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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


NEED SUPPORT.....

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NEED SUPPORT.....

Post  Guest on Sat Jan 11, 2014 7:10 pm

Hello, I'm 20 and have had vulvodynia since age 14. My problems started with yeast infections then bacterial and this lasted a good 4 months before the doctor decided to check and turns out there was no more infection but just horrible burning pain. I can't sit walk or stand for to long. I was diagnosed with vulvodynia, vestibultis, pelvic floor muscle dysfunction, and neuropathy. I have had almost every treatment including a neurostimulator in my back. I also had the biggest surgery available which is the vestibulectomy. I would be more than happy to share more about my treatments and story through email.

I would love to have a friend who has vulvodynia too so I have someone I can talk to who understands what I go through each day both physically and emotionally.




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Re: NEED SUPPORT.....

Post  Alana3 on Sat Jan 11, 2014 8:50 pm

I had a vestibulectomy too hope yours was successful!! It was the best decision of my life Smile where are you from

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Re: NEED SUPPORT.....

Post  Guest on Sat Jan 11, 2014 10:57 pm

The vestibulectomy took the edge off my pain, I'm still looking for a cure...I'm located in Florida. Where are you from and are you still having pain since the surgery??

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Re: NEED SUPPORT.....

Post  Alana3 on Sat Jan 11, 2014 11:14 pm

Im in florida! Where are you? No my pain is completely gone. When was your surgery?

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Re: NEED SUPPORT.....

Post  Guest on Sun Jan 12, 2014 12:03 am

I'm in Melbourne, I had the surgery about 6 months ago.....it did help take the edge off which is a great help. I had a neurostimulator put in but due to complications it has caused more pain than help......

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Re: NEED SUPPORT.....

Post  Alana3 on Sun Jan 12, 2014 12:08 am

I have no idea what a neurostimulator is so I cant help you with that

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Re: NEED SUPPORT.....

Post  Guest on Sun Jan 12, 2014 12:13 am

Who did your surgery?

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Re: NEED SUPPORT.....

Post  young.sufferer on Tue Jan 14, 2014 12:01 am

You will find lots of support here Smile I'm 25 and just starting to take control of my vulvodynia and try to find some relief. I have posted on this site a couple times and the response has been wonderful, we are all going through the same thing and we are all here for each other. I don't really know how to work this site, but if there is a "Private Message" button, you can message me any time. I'm here for you and I'm struggling too. I am currently looking into treating it with chiropractic care, sent out my first e-mail today. I know it may feel shameful to look for help or talk about your condition, but I think the stigma is being turned down and more people are learning about our conditions. I hope your surgery heals perfectly and that you're free from the pain.

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Re: NEED SUPPORT.....

Post  mary jane on Fri Jan 17, 2014 8:50 pm

a neurostimulator?
I thought that was AFTER you have tried all the medication possible, ketamine infusions, lyrica, narcotics///
after them the are nerve blocks I thought pain pumps and neurostim. are final treatments
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Re: NEED SUPPORT.....

Post  mary jane on Fri Jan 17, 2014 8:57 pm

The biggest problem is we keep bouncing back and forth on these forums and read pro and against opinions on surgeries, medication, whatever else but at the end of the day these are simply statistics!!!!!!
just because it worked for her does not mean anything !!! we have different bodies, amitriptyline works for me, but it will do nothing for the next person and so on... it's maddening
I've read so many vulvodynia stories on vulvodynia.com guestbook my head hurts !!! for some the surgery worked...but then again there are 2 surgeries at least ..one with bartholin gland removal and one without ! for some only the bartholin glands were removed and they were cured, for others no, it was nerve blocks which cured them, for others PT, for others lyrica, ad infinitum !

I can advocate all day long about medication because it works for me, but I have different symptoms and reactions to others.
We NEED DOCTORS to figure this out !!! they need to start paying more attention to these conditions
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Re: NEED SUPPORT.....

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