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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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This 3 year nightmare.

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This 3 year nightmare.

Post  MissMegan1987 on Tue Feb 25, 2014 1:47 pm

I have been reading these forums for about a year. For tips...for a cure? My vulva issues (and anal-area issues  Mad ) started a little over 3 years ago. Prior to this I never even had a yeast infection. The itching and irritation would come and go-for about two years I thought it was allergies (seasonal? diet?). Then I thought it was yeast (and so did my gyno) and I was on diflucan for months which never did a thing. I finally decided to be pro-active and try to find a treatment because my vulva was beginning to run my life.

I have seen a few GP's and diagnosed with BV, yeast...a regular gyno a few times who biopsied and sent out the sample and found no resistant yeast. I was have been prescribed many anti-inflammatories/steroids (even though no inflammation/irritation was found). I saw an infectious disease gyno who referred me to a pelvic floor specialist who put me on Gabapentin cream (which POSSIBLY improved it SLIGHTLY or it could have just been a few good months-because it is back with a f*cking vengeance) who referred me to PT and a vulvodynia specialist gyno. He told me to discontinue the PT and put me on Neurontin (which seems to help only if I take massive doses-and then my prescription is gone in a week-awesome). I have been on Elavil for 2 weeks (havn't felt a twinge of relief-I know it takes time but I have doubts).

This is baffling. It is running my life. My symptoms are itching, irritation and burning (like someone is holding a torch up to my vulva and ass-crack and bees are stinging it and throwing itching powder on it). It is hard to function. I have been extremely depressed. I feel for all of you. My doctor is baffled as well and if the Elavil does not work then he suggested "pain management". Awesome. Prayers for everyone.

MissMegan1987

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Re: This 3 year nightmare.

Post  Zbrown on Thu Apr 24, 2014 11:37 am

This sounds quite similar to me :/ did u ever get some relief or help ? Xo

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Re: This 3 year nightmare.

Post  Alana3 on Thu Apr 24, 2014 1:50 pm

There are other meds you can try and other things you can do than just Elavil. If that's the only thing that doctor is suggesting, I would try a new one! I got a compounded gel type thing I had to put down there 3 times a day. It didn't work for me and I eventually did get the surgery, BUT my doctor said he could tweak it and it might help- but after finding this doctor I had had enough and been fighting this for 7 years I just opted for the surgery for a permanent solution. But there are other meds and such to try! Remember also, this isn't the ONLY doctor available who specializes in vulvodynia, so if he/she isn't willing to look past Elavil, I would find a new doctor. That's me personally tho. I feel for you really. This whole business is horrible.

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Re: This 3 year nightmare.

Post  MissMegan1987 on Thu Apr 24, 2014 2:01 pm

I have been on the Elavil for a few months and I think it's helping a little. I did gain a few lbs since being on it, which blows. If I take the neurontin it seems to really help-the combo of the two, although I always run out of my neurontin prescription early because I take to much as it only seems to last a few hours. I have been to so many damn doctors it's frustrating and I'm sick of finding a doctor and going through the whole process. It has been under control for the time being, but it could just be a good month. I am glad I at least know what the deal is, finally. I went through years of taking every yeast medication/herbal remedy there was, all kinds of medication and shoving all kinda of weird stuff up the vag thinking it was some sort of infection. I just don't understand why our bodies do this to us. Growing up I never even had a yeast infection. Now just looking at my vag irritates it, I swear.

MissMegan1987

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Re: This 3 year nightmare.

Post  Alana3 on Thu Apr 24, 2014 3:24 pm

Yeah, I gained a few pounds on birth control too. Just keep eating healthy and exercise! I understand everything you're saying and at least you have a good month! I stopped getting periods which helped me so much. But I also have endo and adeno so for me it was worth it to gain 5 pounds and have no periods and no pain Smile but it may help with vulvodynia too! Who knows really?

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Re: This 3 year nightmare.

Post  MissMegan1987 on Fri Apr 25, 2014 7:25 pm

I am not on birth control-I went off it a while ago because I read it can cause/irritate vulvodynia. I gained weight from the Elavil. I have been eating like crap though-but it definitely makes it hard to control my eating!! My V gets worse before my periods for sure. I didn't find birth control helped at all. The V just comes and goes. It has a mind of it's own. With stress it is way worse too. It has not been controlling my life lately. It does go through periods where it is so bad I obsess over it constantly and try everything to make it better. I hope it goes away one day. I get worried about having kids later in life and how it will affect me but we just have to take it one day at a time.

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Re: This 3 year nightmare.

Post  MissMegan1987 on Fri Apr 25, 2014 7:26 pm

And yes-I agree gaining 5 lbs is worth it if the medicine HELPS. But I don't find that the Elavil makes a huge difference. Maybe a slight dent in the irritation, but I will continue taking it because I am afraid going off it my V will be much worse.

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Re: This 3 year nightmare.

Post  zarli on Sun Apr 27, 2014 10:52 am

What is elavil ? Is it the same as lyrica or amiltriptilyn ?

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Re: This 3 year nightmare.

Post  MissMegan1987 on Sun Apr 27, 2014 12:12 pm

Elavil is the brand name for amitriptyline. It's a little easier to spell.  Embarassed 

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Possible remedies for u?

Post  EverythingIsDifferentNow on Thu Oct 09, 2014 5:53 pm

-exercising DAILY
-take warm baths, and try having the warm or hot water spill on your lower back right above your butt or have warm water spill directly on your vagina or anus and leave it there until you feel a little comfort (helped me)
-take 4 pills of calcium citrate (no harmful chemicals, natural)
-low oxalate diet?
-gluten free diet?
-anti-fungal diet?
-pelvic muscle therapist?
-EDMUAID (all natural ointment, 98% success rate, can buy online)
-buy heating pad and place on abdomen or lower back, can release any tension in that area that may be bundling your nerves around that area, thus sending less pain signals to your brain
-try to be stress free as possible
those are a few. email me if you want any more advice. don't lose help i've been dealing with this for a year, maybe more and i feel a lot better, so can u. If your body felt better before you experienced this condition, it can feel better again sunny

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Re: This 3 year nightmare.

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