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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Valium suppository.

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Valium suppository.

Post  Meowlowxo on Thu Feb 20, 2014 6:47 pm

Hi everyone,
I have been dealing with this emotionally and psychically painful disease for about 9 years. My biggest issue is sexual activity. Daily activities, like wearing pants or sitting, don't seem to bother me. While I am sensitive on the outside, most of my pain  is excruciating pain, and it is on the inside. I recently saw a doctor who has been rated at top of the line, she suggested Valium suppositories. I'm a bit hesitant about this solution, or lack of solution. Has any one had experiences with Valium suppositories? Positive or negative, I wouldn't mind hearing either side. I don't object them, and I would  try them if they help this awful pain, I would just like to hear if anybody has their own story involving them.

Thanks so much,


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Re: Valium suppository.

Post  21andcounting on Fri Feb 21, 2014 4:10 am

Hi! I'm using suppositories pretty regularly now to help me progress through the dilators. It helps me a lot with muscle tightness and spasms, but never helped in the past with any of the nerve pain. I've never tried putting them in before sex though, theoretically it might help! There is no harm in trying.


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Re: Valium suppository.

Post  shanabanana999 on Fri Mar 07, 2014 6:21 am

My doctor suggested using them for pain so I tried them. They helped but it was only short-term (meaning for an hour or two), and the time that they worked for decreased dramatically in a short period of time (within several weeks they did not work for very long any more--maybe 30 minutes). And the relief was not enough for intercourse.

If I used them for several days in a row I would have slight bleeding from them, nothing major but I did need to wear a liner. I'm not sure if this occurs for everyone but it was irritating for me because the liners caused burning (counter-intuitive!)

My pain is muscular and nerve pain. I will tell you that for times when I had muscular pain during the night that was keeping me awake and I would use one it was helpful to relieve the spasms and help me to sleep. Hope my experience helps with your decision.


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Re: Valium suppository.

Post  Fingerscrossed on Tue Mar 25, 2014 3:18 pm

I just started them on Friday. My PT suggested them and so I got the prescription from my doctor. I only have pain with penetration, so I'm not sure if they're working. I am also having discharge--thank you for clearing that one up. I was afraid something was wrong. I don't know if I'm going to refill my prescription on them. I got enough for twenty days and unfortunately you have to use them quickly or else they expire.


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Re: Valium suppository.

Post  Alana3 on Tue Mar 25, 2014 5:04 pm

why would valium expire anytime than after a year? That's not true in the least. They are like any other drug.


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Re: Valium suppository.

Post  Fingerscrossed on Sun Mar 30, 2014 7:35 pm

It's a compounded medication built into a suppository that looks like earplugs, so it's very different from the regular pills that are more shelf-stable, so yes it is true. I think I'm going to stop them once they're gone though. I don't think they're helping and I keep having light bleeding throughout the day even though I'm only using them at night.


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Re: Valium suppository.

Post  Alana3 on Mon Mar 31, 2014 12:06 pm

Weird mine aren't like that just a regular pill. Didn't help me either


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Re: Valium suppository.

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