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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Valium suppository.

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Valium suppository.

Post  Meowlowxo on Thu Feb 20, 2014 6:47 pm

Hi everyone,
I have been dealing with this emotionally and psychically painful disease for about 9 years. My biggest issue is sexual activity. Daily activities, like wearing pants or sitting, don't seem to bother me. While I am sensitive on the outside, most of my pain  is excruciating pain, and it is on the inside. I recently saw a doctor who has been rated at top of the line, she suggested Valium suppositories. I'm a bit hesitant about this solution, or lack of solution. Has any one had experiences with Valium suppositories? Positive or negative, I wouldn't mind hearing either side. I don't object them, and I would  try them if they help this awful pain, I would just like to hear if anybody has their own story involving them.

Thanks so much,
Sarah

Meowlowxo

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Re: Valium suppository.

Post  21andcounting on Fri Feb 21, 2014 4:10 am

Hi! I'm using suppositories pretty regularly now to help me progress through the dilators. It helps me a lot with muscle tightness and spasms, but never helped in the past with any of the nerve pain. I've never tried putting them in before sex though, theoretically it might help! There is no harm in trying.

21andcounting

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Re: Valium suppository.

Post  shanabanana999 on Fri Mar 07, 2014 6:21 am

My doctor suggested using them for pain so I tried them. They helped but it was only short-term (meaning for an hour or two), and the time that they worked for decreased dramatically in a short period of time (within several weeks they did not work for very long any more--maybe 30 minutes). And the relief was not enough for intercourse.

If I used them for several days in a row I would have slight bleeding from them, nothing major but I did need to wear a liner. I'm not sure if this occurs for everyone but it was irritating for me because the liners caused burning (counter-intuitive!)

My pain is muscular and nerve pain. I will tell you that for times when I had muscular pain during the night that was keeping me awake and I would use one it was helpful to relieve the spasms and help me to sleep. Hope my experience helps with your decision.

shanabanana999

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Re: Valium suppository.

Post  Fingerscrossed on Tue Mar 25, 2014 3:18 pm

I just started them on Friday. My PT suggested them and so I got the prescription from my doctor. I only have pain with penetration, so I'm not sure if they're working. I am also having discharge--thank you for clearing that one up. I was afraid something was wrong. I don't know if I'm going to refill my prescription on them. I got enough for twenty days and unfortunately you have to use them quickly or else they expire.

Fingerscrossed

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Re: Valium suppository.

Post  Alana3 on Tue Mar 25, 2014 5:04 pm

why would valium expire anytime than after a year? That's not true in the least. They are like any other drug.

Alana3

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Re: Valium suppository.

Post  Fingerscrossed on Sun Mar 30, 2014 7:35 pm

It's a compounded medication built into a suppository that looks like earplugs, so it's very different from the regular pills that are more shelf-stable, so yes it is true. I think I'm going to stop them once they're gone though. I don't think they're helping and I keep having light bleeding throughout the day even though I'm only using them at night.

Fingerscrossed

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Re: Valium suppository.

Post  Alana3 on Mon Mar 31, 2014 12:06 pm

Weird mine aren't like that just a regular pill. Didn't help me either

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Re: Valium suppository.

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