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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Low oxalate diet & antihistamine

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Low oxalate diet & antihistamine

Post  907hopeful on Thu Jan 30, 2014 7:28 am

Has anyone had success with a low oxalate diet? I think this might be part of my problem as I have had a little bit of success w/ vitamin b6 reducing my burning pain. I don't have much time to write tonight but wanted to see if there was anyone on here who could share more?

I have also been taking Zyrtec which is an antihistamine normally used for allergies. I think it's been keeping things at a dull burning level (vs painful), but I am too nervous to stop them to see what I would be like without them! Anyone successfully using an antihistamine?

907hopeful

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Re: Low oxalate diet & antihistamine

Post  Alana3 on Thu Jan 30, 2014 3:51 pm

If an antihistamine is causing you to feel better you probably have an allergy to some thing. So eliminate stuff that comes in contact with your vagina...

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Allergic reaction

Post  907hopeful on Fri Jan 31, 2014 7:13 am

My story is long, but here is the gist of it...My problems started with what we thought was a yeast infection, but the swelling and inflammation would not go away. I was given a antifungal cream that I had an allergic reaction to. I got the initial reaction from the cream calmed down and the swelling finally went away, but I have been left with a raw/irritated/hypersensitive spot around one of my bartholins gland. I had a biopsy a couple weeks ago and was told I had a cyst on the gland (it was removed). The area of skin where the cyst was removed no longer hurts, but I still have inflammation all around it and sometimes in the opening (1st inch) if my vagina. The Zyrtec seems to help the vaginal inflammation but not the inflammation around the gland area. Dr thinks since there are no noticeable causes of my remaining inflammation (that she has found) that my nerves are continuing to fire even though the infection is cleared up causing my body to produce an inflammatory response (producing histamines).

She has prescribed me a compounded cream (lidocaine & gabapentin) but I am still waiting to get it. The thought is the gabapentin will reduce the nerve response and stop the inflammation cycle. I am not sure I am totally bought into that theory. I am looking into the low oxalate diet and Dr Solomans Pain Project protocol. Google it - it's a pretty interesting theory! I have definitely noticed a correlation between what I eat and my pain level (tomato products and alcohol are completely off the table). I have been taking b6 and calcium citrate which help remove oxalates from your urine. The calcium didn't make much difference in my pain level (burning) but b6  makes a noticeable difference.  I am taking it 2-3 times a day.

907hopeful

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