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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Welcome to ranting!!

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Welcome to ranting!!

Post  Sebby (Admin) on Thu Oct 21, 2010 7:27 pm

Had a great idea from one of our members...to create a forum where we can all just have a good rant!!

Yes there will be strong language so if you are a little sensitive just say the word 'bleep' when you come across anything colourful Laughing

So let it out..........

Sebby
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Last edited by Sebby (Admin) on Sun Feb 27, 2011 12:21 am; edited 1 time in total

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Re: Welcome to ranting!!

Post  Mouse on Fri Oct 22, 2010 1:58 am

Things that have fucked me off so far today... hell should we start with a whole weeks recap or just today?

I work with a bunch of twits who think life is a bit like high school. It's just a temporary contract but I could slap at least two of them (the same two) most days. I should mention about now that I've just had a two wine lunch after not having eaten or slept for 3 days/2 nights. This is because I also have CD and got glutened while celebrating my 20th wedding anniversary. I'm trying not to take that as an omen.

So during these sleepness nights I was able to focus on how hard it is to get comfortable with the other joy in my life. In theory I can only sleep on my back because any other position puts pressure on my girl bits.

I went off my medication as it wasn't adding anything to an already shitty situtation. Then when I got sick I couldn't figure out if that was because of something I had eaten or if it was the withdrawal from the mind altering substances. I phoned my Drs surgery thinking I would get some "advice" I subsequently got bitch slapped by 3 different nurses for being so foolish. Yeah, yeah I've had therapy and have done some psych papers I know they can't make me feel anything.. but I found I stuttered and stammered while feeling foolish and trying to justify myself.

My therapist is the only one who "really" listens to me and I have to pay her. I'm looking forward to our appointment next week, way too much. I avoid most of my friends and all of my family.

Ok so that's the gripe over. The things I am grateful for today are: I just had lunch with a lovely friend. I have another one coming to stay on Sunday night (oldest and dearest, I've REALLY been avoiding her). It's sunny and the fucken birds are singing... I wish they would fuck right off.





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Re: Welcome to ranting!!

Post  naomi on Fri Oct 22, 2010 11:36 pm

hahahaaaaaaa! that made me laugh! fuckin birds indeed - waste of space the lot of em Smile

Urrghhhhhhhh! seriously I wouldn't listen to those nurses, mind you in the UK the doctors are just as useless. If your arm isnt dropping off, you havent got an ingrown toe nail, giving up smoking or you arent overweight than there is feck all they can do for you. And when they do treat you they just give you a px for antibiotics. Then tell you to come back next week....you get to reception and the doctor is fully booked until the month after. Pretty ridiculous and getting worse all the time. Oh, I meant to say "pretty fucking twating ridiculous and getting bloody well worse all the fucking time" Smile dammmit I cant swear when Im allowed too Smile

Anyway, you know ur body more than any doctor, they had me on amitriptline (sp?) for months when I first went to seek help and then they tried gabapentin and I came off them. There was no use, I kept telling the consultant that mine is raw, inflammed skin, not nerve pain etc.

One thing that pissed me off today - one of my closest mates ringing and harping on about her s*x life, she hadnt had s*x (I have banned myself saying that word as im a forced celibute nun) for 2 months. OHHHH MYYYYY GODDDDDDDD, did I see red?!!! I replied with a "oh thanks for that, you try 2+ years and counting" urrrrggggghhhhhh how fucking thoughtless. Its not like Ive kept it all to myself. I tell everyone I know for that very reason - it really depresses me (if thats more possible) to hear about them swinging off the fecking chandeliers. Grrrrrrr.

one thing that I was grateful for today (note how im sticking to your format there Mouse Very Happy ) = my mum giving me a massive hug today. seeing Simon Pegg on the telly - hes so lush Smile

hahaha u know the only person (bar my parents) who listens to me is mt therapist! - and yes, I have to pay her too Smile

Arghhhhhhh Ive just remembered another thing that pissed me off today - A FUCKING MAN!!!! well meant to be a close friend. He'd text/email most days to see how I am. As soon as he gets a friggin lady friend hes off like a Jack Rabbit and I hear sweet feck all - MEN!! well actually I know a few women like it too. Then they usually break up and come back with their tail between their legs and all over u like a rash (not literally, you know what I mean). So yes im feeling pretty used so I gave him the fingers up - well I did it to my phone anyway. Huuhhhhhhh.

