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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Amitriptyline Success and new-found love

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Amitriptyline Success and new-found love

Post  mary jane on Sun Feb 16, 2014 4:14 pm

After 5 months of hell and suicidal thoughts, I finally have some peace of mind and partial success with the amitriptyline. I have been taking 50 mg for 3 1/2 months and it has finally taken my pain levels down to a ZERO! I can wear skinny jeans again, sit down without pain, walk in high heels, WALK long distances, wash without pain. The electric shocks and nerve buzzing are GONE! Magnesium has also REALLY REALLY helped me!
My latest "cure" however has been finding the most sweet caring guy who is very calm and patient about my whole problem. He is very patient and assures me it is not the end of the world for him if we have to wait until I am better. My central nervous system is far too busy these days with happy hormones (=falling in love) and it no longer focuses on the pain. My next step is to find a way for painless sex and to reduce the pain with/after touch.
I urge anyone out there with nerve pain to not give up and keep trying as many things as possible.
I also follow a girl with vulval and bladder pain and she also found success after 6 years of treatments and pills. she is half way to being cured. Her problem turned out to be in the superior hypogastric nerve. (read more here: http://madpeach.blogspot.co.uk/)

love you all and wish you all find relief  I love you 
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Re: Amitriptyline Success and new-found love

Post  Georgia H on Sun Feb 16, 2014 11:49 pm

That's so great Mary Jane!! So happy for you! I've been thinking about how long I would give the amitriptyline and this has inspired me to persist!

So nice to see so many success stories on here right now. Yay!

Xxx  I love you 

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Re: Amitriptyline Success and new-found love

Post  Leslieg on Mon Feb 17, 2014 12:15 am

Maryjane!!!! Smile Smile Smile
Truly happy for you!! xo

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Re: Amitriptyline Success and new-found love

Post  zarli on Mon Feb 17, 2014 5:30 am

You made my day, so thrilled for you . OH the sweet joy of NO PAIN !!!!! Enjoy your wonderful life like crazy...... I love you I love you 

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Re: Amitriptyline Success and new-found love

Post  mary jane on Mon Feb 17, 2014 2:56 pm

thank you all Smile You're all very sweet!
Yes, please try everything out there, even if it does not give you a cure -you CAN and WILL manage this!
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Re: Amitriptyline Success and new-found love

Post  tinkerbelle2 on Mon Feb 17, 2014 5:49 pm

Mary Jane I am thrilled for you!!!! This is brilliant. I have been much better since taking Ami although not quite there yet. But we can all get there. So pleased about the new guy too! Xxxx  I love you 
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Re: Amitriptyline Success and new-found love

Post  mary jane on Tue Feb 18, 2014 11:24 am

thank you tinkerbelle ! You're such a sweetheart, you deserve to be rid of this once and for all ! Just stick with the treatment plan and be positive !  I love you I love you 
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Re: Amitriptyline Success and new-found love

Post  Alana3 on Tue Feb 18, 2014 2:09 pm

Congrats! I told you so!!!!!  Very Happy 

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Re: Amitriptyline Success and new-found love

Post  mary jane on Thu Feb 20, 2014 11:05 am

thank you Alana, I remember how you've always told me to keep a positive perspective on things Smile
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Re: Amitriptyline Success and new-found love

Post  Nelsonhs30 on Sun Feb 23, 2014 11:42 pm

Congrats!! That's great! I can't imagine waiting 6 years to have success tho. Too long! I'm only 7 months in and wanting to die already.

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Re: Amitriptyline Success and new-found love

Post  tinkerbelle2 on Sat Mar 15, 2014 1:31 pm

Mary Jane I WAS doing much better on the ami but now it seems to have decreased effectiveness and I'm soo sore. But i am definitely going to give it a go for another few months. Are your pain levels still low or even gone? Hope they are! !!! Xxx
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Re: Amitriptyline Success and new-found love

Post  mary jane on Sun Mar 16, 2014 9:28 pm

Hi Tinkerbelle...have't bee on the forum much because I'm still feeling good.
I can now wear skinny jeans AND walk in high heels for hours, sit down all day long with some soreness (nothing big). I still have some pain with touch. My nerve buzzing and crawling under the skin is GONE 100%
I am now on amitriptyline 50 mg and Pregabalin Lyrica working up to 300 mg a day...the only thing Lyrica did for me so far is numb my "tickle nerves". It is impossible for me to get tickled now, and my stomach was a tickling horror-fest, the slightest touch would feel super sensitive....I will grab the courage to try intercourse in a few weeks, luckily my guy does not pressure me...if these don't work, my dr wants to try a pundendal nerve block on me...I'd rather just stick with meds....


about the amitriptyline now, it still gives me some occasional panick attacks...I'd stick with it for 3 months if I were you, I know it seems like forever, I also thought it would never work for me, but the pain gradually went away...

