Vulvodynia Support
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» Hope to all my suffering ladies
Fibromyalgia & this condition EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Fibromyalgia & this condition EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Fibromyalgia & this condition EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Fibromyalgia & this condition EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Fibromyalgia & this condition EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Fibromyalgia & this condition EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Fibromyalgia & this condition EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Fibromyalgia & this condition EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Fibromyalgia & this condition EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Fibromyalgia & this condition

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Fibromyalgia & this condition Empty Fibromyalgia & this condition

Post  sparkles Sun Oct 26, 2014 5:15 pm

Hi Im new here, and came across this site while trying to find out the cause of my occasionaly flare ups of hell. You all know what I mean. After doing loads of research I now realise that its a direct symptom of my Fibromyagia. I had no idea that it could be linked and now it all makes sense.  I have had fibro for over 10 years but it has got really bad over the last three. I feel claustrophobic with pain. Of course no one believes me as they cant see it. But this vulva condition I have also come to realise started about the same time. Iv'e been to doctors and clinics convinced I had something terrible but they could find nothing, only redness and puffiness with raised small bumps that are not the type to pop. So weird. I get flare ups every so often that are agony, then after a week its all over. Its so sore, and I noticed I get a flare up when Im stressed. I was diagnosed with fibro over 3 years ago now and at last I now know what is causing my downstairs to hurt so much. I used to be embarassed about telling the doctor as I thought they might think its herpes or something, but that was thankfully not the case. I just say to my husband now, oh god f...y things coming, I can feel it. Im so glad I know why i get it now. Its only taken me 10 years to find out, and doctors didn't even suggest it. They just said oh its nothing. Hmm they should try coping with it.  Im 56 by the way, and into the menopause, which makes it worse than ever. What we women have to go through!

sparkles

Posts : 1
Join date : 2014-10-26

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Fibromyalgia & this condition Empty Re: Fibromyalgia & this condition

Post  yoginimom Tue Oct 28, 2014 2:54 am

sparkles wrote: I have had fibro for over 10 years but it has got really bad over the last three. I feel claustrophobic with pain. Of course no one believes me as they cant see it.

Have you ever tried EMDR? It helps the body react differently to pain. You can see a trauma therapist, or just put it into youtube for free. Also brain gym and EFT would have similar effects.


yoginimom

Posts : 60
Join date : 2014-08-08

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