Log in

I forgot my password

Latest topics
» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Capsaicin treatment?

Go down

Capsaicin treatment?

Post  bridget234 on Sat Mar 22, 2014 5:18 pm

Hi all! I'm a newbie here. Been having problems for 3 years, diagnosed with VV 2 years ago. I've tried tons of different treatments but my doctor suggested a new one and I was wondering if anyone has ever tried it before?

He suggested using Capsaicin cream on the affected area twice a day to desensitize the nerves. Apparently it is supposed to hurt so bad that your nerves stop feeling pain. If anyone doesn't know what it is, its basically chili powder in cream form (mixed with a few other things, of course).

I tried it for the first time this morning and it hurt soooo bad! I'm not lying when I say that was probably the worst pain I've ever felt. However, it only lasted about 20 minutes.

So, I'm torn. Do I keep doing it and put myself through the pain if I'm not even sure if it will work? Or do I just stop and go to my last option... surgery  Sad 

Have any of you ladies tried the capsaicin before? How did it work out?


Posts : 13
Join date : 2014-03-22

View user profile

Back to top Go down

Re: Capsaicin treatment?

Post  nanmark3 on Mon Mar 24, 2014 11:25 pm

I tried Active On which is a capsaicin cream that gives me really for other chronic pain. It actually gives me a lot of relief! The downside though and this is going to sound real gross, but after 2 weeks of using it I started majorly peeling down there. It was if I had a major sunburn. It didn't cause me more pain, but thick sheet of skin peeled off twice from everywhere down there that I had put it. I had used it on my vulva lips and into my groin. So I learned a big lesson we have very sensitive skin down there I wouldn't use capsaicin cream even once again!


Posts : 6
Join date : 2014-03-24

View user profile

Back to top Go down

Re: Capsaicin treatment?

Post  Georgia H on Wed Mar 26, 2014 12:37 pm

Interesting... I've just got this from my GP to try as I wanted amitriptyline/ketamine in a compound cream but she can't prescribe it. I've read about some good results on capsaicin so keen to try it - I've not really tried anything topical as yet (only amitriptyline). Research suggests it works well with neuralgia type pain ... Not looking forward to the first few applications though! Interested to know if anyone else has tried it?

My pain isn't VV though, is generalized all over the pubic hair area.

Georgia H

Posts : 18
Join date : 2014-01-27
Location : LONDON

View user profile

Back to top Go down

Re: Capsaicin treatment?

Post  bridget234 on Wed Mar 26, 2014 10:20 pm

I'm only a few days into the treatment but here is what's happened so far:

The first time hurt REALLLLLLY bad! But after that it wasn't as bad, but still pretty painful! The pain doesn't last more than 20-30 mins though.

But I have noticed less burning pain throughout the day! I used to constantly feel it, and now I still do but not as much. My affected area still hurts to touch but I think it may be helping. I am supposed to keep at it for a month before I can actually tell if its working or not.

Let me know how it goes for you!!


Posts : 13
Join date : 2014-03-22

View user profile

Back to top Go down

Re: Capsaicin treatment?

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum