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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Has anyone been to PT after the surgery?

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Has anyone been to PT after the surgery?

Post  21andcounting on Mon Dec 23, 2013 2:00 am

I just had a vestibulectomy and am starting to think about what the long term recovery process will be like. I know dilators are recommended after the surgery, but I'm unsure if that will be enough to get me back to normal. Any thoughts or experience with this?

21andcounting

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Re: Has anyone been to PT after the surgery?

Post  Alana3 on Mon Dec 23, 2013 5:54 pm

First you JUST had the surgery you cant do any of that for at least 6 weeks. After 6 weeks I was told to do both PT and dilators. But again this is something you have to discuss with your doctors because its two different things. PT and dilators help if you have vaginisums, this helps your muscles. The surgery you had has nothing to do with muscles BUT you may still have muscular problems. Discuss with your doc what you should do. It worked for me, but I was specifically told to go.

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Re: Has anyone been to PT after the surgery?

Post  21andcounting on Mon Dec 23, 2013 6:04 pm

Thanks Alana!

Yes, I meant after the 6 week mark, or as long as it takes to get the ok from my doctor. Did you struggle with vaginismus before the surgery as well? When I went to PT last time it didn't really help since my issues were only minimally muscular. I'm predicting that the surgery will fuel up a lot of pain anticipation anxiety, and bring back some of my old muscular problems, so it's very likely that they will recommend that I try it. How long were you in PT for?

21andcounting

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Re: Has anyone been to PT after the surgery?

Post  Alana3 on Mon Dec 23, 2013 6:31 pm

A few months, I got fed up with it and than was able to have sex so fuck it. Yeah, you'll probably be anxious, dilating helped me feel that there was nothing worth getting scared about. Hows your recovery going? Not that bad right??

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Re: Has anyone been to PT after the surgery?

Post  21andcounting on Mon Dec 23, 2013 7:31 pm

It's going better then I expected. The first week was really rough but it totally turned around around day 8 and now I'm hardly in pain anymore. Not that mobile but i'm sure i'll get there.

21andcounting

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Re: Has anyone been to PT after the surgery?

Post  Alana3 on Mon Dec 23, 2013 7:48 pm

Really? I heal quick though so maybe that's why but I also made myself do stuff when I could and I was done with recovery by 5 and a half weeks. But everyone is different and the important thing is you will feel soooo much better in a few weeks!  Smile 

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Re: Has anyone been to PT after the surgery?

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