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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Pain After Surgery
5 posters
Page 1 of 1
Pain After Surgery
I know some of you have had great success after having a vestibulectomy so I thought maybe I could ask you all a question. Like I've mentioned before I had a partial vestibulectomy on December 24th and things were going well. I had my stitches removed last Monday (the 20th) and my doctor told me everything looked great and that my husband and I could try having sex this week but that it might be a little sore due to the scar tissue not being so stretchy. Well, it really hurt! But in a different way than it hurt before. It wasn't the stinging, raw burning pain like a thousand paper cuts and it didn't swell up a lot like it used to but it still really hurt and we had to stop. I was wondering if any of you had a similar experience and if so how long it lasted? Do you think vitamin E would help? Or any other suggestions? I'm lost.
JuniperRain- Posts : 14
Join date : 2013-12-31
Re: Pain After Surgery
I used dilators for a few months after surgery so I could control it and get used to it again. Also, I did physical therapy. You probably have a bit of vaginismus and are especially tense since it's always hurt you tense up and your muscles might spasm. I got muscle relaxers for that. The trick with the dilators, is to leave them in until your muscles start to relax and than move it in and out. You can start with a small one and go up to the big one. My doctor said if that didn't work I could do botox, but I decided to try this first. And it really worked. I would dilate for 10 minutes in my shower everyday either in the morning or after work. Also, if you stick your stomach all the way out and hold it there it will release your pelvic floor and help with spasms. But honestly what youre feeling now is more than likely muscle spasms. I would never in a million years have gone straight to sex. You need to be in control of your vagina right after this surgery. So try the dilators and get the name of a pelvic floor physical therapist and you should be set in a few months! Vitamin E is not going to do anything for you. It's all about exercise like any other muscle hope this helps
Another suggestion, if you want to have sex with hubby (which I totally understand don't get me wrong!) have him just stay in you for a bit without moving. I don't know how exciting this will be for him or you, but once I started having sex again, that's what my boyfriend did for me and than we would do our thing after I felt comfortable. But remember your body has just gone thru a traumatic experience.
Another suggestion, if you want to have sex with hubby (which I totally understand don't get me wrong!) have him just stay in you for a bit without moving. I don't know how exciting this will be for him or you, but once I started having sex again, that's what my boyfriend did for me and than we would do our thing after I felt comfortable. But remember your body has just gone thru a traumatic experience.
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Pain After Surgery
Ok, that makes a lot of sense. Thank you! I went to physical therapy for a few months before I had my surgery but I haven't made any appointments to go back afterwards. I think I'll try dilating like you described and look into returning to therapy. Thanks for the quick response! It's really appreciated.
JuniperRain- Posts : 14
Join date : 2013-12-31
Re: Pain After Surgery
No problem- let me know if I can help you at all! Definitely go back to therapy it helps a lot!
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Pain After Surgery
I had my surgery on December 17 and just tried to have sex for the first time today (husband's birthday). I've been to four physical therapy appointments in the past four weeks with homework three times a week, but I don't think I was ready yet. I felt like my skin was tearing at the six o' clock position and I think my pelvic floor dysfunction might be worse than before. He said that it felt like my body was trying to push him out, even though I was attempting to relax. Very disappointed right now, but I have to keep trying.
Fingerscrossed- Posts : 25
Join date : 2013-09-17
Age : 34
Location : Kentucky
Re: Pain After Surgery
I'm sorry, Fingerscrossed. I understand how you feel. I never returned to PT after surgery but I did work at home on dilating for a while. After that I did what Alana3 had recommended and just put my husband inside me as much as possible with out it hurting too much and just sat there, we literally didn't move and I just focused on relaxing. I made sure to be on top so I could control everything. It hurt a little but each time we did it it hurt a little less and I could handle a little more. It definitely wasn't exciting or sexy but I think it helped. Aside from this we started focusing on other intimate, sexual acts without penetration and I think in a way this helped ease my anxiety some. Just a couple of nights ago I was able to have pain free sex for the first time in six years but I still had some swelling and pain afterwards that lasted most of the next day. So I can't say it's 100% better but it's SO much better than it was. Don't give up.
JuniperRain- Posts : 14
Join date : 2013-12-31
Re: Pain After Surgery
Hi Guys! I'm really happy I found this post today. I had surgery on December 11th and just tried having sex this weekend. I wasn't on that large of a dilator size yet but I was drunk and hopeful. It hurt a lot and I couldn't get it in more than 2 inches, but we stopped immediately after I felt like something wasn't right. It's reassuring to hear that I'm not alone though. I am really nervous because I have trouble identifying what muscle pain is supposed to feel like, and I'm always trying to analyze if it is "normal pain" or not. It felt kind of like a burning on the muscles near the opening, but wasn't similar to the pain I had before. The burning feeling is what really freaks me out. What does the pain actually feel like with you guys?
Re: Pain After Surgery
I guess it feels like burning. If you read up to my other replies I would suggest doing that and not going at it when you're drunk especially if you haven't done it yet. Take it slow you just had surgery and things haven't had a chance to heal all the way yet it takes a good 6 months. Also try lube my bf and I use about a half a bottle (granted we have sex for hours but still haha). You're going to have to retrain your muscles and your brain because everything is expecting pain and you may subconsciously be tensing up. Which causes pain.
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Pain After Surgery
I have actually had two surgeries (the first removed very little tissue, and I found a much better doctor after). While things are MUCH better than before, I do still have pain during sex, and I have random flare-ups. It's disappointing but I have to remember how much better life is now.
julesmp- Posts : 6
Join date : 2014-03-27
Location : Virginia, USA
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer