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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Acupuncture ???

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Acupuncture ???

Post  Zbrown on Thu Mar 13, 2014 11:46 am

I haven't had tese symptoms for as long as some of you maybe 4-5 months does that mean if I started any treatment this soon would it be more effective. My gynocologist a lovely woman who I eventually went to see privately suggested acupuncture ? And I that does not help some medication ? I'm just more worried as he says could be nerve damage / irritation but she never once said the word vulvodynia. I'm worried taking the medication does it just cover the problem up until I stop taking it or will it gradually repair ?? Sorry very new to all this any help would be amazing Smile acupuncture any help or wate of time ???? Xoxo

Zbrown

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Re: Acupuncture ???

Post  Alana3 on Thu Mar 13, 2014 1:46 pm

Acupuncture is a huge waste of.time since they cant put needles into your vag clearly. It did nothing for me physical therapy worked well and I did meds until I said no more and did surgery. Medications work different for everyone so you can try and see what happens.

Alana3

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Re: Acupuncture ???

Post  Zbrown on Thu Mar 13, 2014 3:33 pm

She said to try it once or twice just and they will know if it's any use ??? I think mine is more unprovoked it's inner thighs all around the Lower back vulVa ect :/ I don't think is tere surgery for that ??? Xx

Zbrown

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Re: Acupuncture ???

Post  Alana3 on Thu Mar 13, 2014 6:12 pm

Like anything else one or two times is not going to do anything for you. I do acupuncture for my neck and shoulders, but I have to go continuously otherwise it does nothing for me. it didn't work for vulvodynia tho I convinced myself otherwise lol. Have you done physical therapy? That works as it stretches muscles, etc. And teaches you how to exercise and train your body.

Alana3

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Re: Acupuncture ???

Post  Zbrown on Thu Mar 13, 2014 11:33 pm

Aghh I see hmmm my acupuncture isn't scheduled until the 31sf march so still a few weeks , well I researched a physical therapist but I'm living in Northern Ireland and tbh I don't think they have as many resources . Since this started happening I have noticed alit of tightness as the pain causes me to tense also any batural lubricant seems to have gone which is crazy I'm only 21 !!! Never had any problem being wet before annoying. Is there any stretches that could be done in the mean time while I continue my search ??? I may ask my gynocologist she referred the acupuncture maybe she knows physical therapy too ??? Thanks Alana Smile xxx

Zbrown

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Re: Acupuncture ???

Post  Alana3 on Fri Mar 14, 2014 12:36 am

Stick your stomach out and pelvic floor release its hard to explain. Def try the acupuncture it might help!

Alana3

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Re: Acupuncture ???

Post  Loulou on Fri Mar 28, 2014 10:30 pm

Hi - my experience of acupuncture for vvd was quite positive. I found it helpful in the early days of my vvd when the pain was at its worst as it relieved some of the pain temporarily. It's a very individual thing - works for some but not others. I think there are some older threads on here about accupuncture explaining what people had done (I know I posted something ages ago) so you might want to have a scout round and read those too as they'll give more detail so you'll have a better idea what's involved. My accupuncture was a physiotherapist too so you might find one who does both!

Loulou

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Re: Acupuncture ???

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