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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


New member--leaving on a trip and I'm worried

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New member--leaving on a trip and I'm worried

Post  jackie333 on Wed Feb 05, 2014 3:27 am

I guess you've all heard the story.
I was diagnosed with Vulvadynia by a GYN specialist but she didn't have an answer and so I have been referred to an 'ultra' specialist who is supposed to be really awesome. I am so hoping I get relief--especially since my fiancee and I are leaving for a two week trip to Israel in two and half weeks. I have an appointment with the new doctor in another week.
This trip will entail hiking and lots of walking and I am so worried : (
Its' the trip of a lifetime and has long been in the works--please  keep me in your thoughts.
I am probably older then most of you, and here is a little bit of my history.
I've had bladder infections since the age of 5, and about 15 years ago--(I am 68) I had  terrible vaginal pain accompanying  a severe bladder infection. Now I have no bladder infection but recurrent episodes of terrible burning pain where I can hardly walk.
I'm normally a very upbeat person, but this is almost more then I can handle : (
Jackie333

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Re: New member--leaving on a trip and I'm worried

Post  alessandria on Thu Feb 06, 2014 5:55 am

Hey Jackie! Just wanted to send good thoughts your way -- I hope your ultra specialist can figure things out for you, and that you'll have a good remedy by the time your trip comes around! That sounds like it will be a seriously incredible adventure, I'm excited for you!

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Re: New member--leaving on a trip and I'm worried

Post  zarli on Thu Feb 06, 2014 10:16 am

Hi Jackie, WOW such an exciting trip to look forward to. I, like you am older than most on here and I am also hitting the skies for a trip of a life time!!
I initially let this condition ruin my excitement but I am being proactive in seeking the right foot wear, numbing cream etc etc...
I hope you can do the same and try to relax, things will most probably be wonderful. Many kind warm wishes sent your way.


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Re: New member--leaving on a trip and I'm worried

Post  jackie333 on Thu Feb 06, 2014 1:30 pm

Thank you so very much!  It's difficult to talk about this problem with anyone who really hasn't experienced it and I am so grateful that I found this group of caring and understanding people.
I truly am looking forward to the trip and hopefully the specialist I'll be seeing this coming Tuesday- (the 11th) will offer  help in having a pain free trip.

Actually, I have a lot to be grateful for. My HMO is making the search for a good specialist possible, and the fact that the doctors on staff were willing to refer me to another doctor when they couldn't come up with a cause for the pain.
I really appreciate the good thoughts!

jackie333

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Saw the doctor today-

Post  jackie333 on Tue Feb 11, 2014 10:59 pm

I had an appointment with the Gyno who was recommended by the first Gyno I saw a couple of weeks ago, in the HMO system I belong to. This new doctor did a thorough exam and was very  hopeful. Ladies, we are not alone! She said  our problem is not rare--just extremely frustrating at times. Here is what she  did for me. I am to see a Physio Therapist  for a series of exercises which she feels will help the Vulvodynia and my unstable lower back too which she thinks may be causing a lot of the problem--referred pain. She also prescribed Lidocaine cream because I am leaving on a trip next week--She also prescribed Cipro just in case I come down with a bladder infection while I am gone--call it a peace of mind prescription!
The only difficult part is she prescribed a compounded prescription cream that won't be ready until I return from the trip and it is so expensive I may have to scrimp on my grocery shopping!  cry:

jackie333

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Re: New member--leaving on a trip and I'm worried

Post  zarli on Wed Feb 12, 2014 4:19 am

That sounds so positive Jackie. A wonderful piece of mind while you are away. I think good hormones will be running through your blood because of your trip and you will probably not notice any pain !! The power of the mind is a tremendous thing, I have been reminding myself of that a lot lately. I have had 2 pain free days in a row and I am ecstatic !! Don't know why I can't figure it out but I hope it keeps up. All the best to you and I am sending my best wishes to you for your journey and will be highly anticipating your return posts Smile

zarli

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Re: New member--leaving on a trip and I'm worried

Post  jackie333 on Wed Feb 12, 2014 1:25 pm

Thank you! I agree, I think  the rush of 'happy adrenaline' will be helpful...
I did start the Estrace Hormone cream last night and I feel about 80% of the pain is gone. It is still early in the morning and I usually feel better in the morning--so I will see as the day progresses. I have busy day ahead--friends are visiting from out of town and I am cooking up a storm here in Huntington Beach..
The doctor also is sending me to a physio Therapist who will have me do exercises which should help my lower back and the pelvic floor. I am somewhat cringing at the thought of what she is going to do Crying or Very sad 
Zarli, I would love to email you--and I did try last week but since I am a new member, the mail wouldn't go through...I think I am a 'seasoned enough' member now Very Happy 
Jackie

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Re: New member--leaving on a trip and I'm worried

Post  zarli on Fri Feb 14, 2014 7:45 am

hey Jackie
It would be great to email each other I will send you my email through a personal message xx

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Re: New member--leaving on a trip and I'm worried

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