Log in

I forgot my password

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Low oxalate diet & antihistamine

Go down

Low oxalate diet & antihistamine

Post  907hopeful on Thu Jan 30, 2014 7:28 am

Has anyone had success with a low oxalate diet? I think this might be part of my problem as I have had a little bit of success w/ vitamin b6 reducing my burning pain. I don't have much time to write tonight but wanted to see if there was anyone on here who could share more?

I have also been taking Zyrtec which is an antihistamine normally used for allergies. I think it's been keeping things at a dull burning level (vs painful), but I am too nervous to stop them to see what I would be like without them! Anyone successfully using an antihistamine?


Posts : 17
Join date : 2014-01-03

View user profile

Back to top Go down

Re: Low oxalate diet & antihistamine

Post  Alana3 on Thu Jan 30, 2014 3:51 pm

If an antihistamine is causing you to feel better you probably have an allergy to some thing. So eliminate stuff that comes in contact with your vagina...


Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Allergic reaction

Post  907hopeful on Fri Jan 31, 2014 7:13 am

My story is long, but here is the gist of it...My problems started with what we thought was a yeast infection, but the swelling and inflammation would not go away. I was given a antifungal cream that I had an allergic reaction to. I got the initial reaction from the cream calmed down and the swelling finally went away, but I have been left with a raw/irritated/hypersensitive spot around one of my bartholins gland. I had a biopsy a couple weeks ago and was told I had a cyst on the gland (it was removed). The area of skin where the cyst was removed no longer hurts, but I still have inflammation all around it and sometimes in the opening (1st inch) if my vagina. The Zyrtec seems to help the vaginal inflammation but not the inflammation around the gland area. Dr thinks since there are no noticeable causes of my remaining inflammation (that she has found) that my nerves are continuing to fire even though the infection is cleared up causing my body to produce an inflammatory response (producing histamines).

She has prescribed me a compounded cream (lidocaine & gabapentin) but I am still waiting to get it. The thought is the gabapentin will reduce the nerve response and stop the inflammation cycle. I am not sure I am totally bought into that theory. I am looking into the low oxalate diet and Dr Solomans Pain Project protocol. Google it - it's a pretty interesting theory! I have definitely noticed a correlation between what I eat and my pain level (tomato products and alcohol are completely off the table). I have been taking b6 and calcium citrate which help remove oxalates from your urine. The calcium didn't make much difference in my pain level (burning) but b6  makes a noticeable difference.  I am taking it 2-3 times a day.


Posts : 17
Join date : 2014-01-03

View user profile

Back to top Go down

Re: Low oxalate diet & antihistamine

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum