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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Got Married and Got the Surgery

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Got Married and Got the Surgery

Post  orchid27 on Tue Dec 31, 2013 3:58 pm

Hi everyone!

I met my husband over 8 years, and I think my symptoms started 7 years ago. I had a strong burning/sharp pain at the very entrance of my vagina that only hurt when touched. Having provoked it over the years I started to avoid things that hurt, which meant no sex. My then fiancé convinced me to seek help and I was very hesitant as I thought it was all in my head. I saw a therapist, a MD, a gynecologist, and a pelvic wall therapist before the word Vestibulitis was thrown around. I saw another group of doctors for about 2 months before we realized nothing topical (creams, gels) or internal (muscle relaxers, antidepressant/antianxiety) were working. They said I was a surgery candidate.
I got married in September, right after hearing the news, and had a completely sexless honeymoon. When we returned I was scheduled for a Vestibulectomy for December 23rd. I was so anxious waiting months for a surgery that might not work.
When the day arrived on surgery day I was told my doctor decided to try using a laser to remove the painful nerves and skin instead of the traditional full incision. He said with my case, it was a very viable option and would make my recovery easier, and that it would be good to try first considering neither surgery is guaranteed to work. I'm sure this was supposed to sound encouraging, but I am still worried about failure.
I am a week into my recovery and am seeing improvement. I go in next week for a post op appointment to check my progress. I know how helpful it is to be able to talk to other women who are going through similar things. I've only been able to talk to my husband and mother about my condition and surgery. If anyone has words of encouragement having gone through the surgery already, I would love to hear them. Also, if anyone out there is considering the surgery but weary, I would be happy to share my experience and words of encouragement with you as well!
Thanks for letting me share.

orchid27

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Re: Got Married and Got the Surgery

Post  Alana3 on Tue Dec 31, 2013 5:26 pm

I had mine a year ago the recovery is emotional but once you get the "youre ok" it works. I have pain free sex now and got my yeast under control too. Now I just have to have deal with endo! But in comparison, its not as bad. If you have any specific questions feel free to ask!

Alana3

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Re: Got Married and Got the Surgery

Post  orchid27 on Tue Dec 31, 2013 7:15 pm

I'm so glad to hear that! Thank you! Did you have the full surgery? I'm dreading the laser being less effective. How long after the 6 week recovery were you able to have sex?

orchid27

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Re: Got Married and Got the Surgery

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