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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


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Post  ellle on Tue Jan 07, 2014 8:39 am

I'm 20 years old and living in Australia.

I was recently diagnosed with vulvodynia after several trips to the doctors and finally to a gynaecologist who put me on 10mg endep to start pain management.
I didn't realise at the time how much of an effect this would have on my life. My doctor sort of played it off as though it is incredibly common and easy to live with, but recently I am finding this to be false.
I've been in a relationship with my partner for over a year now and although he is incredibly supportive I find myself feeling guilty and useless in the relationship because we have virtuallly no sex life.
I'm going to have to go back to the doctors to have my pain medication increased as it has not helped in the slightest.

I need advice. A lot of it. I need tips on how to deal with the depression, the anxiousness and the pain!
What do you guys find works for you? What makes it worse.

Much love, elle x


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Re: Struggling

Post  zarli on Tue Jan 07, 2014 9:08 am

Hi Elle
I am also from Australia. I also started on 10 mg amil but you usually won't get any relief until you get up to 25/30mg. I have heard of a lot of people who gave up on it because they didn't up their dose and couldn't handle the tiredness but persevere if you can and I am sure you will get relief. My pain was constant and only mildly irritated with sex so I am alittle different to you. My pain was debilitating and Amiltriptyline saved my life I took 35mg for 4 years with only flare ups if I sat for too long or wore jeans or tight pants etc. I made the mistake of not trying to find out the cause of my V and took it for granted the meds would get rid of it. But when I tried to wean off the Amil my V came back with a vengeance. It is IMPORTANT to remember we are all different and different things will work for different people. I am a lot older than you and had a very extremely stressful situation in my life which made my V worse or maybe even created it to begin with.

Please don't get scared or frightened because your Vulvodynia could disappear over night. Remember a lot of people who get cured don't go on these forums any more. I think you need to get pain relief FIRST and then have a good look at your life style etc for what may have triggered it for you.
I know of a great vulva pain specialist in Melbourne that I would highly recommend you to try, but I don't know where your from.
I am here for you, you are not alone on this journey.
Best Wishes Zarli


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I'm with you

Post  907hopeful on Wed Jan 08, 2014 5:59 am

Elle - I am in the same boat as you. This is a recent problem for me and I still haven't had my diagnosis confirmed - I think it is a skin issue turned into vulvodynia. Still searching for a dr that will work with me. It's hard to stay positive and I think reading on the internet makes it even harder. There are some people out there that do a great job of providing support and giving you the reassurance that you are not the only one going through this, but it can be very depressing to read about the severe cases that are going years w/ no relief. Unfortunately most of the people posting things online are those still struggling. I am really trying to limit my online searching to only medical websites and articles otherwise my sanity is going to suffer even more than it already has! I am sure I will continue to check back here , but I need to work on building my mental strength back up to tackle this issue with all I have. I have been letting the negativity of my situation bring me down too much! Best wishes to you Elle. Try your best to stay positive and I will do the same.


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Re: Struggling

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