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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


After 2 Surgeries Im Doing 40% better

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After 2 Surgeries Im Doing 40% better

Post  BpCookie on Mon Mar 03, 2014 3:13 pm

Hello all you girls sitting on ice packs, Nope, I have not forgotten about you all. Ive had two surgeries where my Dr. cut away skin from my episiotomy scar, my Labia Minora and into my vagina (mostly around the entrance) and he also cut away the Hymen Crunicals (sp). I still have to take Lyrica twice a day, which totally sucks, but along with the surgeries and Lyrica, Im feeling about 40% better. I can sit at the computer and play computer games for 2 or 3 hours, where as before, 1 hour was the most that I could sit for at one time. Ive been able to go out to dinner and actually enjoy myself with out wanting to get the Hell out of there ASAP because of pain. I just bring my little pillow with me and sit on it, which helps. Next month I am being really daring and am going on a short vacation with my hubby. Its a 3 hour drive to our vacation destination and that will be the longest drive that Ive taken in 3 years Smile Also it will be the first vacation that we have had in 3 yrs., because the burning pain prevented me from going any where before. I can't wait to go.

In a few more months, I will see my Dr. and will find out if he can lower my pain even more. I will keep you posted.

I keep you all in my prayers.

Love to you all,
Cookie
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Re: After 2 Surgeries Im Doing 40% better

Post  Alana3 on Mon Mar 03, 2014 5:43 pm

Omg I missed you! And that's good news glad something finally worked for you!

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Alana

Post  BpCookie on Tue Mar 04, 2014 12:28 am

You were the first person I thought of when I posted today. Smile Hope things are shiny and bright for you.
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Re: After 2 Surgeries Im Doing 40% better

Post  BpCookie on Tue Mar 04, 2014 12:43 am

Wanted to add that my Dr. also gave me a script for Lidocaine ointment 5%. It may burn when you first apply it but then it numbs the skin quite well. I think many of you women would get pain relief from this. Make sure its the ointment and not the jelly crap (totally useless) and also make sure its 5% and not 1% (total crap also).

I use it before I have intercourse too. I rub it in and then tell the hubby "you have 15 mins. to get ready and then Im gonna jump you". Its a strange feeling because the outside is numb but the inside isn't. Also, the ointment doesn't seem to bother my hubby. Could you imagine how long our sexual encounters would last if his ya-hoo got numb as well. LOL. It would be like "dude, I don't have all day!!!".

Good luck girls
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Re: After 2 Surgeries Im Doing 40% better

Post  Alana3 on Tue Mar 04, 2014 2:16 am

Haha nice missed you! Yeah I just had a hysteroscopy Friday trying to recover I'm over this but glad you're getting relief! Your hubby I'm sure loves hearing "15 minutes" lol

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That's awesome Cookie!

Post  Rainy Day on Fri Mar 07, 2014 11:18 pm

Once in a great while I check up on the site to see how everyone is doing. I came down with V over 2 years ago, but I have been feeling good for over a year. I still have flares now and then, but I would say I am at least 90% better. I am on very little medication. But Cookie, it makes me so happy to hear you are on the road to recovery. The better you feel...the more positive you are...the more your nerves will take a rest. So happy for you!!!

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Re: After 2 Surgeries Im Doing 40% better

Post  BpCookie on Thu Mar 13, 2014 8:39 pm

Rainy Day hun, Thank you so much and I am very happy for you as well. hugs
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Re: After 2 Surgeries Im Doing 40% better

Post  Loulou on Fri Mar 28, 2014 9:15 pm

Hi BPCookie - haven't been on for ages but popped in tonight and was pleased to see your post as you had gone off the radar last time I was here. And even happier to read that something is working for you woo hoo! Hope you go from strength to strength. x

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Re: After 2 Surgeries Im Doing 40% better

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