to the nerves upon first infection. This may clear up on its own depending on how HSV and your body interact (it is almost always most intense on initial flare, and will stabilize over time; though there are exceptions).

3) Find a doctor you trust and who doesn't trivialize your symptoms, VVS is a challenging experience and you need a good team to work with. Don't be afraid of trying new things, like physical therapy, acupuncture, or changing your diet, because every single person will have a different trigger and therefore most likely a different solution, too. Some people also use surgery, and this is amazingly effective for some women. There is help out there and a light at the end of the tunnel, the key is not giving up.

alessandria

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Re: New and unsure!

Post  tinkerbelle2 on Tue Dec 17, 2013 9:42 am

Hey molly,

Welcome to the forum! I don't have much to suggest to you yet as but im in the same boat as you hun. I've not been able to shed much light on the cause of my own pain (unprovoked burning in vaginal opening & a little inside). It really is horrible, the fact it is constant and a really burning stinging acidic sore pain. It almost feels like a wound. Sad I'm so sick of living with it now. Just know you are not alone and we will get answers. Above poster had some really great suggestions! , I too will take those on board.
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tinkerbelle2

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Re: New and unsure!

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