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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Pain After Surgery

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Pain After Surgery

Post  JuniperRain on Tue Jan 28, 2014 7:38 pm

I know some of you have had great success after having a vestibulectomy so I thought maybe I could ask you all a question. Like I've mentioned before I had a partial vestibulectomy on December 24th and things were going well. I had my stitches removed last Monday (the 20th) and my doctor told me everything looked great and that my husband and I could try having sex this week but that it might be a little sore due to the scar tissue not being so stretchy. Well, it really hurt! But in a different way than it hurt before. It wasn't the stinging, raw burning pain like a thousand paper cuts and it didn't swell up a lot like it used to but it still really hurt and we had to stop. I was wondering if any of you had a similar experience and if so how long it lasted? Do you think vitamin E would help? Or any other suggestions? I'm lost.

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Re: Pain After Surgery

Post  Alana3 on Tue Jan 28, 2014 8:35 pm

I used dilators for a few months after surgery so I could control it and get used to it again. Also, I did physical therapy. You probably have a bit of vaginismus and are especially tense since it's always hurt you tense up and your muscles might spasm. I got muscle relaxers for that. The trick with the dilators, is to leave them in until your muscles start to relax and than move it in and out. You can start with a small one and go up to the big one. My doctor said if that didn't work I could do botox, but I decided to try this first. And it really worked. I would dilate for 10 minutes in my shower everyday either in the morning or after work. Also, if you stick your stomach all the way out and hold it there it will release your pelvic floor and help with spasms. But honestly what youre feeling now is more than likely muscle spasms. I would never in a million years have gone straight to sex. You need to be in control of your vagina right after this surgery. So try the dilators and get the name of a pelvic floor physical therapist and you should be set in a few months! Vitamin E is not going to do anything for you. It's all about exercise like any other muscle Smile hope this helps

Another suggestion, if you want to have sex with hubby (which I totally understand don't get me wrong!) have him just stay in you for a bit without moving. I don't know how exciting this will be for him or you, but once I started having sex again, that's what my boyfriend did for me and than we would do our thing after I felt comfortable. But remember your body has just gone thru a traumatic experience.

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Re: Pain After Surgery

Post  JuniperRain on Tue Jan 28, 2014 8:42 pm

Ok, that makes a lot of sense. Thank you! I went to physical therapy for a few months before I had my surgery but I haven't made any appointments to go back afterwards. I think I'll try dilating like you described and look into returning to therapy. Thanks for the quick response! It's really appreciated.

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Re: Pain After Surgery

Post  Alana3 on Tue Jan 28, 2014 8:56 pm

No problem- let me know if I can help you at all! Definitely go back to therapy it helps a lot!

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Re: Pain After Surgery

Post  Fingerscrossed on Mon Feb 24, 2014 3:13 am

I had my surgery on December 17 and just tried to have sex for the first time today (husband's birthday). I've been to four physical therapy appointments in the past four weeks with homework three times a week, but I don't think I was ready yet. I felt like my skin was tearing at the six o' clock position and I think my pelvic floor dysfunction might be worse than before. He said that it felt like my body was trying to push him out, even though I was attempting to relax. Very disappointed right now, but I have to keep trying.

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Re: Pain After Surgery

Post  JuniperRain on Mon Feb 24, 2014 3:29 am

I'm sorry, Fingerscrossed. I understand how you feel. I never returned to PT after surgery but I did work at home on dilating for a while. After that I did what Alana3 had recommended and just put my husband inside me as much as possible with out it hurting too much and just sat there, we literally didn't move and I just focused on relaxing. I made sure to be on top so I could control everything. It hurt a little but each time we did it it hurt a little less and I could handle a little more. It definitely wasn't exciting or sexy but I think it helped. Aside from this we started focusing on other intimate, sexual acts without penetration and I think in a way this helped ease my anxiety some. Just a couple of nights ago I was able to have pain free sex for the first time in six years but I still had some swelling and pain afterwards that lasted most of the next day. So I can't say it's 100% better but it's SO much better than it was. Don't give up. Smile

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Re: Pain After Surgery

Post  Alana3 on Mon Feb 24, 2014 11:18 am

Try a lot of lube

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Re: Pain After Surgery

Post  21andcounting on Mon Mar 17, 2014 4:33 am

Hi Guys! I'm really happy I found this post today. I had surgery on December 11th and just tried having sex this weekend. I wasn't on that large of a dilator size yet but I was drunk and hopeful. It hurt a lot and I couldn't get it in more than 2 inches, but we stopped immediately after I felt like something wasn't right. It's reassuring to hear that I'm not alone though. I am really nervous because I have trouble identifying what muscle pain is supposed to feel like, and I'm always trying to analyze if it is "normal pain" or not. It felt kind of like a burning on the muscles near the opening, but wasn't similar to the pain I had before. The burning feeling is what really freaks me out. What does the pain actually feel like with you guys?

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Re: Pain After Surgery

Post  Alana3 on Mon Mar 17, 2014 1:54 pm

I guess it feels like burning. If you read up to my other replies I would suggest doing that and not going at it when you're drunk especially if you haven't done it yet. Take it slow you just had surgery and things haven't had a chance to heal all the way yet it takes a good 6 months. Also try lube my bf and I use about a half a bottle (granted we have sex for hours but still haha). You're going to have to retrain your muscles and your brain because everything is expecting pain and you may subconsciously be tensing up. Which causes pain.

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Re: Pain After Surgery

Post  julesmp on Thu Mar 27, 2014 7:54 pm

I have actually had two surgeries (the first removed very little tissue, and I found a much better doctor after). While things are MUCH better than before, I do still have pain during sex, and I have random flare-ups. It's disappointing but I have to remember how much better life is now.

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Re: Pain After Surgery

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