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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Has anyone been to PT after the surgery?

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Has anyone been to PT after the surgery?

Post  21andcounting on Mon Dec 23, 2013 2:00 am

I just had a vestibulectomy and am starting to think about what the long term recovery process will be like. I know dilators are recommended after the surgery, but I'm unsure if that will be enough to get me back to normal. Any thoughts or experience with this?

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Re: Has anyone been to PT after the surgery?

Post  Alana3 on Mon Dec 23, 2013 5:54 pm

First you JUST had the surgery you cant do any of that for at least 6 weeks. After 6 weeks I was told to do both PT and dilators. But again this is something you have to discuss with your doctors because its two different things. PT and dilators help if you have vaginisums, this helps your muscles. The surgery you had has nothing to do with muscles BUT you may still have muscular problems. Discuss with your doc what you should do. It worked for me, but I was specifically told to go.

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Re: Has anyone been to PT after the surgery?

Post  21andcounting on Mon Dec 23, 2013 6:04 pm

Thanks Alana!

Yes, I meant after the 6 week mark, or as long as it takes to get the ok from my doctor. Did you struggle with vaginismus before the surgery as well? When I went to PT last time it didn't really help since my issues were only minimally muscular. I'm predicting that the surgery will fuel up a lot of pain anticipation anxiety, and bring back some of my old muscular problems, so it's very likely that they will recommend that I try it. How long were you in PT for?

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Re: Has anyone been to PT after the surgery?

Post  Alana3 on Mon Dec 23, 2013 6:31 pm

A few months, I got fed up with it and than was able to have sex so fuck it. Yeah, you'll probably be anxious, dilating helped me feel that there was nothing worth getting scared about. Hows your recovery going? Not that bad right??

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Re: Has anyone been to PT after the surgery?

Post  21andcounting on Mon Dec 23, 2013 7:31 pm

It's going better then I expected. The first week was really rough but it totally turned around around day 8 and now I'm hardly in pain anymore. Not that mobile but i'm sure i'll get there.

21andcounting

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Re: Has anyone been to PT after the surgery?

Post  Alana3 on Mon Dec 23, 2013 7:48 pm

Really? I heal quick though so maybe that's why but I also made myself do stuff when I could and I was done with recovery by 5 and a half weeks. But everyone is different and the important thing is you will feel soooo much better in a few weeks!  Smile 

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Re: Has anyone been to PT after the surgery?

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