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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Laying down

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Laying down

Post  907hopeful on Mon Jan 06, 2014 3:17 am

I have vaginal burning, irritation and sometimes pain. I have also recently started having urethral pain - stinging and constant urge to go, although it does not sting badly when I do go. It seems my symptoms really calm down when I am lying down. Anybody else experience this? Any theories as to why I feel better laying down? I have slept a lot this weekend, but I have two kids to take care of and a job that is really important to me. Not to mention a house that is going to shit around me. I can spend the rest of my life laying down!!


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Re: Laying down

Post  Alana3 on Mon Jan 06, 2014 11:31 am

Since you're not on the go it makes sense it wouldn't hurt. That's common. When you are in the go remind yourself to relax have you done pt? They give you breathing exercises to help you that you can do when it starts to hurt.


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Re: Laying down

Post  mary jane on Mon Jan 06, 2014 11:05 pm

pudendal neuralgia presents as such, but I HIGHLY doubt you have such a thing so not even worth thinking about it.

there is another girl with similar symptoms such as yourself on this blog, however she is not close to any answers after 6 years:
mary jane

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Post  907hopeful on Tue Jan 07, 2014 12:45 am

I have a history of lower back, tailbone, hip pain so pudenal nerve issues would not be too far fetched. I am hoping its muscle related and not so much nerve. I went to see a dermatologist today to get another opinion. She did not see anything out if the ordinary, however she also is not a genital dermatology specialist either. She thinks I may have vulvodynia. So now it's one dr for vestibulitis, one for skin irritation /issues and one for vulvodynia. I have been hesitant to fly out of state to see a specialist but it sounds like it is coming down to that. My next appt (#9 in 4 months) is on the 15th. They squeezed me in early - thank goodness!! I spoke to her nurse this morning and she said she has experience w/ the two v's and she thought she would do what she could to work with me. I am trying not to get my hopes up too much.


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Re: Laying down

Post  zarli on Tue Jan 07, 2014 8:49 am

Hi it doesn't hurt to get your hopes up as long as they are realistic. Being in a positive mind space helps so much. I am always trying new things and I try to stay very positive. I am actually worse laying down as soon as I do I have the urge to go and then I lay down again and then I go again this goes on for about 6/7 wees !!! Valium in a small dose helps me when I am getting tired from night after night of this. I believe its a nerve thing with me and that Vulvodynia for me is the cause of all my weird symptoms. At this moment I have had terrible neuralgia type pain all day at work my vagina has literally been throbbing for 9 hours, I couldn't sit down as it makes it worse and then my feet especially my heals burn and throb like crazy....

Any way we must muster on and do our best blah blah blah.....

Best wishes to you Z


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Re: Laying down

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