Log in

I forgot my password

Latest topics
» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


New member--leaving on a trip and I'm worried

View previous topic View next topic Go down

New member--leaving on a trip and I'm worried

Post  jackie333 on Wed Feb 05, 2014 3:27 am

I guess you've all heard the story.
I was diagnosed with Vulvadynia by a GYN specialist but she didn't have an answer and so I have been referred to an 'ultra' specialist who is supposed to be really awesome. I am so hoping I get relief--especially since my fiancee and I are leaving for a two week trip to Israel in two and half weeks. I have an appointment with the new doctor in another week.
This trip will entail hiking and lots of walking and I am so worried : (
Its' the trip of a lifetime and has long been in the works--please  keep me in your thoughts.
I am probably older then most of you, and here is a little bit of my history.
I've had bladder infections since the age of 5, and about 15 years ago--(I am 68) I had  terrible vaginal pain accompanying  a severe bladder infection. Now I have no bladder infection but recurrent episodes of terrible burning pain where I can hardly walk.
I'm normally a very upbeat person, but this is almost more then I can handle : (
Jackie333

jackie333

Posts : 20
Join date : 2014-02-05
Age : 72
Location : Southern California

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  alessandria on Thu Feb 06, 2014 5:55 am

Hey Jackie! Just wanted to send good thoughts your way -- I hope your ultra specialist can figure things out for you, and that you'll have a good remedy by the time your trip comes around! That sounds like it will be a seriously incredible adventure, I'm excited for you!

alessandria

Posts : 39
Join date : 2013-12-07

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  zarli on Thu Feb 06, 2014 10:16 am

Hi Jackie, WOW such an exciting trip to look forward to. I, like you am older than most on here and I am also hitting the skies for a trip of a life time!!
I initially let this condition ruin my excitement but I am being proactive in seeking the right foot wear, numbing cream etc etc...
I hope you can do the same and try to relax, things will most probably be wonderful. Many kind warm wishes sent your way.


zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  jackie333 on Thu Feb 06, 2014 1:30 pm

Thank you so very much!  It's difficult to talk about this problem with anyone who really hasn't experienced it and I am so grateful that I found this group of caring and understanding people.
I truly am looking forward to the trip and hopefully the specialist I'll be seeing this coming Tuesday- (the 11th) will offer  help in having a pain free trip.

Actually, I have a lot to be grateful for. My HMO is making the search for a good specialist possible, and the fact that the doctors on staff were willing to refer me to another doctor when they couldn't come up with a cause for the pain.
I really appreciate the good thoughts!

jackie333

Posts : 20
Join date : 2014-02-05
Age : 72
Location : Southern California

View user profile

Back to top Go down

Saw the doctor today-

Post  jackie333 on Tue Feb 11, 2014 10:59 pm

I had an appointment with the Gyno who was recommended by the first Gyno I saw a couple of weeks ago, in the HMO system I belong to. This new doctor did a thorough exam and was very  hopeful. Ladies, we are not alone! She said  our problem is not rare--just extremely frustrating at times. Here is what she  did for me. I am to see a Physio Therapist  for a series of exercises which she feels will help the Vulvodynia and my unstable lower back too which she thinks may be causing a lot of the problem--referred pain. She also prescribed Lidocaine cream because I am leaving on a trip next week--She also prescribed Cipro just in case I come down with a bladder infection while I am gone--call it a peace of mind prescription!
The only difficult part is she prescribed a compounded prescription cream that won't be ready until I return from the trip and it is so expensive I may have to scrimp on my grocery shopping!  cry:

jackie333

Posts : 20
Join date : 2014-02-05
Age : 72
Location : Southern California

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  zarli on Wed Feb 12, 2014 4:19 am

That sounds so positive Jackie. A wonderful piece of mind while you are away. I think good hormones will be running through your blood because of your trip and you will probably not notice any pain !! The power of the mind is a tremendous thing, I have been reminding myself of that a lot lately. I have had 2 pain free days in a row and I am ecstatic !! Don't know why I can't figure it out but I hope it keeps up. All the best to you and I am sending my best wishes to you for your journey and will be highly anticipating your return posts Smile

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  jackie333 on Wed Feb 12, 2014 1:25 pm

Thank you! I agree, I think  the rush of 'happy adrenaline' will be helpful...
I did start the Estrace Hormone cream last night and I feel about 80% of the pain is gone. It is still early in the morning and I usually feel better in the morning--so I will see as the day progresses. I have busy day ahead--friends are visiting from out of town and I am cooking up a storm here in Huntington Beach..
The doctor also is sending me to a physio Therapist who will have me do exercises which should help my lower back and the pelvic floor. I am somewhat cringing at the thought of what she is going to do Crying or Very sad 
Zarli, I would love to email you--and I did try last week but since I am a new member, the mail wouldn't go through...I think I am a 'seasoned enough' member now Very Happy 
Jackie

jackie333

Posts : 20
Join date : 2014-02-05
Age : 72
Location : Southern California

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  zarli on Fri Feb 14, 2014 7:45 am

hey Jackie
It would be great to email each other I will send you my email through a personal message xx

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: New member--leaving on a trip and I'm worried

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum