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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


SINCE I WAS 5

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SINCE I WAS 5

Post  omgitszoee on Sun Jan 05, 2014 9:11 am

Hello.. my names zoe (:
I have been going to the doctors with this problem since I was 5 ! back then they just assumed it was cystitis. as it got older it got more often, I was just when I got nervous and excited and now its a constant pain. im now 20 but I wasn't diagnosed until I was 16 !

Im on Gabapentin but im at the highest dose im aloud. I also have to take co-codamol most days. I Hate it so much as its very hard for me to keep a job because of how un reliable I can be Sad
luckily my current boss is very understanding but I hate letting her down and missing out on the money!

Im currentl seeing a physio who is very interested. she said I can tighten my pelvic floor but it takes a long time to relax? she has given me some exercise to do but this last week ive been off work every day with the pain !

ive not been abused or had any trauma as a child so I have no idea why it started so early. does it eventually just go away? I can not go out with friends because I must know I can get home if I need to and if I get too excited it will come on. ive not been able to drink like a normal teenager and I just want my life back :'(

when the pain is very bad I find the only thing that helps is holding ice on my fufu !!
Has anyone else had it for such a long time? how old where you all when you got vulvadynia?

omgitszoee

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Re: SINCE I WAS 5

Post  mary jane on Mon Jan 06, 2014 11:06 pm

aww you poor thing,only 19....i'm 26 and have had this crap for 5 months. I'm doing my second univ. but I manage by resting A LOT and taking medication.

you don't say what your symptoms are ....there is a big forum for intersitial cistytis with helpful posts, a lot of the girls there have overlapping conditions like urethra pain and vulvodynia, etc.

ic-network.com

I honestly recommend you to try a urogynaecologist

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Re: SINCE I WAS 5

Post  Alana3 on Mon Jan 06, 2014 11:44 pm

I used to not be able to drink either than it went away... I have no idea why. I used to get a lot of bladder infections but...? They went away I guess

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Re: SINCE I WAS 5

Post  Alana3 on Mon Jan 06, 2014 11:44 pm

That wasnt helpful just trying to say you arent alone!

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Re: SINCE I WAS 5

Post  omgitszoee on Tue Jan 07, 2014 4:18 pm

thanks guys its good to know im not alone !
ive had my urine tested by the doctors a lot and no hope Sad

the exercise ive been given doesnt work as ive had 5 days of work off in the last 3 weeks !!

Hopefully next time i go to the physio she will try somthing else
Thnks though !

omgitszoee

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Re: SINCE I WAS 5

Post  omgitszoee on Tue Jan 07, 2014 4:19 pm

and it sort of feels like im being hit in the fufu with a spikey hammer thats on fire !! weird description

omgitszoee

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Re: since I was 5

Post  Sunflower82 on Sun Feb 02, 2014 8:49 pm

Dear Zoe,
Sorry to hear u have suffered for so long, I have had problems since I was 21 and I'm 32! I also suffered from cystitis when I was young about 8 ish I think ! Are u seeing a women's health Physio? What type of exercises were u doing! I've seen a women's health Physio for a couple of years now in the beginning it did get worse before it got better, half way through when I could know longer go I saw a Physio on the Nhs and it really didn't work out I didn't feel she listen to what I had to say and it seemed to be a set pattern of treatment,I had three sessions and the pain was so bad!

I stuck with the private Physio and this make a huge difference !

Hope this helps

Kt

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Re: SINCE I WAS 5

Post  omgitszoee on Tue Feb 04, 2014 5:36 pm

Awwah thats good to hear that someone else had it so young!! Yes im seeing a nhs one but she is great, she says we will sort it this year!! Ive been given some dialators to try! If they don't help she is sending me for scans to see if its a trapped nerve! Xx

omgitszoee

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Re: SINCE I WAS 5

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