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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Got Married and Got the Surgery

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Got Married and Got the Surgery

Post  orchid27 on Tue Dec 31, 2013 3:58 pm

Hi everyone!

I met my husband over 8 years, and I think my symptoms started 7 years ago. I had a strong burning/sharp pain at the very entrance of my vagina that only hurt when touched. Having provoked it over the years I started to avoid things that hurt, which meant no sex. My then fiancé convinced me to seek help and I was very hesitant as I thought it was all in my head. I saw a therapist, a MD, a gynecologist, and a pelvic wall therapist before the word Vestibulitis was thrown around. I saw another group of doctors for about 2 months before we realized nothing topical (creams, gels) or internal (muscle relaxers, antidepressant/antianxiety) were working. They said I was a surgery candidate.
I got married in September, right after hearing the news, and had a completely sexless honeymoon. When we returned I was scheduled for a Vestibulectomy for December 23rd. I was so anxious waiting months for a surgery that might not work.
When the day arrived on surgery day I was told my doctor decided to try using a laser to remove the painful nerves and skin instead of the traditional full incision. He said with my case, it was a very viable option and would make my recovery easier, and that it would be good to try first considering neither surgery is guaranteed to work. I'm sure this was supposed to sound encouraging, but I am still worried about failure.
I am a week into my recovery and am seeing improvement. I go in next week for a post op appointment to check my progress. I know how helpful it is to be able to talk to other women who are going through similar things. I've only been able to talk to my husband and mother about my condition and surgery. If anyone has words of encouragement having gone through the surgery already, I would love to hear them. Also, if anyone out there is considering the surgery but weary, I would be happy to share my experience and words of encouragement with you as well!
Thanks for letting me share.


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Re: Got Married and Got the Surgery

Post  Alana3 on Tue Dec 31, 2013 5:26 pm

I had mine a year ago the recovery is emotional but once you get the "youre ok" it works. I have pain free sex now and got my yeast under control too. Now I just have to have deal with endo! But in comparison, its not as bad. If you have any specific questions feel free to ask!


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Re: Got Married and Got the Surgery

Post  orchid27 on Tue Dec 31, 2013 7:15 pm

I'm so glad to hear that! Thank you! Did you have the full surgery? I'm dreading the laser being less effective. How long after the 6 week recovery were you able to have sex?


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Re: Got Married and Got the Surgery

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