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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Have been prescribed the famous amitryptline to try

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Have been prescribed the famous amitryptline to try

Post  tinkerbelle2 on Thu Jan 16, 2014 7:35 pm

MY GP is hopeful that it will really reduce the pain... i had little luck with the gabapentin. But I really hope this helps and maybe even makes everything back to normal! Did any of you have much luck with ami ?
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Re: Have been prescribed the famous amitryptline to try

Post  Alana3 on Thu Jan 16, 2014 8:34 pm

Tried it did nothing for me, but I used it as a topical I refused to take antidepressants. But that's me

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Re: Have been prescribed the famous amitryptline to try

Post  zarli on Fri Jan 17, 2014 10:39 am

Hey Tinks
YES YES it worked for me for 4 years....I went off it too quickly and my pain came back. It didn't work when the pain came back so they swapped me to nortriptyline which is in the same family. The dose is too low for an antidepressant...I started on 10 mg slowly increasing to 35mg (which is low). That worked but I had no improvement until I had reached 35mg, which is the normal they tell me. The main problem of this med for me was weight gain and constipation but compared to having pain it never bothered me. The tiredness wears off so don't panic it could make you really sleepy but please know it does go away on the most part. I take meds about 2 hours before bed and then you feel better in the morning.

Good Luck....If it works for you let me know and I can tell you what my specialist said I should have done when trying to get off them. I know we are all different but the most info you can get is always helpful.

xx Z

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Re: Have been prescribed the famous amitryptline to try

Post  mary jane on Fri Jan 17, 2014 5:32 pm

really hope it works for you as it does for me, tinkerbelle. It has finally finally calmed down my nerve pain. It took 2 months to work for me, so please be patient and give it a try just so you can cross it off your list. The only side effects I get from it are anger and hostility mixed with some craziness Very Happy the tiredness feeling should (at least should) go away after the first few weeks

however, after scavenging the dark depths of the internet for this disease, most women seem to react very well to lyrica (including on other forums for similar painful conditions like IC, etc)
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Re: Have been prescribed the famous amitryptline to try

Post  tinkerbelle2 on Sat Jan 25, 2014 10:23 pm

Thanks girls. I have a sneaky suspicion it won't help but it might:), I have only been taking it a week and am already constipated!!! Grrr really annoying because I already have a little hemoroid that I've been trying to heal and this won't help
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Re: Have been prescribed the famous amitryptline to try

Post  mary jane on Tue Jan 28, 2014 10:19 am

magnesium works for constipation AND nerve pain (it calms down the CNS)...fybogel is also quite good!
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Re: Have been prescribed the famous amitryptline to try

Post  tinkerbelle2 on Tue Jan 28, 2014 8:28 pm

Magnesium? ooh that's interesting. Yep on the fybogel now, and laxido. Yummy yum ! :/
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Re: Have been prescribed the famous amitryptline to try

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