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» I don't know what to do anymore
Today at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Has anyone been to PT after the surgery?

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Has anyone been to PT after the surgery?

Post  21andcounting on Mon Dec 23, 2013 2:00 am

I just had a vestibulectomy and am starting to think about what the long term recovery process will be like. I know dilators are recommended after the surgery, but I'm unsure if that will be enough to get me back to normal. Any thoughts or experience with this?

21andcounting

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Re: Has anyone been to PT after the surgery?

Post  Alana3 on Mon Dec 23, 2013 5:54 pm

First you JUST had the surgery you cant do any of that for at least 6 weeks. After 6 weeks I was told to do both PT and dilators. But again this is something you have to discuss with your doctors because its two different things. PT and dilators help if you have vaginisums, this helps your muscles. The surgery you had has nothing to do with muscles BUT you may still have muscular problems. Discuss with your doc what you should do. It worked for me, but I was specifically told to go.

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Re: Has anyone been to PT after the surgery?

Post  21andcounting on Mon Dec 23, 2013 6:04 pm

Thanks Alana!

Yes, I meant after the 6 week mark, or as long as it takes to get the ok from my doctor. Did you struggle with vaginismus before the surgery as well? When I went to PT last time it didn't really help since my issues were only minimally muscular. I'm predicting that the surgery will fuel up a lot of pain anticipation anxiety, and bring back some of my old muscular problems, so it's very likely that they will recommend that I try it. How long were you in PT for?

21andcounting

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Re: Has anyone been to PT after the surgery?

Post  Alana3 on Mon Dec 23, 2013 6:31 pm

A few months, I got fed up with it and than was able to have sex so fuck it. Yeah, you'll probably be anxious, dilating helped me feel that there was nothing worth getting scared about. Hows your recovery going? Not that bad right??

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Re: Has anyone been to PT after the surgery?

Post  21andcounting on Mon Dec 23, 2013 7:31 pm

It's going better then I expected. The first week was really rough but it totally turned around around day 8 and now I'm hardly in pain anymore. Not that mobile but i'm sure i'll get there.

21andcounting

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Re: Has anyone been to PT after the surgery?

Post  Alana3 on Mon Dec 23, 2013 7:48 pm

Really? I heal quick though so maybe that's why but I also made myself do stuff when I could and I was done with recovery by 5 and a half weeks. But everyone is different and the important thing is you will feel soooo much better in a few weeks!  Smile 

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Re: Has anyone been to PT after the surgery?

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