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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Can anyone advise me on vitamins to try?

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Can anyone advise me on vitamins to try?

Post  tinkerbelle2 on Fri Mar 21, 2014 8:07 am

I currently take 2x iron (ferrous gluconate 300mg) for low iron levels - I've been a veggie for 5 years. Gave me bad stomach cramps at first but I seem to have adjusted now. I also eat a lot of greens and high fibre foods to counteract the constipation iron can cause! Also take 50mg amitriptline although currently it is not significantly successful although at first it really seemed to be helping. I have heard about magnesium and vitamin D?
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Re: Can anyone advise me on vitamins to try?

Post  Leslieg on Fri Mar 21, 2014 1:30 pm

Hi Tink,
I'm not a nutritionist but after years of internet search....I've read so much. Some V specialist recommend calcium citrate to decrease oxylates in urine that may be causing irritation. They sell them mixed with magnesium which is very helpful for constipation. This might be helpful for you if you eat a lot of foods high in oxylate (ie spinach).....you mentioned you were a vegetarian?
Also, vitamin B is supposed to be good. I buy one that has all the Bs (6,12, etc). Vitamin B is supposed to help with nerve healing if that is potential issue. Unfortunately, the one I just bought from GNC is huge and hard to swallow (the calcium too). I don't know why they make them so huge. Vitamin E and fish oil are supposed to help with skin....strengthen, soften etc.

I know this seems like a lot. I'm trying to get all this with healthy foods too. I've been told that's the best way. I try to take the supplements too ........but I forget sometimes. In my experience......take with food to avoid stomach upset. The vitamin B is my priority lately. I'm learning my pain is more nerve related now. I'm gonna give the B a good few months of consistency and see if it helps.

I hope the ami is helping you. I was just recently prescribed Valium suppositories and topical gabapentin. I actually feel stoned from t he valium. The dose is way too strong for me.....I'm experimenting with cutting the dose. I used a 1/4 last night. A little less stoned.

I haven't received the gabapentin yet. It has to be compounded at the pharmacy. $50 for a months supply......no fun.....we'll see how it works.

Keep us posted on your progress! Spring is coming.....hopefully healing too!!
xo

Leslieg

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Re: Can anyone advise me on vitamins to try?

Post  tinkerbelle2 on Fri Mar 21, 2014 9:08 pm

Leslie, thanks for the reply it was just what I wanted Smile! I'm going to try B6/ b combo, magnesium and calcium! Will keep you posted x
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Re: Can anyone advise me on vitamins to try?

Post  Georgia H on Wed Mar 26, 2014 5:16 pm

Hi Tinkerbelle!

I've gone on a vitamin rampage this week so I thought I'd send it over:

2 x Magnesiums in the morning - for the constipation from ami (on Mary Janes advice – works a treat!)
2 x Waterfall D Mannose – for the UTI’s (this is supposed to be the wonder vitamin for UTI’s these day, I take just in case)
2 x Bio Kult Candea – to prevent against thrush and general gut health (on Mary Jane’s advice!)
2 x calcium citrate – to maintain normal ph of wee
1x b12 (maximum daily dose)

It's a bit of a headache to take them all but I keep them at work and just pop them throughout the day at various times!

xxx

Georgia H

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Probiotic..

Post  lavrose on Thu Mar 27, 2014 1:46 pm

Namely sachomycis Boulardi from Jarrow, and femdophilus from jarrwo. Also, Kyolic, folic acid and vitamin e help a lot. coconut oil is also good, and if your having an IC flare, Coconut water..
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Re: Can anyone advise me on vitamins to try?

Post  Loulou on Fri Mar 28, 2014 9:41 pm

Hi Tinkerbelle

I take Magnesium OK which is a multi-vit designed for women and the monthly cycle. I researched it at the time cos I thought vitamin deficiencies (zinc, magnesium, B's) might play a role in my vvd and it seemed to have most of the things I felt I was missing. I also started taking vit D drops and Bio-Kult Candea probiotics. Diet is best way to get your vits and minerals but i'm no angel so I need help! Even if a vit/mineral deficiency isn't a direct cause, I'm a strong believer in taking an holistic approach and looking after every aspect of your health can only help.

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Re: Can anyone advise me on vitamins to try?

Post  Alana3 on Fri Mar 28, 2014 9:59 pm

I found that I was going crazy stalking up on vitamins and all that was happening was me spending money I stopped taking everything and listened to my docs and right now my v is gone cuz of the surgery. My endo and adeno don't flare up as much and im happy. Just be smart with what your diet is

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Re: Can anyone advise me on vitamins to try?

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