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    » New here would very much appreciate advice at the end of my rope
    Fri Jan 11, 2019 1:46 am by Jma990o

    » Diagnosed Recently
    Tue Jan 08, 2019 3:55 pm by flissyg

    » Looking for suggestions or encouragement
    Thu Jan 03, 2019 11:09 am by Gaby

    » Clinical Trial for Vulvodynia Treatment
    Wed Dec 19, 2018 7:13 pm by wramirez

    » New and need advice and help
    Thu Dec 13, 2018 9:48 am by Derry59

    » Things that have worked for me
    Tue Dec 11, 2018 11:32 am by Amethyst

    » Found relief after more than 15 years of pain!
    Tue Dec 11, 2018 11:17 am by Amethyst

    » I'm new to this forum and would love some advice! :)
    Tue Dec 11, 2018 3:06 am by Cin124

    » I think I know what causes vulvodynia-it's the memory of pain
    Sat Dec 08, 2018 1:24 pm by foxysugarpants

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 2

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 0

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 6

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 4

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 13

    Hello. Happy to have found this group.

    Fri Dec 07, 2018 9:01 pm by foxysugarpants

    I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

    Comments: 0

    Had this for 5 years, looking for people who understand

    Sat Oct 06, 2018 9:46 pm by blackberrie

    Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

    Comments: 3

    Anyone have pain with urination?

    Tue Oct 16, 2018 2:35 pm by mertzwl

    Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

    I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

    Comments: 6

    Diagnosed recently, looking for advice

    Sun Sep 02, 2018 12:51 am by Cloudberry

    Hi everyone,

    I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

    I’m a woman in my late 20s. Before getting diagnosed …

    Comments: 4

    physiotherapy sessions

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    physiotherapy sessions

    Post  topcat on Sat Mar 22, 2014 11:07 pm

    Howdy Girls, I got good news and well hum drum. I saw the physiotherapist she is very expensive 1. $160.00 after one hour sessions 140.00. First visit was initial intake information. second visit she examined my vagina, on both walls at 3 0clock were tender, no erosion. we picked out a dilator the size of my husbands penis. that went in smoothly, at least now I can try having sex... The third visit I was very disappointed, I had told her about my low back, sacrum, coccyx area being sore, I was expecting, trigger point, deep tissue, stripping the gluteus muscles to the hip joint and some internal release Noop.
    So I called my massage therapist, I got so much re leaf, no back pain. I'm reading Myofascial Pain and Dysfunction Lower Extremities Janet Travell M.D.

    I will say, that prior to my physiotherapists apt.. I massaged myself, taking my index finger and releasing the tight muscle threads on each side of my vagina opening, then I placed my thumb down on my perineal held their, and did the same thing on the right and left side. I told her that I asked God to show me what to do. It was right. Dr. visit was great. I using vaginal estrogen.
    I don't know if I'll go back to her?


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    Re: physiotherapy sessions

    Post  Loulou on Fri Mar 28, 2014 10:46 pm

    Hi topcat - have you told your physio about your concerns? Your back, sacrum and coccyx pain might well be related to your vvd. I know the first physio I went to was so focussed on assessing my pelvic floor that she totally missed my misaligned pelvis (later diagnosed by a chiropractor) which turned out to be the cause of my vvd. So its worth a phone call to her before your next visit to ask her some questions about her approach, especially as its costing you money.

    I would say keep doing your internal massages too - I did the same and it helped me as it works on releasing tight muscles. If you're into self-help books I can recommend - Heal Pelvic Pain by Amy Stein (she gives some guidance on internal massage) and The Trigger Point Therapy Workbook by Clair Davies.


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