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    » It feels like I’m going to have pain forever
    Mon Jul 16, 2018 12:11 pm by mhhh

    » It feels like I’m going to have pain forever
    Mon Jul 16, 2018 10:01 am by dunkelma

    » It feels like I’m going to have pain forever
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    » Gabapentin gel and pregnancy
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    » From a concerned husband
    Fri Jul 13, 2018 6:02 pm by emalita

    From a concerned husband

    Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

    Hello everyone,

    This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

    I’m sure a lot …

    Comments: 1

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 9

    Hi girls! New in this forum

    Fri Jul 13, 2018 2:31 pm by Gaby

    Hi everyone!

    Also joining the V club, Here my story:

    It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

    Comments: 0

    Newbie and feeling helpless

    Wed Jul 11, 2018 1:52 pm by Taylor1

    Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

    Comments: 1

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 5

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0


    I'm kicking the habit

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    I'm kicking the habit

    Post  Mouse on Wed Oct 20, 2010 2:28 pm

    Today I needed a new prescription of Gabapentin, I phoned the Dr's surgery and was told I was breaking a cardinal rule by phoning and not emailing "didn't I know the correct proceedure? so many patients rah rah". Well actually I don't know the correct proceedure *insert appropriate swear words* you fucken moron *oh ok it appears I do need to say them as well*. My experience with anything pharmaceutical is very limited. I told the nasty cow that they weren't working anyway so I'm expecting when I hear back from my GP I will have to increase the dose.

    SO I kicked them. I'd forgotten to take one at midday anyway, didn't take one last night and here I am on the computer at 3am. I can't sleep, needed the loo and have a rotten stomach ache. I know it says do not stop taking them so I guess weaning off is the answer.

    Do these drugs ever work? When I had Ami I was a complete mess now with the Gabapentin the side effects aren't as harsh but I feel like a blowfish, I'm getting chubbier by the minute, I'm light sensitive, feel like my brain is being reprogrammed (go figure) .....but not in a good way. I'm emotional and we all know my therapist said I don't have any emotions so they can F$%@ right off.

    Are the flaming drugs worse than the thunder down under? I read an article on chronic pain today. It says a bit about becoming isolated and withdrawing from people. I haven't seen my family in months because everything seems to annoy me these days and I just prefer to stay at home.

    Hmmmm so maybe I'll try getting off the sofa, try to find some endorphins - if only they came in liquid form and I could mix them with vodka. And maybe since I'm feeling particularly brave I'll try to take some control back... if that fails I have my therapist next week to pick up the pieces.

    Check out the article - this was in the Feb edition of my fav magazine which I now buy to look at the pictures because I can't concentrate. Apparently there are articles as well.

    http://www.mindfood.com/at-chronic-pain-ruling-life-health-body.seo

    Mouse

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    Re: I'm kicking the habit

    Post  jules on Thu Nov 11, 2010 5:43 am

    Hi Mouse,

    i am getting back online after taking a break for a few weeks. no break from pain, just too busy. just wondering did you go back on the gabepentin. I know it is not a good idea to just stop taking them. how many miligrams were you on? how are you doing pain-wise off this med.? for me, this was the med that cut my pain in half. it was the first med that gave me hope w/ no side effects at all. but, it took 3000 mgs for me to get some relief. i'm still on it, but also take lyrica. the lyrica is making me gain weight and i don't think it is working too well. i'd like to try Cymbata. i plan to talk w/ my doc soon. i can't believe you can call a clinic to get medication etc. it sounds like you all have a lot of barriers to obtaining the necessary health care and medication. it is not fair. did you go off Gabepentin completely? looking for a update.

    jules

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    Re: I'm kicking the habit

    Post  jules on Thu Nov 11, 2010 6:00 am

    Mouse, thanks for the article on pain. I found it interesting that women have lower pain thresholds then men. Everything in the article rang true.

    jules

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    Re: I'm kicking the habit

    Post  Mouse on Fri Nov 12, 2010 9:05 am

    Hi Jules,

    I'm glad you liked the article. In the current edition there's an article on meditation. I'm doing really well with that now. In fact I think I might be a convert - which is great because without it I may have become a convict... hmmm anger issues Smile

    The drugs have gone, I was on 900mgs. I had a letter from my specialist saying it could take up to 3 x times that to have any effect. Too late! The squiffiness was from the other shite disease and it lasted 10 bloody days ahhhh nasty. As for the pain, after a month of constant crap it's been fairly mild for the few weeks and this includes just having my period. I'm also not working now so have REALLY reduced my stress levels.

    I've been here before I might add.

    Mouse

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    Re: I'm kicking the habit

    Post  jules on Sat Nov 13, 2010 2:16 am

    Glad to hear your pain has decreased. My P.T. wants me to work on relaxation which goes hand in hand w/ meditation. I am so not the relaxation type. i have a high stress full-time job that probably does not make things any better. keep me posted on your pain.

    jules

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    Re: I'm kicking the habit

    Post  Mouse on Sat Nov 13, 2010 3:05 am

    Hey Jules, believe me I'm not the meditation type either. I have trouble concentrating on anything these days. For a couple of months I skirted around the mindfulness but now I can really do it! It took a bit of persistance because I really didn't think it was for me. And then out of the blue I did 15 minutes without opening one eye every few seconds to look at the clock.

    It now makes perfect sense to me to work on calming the voices in my head. I think the mind/body connection is the best place to start looking for an answer. I've been working on destressing, taking time out, eating healthier, cutting back on coffee and alcohol. We have natural feel good chemicals which I'm trying to tap into now I've shied away from doing the drugs. I don't know what my specialist will say when I tell her so I feel like I now have to own the outcome of that decision.

    Does it make sense to you that with a high stress job and a chronic pain condition you need to cut your body some slack. Stress manifests in so many ways, without it we would be dead but too much is a killer also.

    How about you humour me and give it a go? Even if it's learning some relaxation breathing. My aim is to take some control back. I really hope you give it some thought. If I could find a Mindfulness course I would sign all my friends up as their christmas present. I'd have to round them up by pretending there was alcohol. There would be some swearing, maybe some tantrums and a few "just give another f%$#*n candle" BUT I can guarantee it would change a few lives.

    Mouse

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    Re: I'm kicking the habit

    Post  jules on Mon Nov 22, 2010 4:04 am

    hi Mouse,

    i haven't been on for awhile...again. i'm with you on the meditation. i will try. i actually need to because my P.T. is requesting me to. i have to pay attention to my breathing and relax. i should also cut out some of the alcohol and caffeine out. notice i say the word "should." i need to eat healthier and drink less etc. will work on it. in the meantime, i have been in pain today and depressed this past week. i am hoping for anti depressants when i see my doc next week. i need something to get me through.

    how are things w/ you lately?

    jules

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    Re: I'm kicking the habit

    Post  Mouse on Mon Nov 22, 2010 7:18 am

    Hey Jules,

    Lovely to hear from you. I hope you are feeling better, this fucken sucks the life out doesn't it.

    I've had 3 really good weeks with low pain then today has been shite. More stress and a shit nights sleep and here we go again.

    I've downloaded some meditation. It's really good to have some guided ones. I'm going to buy this one I think.

    http://www.meditationforbeginners.info/mindfulness-meditation-for-pain-relief-guided-practices-for-reclaiming-your-body-and-your-life/

    http://www.mindfulnessdvd.com/chronic-pain-article.html

    I got completely ratfaced on Saturday night! Aahhhhh maybe that was the trigger? FFS!

    Take care
    Vicki

    Mouse

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    Re: I'm kicking the habit

    Post  jules on Thu Nov 25, 2010 5:41 pm

    personally, i have never noticed a difference in pain as to when i'm not drinking for a period of time or when i do drink (pain-wise). Currently, i have a damn yeast infection (thrush, for those England folks). It is so hard to decipher the yeast infection symptoms between the Vulvodynia symptoms. I was in lots of pain and not too comfy. I got a prescription for Diflucan and now i'm hoping it goes bye-bye soon. What i wouldn't do to give away my woman parts for free. they cause more problems then they are worth. the pain was horrific the other night, but not as bad today. So today is Thanksgiving Day in the US. Today we all eat a huge meal w/ probably about 3000 calories and recognize what we are thankful for. So...getting prepared to stuff my gut w/ food at our relative's home. Fun!

    Thanks for the links. will look later. haven't done much relaxing, but i have worked out and that makes me feel good...gets the stress out...even thought there is some pain associated w/ it.

    have a great day!

    jules

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    Re: I'm kicking the habit

    Post  Mouse on Thu Nov 25, 2010 7:37 pm

    Happy Thanksgiving hon, I hope you managed to enjoy the food and the family Smile I hope you did some "real" smiling, if not faking it is fine hahhaaa.

    It's funny that a lot of the women on the vulvodynia sites have constant yeast infections. One day we'll figure it out. I read an article about the effects of refined sugar on the body woohooo. I think a diet of bread and water might be the answer - if gluten wasn't toxic and you never know what's in the water!

    Kid wants laptop BRB

    Mouse

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    Re: I'm kicking the habit

    Post  Mouse on Thu Nov 25, 2010 8:37 pm

    Right that's the kid dispatched to his last 2 exams, the summer holidays will begin this afternoon! UGH, no more peace and quiet although he does sleep until lunch time and spends the rest of the day food seeking. One more year of high school for him and then empty nest for us. Oh yeah!

    Stress is making a big comeback in this house. I'm finding it really hard to relax which is stupid because I'm not working. I've been to my therapist this week and she thinks I'm almost normal - imagine that. So a bit of panic is starting to set in because I'm pretty sure I'll suck at flying solo. I'm also about to kill the cat - the anger issues are back! The flaming thing is scratching the window next to me which makes the most annoying sound in the world. The door is open, she just wants to get in a different way. Anyway so giving up therapy is frightening the bejesus out of me. Todays happy thoughts are: this is never going away, I can't share this mess with my friends, I'll never be able to cope with working. I'm about to give myself a slap.

    I could happily give away my bits as well, the pain is everywhere at the moment. Since Mondays episode, it's a moving target.

    So Jules, it's bloody meditation time Smile

    Mouse

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    Re: I'm kicking the habit

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