Vulvodynia Support
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» Hope to all my suffering ladies
Sanitary Protection Poll EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Sanitary Protection Poll EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Sanitary Protection Poll EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Sanitary Protection Poll EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Sanitary Protection Poll EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Sanitary Protection Poll EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Sanitary Protection Poll EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Sanitary Protection Poll EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Sanitary Protection Poll EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Sanitary Protection Poll

+5
Takver
JemimaSurrender
Marylynnreily
Sunflower82
Sebby (Admin)
9 posters

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What is your main form of Sanitary Protection

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Total Votes : 18
 
 

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Post  Sebby (Admin) Tue Jun 11, 2013 8:48 pm

After getting a bad flare up after using certain sanitary pads I have decided to find out what you ladies prefer to use.....

I only use pads but can only now use Always silk

Tampons are a big no no Ouch!

Sebby
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Sunflower82 Mon Jun 17, 2013 5:44 am

Hi, 
      I used to use tampons until I suffered with vulvodynia. Then I changed to sanitary towels which I really hate using. But I found it still made it sore and uncomfortable. I now use sanitary towels that do not have lots of chemicals either natura care (I think) are or cottons. This seems to help. Tried the mooncup, but it was too painful.

Sunflower82

Posts : 82
Join date : 2012-02-17

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Post  Sebby (Admin) Wed Jun 19, 2013 5:53 pm

I used to use Natura care. Had to order it in bulk off the internet as I couldn't get it in any local shops or supermarkets.

I also tried Boots cottons as they are more natural but I actually found the Always with the silk top sheet the best and I cannot use anything else without a flare up!

I would be interested to find any ladies who found tampons better than pads though. I think they will be in the minority!
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Sanitary Protection Poll Empty gladrags

Post  Marylynnreily Fri Jun 21, 2013 12:37 pm

Actually I looked into this when I was at my worst and there are all cotton sanitary napkins available and Ive heard they are good for preventing yeast problems, also the Diva Cup..I even considered ordering from a website called "GladRags", alot of women were saying how much more comfortable they are, etc..
Marylynnreily
Marylynnreily

Posts : 27
Join date : 2013-05-21

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Post  JemimaSurrender Thu Jul 04, 2013 10:25 am

I always use Cottons from Boots. I find them quite soft and comfortable in that sense, but I still hate using pads in general.

If I'm going out somewhere in a dress I will attempt to use tampons, which are Cottons again, but I tend to avoid it. That said, once I've gotten over the initial insertion pain I don't find them too bad until removal. They are bearable but only when quite heavy... If it's towards the end of that dreaded week then they're a complete no-no, extremely painful to insert and remove!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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Post  Takver Wed Sep 11, 2013 12:29 pm

I used to use a menstrual cup (you can get smaller, softer ones than the Mooncup) but had to stop some years ago, which is a pity as they're awesome. Since then I've been using reusable cloth menstrual pads, which are wonderfully comfortable, less smelly than the alternatives, and surprisingly easy to clean. I wouldn't dream of using disposables, nasty things.
Takver
Takver

Posts : 41
Join date : 2013-09-11
Location : UK

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Post  Delilah1 Thu Sep 12, 2013 10:28 pm

Hello Takver! I ordered some reusable cloth menstrual pads today. Do you have any advice on how to care for/clean them? Is there a brand that you think is best?

Delilah1

Posts : 55
Join date : 2013-04-24

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Post  Takver Mon Sep 16, 2013 9:55 am

I adore the ones I have, but the woman who makes them closed her business. Something fairly compact, using layers in absorbent materials like bamboo fleece, is good.

She taught me the dry-pailing method, and it's excellent.

1. Toss your pads in a container until ready to wash.
2. An hour or so before you put your laundry on, mix up a scoop of oxygen bleach powder with a little hot water to dissolve, then fill it up with cold water. Put the pads to soak in this for an hour. Look in health food shops for an oxygen powder that's fragrance-free etc. I use Bio-D Nappy Fresh, as this stuff is also used for soaking cloth nappies.
3. After an hour, drain the sink/bowl and rinse the pads. If there are still marks on them, put on a little stain remover (again, find a natural one if you can - currently on Ecozone though they tend to be unreliable with their ingredients) and leave it for another ten min or so.
4. Sling in a cotton wash with your laundry. You can tumble dry them.

There we are. Fairly minimal hassle, and none of that business of having smelly pails of soaking pads around for days on end.
Takver
Takver

Posts : 41
Join date : 2013-09-11
Location : UK

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Post  Elc88 Mon Sep 23, 2013 6:30 pm

Like others I used to use tampons until the pain reared it's ugly head, then I had to switch entirely to pads. I would use tampons sometimes but they would get really uncomfortable after a bit of time, so I would only use them when I knew I was going to be self conscious in a meeting or on a night out.

In the last 12 months I've switched to using unbleached natural sanitary towels and tampons and get next to no discomfort from using these tampons, it hurts a bit to insert them, but I don't notice them for the rest of the day. I do try to keep my use down, but it's definitely a lot better than the mainstream brands I normally use! Switching hasn't stopped my pain, it just doesn't make it worse.

Elc88

Posts : 55
Join date : 2013-07-20

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Post  samyurai76 Wed Jan 22, 2014 10:38 am

I think Boots Cottons are responsible for my most recent flare-up. Whatever they claim on the packaging they're still full of plastic crap. I got some relief from irritation when I discovered Naturacare products, but my favoured method of sanitary protection has to be washable cloth pads. Inconvenient if travelling\away from home... but oh so much more comfortable. And you have complete control over what cleaning products you use. Typically the advice is to wash them at no higher a temp than 40 degrees, but I regularly wash mine at 60 with no ill effects. A spot of Vanish Oxy removes any stains a treat!

samyurai76

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Join date : 2014-01-21

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Post  JuniperRain Tue Jan 28, 2014 7:22 pm

Sometimes I use my Diva Cup but usually I just use reusable cloth pads. They are SOOO much better and more comfortable! I stopped using disposable products about two years ago and I never want to use them again. Since then I have seen a decrease in the amount of infections I get.
I wash and care for mine the same way Takver described. And the lady I purchased from also closed down her shop but I think it's temporary.

JuniperRain

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Join date : 2013-12-31

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