Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Got Married and Got the Surgery EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Got Married and Got the Surgery EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Got Married and Got the Surgery EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Got Married and Got the Surgery EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Got Married and Got the Surgery EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Got Married and Got the Surgery EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Got Married and Got the Surgery EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Got Married and Got the Surgery EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Got Married and Got the Surgery EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Got Married and Got the Surgery

2 posters

Go down

Got Married and Got the Surgery Empty Got Married and Got the Surgery

Post  orchid27 Tue Dec 31, 2013 3:58 pm

Hi everyone!

I met my husband over 8 years, and I think my symptoms started 7 years ago. I had a strong burning/sharp pain at the very entrance of my vagina that only hurt when touched. Having provoked it over the years I started to avoid things that hurt, which meant no sex. My then fiancé convinced me to seek help and I was very hesitant as I thought it was all in my head. I saw a therapist, a MD, a gynecologist, and a pelvic wall therapist before the word Vestibulitis was thrown around. I saw another group of doctors for about 2 months before we realized nothing topical (creams, gels) or internal (muscle relaxers, antidepressant/antianxiety) were working. They said I was a surgery candidate.
I got married in September, right after hearing the news, and had a completely sexless honeymoon. When we returned I was scheduled for a Vestibulectomy for December 23rd. I was so anxious waiting months for a surgery that might not work.
When the day arrived on surgery day I was told my doctor decided to try using a laser to remove the painful nerves and skin instead of the traditional full incision. He said with my case, it was a very viable option and would make my recovery easier, and that it would be good to try first considering neither surgery is guaranteed to work. I'm sure this was supposed to sound encouraging, but I am still worried about failure.
I am a week into my recovery and am seeing improvement. I go in next week for a post op appointment to check my progress. I know how helpful it is to be able to talk to other women who are going through similar things. I've only been able to talk to my husband and mother about my condition and surgery. If anyone has words of encouragement having gone through the surgery already, I would love to hear them. Also, if anyone out there is considering the surgery but weary, I would be happy to share my experience and words of encouragement with you as well!
Thanks for letting me share.

orchid27

Posts : 7
Join date : 2013-12-31

Back to top Go down

Got Married and Got the Surgery Empty Re: Got Married and Got the Surgery

Post  Alana3 Tue Dec 31, 2013 5:26 pm

I had mine a year ago the recovery is emotional but once you get the "youre ok" it works. I have pain free sex now and got my yeast under control too. Now I just have to have deal with endo! But in comparison, its not as bad. If you have any specific questions feel free to ask!

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Got Married and Got the Surgery Empty Re: Got Married and Got the Surgery

Post  orchid27 Tue Dec 31, 2013 7:15 pm

I'm so glad to hear that! Thank you! Did you have the full surgery? I'm dreading the laser being less effective. How long after the 6 week recovery were you able to have sex?

orchid27

Posts : 7
Join date : 2013-12-31

Back to top Go down

Got Married and Got the Surgery Empty Re: Got Married and Got the Surgery

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum