Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


I'm New! and recovering from surgery

Page 1 of 2 1, 2  Next

View previous topic View next topic Go down

I'm New! and recovering from surgery

Post  Chrisk on Mon Feb 24, 2014 5:18 pm

Hi all, I'm so happy to find this forum! After trying many things over a long period of time to address dyspernia, my doctor advised a posterior vestibulectomy. I'd read up on it, and it sound promising, and last week Tuesday I had the surgery. I'm 55, menopause for several years, and never had surgery before. I know we all recover at our own pace, but I'm a bit worried because I was told the first 3 days would be uncomfortable, and one week off work was all I would need. Sounded like a mosquito bite!

Alas, but today is 6 days since surgery, and I am still wrestling with all sorts of strange things. I'm still having discomfort sitting normally, can't imagine trying to commute to work and then sit all day at my desk!.

But what's bothering me most is that my bowels are not back to normal (I'm vegan and usually poo 2-3 times a day. Fibre is not a problem for me, but I'm finding it difficult to properly empty and when I wipe, it feels like maybe there are stitches overlaping or something.. does that make any sense?) Anyway, I'm only going once a day and only little bits of flat stool .. I feel toxic and gassy because I can't empty. Could something have gone awry during surgery? Or is it normal for the body to take this long to get back on track after surgery/pain meds. (I stopped taking the pain meds after 3 or 4 days because of this.)

Also, my doctor had said to continue taking vagisil a day or two after the surgery. I waited five days, took the first one last night, and had a very strong reaction to the hormone. My body is still cool to the touch, although the dizziness and nausea are starting to ease up now.

I'm wondering if anyone else had had this surgery. And what your experience has been. It's my first surgery, and I don't have much to go on to understand if this is all just normal, or if/when I should get worried..

BTW - The doctor told me 4 weeks before attempting intercourse, but at this rate, I'll likely wait twice that!

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Mon Feb 24, 2014 6:12 pm

Hi!
I had a vestibulectomy December of 2012. It was the best thing I have ever done for myself. Yes, the bathroom issue was an issue for me too I think it took 4 days before I could go to the bathroom. I solved this by taking Colace (a stool softener) so I didn't have to strain when I finally did go let me tell you best feeling ever! So if you haven't got that I would recommend it. But yes, that is completely normal after any surgery!

Please remember that everyone is different. What's good for one person may or may not be good for you. I didn't go back to work for 2 weeks and even then I took half days- but sitting can be uncomfortable just do what works for you. My doctor told me definitely 6 weeks recovery and than I did physical therapy and dilators before I attempted sex again(which I waited a year due to no bf). Now besides my endometriosis (which I'm getting surgery Friday yay thrill) I have virtually pain free sex. My best advice is to keep icing your hooha and take it easy.

I wasn't aware vagisil was a hormone (isn't that the suppository?) But seriously this surgery was the BEST thing I ever did I couldn't have sex before this and it turned my life around so hopefully you get the same results!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Tue Feb 25, 2014 1:06 pm

Alana3 wrote:Hi!
I had a vestibulectomy December of 2012. It was the best thing I have ever done for myself.
Thanks for saying so! It helps to hear that right now  Very Happy 

Alana3 wrote:
Please remember that everyone is different.  What's good for one person may or may not be good for you. I didn't go back to work for 2 weeks and even then I took half days- but sitting can be uncomfortable just do what works for you.  My doctor told me definitely 6 weeks recovery and than I did physical therapy and dilators before I attempted sex again(which I waited a year due to no bf).  Now besides my endometriosis (which I'm getting surgery Friday yay thrill) I have virtually pain free sex.  My best advice is to keep icing your hooha and take it easy.


Okay, thanks. I am just different. I'm not the person who recovers in two-three days. I'm the person who recovers in weeks and that's okay too. My only concern at the moment is that my poos are all flat-ribbon-like. That's new since surgery. So for the moment I'm just keeping a journal of it to see if it self-corrects or not. Could be related to the issue I had a few years ago with rectocel, which was corrected thru physiotherapy.

Alana3 wrote:
I wasn't aware vagisil was a hormone (isn't that the suppository?) But seriously this surgery was the BEST thing I ever did I couldn't have sex before this and it turned my life around so hopefully you get the same results!

Yes, the vagisil I take is a very low dose of estrogen. It's administered as a vaginal suppository. With such a strong reaction after taking my first post-surgery dose, I've decided not to take another for a while. probably should run that past my doctor..

Thanks again for sharing your story and advice!

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Tue Feb 25, 2014 1:37 pm

Honestly im sure youre fine surgery does weird things to your body. I didnt mean to compare my healing to yours at all tho I said weeks not days I thought. Thats weird that hed want you to put anything in your vagina that soon. My doctor told me nothing in my vagina for 6 weeks but again everyone is different. Anyway lots of ice and rest I think you'll be pleased with the results tho when its all said and done.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Thu Feb 27, 2014 1:23 pm

Thanks so much. I have found your responses to my questions about the posterior vestibulectomy surgery very helpful.. I wondered if I could have your take on this..

