Log in

I forgot my password

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3


Go down


Post  ellle on Tue Jan 07, 2014 8:39 am

I'm 20 years old and living in Australia.

I was recently diagnosed with vulvodynia after several trips to the doctors and finally to a gynaecologist who put me on 10mg endep to start pain management.
I didn't realise at the time how much of an effect this would have on my life. My doctor sort of played it off as though it is incredibly common and easy to live with, but recently I am finding this to be false.
I've been in a relationship with my partner for over a year now and although he is incredibly supportive I find myself feeling guilty and useless in the relationship because we have virtuallly no sex life.
I'm going to have to go back to the doctors to have my pain medication increased as it has not helped in the slightest.

I need advice. A lot of it. I need tips on how to deal with the depression, the anxiousness and the pain!
What do you guys find works for you? What makes it worse.

Much love, elle x


Posts : 1
Join date : 2014-01-07

View user profile

Back to top Go down

Re: Struggling

Post  zarli on Tue Jan 07, 2014 9:08 am

Hi Elle
I am also from Australia. I also started on 10 mg amil but you usually won't get any relief until you get up to 25/30mg. I have heard of a lot of people who gave up on it because they didn't up their dose and couldn't handle the tiredness but persevere if you can and I am sure you will get relief. My pain was constant and only mildly irritated with sex so I am alittle different to you. My pain was debilitating and Amiltriptyline saved my life I took 35mg for 4 years with only flare ups if I sat for too long or wore jeans or tight pants etc. I made the mistake of not trying to find out the cause of my V and took it for granted the meds would get rid of it. But when I tried to wean off the Amil my V came back with a vengeance. It is IMPORTANT to remember we are all different and different things will work for different people. I am a lot older than you and had a very extremely stressful situation in my life which made my V worse or maybe even created it to begin with.

Please don't get scared or frightened because your Vulvodynia could disappear over night. Remember a lot of people who get cured don't go on these forums any more. I think you need to get pain relief FIRST and then have a good look at your life style etc for what may have triggered it for you.
I know of a great vulva pain specialist in Melbourne that I would highly recommend you to try, but I don't know where your from.
I am here for you, you are not alone on this journey.
Best Wishes Zarli


Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

I'm with you

Post  907hopeful on Wed Jan 08, 2014 5:59 am

Elle - I am in the same boat as you. This is a recent problem for me and I still haven't had my diagnosis confirmed - I think it is a skin issue turned into vulvodynia. Still searching for a dr that will work with me. It's hard to stay positive and I think reading on the internet makes it even harder. There are some people out there that do a great job of providing support and giving you the reassurance that you are not the only one going through this, but it can be very depressing to read about the severe cases that are going years w/ no relief. Unfortunately most of the people posting things online are those still struggling. I am really trying to limit my online searching to only medical websites and articles otherwise my sanity is going to suffer even more than it already has! I am sure I will continue to check back here , but I need to work on building my mental strength back up to tackle this issue with all I have. I have been letting the negativity of my situation bring me down too much! Best wishes to you Elle. Try your best to stay positive and I will do the same.


Posts : 17
Join date : 2014-01-03

View user profile

Back to top Go down

Re: Struggling

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum