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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


epidural for pain?

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epidural for pain?

Post  meelie on Fri Mar 14, 2014 1:57 am

Hi everybody, haven't written for a while. I have been lurking and reading ya'll posts though. Embarassed  Have been going to PT. I thought it was helping but then my back started killing me. Went to a pain specialist. Had an MRI. Diagnosed with Spinal Stenosis. Was suggested to have an epidural for pain. Haven't had it yet, thinking I can do without it, then the V started back with a vengence. Wondering if an epidural for the pain of spinal stenosis would numb my V pain. But, when I'm not hurting, I'm still married, I do enjoy sex occasionally and would hate to number those particular nerves if you know what I mean. Any thoughts? Rolling Eyes

meelie

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Re: epidural for pain?

Post  Alana3 on Fri Mar 14, 2014 12:03 pm

It's a bandaid a temporary fix for a problem find a different doctor who is willing to be more proactive

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epidural for pain?

Post  meelie on Fri Mar 14, 2014 1:36 pm

I didn't go see this Dr. for the V. I am so so sick of telling people about my pussy problem I didn't mention it. At this point I don't even want to go back to the PT, I have become so mortified about having to do what she does to help ease the tight muscles. I was seeing him for back pain that the PT just wasn't able to figure out. I know the epidural is a band aide, if it works at all for the SS. But was wondering if it could help my V pain. I am 99.99% sure it is muscle and nerve related not skin related. I just don't want to tell that dr. about my V. If you are talking about seeing a dr. for the V who would take a different approach, then please do tell. I can't find anyone that knows how to fix it. I am not even contemplating surgery for the SS at this point. I am an RN and I have seen too much in the line of surgery mishaps.

meelie

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Re: epidural for pain?

Post  Alana3 on Fri Mar 14, 2014 6:41 pm

Well where do you live?

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Re: epidural for pain?

Post  meelie on Fri Mar 14, 2014 11:27 pm

South of Atlanta in Georgia.

meelie

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Re: epidural for pain?

Post  Alana3 on Sat Mar 15, 2014 1:23 pm

Id google something.like vulvodynia specialists in Georgia and see what comes up. I wouldn't shy from surgery just because you've seen bad things before those people werent you. Sometimes you have to take a risk to feel better...

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Epidural for pain

Post  Sunflower82 on Sun Mar 16, 2014 6:08 pm

Hi,
I had a problem with my back and I had a nerve block at l4 l5 ! Within two weeks it took away all my vulvar pain, I was able to have pain free sex for a couple off months ! It did nothing for my back and leg pain, and the dr could not explain why it had stopped all the other pain ! After 4 months I had it done again, this time it felt different and it set of all my v pain for over 6 weeks, but this time it had an effect on the numb sensation I was getting down my leg! I'm convienced the two are connected but it hard to get the drs to agree !

Kt

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Re: epidural for pain?

Post  meelie on Mon Mar 17, 2014 3:43 pm

Thanks Sunflower, that is what I have been wondering. Did your V get any better after the second injection? Did you leg/back pain stay away for awhile? I am having such trouble deciding what to do. I have to drive 1 1/2 hrs to get the injection. I don't know how much my ins. will pay and am just kind of frozen in indecision. I would so def. do it if I thought it would take away this V burning. I
I think too that I've developed a real yeast infection on top of the V cause I'm itching and my burning is there in the morning which it usually is not. Don't know weather to try OTC or call GYN.
I stopped going to the PT for money and gasoline issues. Wish I had someone closer by but I don't.
Anyway thanks for your input and let me know how your V is doing and did you need a third inj?

meelie

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Epidural for pain

Post  Sunflower82 on Mon Mar 17, 2014 5:24 pm

Hi,
After the second one the v pain for worse but my leg is no longer numb and I had it at the end if November ! My pain has settled down in term of the v but I still get the burning sensation and itching and sex is a little uncomfortable ! But it's not too bad, for a while after the injection it took away any sensation down below during sex, to the point that I couldn't really feel anything! Which was very different to before! Lately it's been sore and I tested positive for strep b so we haven't tried sex in the last month! The time we tried before the burning after has started to come back, but it's not as bad a it was before I had had the nerve block ! What level in your bk are they wanting to do the epidural ?

Kt

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Re: epidural for pain?

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