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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Valium suppository.

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Valium suppository.

Post  Meowlowxo on Thu Feb 20, 2014 6:47 pm

Hi everyone,
I have been dealing with this emotionally and psychically painful disease for about 9 years. My biggest issue is sexual activity. Daily activities, like wearing pants or sitting, don't seem to bother me. While I am sensitive on the outside, most of my pain  is excruciating pain, and it is on the inside. I recently saw a doctor who has been rated at top of the line, she suggested Valium suppositories. I'm a bit hesitant about this solution, or lack of solution. Has any one had experiences with Valium suppositories? Positive or negative, I wouldn't mind hearing either side. I don't object them, and I would  try them if they help this awful pain, I would just like to hear if anybody has their own story involving them.

Thanks so much,
Sarah

Meowlowxo

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Re: Valium suppository.

Post  21andcounting on Fri Feb 21, 2014 4:10 am

Hi! I'm using suppositories pretty regularly now to help me progress through the dilators. It helps me a lot with muscle tightness and spasms, but never helped in the past with any of the nerve pain. I've never tried putting them in before sex though, theoretically it might help! There is no harm in trying.

21andcounting

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Re: Valium suppository.

Post  shanabanana999 on Fri Mar 07, 2014 6:21 am

My doctor suggested using them for pain so I tried them. They helped but it was only short-term (meaning for an hour or two), and the time that they worked for decreased dramatically in a short period of time (within several weeks they did not work for very long any more--maybe 30 minutes). And the relief was not enough for intercourse.

If I used them for several days in a row I would have slight bleeding from them, nothing major but I did need to wear a liner. I'm not sure if this occurs for everyone but it was irritating for me because the liners caused burning (counter-intuitive!)

My pain is muscular and nerve pain. I will tell you that for times when I had muscular pain during the night that was keeping me awake and I would use one it was helpful to relieve the spasms and help me to sleep. Hope my experience helps with your decision.

shanabanana999

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Re: Valium suppository.

Post  Fingerscrossed on Tue Mar 25, 2014 3:18 pm

I just started them on Friday. My PT suggested them and so I got the prescription from my doctor. I only have pain with penetration, so I'm not sure if they're working. I am also having discharge--thank you for clearing that one up. I was afraid something was wrong. I don't know if I'm going to refill my prescription on them. I got enough for twenty days and unfortunately you have to use them quickly or else they expire.

Fingerscrossed

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Re: Valium suppository.

Post  Alana3 on Tue Mar 25, 2014 5:04 pm

why would valium expire anytime than after a year? That's not true in the least. They are like any other drug.

Alana3

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Re: Valium suppository.

Post  Fingerscrossed on Sun Mar 30, 2014 7:35 pm

It's a compounded medication built into a suppository that looks like earplugs, so it's very different from the regular pills that are more shelf-stable, so yes it is true. I think I'm going to stop them once they're gone though. I don't think they're helping and I keep having light bleeding throughout the day even though I'm only using them at night.

Fingerscrossed

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Re: Valium suppository.

Post  Alana3 on Mon Mar 31, 2014 12:06 pm

Weird mine aren't like that just a regular pill. Didn't help me either

Alana3

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Re: Valium suppository.

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