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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


epidural for pain?

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epidural for pain?

Post  meelie on Fri Mar 14, 2014 1:57 am

Hi everybody, haven't written for a while. I have been lurking and reading ya'll posts though. Embarassed  Have been going to PT. I thought it was helping but then my back started killing me. Went to a pain specialist. Had an MRI. Diagnosed with Spinal Stenosis. Was suggested to have an epidural for pain. Haven't had it yet, thinking I can do without it, then the V started back with a vengence. Wondering if an epidural for the pain of spinal stenosis would numb my V pain. But, when I'm not hurting, I'm still married, I do enjoy sex occasionally and would hate to number those particular nerves if you know what I mean. Any thoughts? Rolling Eyes

meelie

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Re: epidural for pain?

Post  Alana3 on Fri Mar 14, 2014 12:03 pm

It's a bandaid a temporary fix for a problem find a different doctor who is willing to be more proactive

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epidural for pain?

Post  meelie on Fri Mar 14, 2014 1:36 pm

I didn't go see this Dr. for the V. I am so so sick of telling people about my pussy problem I didn't mention it. At this point I don't even want to go back to the PT, I have become so mortified about having to do what she does to help ease the tight muscles. I was seeing him for back pain that the PT just wasn't able to figure out. I know the epidural is a band aide, if it works at all for the SS. But was wondering if it could help my V pain. I am 99.99% sure it is muscle and nerve related not skin related. I just don't want to tell that dr. about my V. If you are talking about seeing a dr. for the V who would take a different approach, then please do tell. I can't find anyone that knows how to fix it. I am not even contemplating surgery for the SS at this point. I am an RN and I have seen too much in the line of surgery mishaps.

meelie

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Re: epidural for pain?

Post  Alana3 on Fri Mar 14, 2014 6:41 pm

Well where do you live?

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Re: epidural for pain?

Post  meelie on Fri Mar 14, 2014 11:27 pm

South of Atlanta in Georgia.

meelie

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Re: epidural for pain?

Post  Alana3 on Sat Mar 15, 2014 1:23 pm

Id google something.like vulvodynia specialists in Georgia and see what comes up. I wouldn't shy from surgery just because you've seen bad things before those people werent you. Sometimes you have to take a risk to feel better...

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Epidural for pain

Post  Sunflower82 on Sun Mar 16, 2014 6:08 pm

Hi,
I had a problem with my back and I had a nerve block at l4 l5 ! Within two weeks it took away all my vulvar pain, I was able to have pain free sex for a couple off months ! It did nothing for my back and leg pain, and the dr could not explain why it had stopped all the other pain ! After 4 months I had it done again, this time it felt different and it set of all my v pain for over 6 weeks, but this time it had an effect on the numb sensation I was getting down my leg! I'm convienced the two are connected but it hard to get the drs to agree !

Kt

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Re: epidural for pain?

Post  meelie on Mon Mar 17, 2014 3:43 pm

Thanks Sunflower, that is what I have been wondering. Did your V get any better after the second injection? Did you leg/back pain stay away for awhile? I am having such trouble deciding what to do. I have to drive 1 1/2 hrs to get the injection. I don't know how much my ins. will pay and am just kind of frozen in indecision. I would so def. do it if I thought it would take away this V burning. I
I think too that I've developed a real yeast infection on top of the V cause I'm itching and my burning is there in the morning which it usually is not. Don't know weather to try OTC or call GYN.
I stopped going to the PT for money and gasoline issues. Wish I had someone closer by but I don't.
Anyway thanks for your input and let me know how your V is doing and did you need a third inj?

meelie

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Epidural for pain

Post  Sunflower82 on Mon Mar 17, 2014 5:24 pm

Hi,
After the second one the v pain for worse but my leg is no longer numb and I had it at the end if November ! My pain has settled down in term of the v but I still get the burning sensation and itching and sex is a little uncomfortable ! But it's not too bad, for a while after the injection it took away any sensation down below during sex, to the point that I couldn't really feel anything! Which was very different to before! Lately it's been sore and I tested positive for strep b so we haven't tried sex in the last month! The time we tried before the burning after has started to come back, but it's not as bad a it was before I had had the nerve block ! What level in your bk are they wanting to do the epidural ?

Kt

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Re: epidural for pain?

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