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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Got Married and Got the Surgery

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Got Married and Got the Surgery

Post  orchid27 on Tue Dec 31, 2013 3:58 pm

Hi everyone!

I met my husband over 8 years, and I think my symptoms started 7 years ago. I had a strong burning/sharp pain at the very entrance of my vagina that only hurt when touched. Having provoked it over the years I started to avoid things that hurt, which meant no sex. My then fiancé convinced me to seek help and I was very hesitant as I thought it was all in my head. I saw a therapist, a MD, a gynecologist, and a pelvic wall therapist before the word Vestibulitis was thrown around. I saw another group of doctors for about 2 months before we realized nothing topical (creams, gels) or internal (muscle relaxers, antidepressant/antianxiety) were working. They said I was a surgery candidate.
I got married in September, right after hearing the news, and had a completely sexless honeymoon. When we returned I was scheduled for a Vestibulectomy for December 23rd. I was so anxious waiting months for a surgery that might not work.
When the day arrived on surgery day I was told my doctor decided to try using a laser to remove the painful nerves and skin instead of the traditional full incision. He said with my case, it was a very viable option and would make my recovery easier, and that it would be good to try first considering neither surgery is guaranteed to work. I'm sure this was supposed to sound encouraging, but I am still worried about failure.
I am a week into my recovery and am seeing improvement. I go in next week for a post op appointment to check my progress. I know how helpful it is to be able to talk to other women who are going through similar things. I've only been able to talk to my husband and mother about my condition and surgery. If anyone has words of encouragement having gone through the surgery already, I would love to hear them. Also, if anyone out there is considering the surgery but weary, I would be happy to share my experience and words of encouragement with you as well!
Thanks for letting me share.

orchid27

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Re: Got Married and Got the Surgery

Post  Alana3 on Tue Dec 31, 2013 5:26 pm

I had mine a year ago the recovery is emotional but once you get the "youre ok" it works. I have pain free sex now and got my yeast under control too. Now I just have to have deal with endo! But in comparison, its not as bad. If you have any specific questions feel free to ask!

Alana3

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Re: Got Married and Got the Surgery

Post  orchid27 on Tue Dec 31, 2013 7:15 pm

I'm so glad to hear that! Thank you! Did you have the full surgery? I'm dreading the laser being less effective. How long after the 6 week recovery were you able to have sex?

orchid27

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Re: Got Married and Got the Surgery

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