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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Have been prescribed the famous amitryptline to try

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Have been prescribed the famous amitryptline to try

Post  tinkerbelle2 on Thu Jan 16, 2014 7:35 pm

MY GP is hopeful that it will really reduce the pain... i had little luck with the gabapentin. But I really hope this helps and maybe even makes everything back to normal! Did any of you have much luck with ami ?
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Re: Have been prescribed the famous amitryptline to try

Post  Alana3 on Thu Jan 16, 2014 8:34 pm

Tried it did nothing for me, but I used it as a topical I refused to take antidepressants. But that's me

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Re: Have been prescribed the famous amitryptline to try

Post  zarli on Fri Jan 17, 2014 10:39 am

Hey Tinks
YES YES it worked for me for 4 years....I went off it too quickly and my pain came back. It didn't work when the pain came back so they swapped me to nortriptyline which is in the same family. The dose is too low for an antidepressant...I started on 10 mg slowly increasing to 35mg (which is low). That worked but I had no improvement until I had reached 35mg, which is the normal they tell me. The main problem of this med for me was weight gain and constipation but compared to having pain it never bothered me. The tiredness wears off so don't panic it could make you really sleepy but please know it does go away on the most part. I take meds about 2 hours before bed and then you feel better in the morning.

Good Luck....If it works for you let me know and I can tell you what my specialist said I should have done when trying to get off them. I know we are all different but the most info you can get is always helpful.

xx Z

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Re: Have been prescribed the famous amitryptline to try

Post  mary jane on Fri Jan 17, 2014 5:32 pm

really hope it works for you as it does for me, tinkerbelle. It has finally finally calmed down my nerve pain. It took 2 months to work for me, so please be patient and give it a try just so you can cross it off your list. The only side effects I get from it are anger and hostility mixed with some craziness Very Happy the tiredness feeling should (at least should) go away after the first few weeks

however, after scavenging the dark depths of the internet for this disease, most women seem to react very well to lyrica (including on other forums for similar painful conditions like IC, etc)
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Re: Have been prescribed the famous amitryptline to try

Post  tinkerbelle2 on Sat Jan 25, 2014 10:23 pm

Thanks girls. I have a sneaky suspicion it won't help but it might:), I have only been taking it a week and am already constipated!!! Grrr really annoying because I already have a little hemoroid that I've been trying to heal and this won't help
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Re: Have been prescribed the famous amitryptline to try

Post  mary jane on Tue Jan 28, 2014 10:19 am

magnesium works for constipation AND nerve pain (it calms down the CNS)...fybogel is also quite good!
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Re: Have been prescribed the famous amitryptline to try

Post  tinkerbelle2 on Tue Jan 28, 2014 8:28 pm

Magnesium? ooh that's interesting. Yep on the fybogel now, and laxido. Yummy yum ! :/
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Re: Have been prescribed the famous amitryptline to try

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