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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

physiotherapy sessions

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physiotherapy sessions

Post  topcat on Sat Mar 22, 2014 11:07 pm

Howdy Girls, I got good news and well hum drum. I saw the physiotherapist she is very expensive 1. $160.00 after one hour sessions 140.00. First visit was initial intake information. second visit she examined my vagina, on both walls at 3 0clock were tender, no erosion. we picked out a dilator the size of my husbands penis. that went in smoothly, at least now I can try having sex... The third visit I was very disappointed, I had told her about my low back, sacrum, coccyx area being sore, I was expecting, trigger point, deep tissue, stripping the gluteus muscles to the hip joint and some internal release Noop.
So I called my massage therapist, I got so much re leaf, no back pain. I'm reading Myofascial Pain and Dysfunction Lower Extremities Janet Travell M.D.

I will say, that prior to my physiotherapists apt.. I massaged myself, taking my index finger and releasing the tight muscle threads on each side of my vagina opening, then I placed my thumb down on my perineal held their, and did the same thing on the right and left side. I told her that I asked God to show me what to do. It was right. Dr. visit was great. I using vaginal estrogen.
I don't know if I'll go back to her?


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Re: physiotherapy sessions

Post  Loulou on Fri Mar 28, 2014 10:46 pm

Hi topcat - have you told your physio about your concerns? Your back, sacrum and coccyx pain might well be related to your vvd. I know the first physio I went to was so focussed on assessing my pelvic floor that she totally missed my misaligned pelvis (later diagnosed by a chiropractor) which turned out to be the cause of my vvd. So its worth a phone call to her before your next visit to ask her some questions about her approach, especially as its costing you money.

I would say keep doing your internal massages too - I did the same and it helped me as it works on releasing tight muscles. If you're into self-help books I can recommend - Heal Pelvic Pain by Amy Stein (she gives some guidance on internal massage) and The Trigger Point Therapy Workbook by Clair Davies.


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