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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


My journey - believe it or not it's a fairly positive one!

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My journey - believe it or not it's a fairly positive one!

Post  Georgia H on Tue Jan 28, 2014 12:33 am

Hi Girls,

I'm new here (but not to V)! I've been reading this forum on and off for the past few years and it's helped me greatly. It's taken me this long to actually join up - selfishly, I've never wanted to participate as it felt (in a weird way) like I was giving in to the condition. It finally dawned on me that my story might actually help some of you guys - so here I am.

My journey with V is fairly straight forward and began in Sept '11 no real obvious trigger, typical nerve pains, run around from GP for 3 months until (I think I read somewhere on here) about Wendy Reid and coughed up the money to see her privately. I should mention here that I was in a fairly new r/ship at the time and sex wasn't an issue at all. I could and still can have completely pain free sex. She diagnosed me with unprovoked vulvodynia and put me straight onto Lyrica which was great. Worked pretty quickly to dull the pain. I was on it for 4 months when I decided to come off it and I was left only with some minor pain on one side which was mostly radiating through my thigh. Wendy sent me off for PT for this. Whilst waiting for the PT and weaning off the Lyrica (by this point I was mostly pain free but not 100% although the pain wasn't bothering me too much) I decided to see a McTimoney chiropractor in Worthing (she's also been mentioned on here) for the McTimoney pilot study. She was brilliant. Within month or so of seeing her I was 100% pain free. It's hard for me to say if it was the chiro or the lyrica but I'm fairly certain it was the combination of both these things - at the right time - that lead to this remission. I don't think one would have worked without the other. In total I was "in treatment" for 6 months.

I went 10 months 100% pain free and medication free with no sign of it returning. In April '13 it came back in a mild form (mostly the one sided thigh pain) and I booked 3 sessions with the chiro and it was gone again. This episode lasted only about 3 weeks.

In Sept '13 it came back again but this time the chiro sessions haven't quite been as helpful as they were in April. There are certainly symptoms that she can resolve - the one sided ones for sure. This time I'm experiencing an all over prickling sensation - more or less constant - over my pubic hair area that is stubborn and doesn't want to go! After 3 months of trying to get rid of it without medication I went back to Wendy Reid and this time I'm trying amitriptyline instead of the Lyrica. I know most of you probably think I'm mad as Lyrica is hailed as the wonder drug for vulval pain but I was on it for 4 months and gained 10kgs in the first two. It was petty hellish! I really wanted to try something different this time as the V was one thing, but the weight gain was equally as taxing on my mental health and wellbeing. I know a few of you mentioned you wanted to try Lyrica but just be careful. I know not everyone experiences the same side effects from meds but I really wish someone had told me about the weight gain before I went on it. Wendy said to me that whilst they work quite differently on the nerves, the end result is usually the same (it's just that ami takes longer to work).

So far the ami has been ok. I've only been on it 5 weeks and am up to 50mgs at night. I'm not 100% but I think it's starting to kick in. Its hard to tell tho as I'm so up and down I'll have a few good days and then a bad one but I think overall it is getting better. From memory - this is what happened last time. So far not too many rough side effects. If ami turns out to be useless then I'll bite the bullet and go back on the Lyrica but for now I'd rather wait and see.

Basically, I want you girls to know you can and will find a way to treat this. I've done it once and I'll do it again. It's just a matter of finding the exact right combination of treatments. There are things that I have suspicions trigger this but I can't be 100% sure. Just like its probably going to be a combination of treatments there's probably a combination of causes too that make something like this too hard for our bodies to bounce back from. Autoimmune or whatever else. It's so easy to get caught up reading negative stories on the internet but I see mine as one of the good ones. Obviously the fact that it's come back isn't IDEAL but the fact that I've resolved it once is proof that it can be treated and you can be pain free (and that finding a good team of dr's, gynae's, physios, naturopaths, osteopaths, chiros etc is the key to getting there).

London girls - I live in London too and would love to meet up sometime before the October meet.

Sorry this was ridiculously long but I wanted to try and include everything in case there were bits that might help some of you.

Any questions on the specialists I've seen/mentioned don't hesitate to ask.

Xx G

Georgia H

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Re: My journey - believe it or not it's a fairly positive one!

Post  mary jane on Tue Jan 28, 2014 10:29 am

Georgia, you are more than welcome to come to our support group meeting! the next one is on the 22 of March at St Cyprian's church

https://sites.google.com/site/londonvpsg/meetings

the girls are lovely and after the meeting we usually head for tea/lunch in the marylebone area.
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Re: My journey - believe it or not it's a fairly positive one!

Post  fightforacure777 on Tue Jan 28, 2014 4:04 pm

Thank you for sharing your story, and reminding us that their is hope and a light at the end of this tunnel.
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Re: My journey - believe it or not it's a fairly positive one!

Post  tinkerbelle2 on Tue Jan 28, 2014 8:37 pm

Hi Georgia,

Thanks for coming on and sharing your story! I took a while to actually sign up too because it felt like effort to write about my story from the very beginning , but now I can't shut up ! lol. And it also felt like I was admitting there was a real problem, with a real name, whereas before i'd almost been in denial and just getting on with life. But it has got to the point now where I can't push it to the background anymore. The pain is very much there, and if anything it's more nagging than ever before. I am feeling pretty confident that it's going to go away, with the right help and understanding. I'm in a way, excited.

Currently on amitryptline only 20mg atm (one in morning and one at night - no change as yet but it's only been 2 weeks). That's interesting about the lyrica! I hope ami doesn't make me gain too much as i've already been comfort eating A LOT!!

T x
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Re: My journey - believe it or not it's a fairly positive one!

Post  Delilah1 on Fri Apr 11, 2014 10:01 pm

Hello Georgia! Thanks for sharing your story! How are you feeling now?

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Re: My journey - believe it or not it's a fairly positive one!

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