Log in

I forgot my password

Latest topics
» wheelchairs
Today at 4:25 am by SinclairSassy

» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Low oxalate diet & antihistamine

Go down

Low oxalate diet & antihistamine

Post  907hopeful on Thu Jan 30, 2014 7:28 am

Has anyone had success with a low oxalate diet? I think this might be part of my problem as I have had a little bit of success w/ vitamin b6 reducing my burning pain. I don't have much time to write tonight but wanted to see if there was anyone on here who could share more?

I have also been taking Zyrtec which is an antihistamine normally used for allergies. I think it's been keeping things at a dull burning level (vs painful), but I am too nervous to stop them to see what I would be like without them! Anyone successfully using an antihistamine?

907hopeful

Posts : 17
Join date : 2014-01-03

View user profile

Back to top Go down

Re: Low oxalate diet & antihistamine

Post  Alana3 on Thu Jan 30, 2014 3:51 pm

If an antihistamine is causing you to feel better you probably have an allergy to some thing. So eliminate stuff that comes in contact with your vagina...

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Allergic reaction

Post  907hopeful on Fri Jan 31, 2014 7:13 am

My story is long, but here is the gist of it...My problems started with what we thought was a yeast infection, but the swelling and inflammation would not go away. I was given a antifungal cream that I had an allergic reaction to. I got the initial reaction from the cream calmed down and the swelling finally went away, but I have been left with a raw/irritated/hypersensitive spot around one of my bartholins gland. I had a biopsy a couple weeks ago and was told I had a cyst on the gland (it was removed). The area of skin where the cyst was removed no longer hurts, but I still have inflammation all around it and sometimes in the opening (1st inch) if my vagina. The Zyrtec seems to help the vaginal inflammation but not the inflammation around the gland area. Dr thinks since there are no noticeable causes of my remaining inflammation (that she has found) that my nerves are continuing to fire even though the infection is cleared up causing my body to produce an inflammatory response (producing histamines).

She has prescribed me a compounded cream (lidocaine & gabapentin) but I am still waiting to get it. The thought is the gabapentin will reduce the nerve response and stop the inflammation cycle. I am not sure I am totally bought into that theory. I am looking into the low oxalate diet and Dr Solomans Pain Project protocol. Google it - it's a pretty interesting theory! I have definitely noticed a correlation between what I eat and my pain level (tomato products and alcohol are completely off the table). I have been taking b6 and calcium citrate which help remove oxalates from your urine. The calcium didn't make much difference in my pain level (burning) but b6  makes a noticeable difference.  I am taking it 2-3 times a day.

907hopeful

Posts : 17
Join date : 2014-01-03

View user profile

Back to top Go down

Re: Low oxalate diet & antihistamine

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum