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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Acupuncture ???

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Acupuncture ???

Post  Zbrown on Thu Mar 13, 2014 11:46 am

I haven't had tese symptoms for as long as some of you maybe 4-5 months does that mean if I started any treatment this soon would it be more effective. My gynocologist a lovely woman who I eventually went to see privately suggested acupuncture ? And I that does not help some medication ? I'm just more worried as he says could be nerve damage / irritation but she never once said the word vulvodynia. I'm worried taking the medication does it just cover the problem up until I stop taking it or will it gradually repair ?? Sorry very new to all this any help would be amazing Smile acupuncture any help or wate of time ???? Xoxo

Zbrown

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Re: Acupuncture ???

Post  Alana3 on Thu Mar 13, 2014 1:46 pm

Acupuncture is a huge waste of.time since they cant put needles into your vag clearly. It did nothing for me physical therapy worked well and I did meds until I said no more and did surgery. Medications work different for everyone so you can try and see what happens.

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Re: Acupuncture ???

Post  Zbrown on Thu Mar 13, 2014 3:33 pm

She said to try it once or twice just and they will know if it's any use ??? I think mine is more unprovoked it's inner thighs all around the Lower back vulVa ect :/ I don't think is tere surgery for that ??? Xx

Zbrown

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Re: Acupuncture ???

Post  Alana3 on Thu Mar 13, 2014 6:12 pm

Like anything else one or two times is not going to do anything for you. I do acupuncture for my neck and shoulders, but I have to go continuously otherwise it does nothing for me. it didn't work for vulvodynia tho I convinced myself otherwise lol. Have you done physical therapy? That works as it stretches muscles, etc. And teaches you how to exercise and train your body.

Alana3

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Re: Acupuncture ???

Post  Zbrown on Thu Mar 13, 2014 11:33 pm

Aghh I see hmmm my acupuncture isn't scheduled until the 31sf march so still a few weeks , well I researched a physical therapist but I'm living in Northern Ireland and tbh I don't think they have as many resources . Since this started happening I have noticed alit of tightness as the pain causes me to tense also any batural lubricant seems to have gone which is crazy I'm only 21 !!! Never had any problem being wet before annoying. Is there any stretches that could be done in the mean time while I continue my search ??? I may ask my gynocologist she referred the acupuncture maybe she knows physical therapy too ??? Thanks Alana Smile xxx

Zbrown

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Re: Acupuncture ???

Post  Alana3 on Fri Mar 14, 2014 12:36 am

Stick your stomach out and pelvic floor release its hard to explain. Def try the acupuncture it might help!

Alana3

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Re: Acupuncture ???

Post  Loulou on Fri Mar 28, 2014 10:30 pm

Hi - my experience of acupuncture for vvd was quite positive. I found it helpful in the early days of my vvd when the pain was at its worst as it relieved some of the pain temporarily. It's a very individual thing - works for some but not others. I think there are some older threads on here about accupuncture explaining what people had done (I know I posted something ages ago) so you might want to have a scout round and read those too as they'll give more detail so you'll have a better idea what's involved. My accupuncture was a physiotherapist too so you might find one who does both!

Loulou

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Re: Acupuncture ???

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