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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Acupuncture ???

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Acupuncture ???

Post  Zbrown on Thu Mar 13, 2014 11:46 am

I haven't had tese symptoms for as long as some of you maybe 4-5 months does that mean if I started any treatment this soon would it be more effective. My gynocologist a lovely woman who I eventually went to see privately suggested acupuncture ? And I that does not help some medication ? I'm just more worried as he says could be nerve damage / irritation but she never once said the word vulvodynia. I'm worried taking the medication does it just cover the problem up until I stop taking it or will it gradually repair ?? Sorry very new to all this any help would be amazing Smile acupuncture any help or wate of time ???? Xoxo

Zbrown

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Re: Acupuncture ???

Post  Alana3 on Thu Mar 13, 2014 1:46 pm

Acupuncture is a huge waste of.time since they cant put needles into your vag clearly. It did nothing for me physical therapy worked well and I did meds until I said no more and did surgery. Medications work different for everyone so you can try and see what happens.

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Re: Acupuncture ???

Post  Zbrown on Thu Mar 13, 2014 3:33 pm

She said to try it once or twice just and they will know if it's any use ??? I think mine is more unprovoked it's inner thighs all around the Lower back vulVa ect :/ I don't think is tere surgery for that ??? Xx

Zbrown

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Re: Acupuncture ???

Post  Alana3 on Thu Mar 13, 2014 6:12 pm

Like anything else one or two times is not going to do anything for you. I do acupuncture for my neck and shoulders, but I have to go continuously otherwise it does nothing for me. it didn't work for vulvodynia tho I convinced myself otherwise lol. Have you done physical therapy? That works as it stretches muscles, etc. And teaches you how to exercise and train your body.

Alana3

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Re: Acupuncture ???

Post  Zbrown on Thu Mar 13, 2014 11:33 pm

Aghh I see hmmm my acupuncture isn't scheduled until the 31sf march so still a few weeks , well I researched a physical therapist but I'm living in Northern Ireland and tbh I don't think they have as many resources . Since this started happening I have noticed alit of tightness as the pain causes me to tense also any batural lubricant seems to have gone which is crazy I'm only 21 !!! Never had any problem being wet before annoying. Is there any stretches that could be done in the mean time while I continue my search ??? I may ask my gynocologist she referred the acupuncture maybe she knows physical therapy too ??? Thanks Alana Smile xxx

Zbrown

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Re: Acupuncture ???

Post  Alana3 on Fri Mar 14, 2014 12:36 am

Stick your stomach out and pelvic floor release its hard to explain. Def try the acupuncture it might help!

Alana3

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Re: Acupuncture ???

Post  Loulou on Fri Mar 28, 2014 10:30 pm

Hi - my experience of acupuncture for vvd was quite positive. I found it helpful in the early days of my vvd when the pain was at its worst as it relieved some of the pain temporarily. It's a very individual thing - works for some but not others. I think there are some older threads on here about accupuncture explaining what people had done (I know I posted something ages ago) so you might want to have a scout round and read those too as they'll give more detail so you'll have a better idea what's involved. My accupuncture was a physiotherapist too so you might find one who does both!

Loulou

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Re: Acupuncture ???

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