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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Vaginal or vulva ?

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Vaginal or vulva ?

Post  nannybest on Mon Jan 27, 2014 1:23 pm

I am at my wits end with this pain. I don't know if this is vulvadynia or something else.
I have a place that feels INSIDE the lower vagina that feels like a burning hot nail is stuck there. The pain is constant and agony. This began a couple of years ago and lasted months. I went on pain patches and the pain subsided. I have just stopped using the patches and the pain has returned with vengeance.
The area inside and at the vaginal entrance is swollen and very sore. No pain outside the area.
Any advice very welcome.

nannybest

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Re: Vaginal or vulva ?

Post  mary jane on Mon Jan 27, 2014 5:51 pm

I'm only going to take a guess here....you say area at the vaginal entrance that feels like it is inside as well...I have days with that kind of pain....it could be your bartholin gland...is that one painful at the Q-tip test ? mine is, but only on the right side...
there is huge article on that here:http://www.vulvodynia.com.au/articles/vulvodynia-recognition-and-management/
however please keep in mind this is only my opinion...I am confused myself at the differences between vestibulitis,vulvodynia and pudendal neuralgia
hmmm...what medication are you on for the pain?
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Re: Vaginal or vulva ?

Post  nannybest on Mon Jan 27, 2014 10:58 pm

Thanks for the reply.
I haven't had any tests yet and my first appointment is this week.
This pain is constant and feels like a live wire is being pushed into one spot just inside the vagina on the left side. No other symptoms...Just awful unremitting pain. Pain killers do not touch it.
I am confused with all the different conditions as they all sound like very similar symptoms.

nannybest

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Re: Vaginal or vulva ?

Post  mary jane on Tue Jan 28, 2014 10:13 am

internal pain is from the puendal nerve. please have a look at this picture and maybe it will give you an idea. and get some nerve pain meds! antidepressants and anticonvulsants! if regular painkillers do not touch it, it's nerve pain!

nevermind, I'll pm you the link
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Re: Vaginal or vulva ?

Post  JuniperRain on Tue Jan 28, 2014 7:41 pm

Most of my pain was right inside the vagina towards the opening. After having the Q-tip test my doctor told me it was vulvodynia but the one most tender spot was actually remnants of my hymen.

JuniperRain

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Re: Vaginal or vulva ?

Post  tinkerbelle2 on Wed Jun 18, 2014 9:42 am

Nannybest, I love you right now ! I have the EXACT same sensation
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Re: Vaginal or vulva ?

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