My body seems to be starting to settle down in a lot of ways now, since my surgery 9 days ago today. One thing is new, and I'm not certain if it's normal healing or not. Starting day 7, i noticed a vaginal odor, and it's been getting worse each day. (Today is the third day.) No discharge of any sort. But it feels similar to a yeast infection.

My husband thinks it could be normal part of the healing, stitches disolving or some such thing. After years of issues I don't know what to think about it. Do you recall having any such issue post-surgery? Could this be normal part of healing or something of concern?

Again, many many thanks to you!

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Thu Feb 27, 2014 2:13 pm

Yes! This might sound gross but I was afraid to touch it after surgery so my hooha smelled a bit haha and developed into a yeast infection (luckily my dad is a doctor too so he wrote me a diflucan). It cleared right up with the diflucan and called my doc he said don't be afraid to clean it (and YES its a huge mental thing with women who have vulvodynia so he said I'm not different than anyone else haha nice to know). So maybe call ur surgeon and see what he says! It could be yeast or a bacterial infection or just how your body heals naturally! But don't be afraid to wash down there because apparently "you can't screw it up" haha who knew?

But also keep in mind when any wound heals it itches, so that could honestly be what it is too! Because it def started itching badly around 2 weeks when everything was settling down.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Thu Feb 27, 2014 3:02 pm

That's been my issue too! I've been afraid to clean too thoroughly because I didn't want to disturb anything anywhere near the surgical areas.. although I have been doing some light gentle cleaning and taking lots of sitz baths.

Anyway, thanks for your support. I just called my surgeon's office and was told he's not in the rest of the week, but the assistant there said that odor is not a normal part of the healing process, and that I should go to my family doctor to get a swab done.. I'm going around 5pm today.

It feels like a yeast infection to me at this point.. but let's see what my doctor says.. I'm so relieved to now have a course of action for this. Thanks so much for your support!

I'll post again once I learn what it is..

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Thu Feb 27, 2014 4:14 pm

no worries just make sure they know not to upset your stitches most doctors or people for that matter don't know what a vestibulectomy is!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Sun Mar 02, 2014 4:22 am

My family doctor took a swab on Thursday and told me the results should be in on Monday. She also did an exam and said everything seemed as it should be. But since then, the burning sensation has been increasing and tonight I went out and was sitting for all of two hours, and now the burn is really bad. Monday can't come soon enough.. but I'm also afraid the swab will show nothing, and I'll have to call my surgeon's office again.. This is frustrating.. and I'm supposed to return to work on Tuesday..

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Sun Mar 02, 2014 7:57 am

Not sure why she couldn't see yeast it's fairly obvious. At any rate should have given you something. Try making a paste with baking soda and applying.for a few.minutes. im recovering from a surgery too I'm in so much pain tonight I cant even sleep. But baking soda should at least alleviate the burn a little. At least it can't hurt anything worth a try.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Sun Mar 02, 2014 1:42 pm

Alana3 wrote:Not sure why she couldn't see yeast it's fairly obvious. At any rate should have given you something. Try making a paste with baking soda and applying.for a few.minutes. im recovering from a surgery too I'm in so much pain tonight I cant even sleep. But baking soda should at least alleviate the burn a little. At least it can't hurt anything worth a try.

I'm sorry to hear you're in pain too. I hope by the time I write this you're able to rest at least. Did your surgery go okay? What surgery was it you had done?

As for me, my family doctor said there is no yeast -- that it's not a yeast infection. I'm finding my underwear has yellowish stains, so I thought maybe it's bladder related. But maybe not because I've narrowed down where the intense burning sensation is coming from and it's at the opening to my hooha.

Today I'm drinking lots of fluids, hoping if it's bladder related that will help, and will take extra measures to clean. I do have an occasional sensation of the smallest bits of fluid leakage, but I'm not suffering from incontinence.

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Sun Mar 02, 2014 3:00 pm

Maybe bv or something...

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Mon Mar 03, 2014 3:04 pm

What's bv?
How are you feeling today?

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  lonelyone48 on Mon Mar 03, 2014 5:28 pm

Wow I'm wondering if surgery will work for me. I was diagnosed with severe vulvodynia in 2005 and filed for disability because I can't even walk or sit most days. I'm a production worker in a factory so that was unbearable. I even tried a sit down job and still was on my knees in severe pain, especially after using the bathroom. Still waiting for an appointment with a new Gyn which was canceled due to weather a month ago. It sure would be nice to work and enjoy life again.

lonelyone48

Posts : 39
Join date : 2013-12-01

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  lonelyone48 on Mon Mar 03, 2014 5:31 pm

Chrisk, bv is bacterial vaginosis, which seems to be a major issue with vulvodynia.

