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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Capsaicin treatment?

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Capsaicin treatment?

Post  bridget234 on Sat Mar 22, 2014 5:18 pm

Hi all! I'm a newbie here. Been having problems for 3 years, diagnosed with VV 2 years ago. I've tried tons of different treatments but my doctor suggested a new one and I was wondering if anyone has ever tried it before?

He suggested using Capsaicin cream on the affected area twice a day to desensitize the nerves. Apparently it is supposed to hurt so bad that your nerves stop feeling pain. If anyone doesn't know what it is, its basically chili powder in cream form (mixed with a few other things, of course).

I tried it for the first time this morning and it hurt soooo bad! I'm not lying when I say that was probably the worst pain I've ever felt. However, it only lasted about 20 minutes.

So, I'm torn. Do I keep doing it and put myself through the pain if I'm not even sure if it will work? Or do I just stop and go to my last option... surgery  Sad 

Have any of you ladies tried the capsaicin before? How did it work out?


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Re: Capsaicin treatment?

Post  nanmark3 on Mon Mar 24, 2014 11:25 pm

I tried Active On which is a capsaicin cream that gives me really for other chronic pain. It actually gives me a lot of relief! The downside though and this is going to sound real gross, but after 2 weeks of using it I started majorly peeling down there. It was if I had a major sunburn. It didn't cause me more pain, but thick sheet of skin peeled off twice from everywhere down there that I had put it. I had used it on my vulva lips and into my groin. So I learned a big lesson we have very sensitive skin down there I wouldn't use capsaicin cream even once again!


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Re: Capsaicin treatment?

Post  Georgia H on Wed Mar 26, 2014 12:37 pm

Interesting... I've just got this from my GP to try as I wanted amitriptyline/ketamine in a compound cream but she can't prescribe it. I've read about some good results on capsaicin so keen to try it - I've not really tried anything topical as yet (only amitriptyline). Research suggests it works well with neuralgia type pain ... Not looking forward to the first few applications though! Interested to know if anyone else has tried it?

My pain isn't VV though, is generalized all over the pubic hair area.

Georgia H

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Re: Capsaicin treatment?

Post  bridget234 on Wed Mar 26, 2014 10:20 pm

I'm only a few days into the treatment but here is what's happened so far:

The first time hurt REALLLLLLY bad! But after that it wasn't as bad, but still pretty painful! The pain doesn't last more than 20-30 mins though.

But I have noticed less burning pain throughout the day! I used to constantly feel it, and now I still do but not as much. My affected area still hurts to touch but I think it may be helping. I am supposed to keep at it for a month before I can actually tell if its working or not.

Let me know how it goes for you!!


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Re: Capsaicin treatment?

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