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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Vaginal or vulva ?

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Vaginal or vulva ?

Post  nannybest on Mon Jan 27, 2014 1:23 pm

I am at my wits end with this pain. I don't know if this is vulvadynia or something else.
I have a place that feels INSIDE the lower vagina that feels like a burning hot nail is stuck there. The pain is constant and agony. This began a couple of years ago and lasted months. I went on pain patches and the pain subsided. I have just stopped using the patches and the pain has returned with vengeance.
The area inside and at the vaginal entrance is swollen and very sore. No pain outside the area.
Any advice very welcome.

nannybest

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Re: Vaginal or vulva ?

Post  mary jane on Mon Jan 27, 2014 5:51 pm

I'm only going to take a guess here....you say area at the vaginal entrance that feels like it is inside as well...I have days with that kind of pain....it could be your bartholin gland...is that one painful at the Q-tip test ? mine is, but only on the right side...
there is huge article on that here:http://www.vulvodynia.com.au/articles/vulvodynia-recognition-and-management/
however please keep in mind this is only my opinion...I am confused myself at the differences between vestibulitis,vulvodynia and pudendal neuralgia
hmmm...what medication are you on for the pain?
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Re: Vaginal or vulva ?

Post  nannybest on Mon Jan 27, 2014 10:58 pm

Thanks for the reply.
I haven't had any tests yet and my first appointment is this week.
This pain is constant and feels like a live wire is being pushed into one spot just inside the vagina on the left side. No other symptoms...Just awful unremitting pain. Pain killers do not touch it.
I am confused with all the different conditions as they all sound like very similar symptoms.

nannybest

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Re: Vaginal or vulva ?

Post  mary jane on Tue Jan 28, 2014 10:13 am

internal pain is from the puendal nerve. please have a look at this picture and maybe it will give you an idea. and get some nerve pain meds! antidepressants and anticonvulsants! if regular painkillers do not touch it, it's nerve pain!

nevermind, I'll pm you the link
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Re: Vaginal or vulva ?

Post  JuniperRain on Tue Jan 28, 2014 7:41 pm

Most of my pain was right inside the vagina towards the opening. After having the Q-tip test my doctor told me it was vulvodynia but the one most tender spot was actually remnants of my hymen.

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Re: Vaginal or vulva ?

Post  tinkerbelle2 on Wed Jun 18, 2014 9:42 am

Nannybest, I love you right now ! I have the EXACT same sensation
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Re: Vaginal or vulva ?

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