Rant rant rah rahhhhhhh rant over and now Ive got that off my chest im off to bed to read Smile


Last edited by naomi on Fri Oct 22, 2010 11:39 pm; edited 1 time in total
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Re: Welcome to ranting!!

Post  naomi on Fri Oct 22, 2010 11:37 pm

wooooahhhhhh i think im O.D'ing on the smilies a bit aren't I?! nevermind Very Happy Smile Razz Evil or Very Mad Its the only thing in the UK these days thats free, might as well stock up on them whilst theyre going! Shocked
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Re: Welcome to ranting!!

Post  Mouse on Sat Oct 23, 2010 8:58 pm

Wwwooohooooo that was a fab rant Naomi! In fact that would have been an A+ but could you see me after class about the use of expletives - NOT NEARLY enough!

I have to watch my friends have oral sex soon, I'm not that keen. Every Sunday we have coffee at a friends house, it's usually a large group and before long they all start oohing and aahing and stuffing their faces - with cake! Eating is not a spectator sport but because cake is a banned substance I get to grit my teeth and watch the assholes enjoying themselves a wee bit too much. Owww that's a lovely slice Alison! Ohhh my goodness Helen what have you used in this icing - it's divine! Their neighbours own a cafe so Lou brings croissants and other shizzer. I hate them/love them! I'm hoping Amanda doesn't turn up today with some fucken bready dipping thing. I had the "I'm so sorry you have CD" nano second last year now it's an orgy of cakes and I could give two flying fat fucks that you can't join in. I'm sure I would find church less annoying - hmmm maybe not, it's hard to find a GF communion wafer and I wldn't be able to drink the wine after a gluten gobbler had backwashed in it.

Things I'm grateful for today - SFA!!! I'm a bit depressed now. If Mum had bothered to acknowledge the birthday of her last born I'd get on over there for a hug. I might have to pop over and see your Mum Naomi Very Happy




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Re: Welcome to ranting!!

Post  naomi on Sat Oct 23, 2010 11:45 pm

good lordy i nearly spat out my camomile tea when I read about u watching ur mates having oral!!!...then a read on Smile

Have you got Costa Coffee in NZ? (bit like starbucks) If so get yourself down there and stock up on the gluten free choco brownies, they have them on the counter by the till. OMG they are fucking ammmmaaazinggggg!! I didnt need to swear then Im just getting carried away with the words and using them willy nilly Very Happy

Can u eat gluten free cake or is there any other ingredients u can tolerate? I bet uve got a lush figure though! so thats one plus! Mind you thats like saying "ohhhhh you cant have s*x?....nevermind, on the plus side at least you wont get any STI's Very Happy FUCK OFF!

Sorry uve had a cack day, sucks. Ive had one of those weeks - cry, generally feel sorry for myself, stress out, cry more, stay in bed til late afternoon (today was 4pm), watch tv, dinner, read til early hours, bed. Repeat that 7 times and Im back to last sat Mad Ive made an effort though today and booked some tickets to go to the cinema tomorrow with my folks. Its that 3D film thats about owls and its an animation. Dont ask me what its called as i havent the foggiest. Its at an IMAX theatre so no doubt my dad will end up with motion sickness and have to give up and wait at a coffee shop! bless him.

So at least theres that to look forward to. I was meant to be going to see a comedian tonight but had to give my tickets away, was in such as state yday morning i didnt think id be up to going. So had to send the tickets down to my brother Sad rubbish. And the fucker hasnt even said thanks...typical of him as I wouldnt expect anything less!

your mum didnt wish u happy bday last month?? get on her case missus!!! I would, mine wouldnt hear the last of it! It would ever happen though as I harp on about mine about 3 months previous. Actually, its about time I started Smile

bed for me then now as its stupidly late yet again, my sleeping patterns so out of sync now its not surprising i stay in bed so late!
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Re: Welcome to ranting!!

Post  Mouse on Sun Oct 24, 2010 1:39 am

I'm working on becoming sensible and trying not to become isolated as well. It's a work in progress. As for the birthday, it's called the birthday month in my house. I've found any birthday that has a zero on it can spin out for 2 months. I've lost the joy for them though and even declined parcels from the husband - he's very nervous.

We have Starbucks (we're not animals) but not Costas. Cake has become more precious to me than the tears of baby unicorns - which surprisingly I can eat... it's not that I want it, it's just no fun watching other people drool over it.

I hope the movie was good and you remembered a sick bag for your Dad. Your brother may need the same pep talk I'm going to give my Mother Evil or Very Mad

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