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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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This 3 year nightmare.

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This 3 year nightmare.

Post  MissMegan1987 on Tue Feb 25, 2014 1:47 pm

I have been reading these forums for about a year. For tips...for a cure? My vulva issues (and anal-area issues  Mad ) started a little over 3 years ago. Prior to this I never even had a yeast infection. The itching and irritation would come and go-for about two years I thought it was allergies (seasonal? diet?). Then I thought it was yeast (and so did my gyno) and I was on diflucan for months which never did a thing. I finally decided to be pro-active and try to find a treatment because my vulva was beginning to run my life.

I have seen a few GP's and diagnosed with BV, yeast...a regular gyno a few times who biopsied and sent out the sample and found no resistant yeast. I was have been prescribed many anti-inflammatories/steroids (even though no inflammation/irritation was found). I saw an infectious disease gyno who referred me to a pelvic floor specialist who put me on Gabapentin cream (which POSSIBLY improved it SLIGHTLY or it could have just been a few good months-because it is back with a f*cking vengeance) who referred me to PT and a vulvodynia specialist gyno. He told me to discontinue the PT and put me on Neurontin (which seems to help only if I take massive doses-and then my prescription is gone in a week-awesome). I have been on Elavil for 2 weeks (havn't felt a twinge of relief-I know it takes time but I have doubts).

This is baffling. It is running my life. My symptoms are itching, irritation and burning (like someone is holding a torch up to my vulva and ass-crack and bees are stinging it and throwing itching powder on it). It is hard to function. I have been extremely depressed. I feel for all of you. My doctor is baffled as well and if the Elavil does not work then he suggested "pain management". Awesome. Prayers for everyone.

MissMegan1987

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Re: This 3 year nightmare.

Post  Zbrown on Thu Apr 24, 2014 11:37 am

This sounds quite similar to me :/ did u ever get some relief or help ? Xo

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Re: This 3 year nightmare.

Post  Alana3 on Thu Apr 24, 2014 1:50 pm

There are other meds you can try and other things you can do than just Elavil. If that's the only thing that doctor is suggesting, I would try a new one! I got a compounded gel type thing I had to put down there 3 times a day. It didn't work for me and I eventually did get the surgery, BUT my doctor said he could tweak it and it might help- but after finding this doctor I had had enough and been fighting this for 7 years I just opted for the surgery for a permanent solution. But there are other meds and such to try! Remember also, this isn't the ONLY doctor available who specializes in vulvodynia, so if he/she isn't willing to look past Elavil, I would find a new doctor. That's me personally tho. I feel for you really. This whole business is horrible.

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Re: This 3 year nightmare.

Post  MissMegan1987 on Thu Apr 24, 2014 2:01 pm

I have been on the Elavil for a few months and I think it's helping a little. I did gain a few lbs since being on it, which blows. If I take the neurontin it seems to really help-the combo of the two, although I always run out of my neurontin prescription early because I take to much as it only seems to last a few hours. I have been to so many damn doctors it's frustrating and I'm sick of finding a doctor and going through the whole process. It has been under control for the time being, but it could just be a good month. I am glad I at least know what the deal is, finally. I went through years of taking every yeast medication/herbal remedy there was, all kinds of medication and shoving all kinda of weird stuff up the vag thinking it was some sort of infection. I just don't understand why our bodies do this to us. Growing up I never even had a yeast infection. Now just looking at my vag irritates it, I swear.

MissMegan1987

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Re: This 3 year nightmare.

Post  Alana3 on Thu Apr 24, 2014 3:24 pm

Yeah, I gained a few pounds on birth control too. Just keep eating healthy and exercise! I understand everything you're saying and at least you have a good month! I stopped getting periods which helped me so much. But I also have endo and adeno so for me it was worth it to gain 5 pounds and have no periods and no pain Smile but it may help with vulvodynia too! Who knows really?

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Re: This 3 year nightmare.

Post  MissMegan1987 on Fri Apr 25, 2014 7:25 pm

I am not on birth control-I went off it a while ago because I read it can cause/irritate vulvodynia. I gained weight from the Elavil. I have been eating like crap though-but it definitely makes it hard to control my eating!! My V gets worse before my periods for sure. I didn't find birth control helped at all. The V just comes and goes. It has a mind of it's own. With stress it is way worse too. It has not been controlling my life lately. It does go through periods where it is so bad I obsess over it constantly and try everything to make it better. I hope it goes away one day. I get worried about having kids later in life and how it will affect me but we just have to take it one day at a time.

MissMegan1987

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Re: This 3 year nightmare.

Post  MissMegan1987 on Fri Apr 25, 2014 7:26 pm

And yes-I agree gaining 5 lbs is worth it if the medicine HELPS. But I don't find that the Elavil makes a huge difference. Maybe a slight dent in the irritation, but I will continue taking it because I am afraid going off it my V will be much worse.

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Re: This 3 year nightmare.

Post  zarli on Sun Apr 27, 2014 10:52 am

What is elavil ? Is it the same as lyrica or amiltriptilyn ?

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Re: This 3 year nightmare.

Post  MissMegan1987 on Sun Apr 27, 2014 12:12 pm

Elavil is the brand name for amitriptyline. It's a little easier to spell.  Embarassed 

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Possible remedies for u?

Post  EverythingIsDifferentNow on Thu Oct 09, 2014 5:53 pm

-exercising DAILY
-take warm baths, and try having the warm or hot water spill on your lower back right above your butt or have warm water spill directly on your vagina or anus and leave it there until you feel a little comfort (helped me)
-take 4 pills of calcium citrate (no harmful chemicals, natural)
-low oxalate diet?
-gluten free diet?
-anti-fungal diet?
-pelvic muscle therapist?
-EDMUAID (all natural ointment, 98% success rate, can buy online)
-buy heating pad and place on abdomen or lower back, can release any tension in that area that may be bundling your nerves around that area, thus sending less pain signals to your brain
-try to be stress free as possible
those are a few. email me if you want any more advice. don't lose help i've been dealing with this for a year, maybe more and i feel a lot better, so can u. If your body felt better before you experienced this condition, it can feel better again sunny

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Re: This 3 year nightmare.

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