Log in

I forgot my password

Latest topics
» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


New member--leaving on a trip and I'm worried

Go down

New member--leaving on a trip and I'm worried

Post  jackie333 on Wed Feb 05, 2014 3:27 am

I guess you've all heard the story.
I was diagnosed with Vulvadynia by a GYN specialist but she didn't have an answer and so I have been referred to an 'ultra' specialist who is supposed to be really awesome. I am so hoping I get relief--especially since my fiancee and I are leaving for a two week trip to Israel in two and half weeks. I have an appointment with the new doctor in another week.
This trip will entail hiking and lots of walking and I am so worried : (
Its' the trip of a lifetime and has long been in the works--please  keep me in your thoughts.
I am probably older then most of you, and here is a little bit of my history.
I've had bladder infections since the age of 5, and about 15 years ago--(I am 68) I had  terrible vaginal pain accompanying  a severe bladder infection. Now I have no bladder infection but recurrent episodes of terrible burning pain where I can hardly walk.
I'm normally a very upbeat person, but this is almost more then I can handle : (
Jackie333

jackie333

Posts : 20
Join date : 2014-02-05
Age : 72
Location : Southern California

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  alessandria on Thu Feb 06, 2014 5:55 am

Hey Jackie! Just wanted to send good thoughts your way -- I hope your ultra specialist can figure things out for you, and that you'll have a good remedy by the time your trip comes around! That sounds like it will be a seriously incredible adventure, I'm excited for you!

alessandria

Posts : 39
Join date : 2013-12-07

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  zarli on Thu Feb 06, 2014 10:16 am

Hi Jackie, WOW such an exciting trip to look forward to. I, like you am older than most on here and I am also hitting the skies for a trip of a life time!!
I initially let this condition ruin my excitement but I am being proactive in seeking the right foot wear, numbing cream etc etc...
I hope you can do the same and try to relax, things will most probably be wonderful. Many kind warm wishes sent your way.


zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  jackie333 on Thu Feb 06, 2014 1:30 pm

Thank you so very much!  It's difficult to talk about this problem with anyone who really hasn't experienced it and I am so grateful that I found this group of caring and understanding people.
I truly am looking forward to the trip and hopefully the specialist I'll be seeing this coming Tuesday- (the 11th) will offer  help in having a pain free trip.

Actually, I have a lot to be grateful for. My HMO is making the search for a good specialist possible, and the fact that the doctors on staff were willing to refer me to another doctor when they couldn't come up with a cause for the pain.
I really appreciate the good thoughts!

jackie333

Posts : 20
Join date : 2014-02-05
Age : 72
Location : Southern California

View user profile

Back to top Go down

Saw the doctor today-

Post  jackie333 on Tue Feb 11, 2014 10:59 pm

I had an appointment with the Gyno who was recommended by the first Gyno I saw a couple of weeks ago, in the HMO system I belong to. This new doctor did a thorough exam and was very  hopeful. Ladies, we are not alone! She said  our problem is not rare--just extremely frustrating at times. Here is what she  did for me. I am to see a Physio Therapist  for a series of exercises which she feels will help the Vulvodynia and my unstable lower back too which she thinks may be causing a lot of the problem--referred pain. She also prescribed Lidocaine cream because I am leaving on a trip next week--She also prescribed Cipro just in case I come down with a bladder infection while I am gone--call it a peace of mind prescription!
The only difficult part is she prescribed a compounded prescription cream that won't be ready until I return from the trip and it is so expensive I may have to scrimp on my grocery shopping!  cry:

jackie333

Posts : 20
Join date : 2014-02-05
Age : 72
Location : Southern California

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  zarli on Wed Feb 12, 2014 4:19 am

That sounds so positive Jackie. A wonderful piece of mind while you are away. I think good hormones will be running through your blood because of your trip and you will probably not notice any pain !! The power of the mind is a tremendous thing, I have been reminding myself of that a lot lately. I have had 2 pain free days in a row and I am ecstatic !! Don't know why I can't figure it out but I hope it keeps up. All the best to you and I am sending my best wishes to you for your journey and will be highly anticipating your return posts Smile

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  jackie333 on Wed Feb 12, 2014 1:25 pm

Thank you! I agree, I think  the rush of 'happy adrenaline' will be helpful...
I did start the Estrace Hormone cream last night and I feel about 80% of the pain is gone. It is still early in the morning and I usually feel better in the morning--so I will see as the day progresses. I have busy day ahead--friends are visiting from out of town and I am cooking up a storm here in Huntington Beach..
The doctor also is sending me to a physio Therapist who will have me do exercises which should help my lower back and the pelvic floor. I am somewhat cringing at the thought of what she is going to do Crying or Very sad 
Zarli, I would love to email you--and I did try last week but since I am a new member, the mail wouldn't go through...I think I am a 'seasoned enough' member now Very Happy 
Jackie

jackie333

Posts : 20
Join date : 2014-02-05
Age : 72
Location : Southern California

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  zarli on Fri Feb 14, 2014 7:45 am

hey Jackie
It would be great to email each other I will send you my email through a personal message xx

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum