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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Boric acid has made me feel even better, almost healed

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Boric acid has made me feel even better, almost healed

Post  lavrose on Wed Jan 08, 2014 2:51 pm

As you guys no, Ive been on here a long time, posting about my various herbal and essential oil (mad scientist vaginal concoction suppository adventures) burning myself , causing shedding skin, NOT RECOMMENDED, but hey, I was trying and fighting the good fight...Oils did not work to CURE the infection, and even when I thought they were making me feel better, eventually, they stopped working, and I felt the "Burning Bush" feeling, sensation come back full force, made worse by the oils.
A marriage and a divorce, etc, Ive been using Boric acid everyday sometimes twice a day (gave up on the oils) and while the Boric Acid is in..I feel 100% normal down there, and can have sex sometimes (painlessly, and pleasurable, but its messy, as Boric Acid creates an embarrassing watery discharge) Just tell him your a squirter Smile) LOL!!.. nah just joking..anyay..it sux, but if I miss a day of it, the uncomfortable feeling comes back..so ive been doing Boric acid capsules inserted in the vagina exclusively, and a better diet, ofcourse) with supplements for about 5 months now, and every month I seem to feel better, and better, more normal, my period cycle also feels better, and I do the suppositories at night, even while Im menstruating.
Im hoping one day ill eventually cure) but that's ALOT to ask, im just glad I can have these momentary moments of pleasure and normalness.

Recently, in the last month or so, Ive been trying a product called "Yeast Arrest" by Vitanica, vaginal suppositories, ..with Homeopathic herbs, and borax, and I feel even better.
One women on the website VaginaPagina said she was on Boric Acid for a YEAR and eventually cured, so who knows. Hoping for the best.
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Post  lavrose on Wed Jan 08, 2014 3:01 pm

but like I said..I cant go a DAY without these treatments, or it feels like HELL down there again..so..as long as its in there..I feel NORMAL..but give it a day or two and the feeling comes sneaking back, gradually..

The yeast arrest on the other hand, has made me feel, I can go almost 2 days without medicine up in there and still feel alright..so like I said..a year or two of this, and maybe one day, I will be cured.

Also, please use Carlsons Vitamin E suppositories along with the Boric acid, as it can be terribly drying.

Also, sex can be difficult as (altho it feels great) your man knows something is up 9in there) as its either slippery, or overly wet, and dry too, as Boric acid can be drying(use lube)

its Hell, and I feel like half a women, and its embarrassing..but what can I do??
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Re: Boric acid has made me feel even better, almost healed

Post  tinkerbelle2 on Thu Jan 09, 2014 11:42 am

That's really interesting! It's an idea I've been toying with for a while but haven't given it a go yet. Dyou know what it actually is in the boric acid that takes the pain away? And are there any side effects except the dryness and watery discharge?
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Re: Boric acid has made me feel even better, almost healed

Post  ringostarr26 on Tue May 13, 2014 8:27 pm

do you have unprovoked V or provoked and is it generalized?

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boric acid

Post  drruthfree on Mon May 19, 2014 1:14 pm

What strength tablets are you using?

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Re: Boric acid has made me feel even better, almost healed

Post  MensRea on Thu Apr 30, 2015 1:23 pm

if you feel better with boric acid that means that you have chronic yeast infection right? I am asking because the results of my biopsy came out, and it shows only inflammation. Therefore, boric acid it's not for me.

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Re: Boric acid has made me feel even better, almost healed

Post  Ouch123 on Mon Aug 31, 2015 10:15 pm

I think boric acid lowers PH too. I sometimes wonder if my pain isn't from high ph levels. My ph is always above 6

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Re: Boric acid has made me feel even better, almost healed

Post  emalita on Thu May 19, 2016 7:06 pm

Boric acid is bacteriostatic and fungistatic. Bactericidal agents kill bacteria directly, and bacteriostatic agents stop bacteria from growing. Fungistatic agents inhibit growth, whereas fungicidal kills fungal pathogens.

Bacteriostatic and fungistatic agents work by allowing our own immune system to take control of the infection (it gives us a chance to not be so outnumbered). Don't let this freak you out though because a lot of antibiotics are bacteriostatic...we just aren't told how the drugs we take work. There are a lot of ways doctors believe boric acid helps with BV or yeast infections, including its potential biofilm removal ability.

I used boric acid 600mg suppositories once a day before bed. At first my doctor had them compounded in a fattibase through a pharmacy, but I found that just inserting a regular capsule of boric acid was less irritating and dissolved fine. I did not make my own like some people suggest. I just ordered pre-made ones online.

They absolutely cured whatever infection I had that was causing constant internal burning and prickling at my urethra (as well as a horrible poking pain I got with every period). I used it once a day for 14 days (Naturopath wanted me to do it for 30 days), then twice a week in between periods, and every day of my period for 3 months.

However, I want to strongly caution you when using boric acid because I am now left with an extremely bad case of noninfectious inflammatory vaginitis (i.e. inflammation of the vagina not caused by an infection). I'm not saying boric acid alone did this to me, but I do believe it caused my vagina to be more inflamed. I do not regret using it to relieve the infection, but I do regret using it as long as my Naturopath recommended. If pH is your concern, there are a lot of other more gentle methods to help restore a healthy acidic pH.

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Re: Boric acid has made me feel even better, almost healed

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