Log in

I forgot my password

Latest topics
» Change in birth control question
Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Go down


Post  ellle on Tue Jan 07, 2014 8:39 am

I'm 20 years old and living in Australia.

I was recently diagnosed with vulvodynia after several trips to the doctors and finally to a gynaecologist who put me on 10mg endep to start pain management.
I didn't realise at the time how much of an effect this would have on my life. My doctor sort of played it off as though it is incredibly common and easy to live with, but recently I am finding this to be false.
I've been in a relationship with my partner for over a year now and although he is incredibly supportive I find myself feeling guilty and useless in the relationship because we have virtuallly no sex life.
I'm going to have to go back to the doctors to have my pain medication increased as it has not helped in the slightest.

I need advice. A lot of it. I need tips on how to deal with the depression, the anxiousness and the pain!
What do you guys find works for you? What makes it worse.

Much love, elle x


Posts : 1
Join date : 2014-01-07

View user profile

Back to top Go down

Re: Struggling

Post  zarli on Tue Jan 07, 2014 9:08 am

Hi Elle
I am also from Australia. I also started on 10 mg amil but you usually won't get any relief until you get up to 25/30mg. I have heard of a lot of people who gave up on it because they didn't up their dose and couldn't handle the tiredness but persevere if you can and I am sure you will get relief. My pain was constant and only mildly irritated with sex so I am alittle different to you. My pain was debilitating and Amiltriptyline saved my life I took 35mg for 4 years with only flare ups if I sat for too long or wore jeans or tight pants etc. I made the mistake of not trying to find out the cause of my V and took it for granted the meds would get rid of it. But when I tried to wean off the Amil my V came back with a vengeance. It is IMPORTANT to remember we are all different and different things will work for different people. I am a lot older than you and had a very extremely stressful situation in my life which made my V worse or maybe even created it to begin with.

Please don't get scared or frightened because your Vulvodynia could disappear over night. Remember a lot of people who get cured don't go on these forums any more. I think you need to get pain relief FIRST and then have a good look at your life style etc for what may have triggered it for you.
I know of a great vulva pain specialist in Melbourne that I would highly recommend you to try, but I don't know where your from.
I am here for you, you are not alone on this journey.
Best Wishes Zarli


Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

I'm with you

Post  907hopeful on Wed Jan 08, 2014 5:59 am

Elle - I am in the same boat as you. This is a recent problem for me and I still haven't had my diagnosis confirmed - I think it is a skin issue turned into vulvodynia. Still searching for a dr that will work with me. It's hard to stay positive and I think reading on the internet makes it even harder. There are some people out there that do a great job of providing support and giving you the reassurance that you are not the only one going through this, but it can be very depressing to read about the severe cases that are going years w/ no relief. Unfortunately most of the people posting things online are those still struggling. I am really trying to limit my online searching to only medical websites and articles otherwise my sanity is going to suffer even more than it already has! I am sure I will continue to check back here , but I need to work on building my mental strength back up to tackle this issue with all I have. I have been letting the negativity of my situation bring me down too much! Best wishes to you Elle. Try your best to stay positive and I will do the same.


Posts : 17
Join date : 2014-01-03

View user profile

Back to top Go down

Re: Struggling

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum