Vulvodynia Support
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» Hope to all my suffering ladies
Has anyone been to PT after the surgery? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Has anyone been to PT after the surgery? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Has anyone been to PT after the surgery? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Has anyone been to PT after the surgery? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Has anyone been to PT after the surgery? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Has anyone been to PT after the surgery? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Has anyone been to PT after the surgery? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Has anyone been to PT after the surgery? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Has anyone been to PT after the surgery? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Has anyone been to PT after the surgery?

2 posters

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Has anyone been to PT after the surgery? Empty Has anyone been to PT after the surgery?

Post  21andcounting Mon Dec 23, 2013 2:00 am

I just had a vestibulectomy and am starting to think about what the long term recovery process will be like. I know dilators are recommended after the surgery, but I'm unsure if that will be enough to get me back to normal. Any thoughts or experience with this?

21andcounting

Posts : 17
Join date : 2013-12-05

http://vvsthestruggleisreal.wordpress.com

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Has anyone been to PT after the surgery? Empty Re: Has anyone been to PT after the surgery?

Post  Alana3 Mon Dec 23, 2013 5:54 pm

First you JUST had the surgery you cant do any of that for at least 6 weeks. After 6 weeks I was told to do both PT and dilators. But again this is something you have to discuss with your doctors because its two different things. PT and dilators help if you have vaginisums, this helps your muscles. The surgery you had has nothing to do with muscles BUT you may still have muscular problems. Discuss with your doc what you should do. It worked for me, but I was specifically told to go.

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  21andcounting Mon Dec 23, 2013 6:04 pm

Thanks Alana!

Yes, I meant after the 6 week mark, or as long as it takes to get the ok from my doctor. Did you struggle with vaginismus before the surgery as well? When I went to PT last time it didn't really help since my issues were only minimally muscular. I'm predicting that the surgery will fuel up a lot of pain anticipation anxiety, and bring back some of my old muscular problems, so it's very likely that they will recommend that I try it. How long were you in PT for?

21andcounting

Posts : 17
Join date : 2013-12-05

http://vvsthestruggleisreal.wordpress.com

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Post  Alana3 Mon Dec 23, 2013 6:31 pm

A few months, I got fed up with it and than was able to have sex so fuck it. Yeah, you'll probably be anxious, dilating helped me feel that there was nothing worth getting scared about. Hows your recovery going? Not that bad right??

Alana3

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Join date : 2012-09-25

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Post  21andcounting Mon Dec 23, 2013 7:31 pm

It's going better then I expected. The first week was really rough but it totally turned around around day 8 and now I'm hardly in pain anymore. Not that mobile but i'm sure i'll get there.

21andcounting

Posts : 17
Join date : 2013-12-05

http://vvsthestruggleisreal.wordpress.com

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Post  Alana3 Mon Dec 23, 2013 7:48 pm

Really? I heal quick though so maybe that's why but I also made myself do stuff when I could and I was done with recovery by 5 and a half weeks. But everyone is different and the important thing is you will feel soooo much better in a few weeks!  Smile 

Alana3

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