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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


new, scared, and confused, please help need advice??

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new, scared, and confused, please help need advice??

Post  vwade on Tue Feb 25, 2014 7:52 pm

Hi im not really sure. My pain started about two weeks ago. Thought I had a uti, frequent urination, test -then started feeling pain in my clitoris, or numbness. Since then I have had a burning sensation right above vaginal opening. Its so bad it burns 24/7. Problem is I have no medical insurance:(. Maybe some of you can help me if it sounds like what I may have, anyone have similar symptoms?? And mainly what do u do to get through the day. I cant concentrate on anything but the burn. I just want it to go away.

vwade

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Re: new, scared, and confused, please help need advice??

Post  Alana3 on Tue Feb 25, 2014 8:55 pm

Eeek! Try a baking soda bath! It could honestly be a really bad infection or vulvodynia unfortunately only a doctor can tell you. If you're in the states go to Planned Parenthood theyre usually good!

Alana3

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Re: new, scared, and confused, please help need advice??

Post  alessandria on Tue Feb 25, 2014 10:51 pm

Agreed with Alana, you should go to Planned Parenthood. They have a sliding pay scale to make sure women's health is always within reach, whether you have insurance or not. If you are living in a state which lacks Planned Parenthood, find out if there is some other type of clinic for uninsured (if you are near a teaching hospital, that is often a good bet). As far as your case, it is probably not vulvodynia, though the possibility is always there. There are a ton of different infections that can cause your symptoms, including the numbness/tingling, and those are going to be the cause of what you're experiencing 99% of the time. I'll keep my fingers crossed for you that it's not vulvodynia!

alessandria

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Re: new, scared, and confused, please help need advice??

Post  vwade on Wed Feb 26, 2014 2:09 am

Thank u guys so much for replying.i do have a planned parenthood which is normally where I go, im just waiting for my period so i can get an exam. The burn is so intense though, just trying to stay positive.. thanks

vwade

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Re: new, scared, and confused, please help need advice??

Post  Alana3 on Wed Feb 26, 2014 1:12 pm

Why would you wait for your period if you're in that much pain?

Alana3

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Re: new, scared, and confused, please help need advice??

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