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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Laying down

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Laying down

Post  907hopeful on Mon Jan 06, 2014 3:17 am

I have vaginal burning, irritation and sometimes pain. I have also recently started having urethral pain - stinging and constant urge to go, although it does not sting badly when I do go. It seems my symptoms really calm down when I am lying down. Anybody else experience this? Any theories as to why I feel better laying down? I have slept a lot this weekend, but I have two kids to take care of and a job that is really important to me. Not to mention a house that is going to shit around me. I can spend the rest of my life laying down!!


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Re: Laying down

Post  Alana3 on Mon Jan 06, 2014 11:31 am

Since you're not on the go it makes sense it wouldn't hurt. That's common. When you are in the go remind yourself to relax have you done pt? They give you breathing exercises to help you that you can do when it starts to hurt.


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Re: Laying down

Post  mary jane on Mon Jan 06, 2014 11:05 pm

pudendal neuralgia presents as such, but I HIGHLY doubt you have such a thing so not even worth thinking about it.

there is another girl with similar symptoms such as yourself on this blog, however she is not close to any answers after 6 years:
mary jane

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Post  907hopeful on Tue Jan 07, 2014 12:45 am

I have a history of lower back, tailbone, hip pain so pudenal nerve issues would not be too far fetched. I am hoping its muscle related and not so much nerve. I went to see a dermatologist today to get another opinion. She did not see anything out if the ordinary, however she also is not a genital dermatology specialist either. She thinks I may have vulvodynia. So now it's one dr for vestibulitis, one for skin irritation /issues and one for vulvodynia. I have been hesitant to fly out of state to see a specialist but it sounds like it is coming down to that. My next appt (#9 in 4 months) is on the 15th. They squeezed me in early - thank goodness!! I spoke to her nurse this morning and she said she has experience w/ the two v's and she thought she would do what she could to work with me. I am trying not to get my hopes up too much.


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Re: Laying down

Post  zarli on Tue Jan 07, 2014 8:49 am

Hi it doesn't hurt to get your hopes up as long as they are realistic. Being in a positive mind space helps so much. I am always trying new things and I try to stay very positive. I am actually worse laying down as soon as I do I have the urge to go and then I lay down again and then I go again this goes on for about 6/7 wees !!! Valium in a small dose helps me when I am getting tired from night after night of this. I believe its a nerve thing with me and that Vulvodynia for me is the cause of all my weird symptoms. At this moment I have had terrible neuralgia type pain all day at work my vagina has literally been throbbing for 9 hours, I couldn't sit down as it makes it worse and then my feet especially my heals burn and throb like crazy....

Any way we must muster on and do our best blah blah blah.....

Best wishes to you Z


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Re: Laying down

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