I'm now on the hunt for a pharmacy who does valium rectal suppositories or lidocaine 10%, maybe my stupid GP will help me with those...

btw, have you thought of ALOE organic gel ?? it is like a natural NSAID

I don't know what else to recommend, just keep trying...
Oh yeah, and my yeast infection is also cured Smile

I cured it with 4 months of probiotics (bio kult candea) and the final touch was raw garlic for one week ..it's a natural antibiotic.....
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Re: Amitriptyline Success and new-found love

Post  tinkerbelle2 on Fri Mar 21, 2014 7:58 am

Ahhh brilliant! This is amazing news. I do think I should stay on the ami at least one more month. Is it okay to be on the ami and lyrica at the same time? Do you have any side effects? Xx
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Re: Amitriptyline Success and new-found love

Post  tinkerbelle2 on Fri Mar 21, 2014 8:00 am

Just PM'd you lovely xx
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Re: Amitriptyline Success and new-found love

Post  mary jane on Sat Jun 14, 2014 7:33 pm

Hello again,

I'll just update this quickly in case anyone else is googling for vulvodynia/pudendal issues ...general pain, pain with touch and painful intercourse.
Symptoms were in my signature.
After 8 months on Amitriptyline 50 mg + Pregabalin/Lyrica everything was cured and I was ready to stop taking the meds.
I now have bartholin gland issues which will probably take me back to square one with the pain because they require surgery, but anyway.

Amitriptyline took 3 1/2 months to work and had craploads of side effects, but slowly it worked for the GENERAL PAIN.
After about 6 months I added Lyrica 300 mg to this and the pain with touch and painful intercourse STOPPED HAPPENING COMPLETELY after about 2 more months. At this stage, sex was pain free (minus the initial first minute-tight muscles) and enjoyable. Also if you have pain with touch you must de-sensitise the area with gradual touching.
The only side effects lyrica gave me were head aches for the first week and some random days of feeling high. Way better than the ami.

To this I add the MAGNESIUM, the happy days, the vit D, the B-vitamins, distracting my mind from it, etc.

I hope this helps anyone out there.
May we all get cured

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Re: Amitriptyline Success and new-found love

Post  Sebby (Admin) on Fri Jun 20, 2014 10:31 am

Wonderful, thank you so much for sharing your success. It gives all our members hope x
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Re: Amitriptyline Success and new-found love

Post  zarli on Sun Jun 22, 2014 5:32 am

Hi mary jane just wondering if you only take lyrica or are you still on both amil and lyrica ? And if you stopped the amil did you have any bad days? Thanks Smile

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Re: Amitriptyline Success and new-found love

Post  Jo44 on Mon Feb 23, 2015 2:41 pm

Hi Mary Janes, I would love to know how you're doing now please?

Thanks

Jo x

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Re: Amitriptyline Success and new-found love

Post  WaahwaahUK on Wed Aug 26, 2015 5:18 pm

This story gives me hope. So happy for your recovery x

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Re: Amitriptyline Success and new-found love

Post  Katiej on Sat Nov 18, 2017 12:24 pm

Maryjane I dunno if you are still on this. I just started ami 10 days ago. I am on 15mg . How are you now ? I hope I wouldnt have to stay on it forever? I know this post is so old but im just in a bit of a panic. Have lots of stabbing nerves and pinching sensations down there . Did u have this and did the ami take it away. Thanks

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Re: Amitriptyline Success and new-found love

Post  hannah22 on Thu Dec 07, 2017 1:56 am

Hello,

I am so happy you are feeling better Very Happy I had previously tried amitriptyline. I have different pains at the vulva, uretha, and clitoris area and when I was on amitriptyline it slightly helped the needling pain at the clitoris, but no where else and after months it never got any better. I had a vestibulectomy a few months ago and the pain is worse so they put me on lyrica which helps a tiny bit at the clitoris with the needle feeling, but nothing at the vuvla again. I was wondering if you felt better all at once or slowly? I also was curious if you felt a little better before a few months or nothing until then? I am just not sure how long I should stay on lyrics if it isn't helping at all after a month. Sorry for the long message!

Thank you,
Hannah

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Re: Amitriptyline Success and new-found love

Post  mary jane on Sat Dec 09, 2017 4:45 pm

hannah22 wrote:Hello,

I am so happy you are feeling better Very Happy I had previously tried amitriptyline. I have different pains at the vulva, uretha, and clitoris area and when I was on amitriptyline it slightly helped the needling pain at the clitoris, but no where else and after months it never got any better.  I had a vestibulectomy a few months ago and the pain is worse so they put me on lyrica which helps a tiny bit at the clitoris with the needle feeling, but nothing at the vuvla again.  I was wondering if you felt better all at once or slowly?  I also was curious if you felt a little better before a few months or nothing until then? I am just not sure how long I should stay on lyrics if it isn't helping at all after a month. Sorry for the long message!

Thank you,
Hannah

Hello, I have had remission and relapse since this post, also broke up with that guy sadly..

Amitriptyline started working for me from 30 mg up, this means after approximately 1 and 1/2 months ... but I only achieved adequate pain control after 3 months on this medication at a total of 50 mg.

Lyrica worked very fast for me, I would say maybe give it 2 months in your case, but for me it worked in weeks, albeit it made my skin numb so it had an overall effect on my sensitivity (a good thing)

I was able to get to full remission, one year and 4 months of no symptoms...
I have spoken with a neuro privately and she said it was impossible for me to have actual nerve damage because I would not have been able to give up on my medication. Was told it's psychogenic but not given any tips on how to actually overcome this if it's the case...argh

I'm currently experimenting with valerian tea to quiet the nervous system because I am trying to decrease my dosage of ami from 50 to 40 mg ...
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Re: Amitriptyline Success and new-found love

Post  hannah22 on Mon Dec 11, 2017 2:47 am

Thank you for the helpful information. I am going to stay on the lyrica for a while longer and hopefully it helps. I am sorry to hear about your relapse and I hope the valerian tea works for you. Best of luck!

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