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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

physiotherapy sessions

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physiotherapy sessions

Post  topcat on Sat Mar 22, 2014 11:07 pm

Howdy Girls, I got good news and well hum drum. I saw the physiotherapist she is very expensive 1. $160.00 after one hour sessions 140.00. First visit was initial intake information. second visit she examined my vagina, on both walls at 3 0clock were tender, no erosion. we picked out a dilator the size of my husbands penis. that went in smoothly, at least now I can try having sex... The third visit I was very disappointed, I had told her about my low back, sacrum, coccyx area being sore, I was expecting, trigger point, deep tissue, stripping the gluteus muscles to the hip joint and some internal release Noop.
So I called my massage therapist, I got so much re leaf, no back pain. I'm reading Myofascial Pain and Dysfunction Lower Extremities Janet Travell M.D.

I will say, that prior to my physiotherapists apt.. I massaged myself, taking my index finger and releasing the tight muscle threads on each side of my vagina opening, then I placed my thumb down on my perineal held their, and did the same thing on the right and left side. I told her that I asked God to show me what to do. It was right. Dr. visit was great. I using vaginal estrogen.
I don't know if I'll go back to her?


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Re: physiotherapy sessions

Post  Loulou on Fri Mar 28, 2014 10:46 pm

Hi topcat - have you told your physio about your concerns? Your back, sacrum and coccyx pain might well be related to your vvd. I know the first physio I went to was so focussed on assessing my pelvic floor that she totally missed my misaligned pelvis (later diagnosed by a chiropractor) which turned out to be the cause of my vvd. So its worth a phone call to her before your next visit to ask her some questions about her approach, especially as its costing you money.

I would say keep doing your internal massages too - I did the same and it helped me as it works on releasing tight muscles. If you're into self-help books I can recommend - Heal Pelvic Pain by Amy Stein (she gives some guidance on internal massage) and The Trigger Point Therapy Workbook by Clair Davies.


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