lonelyone48

Posts : 39
Join date : 2013-12-01

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Mon Mar 03, 2014 5:46 pm

The surgery works best if you have localized provoked vestibuldynia and is usually used as a last resort. I'll twll you I never had trouble sitting only sex and direct.contact but who knows. Ask your doc. I suffered a lot with bacteria and yeast after surgery but once things settled down it was fine.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  lonelyone48 on Mon Mar 03, 2014 5:48 pm

Thanks Alana3. Unfortunately mine is unprovoked.

lonelyone48

Posts : 39
Join date : 2013-12-01

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Mon Mar 03, 2014 7:24 pm

Ger that's annoying- you never know you could always ask!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  lonelyone48 on Mon Mar 03, 2014 9:47 pm

Yes you're right. I'm definitely going to ask about this. Thanks!

lonelyone48

Posts : 39
Join date : 2013-12-01

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Wed Mar 05, 2014 11:10 pm

Please forgive me bringing this back to myself.. I'm really having a hard time keeping my spirits up today.

My surgery was two weeks ago yesterday. I went back to work yesterday, and both days so far, I still feel foggy-headed and sluggish. And the strange things my body's experiencing seem to keep changing instead of just clearing up.

Last Thursday I went to my family doctor to have a swab done because I started having a strong odor. (My surgeon was gone for 4 days.) The swab came back negative, but shortly after that appointment, I started having a burning sensation at the entrance to my hooha, and it feels like things aren't exactly settling in place there after I wash -- I feel like a guy adjusting his junk sometimes.  

I'm distressed that new issues seem to crop up two weeks already after surgery. Is that normal?

I don't think I can call the doctor's office one more time for one more thing right now.  

When I went to my surgeon's office to pick up my insurance form yesterday after work, I mentioned the burning sensation to the nurse, and I was told that if I'm not running a fever, not to worry about it.

I'm starting to be depressed because I'm back at work and feeling crappy and it just seems all wrong. I don't mind that I have to put some things in my life on hold for a few more weeks, but I hate that it's painful to sit because of the burning, and that two weeks after surgery I'm still feeling more pain than I did before surgery (I didn't have that much burning sensation before when unprovoked).. and.. that I don't know what's coming next.

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  shanabanana999 on Fri Mar 07, 2014 6:08 am

I just had the same surgery, on the 28th. I am surprised that your surgeon is so unavailable to you given that this is such a rare surgery to have performed. My doctor would not perform the surgery unless he would be available no matter what for three weeks following the procedure and he gives his personal cell phone! He said that it would be useless for me to go to any other doctor or to the ER because they wouldn't know what they were doing if I needed help. I can call him day or night which has been wonderful because I developed a yeast rash around my anus and the skin was peeling away. I was in so much pain I couldn't move. I cannot imagine you having to go to work and being in this pain and your doctor is not making himself available to you to try and fix whatever is going on. (I am not trying to brag or be rude, I am trying to say that I empathize with your position, I don't know what I would do if my doctor wasn't the way he is!)

Have you had your stitches out yet, or are they supposed to fall out on their own? If you still have some in do you think it could be the stitches that are irritating? (and I believe that there are two layers of stitches, at least that is how mine are. An internal dissolving layer, and an external layer that must be removed) I will be getting mine removed next Wednesday and I cannot wait. I have one that is extremely uncomfortable--painful I would even say.

I am a slow healer just like you--so far my days have consisted of my bed and the couch with a constant ice pack. I also travel as far as the bathroom a few times a day for a sitz bath but I am going stir crazy!

Another thing that my doctor does is before surgery, if you desire, he will ask several of his previous patients to call you so that you can ask them about their healing process and about what to expect. One of the women that I spoke to told me that she did have to have the surgery 3 times--she did say that looking back on it all and knowing what she knows now (that she would have to have 3 surgeries), she would still have made the same decision b/c it has been so life-changing for her.

I hope you are feeling a little better today.

shanabanana999

Posts : 6
Join date : 2014-03-07

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Fri Mar 07, 2014 2:25 pm

Whos your doc? Sounds like mine!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  shanabanana999 on Fri Mar 07, 2014 8:48 pm

His name is Dr. John Slocumb. He and his team are awesome! Who is yours?

shanabanana999

Posts : 6
Join date : 2014-03-07

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  lonelyone48 on Fri Mar 07, 2014 8:57 pm

Oh my Gosh is he located in Macon Georgia? I'm only 2 hrs from there.

lonelyone48

Posts : 39
Join date : 2013-12-01

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  shanabanana999 on Sat Mar 08, 2014 1:15 am

No, he is located in Denver, CO. I think there is a listing of doctors on the national vulvodynia association website I you're looking for a good one in your area. I'll double check that and let you know if I find differently, because I might have my sites mixed up.

shanabanana999

Posts : 6
Join date : 2014-03-07

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Sponsored content


Sponsored content


Back to top Go down

Page 1 of 2 1, 2  Next

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum