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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


This 3 year nightmare.

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This 3 year nightmare.

Post  MissMegan1987 on Tue Feb 25, 2014 1:47 pm

I have been reading these forums for about a year. For tips...for a cure? My vulva issues (and anal-area issues  Mad ) started a little over 3 years ago. Prior to this I never even had a yeast infection. The itching and irritation would come and go-for about two years I thought it was allergies (seasonal? diet?). Then I thought it was yeast (and so did my gyno) and I was on diflucan for months which never did a thing. I finally decided to be pro-active and try to find a treatment because my vulva was beginning to run my life.

I have seen a few GP's and diagnosed with BV, yeast...a regular gyno a few times who biopsied and sent out the sample and found no resistant yeast. I was have been prescribed many anti-inflammatories/steroids (even though no inflammation/irritation was found). I saw an infectious disease gyno who referred me to a pelvic floor specialist who put me on Gabapentin cream (which POSSIBLY improved it SLIGHTLY or it could have just been a few good months-because it is back with a f*cking vengeance) who referred me to PT and a vulvodynia specialist gyno. He told me to discontinue the PT and put me on Neurontin (which seems to help only if I take massive doses-and then my prescription is gone in a week-awesome). I have been on Elavil for 2 weeks (havn't felt a twinge of relief-I know it takes time but I have doubts).

This is baffling. It is running my life. My symptoms are itching, irritation and burning (like someone is holding a torch up to my vulva and ass-crack and bees are stinging it and throwing itching powder on it). It is hard to function. I have been extremely depressed. I feel for all of you. My doctor is baffled as well and if the Elavil does not work then he suggested "pain management". Awesome. Prayers for everyone.

MissMegan1987

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Re: This 3 year nightmare.

Post  Zbrown on Thu Apr 24, 2014 11:37 am

This sounds quite similar to me :/ did u ever get some relief or help ? Xo

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Re: This 3 year nightmare.

Post  Alana3 on Thu Apr 24, 2014 1:50 pm

There are other meds you can try and other things you can do than just Elavil. If that's the only thing that doctor is suggesting, I would try a new one! I got a compounded gel type thing I had to put down there 3 times a day. It didn't work for me and I eventually did get the surgery, BUT my doctor said he could tweak it and it might help- but after finding this doctor I had had enough and been fighting this for 7 years I just opted for the surgery for a permanent solution. But there are other meds and such to try! Remember also, this isn't the ONLY doctor available who specializes in vulvodynia, so if he/she isn't willing to look past Elavil, I would find a new doctor. That's me personally tho. I feel for you really. This whole business is horrible.

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Re: This 3 year nightmare.

Post  MissMegan1987 on Thu Apr 24, 2014 2:01 pm

I have been on the Elavil for a few months and I think it's helping a little. I did gain a few lbs since being on it, which blows. If I take the neurontin it seems to really help-the combo of the two, although I always run out of my neurontin prescription early because I take to much as it only seems to last a few hours. I have been to so many damn doctors it's frustrating and I'm sick of finding a doctor and going through the whole process. It has been under control for the time being, but it could just be a good month. I am glad I at least know what the deal is, finally. I went through years of taking every yeast medication/herbal remedy there was, all kinds of medication and shoving all kinda of weird stuff up the vag thinking it was some sort of infection. I just don't understand why our bodies do this to us. Growing up I never even had a yeast infection. Now just looking at my vag irritates it, I swear.

MissMegan1987

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Re: This 3 year nightmare.

Post  Alana3 on Thu Apr 24, 2014 3:24 pm

Yeah, I gained a few pounds on birth control too. Just keep eating healthy and exercise! I understand everything you're saying and at least you have a good month! I stopped getting periods which helped me so much. But I also have endo and adeno so for me it was worth it to gain 5 pounds and have no periods and no pain Smile but it may help with vulvodynia too! Who knows really?

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Re: This 3 year nightmare.

Post  MissMegan1987 on Fri Apr 25, 2014 7:25 pm

I am not on birth control-I went off it a while ago because I read it can cause/irritate vulvodynia. I gained weight from the Elavil. I have been eating like crap though-but it definitely makes it hard to control my eating!! My V gets worse before my periods for sure. I didn't find birth control helped at all. The V just comes and goes. It has a mind of it's own. With stress it is way worse too. It has not been controlling my life lately. It does go through periods where it is so bad I obsess over it constantly and try everything to make it better. I hope it goes away one day. I get worried about having kids later in life and how it will affect me but we just have to take it one day at a time.

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Re: This 3 year nightmare.

Post  MissMegan1987 on Fri Apr 25, 2014 7:26 pm

And yes-I agree gaining 5 lbs is worth it if the medicine HELPS. But I don't find that the Elavil makes a huge difference. Maybe a slight dent in the irritation, but I will continue taking it because I am afraid going off it my V will be much worse.

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Re: This 3 year nightmare.

Post  zarli on Sun Apr 27, 2014 10:52 am

What is elavil ? Is it the same as lyrica or amiltriptilyn ?

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Re: This 3 year nightmare.

Post  MissMegan1987 on Sun Apr 27, 2014 12:12 pm

Elavil is the brand name for amitriptyline. It's a little easier to spell.  Embarassed 

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Possible remedies for u?

Post  EverythingIsDifferentNow on Thu Oct 09, 2014 5:53 pm

-exercising DAILY
-take warm baths, and try having the warm or hot water spill on your lower back right above your butt or have warm water spill directly on your vagina or anus and leave it there until you feel a little comfort (helped me)
-take 4 pills of calcium citrate (no harmful chemicals, natural)
-low oxalate diet?
-gluten free diet?
-anti-fungal diet?
-pelvic muscle therapist?
-EDMUAID (all natural ointment, 98% success rate, can buy online)
-buy heating pad and place on abdomen or lower back, can release any tension in that area that may be bundling your nerves around that area, thus sending less pain signals to your brain
-try to be stress free as possible
those are a few. email me if you want any more advice. don't lose help i've been dealing with this for a year, maybe more and i feel a lot better, so can u. If your body felt better before you experienced this condition, it can feel better again sunny

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Re: This 3 year nightmare.

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