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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Have been prescribed the famous amitryptline to try

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Have been prescribed the famous amitryptline to try

Post  tinkerbelle2 on Thu Jan 16, 2014 7:35 pm

MY GP is hopeful that it will really reduce the pain... i had little luck with the gabapentin. But I really hope this helps and maybe even makes everything back to normal! Did any of you have much luck with ami ?
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Re: Have been prescribed the famous amitryptline to try

Post  Alana3 on Thu Jan 16, 2014 8:34 pm

Tried it did nothing for me, but I used it as a topical I refused to take antidepressants. But that's me

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Re: Have been prescribed the famous amitryptline to try

Post  zarli on Fri Jan 17, 2014 10:39 am

Hey Tinks
YES YES it worked for me for 4 years....I went off it too quickly and my pain came back. It didn't work when the pain came back so they swapped me to nortriptyline which is in the same family. The dose is too low for an antidepressant...I started on 10 mg slowly increasing to 35mg (which is low). That worked but I had no improvement until I had reached 35mg, which is the normal they tell me. The main problem of this med for me was weight gain and constipation but compared to having pain it never bothered me. The tiredness wears off so don't panic it could make you really sleepy but please know it does go away on the most part. I take meds about 2 hours before bed and then you feel better in the morning.

Good Luck....If it works for you let me know and I can tell you what my specialist said I should have done when trying to get off them. I know we are all different but the most info you can get is always helpful.

xx Z

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Re: Have been prescribed the famous amitryptline to try

Post  mary jane on Fri Jan 17, 2014 5:32 pm

really hope it works for you as it does for me, tinkerbelle. It has finally finally calmed down my nerve pain. It took 2 months to work for me, so please be patient and give it a try just so you can cross it off your list. The only side effects I get from it are anger and hostility mixed with some craziness Very Happy the tiredness feeling should (at least should) go away after the first few weeks

however, after scavenging the dark depths of the internet for this disease, most women seem to react very well to lyrica (including on other forums for similar painful conditions like IC, etc)
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Re: Have been prescribed the famous amitryptline to try

Post  tinkerbelle2 on Sat Jan 25, 2014 10:23 pm

Thanks girls. I have a sneaky suspicion it won't help but it might:), I have only been taking it a week and am already constipated!!! Grrr really annoying because I already have a little hemoroid that I've been trying to heal and this won't help
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Re: Have been prescribed the famous amitryptline to try

Post  mary jane on Tue Jan 28, 2014 10:19 am

magnesium works for constipation AND nerve pain (it calms down the CNS)...fybogel is also quite good!
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Re: Have been prescribed the famous amitryptline to try

Post  tinkerbelle2 on Tue Jan 28, 2014 8:28 pm

Magnesium? ooh that's interesting. Yep on the fybogel now, and laxido. Yummy yum ! :/
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Re: Have been prescribed the famous amitryptline to try

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