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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


After 2 Surgeries Im Doing 40% better

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After 2 Surgeries Im Doing 40% better

Post  BpCookie on Mon Mar 03, 2014 3:13 pm

Hello all you girls sitting on ice packs, Nope, I have not forgotten about you all. Ive had two surgeries where my Dr. cut away skin from my episiotomy scar, my Labia Minora and into my vagina (mostly around the entrance) and he also cut away the Hymen Crunicals (sp). I still have to take Lyrica twice a day, which totally sucks, but along with the surgeries and Lyrica, Im feeling about 40% better. I can sit at the computer and play computer games for 2 or 3 hours, where as before, 1 hour was the most that I could sit for at one time. Ive been able to go out to dinner and actually enjoy myself with out wanting to get the Hell out of there ASAP because of pain. I just bring my little pillow with me and sit on it, which helps. Next month I am being really daring and am going on a short vacation with my hubby. Its a 3 hour drive to our vacation destination and that will be the longest drive that Ive taken in 3 years Smile Also it will be the first vacation that we have had in 3 yrs., because the burning pain prevented me from going any where before. I can't wait to go.

In a few more months, I will see my Dr. and will find out if he can lower my pain even more. I will keep you posted.

I keep you all in my prayers.

Love to you all,
Cookie
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Re: After 2 Surgeries Im Doing 40% better

Post  Alana3 on Mon Mar 03, 2014 5:43 pm

Omg I missed you! And that's good news glad something finally worked for you!

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Alana

Post  BpCookie on Tue Mar 04, 2014 12:28 am

You were the first person I thought of when I posted today. Smile Hope things are shiny and bright for you.
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Re: After 2 Surgeries Im Doing 40% better

Post  BpCookie on Tue Mar 04, 2014 12:43 am

Wanted to add that my Dr. also gave me a script for Lidocaine ointment 5%. It may burn when you first apply it but then it numbs the skin quite well. I think many of you women would get pain relief from this. Make sure its the ointment and not the jelly crap (totally useless) and also make sure its 5% and not 1% (total crap also).

I use it before I have intercourse too. I rub it in and then tell the hubby "you have 15 mins. to get ready and then Im gonna jump you". Its a strange feeling because the outside is numb but the inside isn't. Also, the ointment doesn't seem to bother my hubby. Could you imagine how long our sexual encounters would last if his ya-hoo got numb as well. LOL. It would be like "dude, I don't have all day!!!".

Good luck girls
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Re: After 2 Surgeries Im Doing 40% better

Post  Alana3 on Tue Mar 04, 2014 2:16 am

Haha nice missed you! Yeah I just had a hysteroscopy Friday trying to recover I'm over this but glad you're getting relief! Your hubby I'm sure loves hearing "15 minutes" lol

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That's awesome Cookie!

Post  Rainy Day on Fri Mar 07, 2014 11:18 pm

Once in a great while I check up on the site to see how everyone is doing. I came down with V over 2 years ago, but I have been feeling good for over a year. I still have flares now and then, but I would say I am at least 90% better. I am on very little medication. But Cookie, it makes me so happy to hear you are on the road to recovery. The better you feel...the more positive you are...the more your nerves will take a rest. So happy for you!!!

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Re: After 2 Surgeries Im Doing 40% better

Post  BpCookie on Thu Mar 13, 2014 8:39 pm

Rainy Day hun, Thank you so much and I am very happy for you as well. hugs
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Re: After 2 Surgeries Im Doing 40% better

Post  Loulou on Fri Mar 28, 2014 9:15 pm

Hi BPCookie - haven't been on for ages but popped in tonight and was pleased to see your post as you had gone off the radar last time I was here. And even happier to read that something is working for you woo hoo! Hope you go from strength to strength. x

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Re: After 2 Surgeries Im Doing 40% better

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