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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


After 2 Surgeries Im Doing 40% better

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After 2 Surgeries Im Doing 40% better

Post  BpCookie on Mon Mar 03, 2014 3:13 pm

Hello all you girls sitting on ice packs, Nope, I have not forgotten about you all. Ive had two surgeries where my Dr. cut away skin from my episiotomy scar, my Labia Minora and into my vagina (mostly around the entrance) and he also cut away the Hymen Crunicals (sp). I still have to take Lyrica twice a day, which totally sucks, but along with the surgeries and Lyrica, Im feeling about 40% better. I can sit at the computer and play computer games for 2 or 3 hours, where as before, 1 hour was the most that I could sit for at one time. Ive been able to go out to dinner and actually enjoy myself with out wanting to get the Hell out of there ASAP because of pain. I just bring my little pillow with me and sit on it, which helps. Next month I am being really daring and am going on a short vacation with my hubby. Its a 3 hour drive to our vacation destination and that will be the longest drive that Ive taken in 3 years Smile Also it will be the first vacation that we have had in 3 yrs., because the burning pain prevented me from going any where before. I can't wait to go.

In a few more months, I will see my Dr. and will find out if he can lower my pain even more. I will keep you posted.

I keep you all in my prayers.

Love to you all,
Cookie
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Re: After 2 Surgeries Im Doing 40% better

Post  Alana3 on Mon Mar 03, 2014 5:43 pm

Omg I missed you! And that's good news glad something finally worked for you!

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Alana

Post  BpCookie on Tue Mar 04, 2014 12:28 am

You were the first person I thought of when I posted today. Smile Hope things are shiny and bright for you.
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Re: After 2 Surgeries Im Doing 40% better

Post  BpCookie on Tue Mar 04, 2014 12:43 am

Wanted to add that my Dr. also gave me a script for Lidocaine ointment 5%. It may burn when you first apply it but then it numbs the skin quite well. I think many of you women would get pain relief from this. Make sure its the ointment and not the jelly crap (totally useless) and also make sure its 5% and not 1% (total crap also).

I use it before I have intercourse too. I rub it in and then tell the hubby "you have 15 mins. to get ready and then Im gonna jump you". Its a strange feeling because the outside is numb but the inside isn't. Also, the ointment doesn't seem to bother my hubby. Could you imagine how long our sexual encounters would last if his ya-hoo got numb as well. LOL. It would be like "dude, I don't have all day!!!".

Good luck girls
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Re: After 2 Surgeries Im Doing 40% better

Post  Alana3 on Tue Mar 04, 2014 2:16 am

Haha nice missed you! Yeah I just had a hysteroscopy Friday trying to recover I'm over this but glad you're getting relief! Your hubby I'm sure loves hearing "15 minutes" lol

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That's awesome Cookie!

Post  Rainy Day on Fri Mar 07, 2014 11:18 pm

Once in a great while I check up on the site to see how everyone is doing. I came down with V over 2 years ago, but I have been feeling good for over a year. I still have flares now and then, but I would say I am at least 90% better. I am on very little medication. But Cookie, it makes me so happy to hear you are on the road to recovery. The better you feel...the more positive you are...the more your nerves will take a rest. So happy for you!!!

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Re: After 2 Surgeries Im Doing 40% better

Post  BpCookie on Thu Mar 13, 2014 8:39 pm

Rainy Day hun, Thank you so much and I am very happy for you as well. hugs
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Re: After 2 Surgeries Im Doing 40% better

Post  Loulou on Fri Mar 28, 2014 9:15 pm

Hi BPCookie - haven't been on for ages but popped in tonight and was pleased to see your post as you had gone off the radar last time I was here. And even happier to read that something is working for you woo hoo! Hope you go from strength to strength. x

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Re: After 2 Surgeries Im Doing 40% better

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