Log in

I forgot my password

Latest topics
Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Can anyone advise me on vitamins to try?

View previous topic View next topic Go down

Can anyone advise me on vitamins to try?

Post  tinkerbelle2 on Fri Mar 21, 2014 8:07 am

I currently take 2x iron (ferrous gluconate 300mg) for low iron levels - I've been a veggie for 5 years. Gave me bad stomach cramps at first but I seem to have adjusted now. I also eat a lot of greens and high fibre foods to counteract the constipation iron can cause! Also take 50mg amitriptline although currently it is not significantly successful although at first it really seemed to be helping. I have heard about magnesium and vitamin D?

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Can anyone advise me on vitamins to try?

Post  Leslieg on Fri Mar 21, 2014 1:30 pm

Hi Tink,
I'm not a nutritionist but after years of internet search....I've read so much. Some V specialist recommend calcium citrate to decrease oxylates in urine that may be causing irritation. They sell them mixed with magnesium which is very helpful for constipation. This might be helpful for you if you eat a lot of foods high in oxylate (ie spinach).....you mentioned you were a vegetarian?
Also, vitamin B is supposed to be good. I buy one that has all the Bs (6,12, etc). Vitamin B is supposed to help with nerve healing if that is potential issue. Unfortunately, the one I just bought from GNC is huge and hard to swallow (the calcium too). I don't know why they make them so huge. Vitamin E and fish oil are supposed to help with skin....strengthen, soften etc.

I know this seems like a lot. I'm trying to get all this with healthy foods too. I've been told that's the best way. I try to take the supplements too ........but I forget sometimes. In my experience......take with food to avoid stomach upset. The vitamin B is my priority lately. I'm learning my pain is more nerve related now. I'm gonna give the B a good few months of consistency and see if it helps.

I hope the ami is helping you. I was just recently prescribed Valium suppositories and topical gabapentin. I actually feel stoned from t he valium. The dose is way too strong for me.....I'm experimenting with cutting the dose. I used a 1/4 last night. A little less stoned.

I haven't received the gabapentin yet. It has to be compounded at the pharmacy. $50 for a months supply......no fun.....we'll see how it works.

Keep us posted on your progress! Spring is coming.....hopefully healing too!!


Posts : 86
Join date : 2013-08-09

View user profile

Back to top Go down

Re: Can anyone advise me on vitamins to try?

Post  tinkerbelle2 on Fri Mar 21, 2014 9:08 pm

Leslie, thanks for the reply it was just what I wanted Smile! I'm going to try B6/ b combo, magnesium and calcium! Will keep you posted x

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Can anyone advise me on vitamins to try?

Post  Georgia H on Wed Mar 26, 2014 5:16 pm

Hi Tinkerbelle!

I've gone on a vitamin rampage this week so I thought I'd send it over:

2 x Magnesiums in the morning - for the constipation from ami (on Mary Janes advice – works a treat!)
2 x Waterfall D Mannose – for the UTI’s (this is supposed to be the wonder vitamin for UTI’s these day, I take just in case)
2 x Bio Kult Candea – to prevent against thrush and general gut health (on Mary Jane’s advice!)
2 x calcium citrate – to maintain normal ph of wee
1x b12 (maximum daily dose)

It's a bit of a headache to take them all but I keep them at work and just pop them throughout the day at various times!


Georgia H

Posts : 18
Join date : 2014-01-27
Location : LONDON

View user profile

Back to top Go down


Post  lavrose on Thu Mar 27, 2014 1:46 pm

Namely sachomycis Boulardi from Jarrow, and femdophilus from jarrwo. Also, Kyolic, folic acid and vitamin e help a lot. coconut oil is also good, and if your having an IC flare, Coconut water..

Posts : 150
Join date : 2012-04-28

View user profile

Back to top Go down

Re: Can anyone advise me on vitamins to try?

Post  Loulou on Fri Mar 28, 2014 9:41 pm

Hi Tinkerbelle

I take Magnesium OK which is a multi-vit designed for women and the monthly cycle. I researched it at the time cos I thought vitamin deficiencies (zinc, magnesium, B's) might play a role in my vvd and it seemed to have most of the things I felt I was missing. I also started taking vit D drops and Bio-Kult Candea probiotics. Diet is best way to get your vits and minerals but i'm no angel so I need help! Even if a vit/mineral deficiency isn't a direct cause, I'm a strong believer in taking an holistic approach and looking after every aspect of your health can only help.


Posts : 124
Join date : 2012-01-18

View user profile

Back to top Go down

Re: Can anyone advise me on vitamins to try?

Post  Alana3 on Fri Mar 28, 2014 9:59 pm

I found that I was going crazy stalking up on vitamins and all that was happening was me spending money I stopped taking everything and listened to my docs and right now my v is gone cuz of the surgery. My endo and adeno don't flare up as much and im happy. Just be smart with what your diet is


Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Can anyone advise me on vitamins to try?

Post  Sponsored content

Sponsored content

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum