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    » Can you guys tell me your experiences with diflucan/Fluconazole?
    Yesterday at 1:29 am by ryn207

    » So frustrating!!
    Yesterday at 1:25 am by ryn207

    » Looking for suggestions or encouragement
    Yesterday at 1:19 am by ryn207

    » Looking for a friend..... and new problems
    Mon Jan 15, 2018 10:00 pm by VVSSufferer

    » Vestibulectomy recovery question!
    Sun Jan 14, 2018 11:37 pm by Kezz

    » Prescription creams that work!
    Sun Jan 14, 2018 4:46 am by Mintaherb

    » Struggling
    Sun Jan 14, 2018 4:29 am by Mintaherb

    » Went Away and Came Back
    Sat Jan 13, 2018 10:56 am by mary jane

    » Amitriptyline given for vulvodyina pain
    Sat Jan 13, 2018 1:39 am by ryn207

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 5

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11

    7 years later and life looks bleak :(

    Wed Dec 06, 2017 2:50 am by RainyShay77

    So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

    Comments: 7

    Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

    Sun Jan 07, 2018 9:38 am by sophiarp

    Hi everyone,

    I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

    I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

    Comments: 2

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 11

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Hello,
    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1


    I'm kicking the habit

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    I'm kicking the habit

    Post  Mouse on Wed Oct 20, 2010 2:28 pm

    Today I needed a new prescription of Gabapentin, I phoned the Dr's surgery and was told I was breaking a cardinal rule by phoning and not emailing "didn't I know the correct proceedure? so many patients rah rah". Well actually I don't know the correct proceedure *insert appropriate swear words* you fucken moron *oh ok it appears I do need to say them as well*. My experience with anything pharmaceutical is very limited. I told the nasty cow that they weren't working anyway so I'm expecting when I hear back from my GP I will have to increase the dose.

    SO I kicked them. I'd forgotten to take one at midday anyway, didn't take one last night and here I am on the computer at 3am. I can't sleep, needed the loo and have a rotten stomach ache. I know it says do not stop taking them so I guess weaning off is the answer.

    Do these drugs ever work? When I had Ami I was a complete mess now with the Gabapentin the side effects aren't as harsh but I feel like a blowfish, I'm getting chubbier by the minute, I'm light sensitive, feel like my brain is being reprogrammed (go figure) .....but not in a good way. I'm emotional and we all know my therapist said I don't have any emotions so they can F$%@ right off.

    Are the flaming drugs worse than the thunder down under? I read an article on chronic pain today. It says a bit about becoming isolated and withdrawing from people. I haven't seen my family in months because everything seems to annoy me these days and I just prefer to stay at home.

    Hmmmm so maybe I'll try getting off the sofa, try to find some endorphins - if only they came in liquid form and I could mix them with vodka. And maybe since I'm feeling particularly brave I'll try to take some control back... if that fails I have my therapist next week to pick up the pieces.

    Check out the article - this was in the Feb edition of my fav magazine which I now buy to look at the pictures because I can't concentrate. Apparently there are articles as well.

    http://www.mindfood.com/at-chronic-pain-ruling-life-health-body.seo

    Mouse

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    Re: I'm kicking the habit

    Post  jules on Thu Nov 11, 2010 5:43 am

    Hi Mouse,

    i am getting back online after taking a break for a few weeks. no break from pain, just too busy. just wondering did you go back on the gabepentin. I know it is not a good idea to just stop taking them. how many miligrams were you on? how are you doing pain-wise off this med.? for me, this was the med that cut my pain in half. it was the first med that gave me hope w/ no side effects at all. but, it took 3000 mgs for me to get some relief. i'm still on it, but also take lyrica. the lyrica is making me gain weight and i don't think it is working too well. i'd like to try Cymbata. i plan to talk w/ my doc soon. i can't believe you can call a clinic to get medication etc. it sounds like you all have a lot of barriers to obtaining the necessary health care and medication. it is not fair. did you go off Gabepentin completely? looking for a update.

    jules

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    Re: I'm kicking the habit

    Post  jules on Thu Nov 11, 2010 6:00 am

    Mouse, thanks for the article on pain. I found it interesting that women have lower pain thresholds then men. Everything in the article rang true.

    jules

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    Re: I'm kicking the habit

    Post  Mouse on Fri Nov 12, 2010 9:05 am

    Hi Jules,

    I'm glad you liked the article. In the current edition there's an article on meditation. I'm doing really well with that now. In fact I think I might be a convert - which is great because without it I may have become a convict... hmmm anger issues Smile

    The drugs have gone, I was on 900mgs. I had a letter from my specialist saying it could take up to 3 x times that to have any effect. Too late! The squiffiness was from the other shite disease and it lasted 10 bloody days ahhhh nasty. As for the pain, after a month of constant crap it's been fairly mild for the few weeks and this includes just having my period. I'm also not working now so have REALLY reduced my stress levels.

    I've been here before I might add.

    Mouse

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    Re: I'm kicking the habit

    Post  jules on Sat Nov 13, 2010 2:16 am

    Glad to hear your pain has decreased. My P.T. wants me to work on relaxation which goes hand in hand w/ meditation. I am so not the relaxation type. i have a high stress full-time job that probably does not make things any better. keep me posted on your pain.

    jules

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    Re: I'm kicking the habit

    Post  Mouse on Sat Nov 13, 2010 3:05 am

    Hey Jules, believe me I'm not the meditation type either. I have trouble concentrating on anything these days. For a couple of months I skirted around the mindfulness but now I can really do it! It took a bit of persistance because I really didn't think it was for me. And then out of the blue I did 15 minutes without opening one eye every few seconds to look at the clock.

    It now makes perfect sense to me to work on calming the voices in my head. I think the mind/body connection is the best place to start looking for an answer. I've been working on destressing, taking time out, eating healthier, cutting back on coffee and alcohol. We have natural feel good chemicals which I'm trying to tap into now I've shied away from doing the drugs. I don't know what my specialist will say when I tell her so I feel like I now have to own the outcome of that decision.

    Does it make sense to you that with a high stress job and a chronic pain condition you need to cut your body some slack. Stress manifests in so many ways, without it we would be dead but too much is a killer also.

    How about you humour me and give it a go? Even if it's learning some relaxation breathing. My aim is to take some control back. I really hope you give it some thought. If I could find a Mindfulness course I would sign all my friends up as their christmas present. I'd have to round them up by pretending there was alcohol. There would be some swearing, maybe some tantrums and a few "just give another f%$#*n candle" BUT I can guarantee it would change a few lives.

    Mouse

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    Re: I'm kicking the habit

    Post  jules on Mon Nov 22, 2010 4:04 am

    hi Mouse,

    i haven't been on for awhile...again. i'm with you on the meditation. i will try. i actually need to because my P.T. is requesting me to. i have to pay attention to my breathing and relax. i should also cut out some of the alcohol and caffeine out. notice i say the word "should." i need to eat healthier and drink less etc. will work on it. in the meantime, i have been in pain today and depressed this past week. i am hoping for anti depressants when i see my doc next week. i need something to get me through.

    how are things w/ you lately?

    jules

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    Re: I'm kicking the habit

    Post  Mouse on Mon Nov 22, 2010 7:18 am

    Hey Jules,

    Lovely to hear from you. I hope you are feeling better, this fucken sucks the life out doesn't it.

    I've had 3 really good weeks with low pain then today has been shite. More stress and a shit nights sleep and here we go again.

    I've downloaded some meditation. It's really good to have some guided ones. I'm going to buy this one I think.

    http://www.meditationforbeginners.info/mindfulness-meditation-for-pain-relief-guided-practices-for-reclaiming-your-body-and-your-life/

    http://www.mindfulnessdvd.com/chronic-pain-article.html

    I got completely ratfaced on Saturday night! Aahhhhh maybe that was the trigger? FFS!

    Take care
    Vicki

    Mouse

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    Re: I'm kicking the habit

    Post  jules on Thu Nov 25, 2010 5:41 pm

    personally, i have never noticed a difference in pain as to when i'm not drinking for a period of time or when i do drink (pain-wise). Currently, i have a damn yeast infection (thrush, for those England folks). It is so hard to decipher the yeast infection symptoms between the Vulvodynia symptoms. I was in lots of pain and not too comfy. I got a prescription for Diflucan and now i'm hoping it goes bye-bye soon. What i wouldn't do to give away my woman parts for free. they cause more problems then they are worth. the pain was horrific the other night, but not as bad today. So today is Thanksgiving Day in the US. Today we all eat a huge meal w/ probably about 3000 calories and recognize what we are thankful for. So...getting prepared to stuff my gut w/ food at our relative's home. Fun!

    Thanks for the links. will look later. haven't done much relaxing, but i have worked out and that makes me feel good...gets the stress out...even thought there is some pain associated w/ it.

    have a great day!

    jules

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    Re: I'm kicking the habit

    Post  Mouse on Thu Nov 25, 2010 7:37 pm

    Happy Thanksgiving hon, I hope you managed to enjoy the food and the family Smile I hope you did some "real" smiling, if not faking it is fine hahhaaa.

    It's funny that a lot of the women on the vulvodynia sites have constant yeast infections. One day we'll figure it out. I read an article about the effects of refined sugar on the body woohooo. I think a diet of bread and water might be the answer - if gluten wasn't toxic and you never know what's in the water!

    Kid wants laptop BRB

    Mouse

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    Re: I'm kicking the habit

    Post  Mouse on Thu Nov 25, 2010 8:37 pm

    Right that's the kid dispatched to his last 2 exams, the summer holidays will begin this afternoon! UGH, no more peace and quiet although he does sleep until lunch time and spends the rest of the day food seeking. One more year of high school for him and then empty nest for us. Oh yeah!

    Stress is making a big comeback in this house. I'm finding it really hard to relax which is stupid because I'm not working. I've been to my therapist this week and she thinks I'm almost normal - imagine that. So a bit of panic is starting to set in because I'm pretty sure I'll suck at flying solo. I'm also about to kill the cat - the anger issues are back! The flaming thing is scratching the window next to me which makes the most annoying sound in the world. The door is open, she just wants to get in a different way. Anyway so giving up therapy is frightening the bejesus out of me. Todays happy thoughts are: this is never going away, I can't share this mess with my friends, I'll never be able to cope with working. I'm about to give myself a slap.

    I could happily give away my bits as well, the pain is everywhere at the moment. Since Mondays episode, it's a moving target.

    So Jules, it's bloody meditation time Smile

    Mouse

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    Re: I'm kicking the habit

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