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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Capsaicin treatment?

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Capsaicin treatment?

Post  bridget234 on Sat Mar 22, 2014 5:18 pm

Hi all! I'm a newbie here. Been having problems for 3 years, diagnosed with VV 2 years ago. I've tried tons of different treatments but my doctor suggested a new one and I was wondering if anyone has ever tried it before?

He suggested using Capsaicin cream on the affected area twice a day to desensitize the nerves. Apparently it is supposed to hurt so bad that your nerves stop feeling pain. If anyone doesn't know what it is, its basically chili powder in cream form (mixed with a few other things, of course).

I tried it for the first time this morning and it hurt soooo bad! I'm not lying when I say that was probably the worst pain I've ever felt. However, it only lasted about 20 minutes.

So, I'm torn. Do I keep doing it and put myself through the pain if I'm not even sure if it will work? Or do I just stop and go to my last option... surgery  Sad 

Have any of you ladies tried the capsaicin before? How did it work out?


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Re: Capsaicin treatment?

Post  nanmark3 on Mon Mar 24, 2014 11:25 pm

I tried Active On which is a capsaicin cream that gives me really for other chronic pain. It actually gives me a lot of relief! The downside though and this is going to sound real gross, but after 2 weeks of using it I started majorly peeling down there. It was if I had a major sunburn. It didn't cause me more pain, but thick sheet of skin peeled off twice from everywhere down there that I had put it. I had used it on my vulva lips and into my groin. So I learned a big lesson we have very sensitive skin down there I wouldn't use capsaicin cream even once again!


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Re: Capsaicin treatment?

Post  Georgia H on Wed Mar 26, 2014 12:37 pm

Interesting... I've just got this from my GP to try as I wanted amitriptyline/ketamine in a compound cream but she can't prescribe it. I've read about some good results on capsaicin so keen to try it - I've not really tried anything topical as yet (only amitriptyline). Research suggests it works well with neuralgia type pain ... Not looking forward to the first few applications though! Interested to know if anyone else has tried it?

My pain isn't VV though, is generalized all over the pubic hair area.

Georgia H

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Re: Capsaicin treatment?

Post  bridget234 on Wed Mar 26, 2014 10:20 pm

I'm only a few days into the treatment but here is what's happened so far:

The first time hurt REALLLLLLY bad! But after that it wasn't as bad, but still pretty painful! The pain doesn't last more than 20-30 mins though.

But I have noticed less burning pain throughout the day! I used to constantly feel it, and now I still do but not as much. My affected area still hurts to touch but I think it may be helping. I am supposed to keep at it for a month before I can actually tell if its working or not.

Let me know how it goes for you!!


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Re: Capsaicin treatment?

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