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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Vaginal or vulva ?

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Vaginal or vulva ?

Post  nannybest on Mon Jan 27, 2014 1:23 pm

I am at my wits end with this pain. I don't know if this is vulvadynia or something else.
I have a place that feels INSIDE the lower vagina that feels like a burning hot nail is stuck there. The pain is constant and agony. This began a couple of years ago and lasted months. I went on pain patches and the pain subsided. I have just stopped using the patches and the pain has returned with vengeance.
The area inside and at the vaginal entrance is swollen and very sore. No pain outside the area.
Any advice very welcome.

nannybest

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Re: Vaginal or vulva ?

Post  mary jane on Mon Jan 27, 2014 5:51 pm

I'm only going to take a guess here....you say area at the vaginal entrance that feels like it is inside as well...I have days with that kind of pain....it could be your bartholin gland...is that one painful at the Q-tip test ? mine is, but only on the right side...
there is huge article on that here:http://www.vulvodynia.com.au/articles/vulvodynia-recognition-and-management/
however please keep in mind this is only my opinion...I am confused myself at the differences between vestibulitis,vulvodynia and pudendal neuralgia
hmmm...what medication are you on for the pain?
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Re: Vaginal or vulva ?

Post  nannybest on Mon Jan 27, 2014 10:58 pm

Thanks for the reply.
I haven't had any tests yet and my first appointment is this week.
This pain is constant and feels like a live wire is being pushed into one spot just inside the vagina on the left side. No other symptoms...Just awful unremitting pain. Pain killers do not touch it.
I am confused with all the different conditions as they all sound like very similar symptoms.

nannybest

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Re: Vaginal or vulva ?

Post  mary jane on Tue Jan 28, 2014 10:13 am

internal pain is from the puendal nerve. please have a look at this picture and maybe it will give you an idea. and get some nerve pain meds! antidepressants and anticonvulsants! if regular painkillers do not touch it, it's nerve pain!

nevermind, I'll pm you the link
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Re: Vaginal or vulva ?

Post  JuniperRain on Tue Jan 28, 2014 7:41 pm

Most of my pain was right inside the vagina towards the opening. After having the Q-tip test my doctor told me it was vulvodynia but the one most tender spot was actually remnants of my hymen.

JuniperRain

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Re: Vaginal or vulva ?

Post  tinkerbelle2 on Wed Jun 18, 2014 9:42 am

Nannybest, I love you right now ! I have the EXACT same sensation
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Re: Vaginal or vulva ?

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