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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Valium suppository.

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Valium suppository.

Post  Meowlowxo on Thu Feb 20, 2014 6:47 pm

Hi everyone,
I have been dealing with this emotionally and psychically painful disease for about 9 years. My biggest issue is sexual activity. Daily activities, like wearing pants or sitting, don't seem to bother me. While I am sensitive on the outside, most of my pain  is excruciating pain, and it is on the inside. I recently saw a doctor who has been rated at top of the line, she suggested Valium suppositories. I'm a bit hesitant about this solution, or lack of solution. Has any one had experiences with Valium suppositories? Positive or negative, I wouldn't mind hearing either side. I don't object them, and I would  try them if they help this awful pain, I would just like to hear if anybody has their own story involving them.

Thanks so much,
Sarah

Meowlowxo

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Re: Valium suppository.

Post  21andcounting on Fri Feb 21, 2014 4:10 am

Hi! I'm using suppositories pretty regularly now to help me progress through the dilators. It helps me a lot with muscle tightness and spasms, but never helped in the past with any of the nerve pain. I've never tried putting them in before sex though, theoretically it might help! There is no harm in trying.

21andcounting

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Re: Valium suppository.

Post  shanabanana999 on Fri Mar 07, 2014 6:21 am

My doctor suggested using them for pain so I tried them. They helped but it was only short-term (meaning for an hour or two), and the time that they worked for decreased dramatically in a short period of time (within several weeks they did not work for very long any more--maybe 30 minutes). And the relief was not enough for intercourse.

If I used them for several days in a row I would have slight bleeding from them, nothing major but I did need to wear a liner. I'm not sure if this occurs for everyone but it was irritating for me because the liners caused burning (counter-intuitive!)

My pain is muscular and nerve pain. I will tell you that for times when I had muscular pain during the night that was keeping me awake and I would use one it was helpful to relieve the spasms and help me to sleep. Hope my experience helps with your decision.

shanabanana999

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Re: Valium suppository.

Post  Fingerscrossed on Tue Mar 25, 2014 3:18 pm

I just started them on Friday. My PT suggested them and so I got the prescription from my doctor. I only have pain with penetration, so I'm not sure if they're working. I am also having discharge--thank you for clearing that one up. I was afraid something was wrong. I don't know if I'm going to refill my prescription on them. I got enough for twenty days and unfortunately you have to use them quickly or else they expire.

Fingerscrossed

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Re: Valium suppository.

Post  Alana3 on Tue Mar 25, 2014 5:04 pm

why would valium expire anytime than after a year? That's not true in the least. They are like any other drug.

Alana3

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Re: Valium suppository.

Post  Fingerscrossed on Sun Mar 30, 2014 7:35 pm

It's a compounded medication built into a suppository that looks like earplugs, so it's very different from the regular pills that are more shelf-stable, so yes it is true. I think I'm going to stop them once they're gone though. I don't think they're helping and I keep having light bleeding throughout the day even though I'm only using them at night.

Fingerscrossed

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Re: Valium suppository.

Post  Alana3 on Mon Mar 31, 2014 12:06 pm

Weird mine aren't like that just a regular pill. Didn't help me either

Alana3

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Re: Valium suppository.

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