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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


New member--leaving on a trip and I'm worried

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New member--leaving on a trip and I'm worried

Post  jackie333 on Wed Feb 05, 2014 3:27 am

I guess you've all heard the story.
I was diagnosed with Vulvadynia by a GYN specialist but she didn't have an answer and so I have been referred to an 'ultra' specialist who is supposed to be really awesome. I am so hoping I get relief--especially since my fiancee and I are leaving for a two week trip to Israel in two and half weeks. I have an appointment with the new doctor in another week.
This trip will entail hiking and lots of walking and I am so worried : (
Its' the trip of a lifetime and has long been in the works--please  keep me in your thoughts.
I am probably older then most of you, and here is a little bit of my history.
I've had bladder infections since the age of 5, and about 15 years ago--(I am 68) I had  terrible vaginal pain accompanying  a severe bladder infection. Now I have no bladder infection but recurrent episodes of terrible burning pain where I can hardly walk.
I'm normally a very upbeat person, but this is almost more then I can handle : (
Jackie333

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Re: New member--leaving on a trip and I'm worried

Post  alessandria on Thu Feb 06, 2014 5:55 am

Hey Jackie! Just wanted to send good thoughts your way -- I hope your ultra specialist can figure things out for you, and that you'll have a good remedy by the time your trip comes around! That sounds like it will be a seriously incredible adventure, I'm excited for you!

alessandria

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Re: New member--leaving on a trip and I'm worried

Post  zarli on Thu Feb 06, 2014 10:16 am

Hi Jackie, WOW such an exciting trip to look forward to. I, like you am older than most on here and I am also hitting the skies for a trip of a life time!!
I initially let this condition ruin my excitement but I am being proactive in seeking the right foot wear, numbing cream etc etc...
I hope you can do the same and try to relax, things will most probably be wonderful. Many kind warm wishes sent your way.


zarli

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Re: New member--leaving on a trip and I'm worried

Post  jackie333 on Thu Feb 06, 2014 1:30 pm

Thank you so very much!  It's difficult to talk about this problem with anyone who really hasn't experienced it and I am so grateful that I found this group of caring and understanding people.
I truly am looking forward to the trip and hopefully the specialist I'll be seeing this coming Tuesday- (the 11th) will offer  help in having a pain free trip.

Actually, I have a lot to be grateful for. My HMO is making the search for a good specialist possible, and the fact that the doctors on staff were willing to refer me to another doctor when they couldn't come up with a cause for the pain.
I really appreciate the good thoughts!

jackie333

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Saw the doctor today-

Post  jackie333 on Tue Feb 11, 2014 10:59 pm

I had an appointment with the Gyno who was recommended by the first Gyno I saw a couple of weeks ago, in the HMO system I belong to. This new doctor did a thorough exam and was very  hopeful. Ladies, we are not alone! She said  our problem is not rare--just extremely frustrating at times. Here is what she  did for me. I am to see a Physio Therapist  for a series of exercises which she feels will help the Vulvodynia and my unstable lower back too which she thinks may be causing a lot of the problem--referred pain. She also prescribed Lidocaine cream because I am leaving on a trip next week--She also prescribed Cipro just in case I come down with a bladder infection while I am gone--call it a peace of mind prescription!
The only difficult part is she prescribed a compounded prescription cream that won't be ready until I return from the trip and it is so expensive I may have to scrimp on my grocery shopping!  cry:

jackie333

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Re: New member--leaving on a trip and I'm worried

Post  zarli on Wed Feb 12, 2014 4:19 am

That sounds so positive Jackie. A wonderful piece of mind while you are away. I think good hormones will be running through your blood because of your trip and you will probably not notice any pain !! The power of the mind is a tremendous thing, I have been reminding myself of that a lot lately. I have had 2 pain free days in a row and I am ecstatic !! Don't know why I can't figure it out but I hope it keeps up. All the best to you and I am sending my best wishes to you for your journey and will be highly anticipating your return posts Smile

zarli

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Re: New member--leaving on a trip and I'm worried

Post  jackie333 on Wed Feb 12, 2014 1:25 pm

Thank you! I agree, I think  the rush of 'happy adrenaline' will be helpful...
I did start the Estrace Hormone cream last night and I feel about 80% of the pain is gone. It is still early in the morning and I usually feel better in the morning--so I will see as the day progresses. I have busy day ahead--friends are visiting from out of town and I am cooking up a storm here in Huntington Beach..
The doctor also is sending me to a physio Therapist who will have me do exercises which should help my lower back and the pelvic floor. I am somewhat cringing at the thought of what she is going to do Crying or Very sad 
Zarli, I would love to email you--and I did try last week but since I am a new member, the mail wouldn't go through...I think I am a 'seasoned enough' member now Very Happy 
Jackie

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Re: New member--leaving on a trip and I'm worried

Post  zarli on Fri Feb 14, 2014 7:45 am

hey Jackie
It would be great to email each other I will send you my email through a personal message xx

zarli

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Re: New member--leaving on a trip and I'm worried

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