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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


NEED SUPPORT.....

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NEED SUPPORT.....

Post  Guest on Sat Jan 11, 2014 7:10 pm

Hello, I'm 20 and have had vulvodynia since age 14. My problems started with yeast infections then bacterial and this lasted a good 4 months before the doctor decided to check and turns out there was no more infection but just horrible burning pain. I can't sit walk or stand for to long. I was diagnosed with vulvodynia, vestibultis, pelvic floor muscle dysfunction, and neuropathy. I have had almost every treatment including a neurostimulator in my back. I also had the biggest surgery available which is the vestibulectomy. I would be more than happy to share more about my treatments and story through email.

I would love to have a friend who has vulvodynia too so I have someone I can talk to who understands what I go through each day both physically and emotionally.




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Re: NEED SUPPORT.....

Post  Alana3 on Sat Jan 11, 2014 8:50 pm

I had a vestibulectomy too hope yours was successful!! It was the best decision of my life Smile where are you from

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Re: NEED SUPPORT.....

Post  Guest on Sat Jan 11, 2014 10:57 pm

The vestibulectomy took the edge off my pain, I'm still looking for a cure...I'm located in Florida. Where are you from and are you still having pain since the surgery??

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Re: NEED SUPPORT.....

Post  Alana3 on Sat Jan 11, 2014 11:14 pm

Im in florida! Where are you? No my pain is completely gone. When was your surgery?

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Re: NEED SUPPORT.....

Post  Guest on Sun Jan 12, 2014 12:03 am

I'm in Melbourne, I had the surgery about 6 months ago.....it did help take the edge off which is a great help. I had a neurostimulator put in but due to complications it has caused more pain than help......

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Re: NEED SUPPORT.....

Post  Alana3 on Sun Jan 12, 2014 12:08 am

I have no idea what a neurostimulator is so I cant help you with that

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Re: NEED SUPPORT.....

Post  Guest on Sun Jan 12, 2014 12:13 am

Who did your surgery?

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Re: NEED SUPPORT.....

Post  young.sufferer on Tue Jan 14, 2014 12:01 am

You will find lots of support here Smile I'm 25 and just starting to take control of my vulvodynia and try to find some relief. I have posted on this site a couple times and the response has been wonderful, we are all going through the same thing and we are all here for each other. I don't really know how to work this site, but if there is a "Private Message" button, you can message me any time. I'm here for you and I'm struggling too. I am currently looking into treating it with chiropractic care, sent out my first e-mail today. I know it may feel shameful to look for help or talk about your condition, but I think the stigma is being turned down and more people are learning about our conditions. I hope your surgery heals perfectly and that you're free from the pain.

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Re: NEED SUPPORT.....

Post  mary jane on Fri Jan 17, 2014 8:50 pm

a neurostimulator?
I thought that was AFTER you have tried all the medication possible, ketamine infusions, lyrica, narcotics///
after them the are nerve blocks I thought pain pumps and neurostim. are final treatments
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Re: NEED SUPPORT.....

Post  mary jane on Fri Jan 17, 2014 8:57 pm

The biggest problem is we keep bouncing back and forth on these forums and read pro and against opinions on surgeries, medication, whatever else but at the end of the day these are simply statistics!!!!!!
just because it worked for her does not mean anything !!! we have different bodies, amitriptyline works for me, but it will do nothing for the next person and so on... it's maddening
I've read so many vulvodynia stories on vulvodynia.com guestbook my head hurts !!! for some the surgery worked...but then again there are 2 surgeries at least ..one with bartholin gland removal and one without ! for some only the bartholin glands were removed and they were cured, for others no, it was nerve blocks which cured them, for others PT, for others lyrica, ad infinitum !

I can advocate all day long about medication because it works for me, but I have different symptoms and reactions to others.
We NEED DOCTORS to figure this out !!! they need to start paying more attention to these conditions
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Re: NEED SUPPORT.....

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