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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Pain After Surgery

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Pain After Surgery

Post  JuniperRain on Tue Jan 28, 2014 7:38 pm

I know some of you have had great success after having a vestibulectomy so I thought maybe I could ask you all a question. Like I've mentioned before I had a partial vestibulectomy on December 24th and things were going well. I had my stitches removed last Monday (the 20th) and my doctor told me everything looked great and that my husband and I could try having sex this week but that it might be a little sore due to the scar tissue not being so stretchy. Well, it really hurt! But in a different way than it hurt before. It wasn't the stinging, raw burning pain like a thousand paper cuts and it didn't swell up a lot like it used to but it still really hurt and we had to stop. I was wondering if any of you had a similar experience and if so how long it lasted? Do you think vitamin E would help? Or any other suggestions? I'm lost.

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Re: Pain After Surgery

Post  Alana3 on Tue Jan 28, 2014 8:35 pm

I used dilators for a few months after surgery so I could control it and get used to it again. Also, I did physical therapy. You probably have a bit of vaginismus and are especially tense since it's always hurt you tense up and your muscles might spasm. I got muscle relaxers for that. The trick with the dilators, is to leave them in until your muscles start to relax and than move it in and out. You can start with a small one and go up to the big one. My doctor said if that didn't work I could do botox, but I decided to try this first. And it really worked. I would dilate for 10 minutes in my shower everyday either in the morning or after work. Also, if you stick your stomach all the way out and hold it there it will release your pelvic floor and help with spasms. But honestly what youre feeling now is more than likely muscle spasms. I would never in a million years have gone straight to sex. You need to be in control of your vagina right after this surgery. So try the dilators and get the name of a pelvic floor physical therapist and you should be set in a few months! Vitamin E is not going to do anything for you. It's all about exercise like any other muscle Smile hope this helps

Another suggestion, if you want to have sex with hubby (which I totally understand don't get me wrong!) have him just stay in you for a bit without moving. I don't know how exciting this will be for him or you, but once I started having sex again, that's what my boyfriend did for me and than we would do our thing after I felt comfortable. But remember your body has just gone thru a traumatic experience.

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Re: Pain After Surgery

Post  JuniperRain on Tue Jan 28, 2014 8:42 pm

Ok, that makes a lot of sense. Thank you! I went to physical therapy for a few months before I had my surgery but I haven't made any appointments to go back afterwards. I think I'll try dilating like you described and look into returning to therapy. Thanks for the quick response! It's really appreciated.

JuniperRain

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Re: Pain After Surgery

Post  Alana3 on Tue Jan 28, 2014 8:56 pm

No problem- let me know if I can help you at all! Definitely go back to therapy it helps a lot!

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Re: Pain After Surgery

Post  Fingerscrossed on Mon Feb 24, 2014 3:13 am

I had my surgery on December 17 and just tried to have sex for the first time today (husband's birthday). I've been to four physical therapy appointments in the past four weeks with homework three times a week, but I don't think I was ready yet. I felt like my skin was tearing at the six o' clock position and I think my pelvic floor dysfunction might be worse than before. He said that it felt like my body was trying to push him out, even though I was attempting to relax. Very disappointed right now, but I have to keep trying.

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Re: Pain After Surgery

Post  JuniperRain on Mon Feb 24, 2014 3:29 am

I'm sorry, Fingerscrossed. I understand how you feel. I never returned to PT after surgery but I did work at home on dilating for a while. After that I did what Alana3 had recommended and just put my husband inside me as much as possible with out it hurting too much and just sat there, we literally didn't move and I just focused on relaxing. I made sure to be on top so I could control everything. It hurt a little but each time we did it it hurt a little less and I could handle a little more. It definitely wasn't exciting or sexy but I think it helped. Aside from this we started focusing on other intimate, sexual acts without penetration and I think in a way this helped ease my anxiety some. Just a couple of nights ago I was able to have pain free sex for the first time in six years but I still had some swelling and pain afterwards that lasted most of the next day. So I can't say it's 100% better but it's SO much better than it was. Don't give up. Smile

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Re: Pain After Surgery

Post  Alana3 on Mon Feb 24, 2014 11:18 am

Try a lot of lube

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Re: Pain After Surgery

Post  21andcounting on Mon Mar 17, 2014 4:33 am

Hi Guys! I'm really happy I found this post today. I had surgery on December 11th and just tried having sex this weekend. I wasn't on that large of a dilator size yet but I was drunk and hopeful. It hurt a lot and I couldn't get it in more than 2 inches, but we stopped immediately after I felt like something wasn't right. It's reassuring to hear that I'm not alone though. I am really nervous because I have trouble identifying what muscle pain is supposed to feel like, and I'm always trying to analyze if it is "normal pain" or not. It felt kind of like a burning on the muscles near the opening, but wasn't similar to the pain I had before. The burning feeling is what really freaks me out. What does the pain actually feel like with you guys?

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Re: Pain After Surgery

Post  Alana3 on Mon Mar 17, 2014 1:54 pm

I guess it feels like burning. If you read up to my other replies I would suggest doing that and not going at it when you're drunk especially if you haven't done it yet. Take it slow you just had surgery and things haven't had a chance to heal all the way yet it takes a good 6 months. Also try lube my bf and I use about a half a bottle (granted we have sex for hours but still haha). You're going to have to retrain your muscles and your brain because everything is expecting pain and you may subconsciously be tensing up. Which causes pain.

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Re: Pain After Surgery

Post  julesmp on Thu Mar 27, 2014 7:54 pm

I have actually had two surgeries (the first removed very little tissue, and I found a much better doctor after). While things are MUCH better than before, I do still have pain during sex, and I have random flare-ups. It's disappointing but I have to remember how much better life is now.

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Re: Pain After Surgery

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