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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Laying down

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Laying down

Post  907hopeful on Mon Jan 06, 2014 3:17 am

I have vaginal burning, irritation and sometimes pain. I have also recently started having urethral pain - stinging and constant urge to go, although it does not sting badly when I do go. It seems my symptoms really calm down when I am lying down. Anybody else experience this? Any theories as to why I feel better laying down? I have slept a lot this weekend, but I have two kids to take care of and a job that is really important to me. Not to mention a house that is going to shit around me. I can spend the rest of my life laying down!!


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Re: Laying down

Post  Alana3 on Mon Jan 06, 2014 11:31 am

Since you're not on the go it makes sense it wouldn't hurt. That's common. When you are in the go remind yourself to relax have you done pt? They give you breathing exercises to help you that you can do when it starts to hurt.


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Re: Laying down

Post  mary jane on Mon Jan 06, 2014 11:05 pm

pudendal neuralgia presents as such, but I HIGHLY doubt you have such a thing so not even worth thinking about it.

there is another girl with similar symptoms such as yourself on this blog, however she is not close to any answers after 6 years:
mary jane

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Post  907hopeful on Tue Jan 07, 2014 12:45 am

I have a history of lower back, tailbone, hip pain so pudenal nerve issues would not be too far fetched. I am hoping its muscle related and not so much nerve. I went to see a dermatologist today to get another opinion. She did not see anything out if the ordinary, however she also is not a genital dermatology specialist either. She thinks I may have vulvodynia. So now it's one dr for vestibulitis, one for skin irritation /issues and one for vulvodynia. I have been hesitant to fly out of state to see a specialist but it sounds like it is coming down to that. My next appt (#9 in 4 months) is on the 15th. They squeezed me in early - thank goodness!! I spoke to her nurse this morning and she said she has experience w/ the two v's and she thought she would do what she could to work with me. I am trying not to get my hopes up too much.


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Re: Laying down

Post  zarli on Tue Jan 07, 2014 8:49 am

Hi it doesn't hurt to get your hopes up as long as they are realistic. Being in a positive mind space helps so much. I am always trying new things and I try to stay very positive. I am actually worse laying down as soon as I do I have the urge to go and then I lay down again and then I go again this goes on for about 6/7 wees !!! Valium in a small dose helps me when I am getting tired from night after night of this. I believe its a nerve thing with me and that Vulvodynia for me is the cause of all my weird symptoms. At this moment I have had terrible neuralgia type pain all day at work my vagina has literally been throbbing for 9 hours, I couldn't sit down as it makes it worse and then my feet especially my heals burn and throb like crazy....

Any way we must muster on and do our best blah blah blah.....

Best wishes to you Z


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Re: Laying down

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