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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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I'm New! and recovering from surgery

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Re: I'm New! and recovering from surgery

Post  shanabanana999 on Sat Mar 08, 2014 1:19 am

Yes, there is a list on nva.org but you do have to join which costs $40ish but if you don't have the money you can put in a request to have the fee waived

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Re: I'm New! and recovering from surgery

Post  lonelyone48 on Sat Mar 08, 2014 1:46 am

Ok thanks!

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Re: I'm New! and recovering from surgery

Post  Chrisk on Sat Mar 08, 2014 1:52 am

Wow, your doctor sounds awesome!
Unfortunately, in Canada, I can only go to a gyn with a referal from my family doctor. The gyn she sent me to seems to understand this stuff very well, but I've had so much difficulty with him over the years because he doesn't communicate well, can be arrogant, and his staff is even worse.

At one point, several years ago, I went back to my family doctor and asked if she could refer me to a different gyn. I'd had enough. And she did. Unfortunately, that new gyn knew nothing of vulvodynia, and I got bounced from doctor to doctor, wasting time and left to feel like I was some overly sensitive crazy woman.

So exasperated, I finally went back to my original gyn. He and his office seem to have improved a great deal regarding relating with people, but still no where near what you're describing! I mean improved means now if I call and leave a message, they will actually call me back MOST of the time. And when I called to ask questions before my surgery, they actually put me thru to the doctor the second time I called. This is a huge improvement for them.

For me to feel comfortable, I really need to have more information.. or at least to have been told some kind of general thing like 'your body is going to do strange things for weeks after surgery, but don't fret about it unless you're running a fever or... whatever.'  But I got none of that, and on good days, I figure it's all gonna be okay. On my bad days I fret quite a bit about what I don't know/understand.

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Re: I'm New! and recovering from surgery

Post  Chrisk on Sat Mar 08, 2014 1:58 am

Does the list of specialists from nva cover only the US? Or does it also include major cities in Canada and/or other countries?

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Re: I'm New! and recovering from surgery

Post  shanabanana999 on Sat Mar 08, 2014 6:18 am

Chrisk,

That sounds overly frustrating! It was really hard to get in to see this doctor but once I finally did I have had first class treatment. They can't/don't always call back right away, but  they always do and if I need something they make sure that I have it.

I'm not sure about the list, I actually found out about it from my specialist so I didn't need to search through it, or even join the association. There are a lot of helpful articles/pamphlets on the website though if you have time to search through them and you don't have to pay a dime. I know there was another place that I ran across a way to search for doctors that had knowledge of vulvodynia but I can't think of it off the top of my head--I will do some looking/thinking for you. I truly think it is essential to have your doctor available to you, especially for something like this-where there aren't many places where you can look for valid information, etc. and I am sorry that your doctor is just not providing you with this.

I did find the website for the Canadian Foundation for Women's Health which I thought was good but I can't post the link (too new, but try googling it!) and I followed a link at the bottom, the mvprogram.org. It seemed similar to the nva.org, in fact they used NVA as a resource. You may try contacting them and asking if they have a list of doctors in Canada that are recommended.

Are you noticing any of your odd symptoms going away? I would say that it is completely normal to have odd poops for a while after a surgery in the rectal area and also for a little while after taking pain meds too, but they should straighten themselves out after a while, probably a good while. I still feel exhausted and can't bend over! My rule of thumb with worrying about things is, a) if it's getting noticeably worse, or b) if it is persistent, bothersome, and not improving, I will call my doctor.

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Re: I'm New! and recovering from surgery

Post  Alana3 on Sat Mar 08, 2014 3:40 pm

Dr trabin in west palm beach florida. I think everything you're feeling is normal just wait til you're fully recovered until you start to worry...

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Re: I'm New! and recovering from surgery

Post  Chrisk on Sun Mar 09, 2014 2:35 am

shanabanana999 wrote:
I did find the website for the Canadian Foundation for Women's Health which I thought was good but I can't post the link (too new, but try googling it!) and I followed a link at the bottom, the mvprogram.org. It seemed similar to the nva.org, in fact they used NVA as a resource. You may try contacting them and asking if they have a list of doctors in Canada that are recommended.

Thanks! I found the websites you mentioned. That's exciting! I'll give a call on Monday to ask about their programs and if they have a database of specialists, etc.

As for my symptoms, the burning pain is slowly calming down, but the odor is getting worse. I've had a day or two now when I otherwise feel pretty good, but am still getting fatigued easily. I'm less worried as time goes by.. starting to look forward to the 6-week mark (I'm not quite half way there.) so that I can maybe start physio and get back to it!

Thanks to everyone who's responded to my questions/comments/concerns. Your responses are so very much appreciated! I can't thank you enough.

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Re: I'm New! and recovering from surgery

Post  Alana3 on Sun Mar 09, 2014 1:38 pm

Honestly I wouldn't change doctors now. You made the commitment to be with him others are going to be reluctant to see you until you've healed.

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Re: I'm New! and recovering from surgery

Post  Chrisk on Mon Mar 10, 2014 12:09 am

yes. agreed

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Re: I'm New! and recovering from surgery

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