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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Laying down

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Laying down

Post  907hopeful on Mon Jan 06, 2014 3:17 am

I have vaginal burning, irritation and sometimes pain. I have also recently started having urethral pain - stinging and constant urge to go, although it does not sting badly when I do go. It seems my symptoms really calm down when I am lying down. Anybody else experience this? Any theories as to why I feel better laying down? I have slept a lot this weekend, but I have two kids to take care of and a job that is really important to me. Not to mention a house that is going to shit around me. I can spend the rest of my life laying down!!


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Re: Laying down

Post  Alana3 on Mon Jan 06, 2014 11:31 am

Since you're not on the go it makes sense it wouldn't hurt. That's common. When you are in the go remind yourself to relax have you done pt? They give you breathing exercises to help you that you can do when it starts to hurt.


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Re: Laying down

Post  mary jane on Mon Jan 06, 2014 11:05 pm

pudendal neuralgia presents as such, but I HIGHLY doubt you have such a thing so not even worth thinking about it.

there is another girl with similar symptoms such as yourself on this blog, however she is not close to any answers after 6 years:
mary jane

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Post  907hopeful on Tue Jan 07, 2014 12:45 am

I have a history of lower back, tailbone, hip pain so pudenal nerve issues would not be too far fetched. I am hoping its muscle related and not so much nerve. I went to see a dermatologist today to get another opinion. She did not see anything out if the ordinary, however she also is not a genital dermatology specialist either. She thinks I may have vulvodynia. So now it's one dr for vestibulitis, one for skin irritation /issues and one for vulvodynia. I have been hesitant to fly out of state to see a specialist but it sounds like it is coming down to that. My next appt (#9 in 4 months) is on the 15th. They squeezed me in early - thank goodness!! I spoke to her nurse this morning and she said she has experience w/ the two v's and she thought she would do what she could to work with me. I am trying not to get my hopes up too much.


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Re: Laying down

Post  zarli on Tue Jan 07, 2014 8:49 am

Hi it doesn't hurt to get your hopes up as long as they are realistic. Being in a positive mind space helps so much. I am always trying new things and I try to stay very positive. I am actually worse laying down as soon as I do I have the urge to go and then I lay down again and then I go again this goes on for about 6/7 wees !!! Valium in a small dose helps me when I am getting tired from night after night of this. I believe its a nerve thing with me and that Vulvodynia for me is the cause of all my weird symptoms. At this moment I have had terrible neuralgia type pain all day at work my vagina has literally been throbbing for 9 hours, I couldn't sit down as it makes it worse and then my feet especially my heals burn and throb like crazy....

Any way we must muster on and do our best blah blah blah.....

Best wishes to you Z


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Re: Laying down

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