Vulvodynia Support
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» Hope to all my suffering ladies
Can anyone advise me on vitamins to try?  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Can anyone advise me on vitamins to try?  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Can anyone advise me on vitamins to try?  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Can anyone advise me on vitamins to try?  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Can anyone advise me on vitamins to try?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Can anyone advise me on vitamins to try?  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Can anyone advise me on vitamins to try?  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Can anyone advise me on vitamins to try?  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Can anyone advise me on vitamins to try?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Can anyone advise me on vitamins to try?

+2
Leslieg
tinkerbelle2
6 posters

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Can anyone advise me on vitamins to try?  Empty Can anyone advise me on vitamins to try?

Post  tinkerbelle2 Fri Mar 21, 2014 8:07 am

I currently take 2x iron (ferrous gluconate 300mg) for low iron levels - I've been a veggie for 5 years. Gave me bad stomach cramps at first but I seem to have adjusted now. I also eat a lot of greens and high fibre foods to counteract the constipation iron can cause! Also take 50mg amitriptline although currently it is not significantly successful although at first it really seemed to be helping. I have heard about magnesium and vitamin D?
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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Post  Leslieg Fri Mar 21, 2014 1:30 pm

Hi Tink,
I'm not a nutritionist but after years of internet search....I've read so much. Some V specialist recommend calcium citrate to decrease oxylates in urine that may be causing irritation. They sell them mixed with magnesium which is very helpful for constipation. This might be helpful for you if you eat a lot of foods high in oxylate (ie spinach).....you mentioned you were a vegetarian?
Also, vitamin B is supposed to be good. I buy one that has all the Bs (6,12, etc). Vitamin B is supposed to help with nerve healing if that is potential issue. Unfortunately, the one I just bought from GNC is huge and hard to swallow (the calcium too). I don't know why they make them so huge. Vitamin E and fish oil are supposed to help with skin....strengthen, soften etc.

I know this seems like a lot. I'm trying to get all this with healthy foods too. I've been told that's the best way. I try to take the supplements too ........but I forget sometimes. In my experience......take with food to avoid stomach upset. The vitamin B is my priority lately. I'm learning my pain is more nerve related now. I'm gonna give the B a good few months of consistency and see if it helps.

I hope the ami is helping you. I was just recently prescribed Valium suppositories and topical gabapentin. I actually feel stoned from t he valium. The dose is way too strong for me.....I'm experimenting with cutting the dose. I used a 1/4 last night. A little less stoned.

I haven't received the gabapentin yet. It has to be compounded at the pharmacy. $50 for a months supply......no fun.....we'll see how it works.

Keep us posted on your progress! Spring is coming.....hopefully healing too!!
xo

Leslieg

Posts : 86
Join date : 2013-08-09

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Post  tinkerbelle2 Fri Mar 21, 2014 9:08 pm

Leslie, thanks for the reply it was just what I wanted Smile! I'm going to try B6/ b combo, magnesium and calcium! Will keep you posted x
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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Post  Georgia H Wed Mar 26, 2014 5:16 pm

Hi Tinkerbelle!

I've gone on a vitamin rampage this week so I thought I'd send it over:

2 x Magnesiums in the morning - for the constipation from ami (on Mary Janes advice – works a treat!)
2 x Waterfall D Mannose – for the UTI’s (this is supposed to be the wonder vitamin for UTI’s these day, I take just in case)
2 x Bio Kult Candea – to prevent against thrush and general gut health (on Mary Jane’s advice!)
2 x calcium citrate – to maintain normal ph of wee
1x b12 (maximum daily dose)

It's a bit of a headache to take them all but I keep them at work and just pop them throughout the day at various times!

xxx

Georgia H

Posts : 18
Join date : 2014-01-27
Location : LONDON

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Can anyone advise me on vitamins to try?  Empty Probiotic..

Post  lavrose Thu Mar 27, 2014 1:46 pm

Namely sachomycis Boulardi from Jarrow, and femdophilus from jarrwo. Also, Kyolic, folic acid and vitamin e help a lot. coconut oil is also good, and if your having an IC flare, Coconut water..
lavrose
lavrose

Posts : 152
Join date : 2012-04-28

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Post  Loulou Fri Mar 28, 2014 9:41 pm

Hi Tinkerbelle

I take Magnesium OK which is a multi-vit designed for women and the monthly cycle. I researched it at the time cos I thought vitamin deficiencies (zinc, magnesium, B's) might play a role in my vvd and it seemed to have most of the things I felt I was missing. I also started taking vit D drops and Bio-Kult Candea probiotics. Diet is best way to get your vits and minerals but i'm no angel so I need help! Even if a vit/mineral deficiency isn't a direct cause, I'm a strong believer in taking an holistic approach and looking after every aspect of your health can only help.

Loulou

Posts : 124
Join date : 2012-01-18

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Post  Alana3 Fri Mar 28, 2014 9:59 pm

I found that I was going crazy stalking up on vitamins and all that was happening was me spending money I stopped taking everything and listened to my docs and right now my v is gone cuz of the surgery. My endo and adeno don't flare up as much and im happy. Just be smart with what your diet is

Alana3

Posts : 1093
Join date : 2012-09-25

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