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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Laying down

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Laying down

Post  907hopeful on Mon Jan 06, 2014 3:17 am

I have vaginal burning, irritation and sometimes pain. I have also recently started having urethral pain - stinging and constant urge to go, although it does not sting badly when I do go. It seems my symptoms really calm down when I am lying down. Anybody else experience this? Any theories as to why I feel better laying down? I have slept a lot this weekend, but I have two kids to take care of and a job that is really important to me. Not to mention a house that is going to shit around me. I can spend the rest of my life laying down!!


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Re: Laying down

Post  Alana3 on Mon Jan 06, 2014 11:31 am

Since you're not on the go it makes sense it wouldn't hurt. That's common. When you are in the go remind yourself to relax have you done pt? They give you breathing exercises to help you that you can do when it starts to hurt.


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Re: Laying down

Post  mary jane on Mon Jan 06, 2014 11:05 pm

pudendal neuralgia presents as such, but I HIGHLY doubt you have such a thing so not even worth thinking about it.

there is another girl with similar symptoms such as yourself on this blog, however she is not close to any answers after 6 years:
mary jane

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Post  907hopeful on Tue Jan 07, 2014 12:45 am

I have a history of lower back, tailbone, hip pain so pudenal nerve issues would not be too far fetched. I am hoping its muscle related and not so much nerve. I went to see a dermatologist today to get another opinion. She did not see anything out if the ordinary, however she also is not a genital dermatology specialist either. She thinks I may have vulvodynia. So now it's one dr for vestibulitis, one for skin irritation /issues and one for vulvodynia. I have been hesitant to fly out of state to see a specialist but it sounds like it is coming down to that. My next appt (#9 in 4 months) is on the 15th. They squeezed me in early - thank goodness!! I spoke to her nurse this morning and she said she has experience w/ the two v's and she thought she would do what she could to work with me. I am trying not to get my hopes up too much.


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Re: Laying down

Post  zarli on Tue Jan 07, 2014 8:49 am

Hi it doesn't hurt to get your hopes up as long as they are realistic. Being in a positive mind space helps so much. I am always trying new things and I try to stay very positive. I am actually worse laying down as soon as I do I have the urge to go and then I lay down again and then I go again this goes on for about 6/7 wees !!! Valium in a small dose helps me when I am getting tired from night after night of this. I believe its a nerve thing with me and that Vulvodynia for me is the cause of all my weird symptoms. At this moment I have had terrible neuralgia type pain all day at work my vagina has literally been throbbing for 9 hours, I couldn't sit down as it makes it worse and then my feet especially my heals burn and throb like crazy....

Any way we must muster on and do our best blah blah blah.....

Best wishes to you Z


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Re: Laying down

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