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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Update on Vitamin B12

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Update on Vitamin B12

Post  zarli on Sun Mar 23, 2014 1:26 am

Well I started taking Vitamin B and B12 as suggested by one of the girls on here as I had all the symptoms of lacking in Vitamin B12. My doctor gave me a blood test and said I was Ok, BUT as suggested again on this forum I tried taking them any way...Well amazing results after 4 days no back pain no burning heals even after exercise !!! Hard to make comment on actual vulva pain as my meds have that under control at present. I have waited awhile before making this post to see if pain stayed away and YES it has !!! I did start having bad headaches so I quit the Multi B and just took the B12. I have been suffering along time and have always believed I have damaged nerves. I will stay on meds as in a few months I am travelling along way on a plane so I don't want any complications before then. Just thought you all might like to hear some good news from a long time sufferer.

zarli

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Re: Update on Vitamin B12

Post  Leslieg on Mon Mar 24, 2014 5:13 pm

XxOo Zarli!!!!
Makes me wanna sing and dance! How much B are you taking?

Leslieg

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Re: Update on Vitamin B12

Post  zarli on Tue Mar 25, 2014 1:03 am

Thanks Leslieg its nice to have you comment. I am taking 1 tablet sublingual (under my tongue), once a day of just B12.
I had my vulva clinic appointment yesterday which involves a lot of travel for me and I am usually a mess the following day with pain every where ( as I suffer from fibromyalgia also) but today I have no pain anywhere !!!
My specialist said she did think of lack of vitamin B12 but had never really thought it was my problem. I also believe my positive affirmations are working and my out look on my life is changing so I am thinking it may be a combination of every thing , holistic approach I guess. I will keep taking my meds at the same dose until I get back from my trip, but it is so nice to have a rest from my pain. I have always tried so hard over the years and for the most part have stayed positive but recalling some of my darkest days frighten me, so it is nice maybe for other girls to know there is always hope always. I have tried to display this on this forum and have made myself available for any one to talk to. I left a flyer in the vulva clinic with a very positive message and affirmation so I can only help it gets to the girls that are in the dark days.
How are you going ?
Much kindness sent your way
Zxx

zarli

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Re: Update on Vitamin B12

Post  mary jane on Fri Mar 28, 2014 3:39 pm

I'm very happy for you, zarli !!
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mary jane

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Re: Update on Vitamin B12

Post  Guest on Wed Aug 27, 2014 2:48 am

Is the b12 still working?? My b12 levels came back normal too, but this post has got me thinking i should try anyways!

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Re: Update on Vitamin B12

Post  zarli on Sat Aug 30, 2014 7:14 pm

Unfortunately the b12 gave me terrible headaches to the point I had to stop takimg them. Bit give them a try and see how you get on. Best of luck.

zarli

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Re: Update on Vitamin B12

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