Log in

I forgot my password

Latest topics
» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


epidural for pain?

Go down

epidural for pain?

Post  meelie on Fri Mar 14, 2014 1:57 am

Hi everybody, haven't written for a while. I have been lurking and reading ya'll posts though. Embarassed  Have been going to PT. I thought it was helping but then my back started killing me. Went to a pain specialist. Had an MRI. Diagnosed with Spinal Stenosis. Was suggested to have an epidural for pain. Haven't had it yet, thinking I can do without it, then the V started back with a vengence. Wondering if an epidural for the pain of spinal stenosis would numb my V pain. But, when I'm not hurting, I'm still married, I do enjoy sex occasionally and would hate to number those particular nerves if you know what I mean. Any thoughts? Rolling Eyes

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: epidural for pain?

Post  Alana3 on Fri Mar 14, 2014 12:03 pm

It's a bandaid a temporary fix for a problem find a different doctor who is willing to be more proactive

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

epidural for pain?

Post  meelie on Fri Mar 14, 2014 1:36 pm

I didn't go see this Dr. for the V. I am so so sick of telling people about my pussy problem I didn't mention it. At this point I don't even want to go back to the PT, I have become so mortified about having to do what she does to help ease the tight muscles. I was seeing him for back pain that the PT just wasn't able to figure out. I know the epidural is a band aide, if it works at all for the SS. But was wondering if it could help my V pain. I am 99.99% sure it is muscle and nerve related not skin related. I just don't want to tell that dr. about my V. If you are talking about seeing a dr. for the V who would take a different approach, then please do tell. I can't find anyone that knows how to fix it. I am not even contemplating surgery for the SS at this point. I am an RN and I have seen too much in the line of surgery mishaps.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: epidural for pain?

Post  Alana3 on Fri Mar 14, 2014 6:41 pm

Well where do you live?

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: epidural for pain?

Post  meelie on Fri Mar 14, 2014 11:27 pm

South of Atlanta in Georgia.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: epidural for pain?

Post  Alana3 on Sat Mar 15, 2014 1:23 pm

Id google something.like vulvodynia specialists in Georgia and see what comes up. I wouldn't shy from surgery just because you've seen bad things before those people werent you. Sometimes you have to take a risk to feel better...

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Epidural for pain

Post  Sunflower82 on Sun Mar 16, 2014 6:08 pm

Hi,
I had a problem with my back and I had a nerve block at l4 l5 ! Within two weeks it took away all my vulvar pain, I was able to have pain free sex for a couple off months ! It did nothing for my back and leg pain, and the dr could not explain why it had stopped all the other pain ! After 4 months I had it done again, this time it felt different and it set of all my v pain for over 6 weeks, but this time it had an effect on the numb sensation I was getting down my leg! I'm convienced the two are connected but it hard to get the drs to agree !

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

View user profile

Back to top Go down

Re: epidural for pain?

Post  meelie on Mon Mar 17, 2014 3:43 pm

Thanks Sunflower, that is what I have been wondering. Did your V get any better after the second injection? Did you leg/back pain stay away for awhile? I am having such trouble deciding what to do. I have to drive 1 1/2 hrs to get the injection. I don't know how much my ins. will pay and am just kind of frozen in indecision. I would so def. do it if I thought it would take away this V burning. I
I think too that I've developed a real yeast infection on top of the V cause I'm itching and my burning is there in the morning which it usually is not. Don't know weather to try OTC or call GYN.
I stopped going to the PT for money and gasoline issues. Wish I had someone closer by but I don't.
Anyway thanks for your input and let me know how your V is doing and did you need a third inj?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Epidural for pain

Post  Sunflower82 on Mon Mar 17, 2014 5:24 pm

Hi,
After the second one the v pain for worse but my leg is no longer numb and I had it at the end if November ! My pain has settled down in term of the v but I still get the burning sensation and itching and sex is a little uncomfortable ! But it's not too bad, for a while after the injection it took away any sensation down below during sex, to the point that I couldn't really feel anything! Which was very different to before! Lately it's been sore and I tested positive for strep b so we haven't tried sex in the last month! The time we tried before the burning after has started to come back, but it's not as bad a it was before I had had the nerve block ! What level in your bk are they wanting to do the epidural ?

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

View user profile

Back to top Go down

Re: epidural for pain?

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum