Log in

I forgot my password

Latest topics
» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


I'm New! and recovering from surgery

Page 2 of 2 Previous  1, 2

Go down

Re: I'm New! and recovering from surgery

Post  shanabanana999 on Sat Mar 08, 2014 1:19 am

Yes, there is a list on nva.org but you do have to join which costs $40ish but if you don't have the money you can put in a request to have the fee waived

shanabanana999

Posts : 6
Join date : 2014-03-07

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  lonelyone48 on Sat Mar 08, 2014 1:46 am

Ok thanks!

lonelyone48

Posts : 39
Join date : 2013-12-01

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Sat Mar 08, 2014 1:52 am

Wow, your doctor sounds awesome!
Unfortunately, in Canada, I can only go to a gyn with a referal from my family doctor. The gyn she sent me to seems to understand this stuff very well, but I've had so much difficulty with him over the years because he doesn't communicate well, can be arrogant, and his staff is even worse.

At one point, several years ago, I went back to my family doctor and asked if she could refer me to a different gyn. I'd had enough. And she did. Unfortunately, that new gyn knew nothing of vulvodynia, and I got bounced from doctor to doctor, wasting time and left to feel like I was some overly sensitive crazy woman.

So exasperated, I finally went back to my original gyn. He and his office seem to have improved a great deal regarding relating with people, but still no where near what you're describing! I mean improved means now if I call and leave a message, they will actually call me back MOST of the time. And when I called to ask questions before my surgery, they actually put me thru to the doctor the second time I called. This is a huge improvement for them.

For me to feel comfortable, I really need to have more information.. or at least to have been told some kind of general thing like 'your body is going to do strange things for weeks after surgery, but don't fret about it unless you're running a fever or... whatever.'  But I got none of that, and on good days, I figure it's all gonna be okay. On my bad days I fret quite a bit about what I don't know/understand.

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Sat Mar 08, 2014 1:58 am

Does the list of specialists from nva cover only the US? Or does it also include major cities in Canada and/or other countries?

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  shanabanana999 on Sat Mar 08, 2014 6:18 am

Chrisk,

That sounds overly frustrating! It was really hard to get in to see this doctor but once I finally did I have had first class treatment. They can't/don't always call back right away, but  they always do and if I need something they make sure that I have it.

I'm not sure about the list, I actually found out about it from my specialist so I didn't need to search through it, or even join the association. There are a lot of helpful articles/pamphlets on the website though if you have time to search through them and you don't have to pay a dime. I know there was another place that I ran across a way to search for doctors that had knowledge of vulvodynia but I can't think of it off the top of my head--I will do some looking/thinking for you. I truly think it is essential to have your doctor available to you, especially for something like this-where there aren't many places where you can look for valid information, etc. and I am sorry that your doctor is just not providing you with this.

I did find the website for the Canadian Foundation for Women's Health which I thought was good but I can't post the link (too new, but try googling it!) and I followed a link at the bottom, the mvprogram.org. It seemed similar to the nva.org, in fact they used NVA as a resource. You may try contacting them and asking if they have a list of doctors in Canada that are recommended.

Are you noticing any of your odd symptoms going away? I would say that it is completely normal to have odd poops for a while after a surgery in the rectal area and also for a little while after taking pain meds too, but they should straighten themselves out after a while, probably a good while. I still feel exhausted and can't bend over! My rule of thumb with worrying about things is, a) if it's getting noticeably worse, or b) if it is persistent, bothersome, and not improving, I will call my doctor.

shanabanana999

Posts : 6
Join date : 2014-03-07

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Sat Mar 08, 2014 3:40 pm

Dr trabin in west palm beach florida. I think everything you're feeling is normal just wait til you're fully recovered until you start to worry...

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Sun Mar 09, 2014 2:35 am

shanabanana999 wrote:
I did find the website for the Canadian Foundation for Women's Health which I thought was good but I can't post the link (too new, but try googling it!) and I followed a link at the bottom, the mvprogram.org. It seemed similar to the nva.org, in fact they used NVA as a resource. You may try contacting them and asking if they have a list of doctors in Canada that are recommended.

Thanks! I found the websites you mentioned. That's exciting! I'll give a call on Monday to ask about their programs and if they have a database of specialists, etc.

As for my symptoms, the burning pain is slowly calming down, but the odor is getting worse. I've had a day or two now when I otherwise feel pretty good, but am still getting fatigued easily. I'm less worried as time goes by.. starting to look forward to the 6-week mark (I'm not quite half way there.) so that I can maybe start physio and get back to it!

Thanks to everyone who's responded to my questions/comments/concerns. Your responses are so very much appreciated! I can't thank you enough.

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Alana3 on Sun Mar 09, 2014 1:38 pm

Honestly I wouldn't change doctors now. You made the commitment to be with him others are going to be reluctant to see you until you've healed.

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Chrisk on Mon Mar 10, 2014 12:09 am

yes. agreed

Chrisk

Posts : 13
Join date : 2014-02-24
Location : Canada

View user profile

Back to top Go down

Re: I'm New! and recovering from surgery

Post  Sponsored content


Sponsored content


Back to top Go down

Page 2 of 2 Previous  1, 2

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum