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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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getting better slowly..

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getting better slowly..

Post  lavrose on Thu Mar 27, 2014 1:54 pm

Getting better slowly but surely. Been able to have sex a few times a week, for about a year now. Ive been using Boric acid suppositories, 2 caps inserted in the vag morning and evening and for a while (about 2 months) yeast arrest suppositories along with them twice a day, now Im using carlsons Vitamin e suppositories with the boric acid. The only downside is, its messy, especially during sex, and its embarrassing, because, he has this powder all over him after, and its greasy and overly wet, so sometimes he cant really get friction..which sux, lol, but I feel extremely normal and comfortable "down there" when I am using them. If I go a day or 2 without them, symptoms come back, and Im extremely uncomfortable again.
However..my periods used to feel uncomfortable (for the last 3 years) since Ive had this burning vagina thing, but in the last 3 months or so, they almost feel normal again, so I think these suppositories might cure me one day, who knows..I do feel good, and am able to have sex while they are in, and live a normal life without feeling awful, so I never miss a day. Morning and evening. I still cry and get depressed cuz I have to wear pads also( been wearing cotton menstrual pads) to catch the excess discharge, ( so embarrassing), just everyday, its wet, and will soil your pants, so wear cotton pads.
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Re: getting better slowly..

Post  julesmp on Thu Mar 27, 2014 8:01 pm

It's so great that you are doing better! It sucks having to do all of those things but any progress is wonderful. What do you think helps the most?

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Boric acid

Post  lavrose on Fri Mar 28, 2014 6:14 pm

Well, recently I came off the yeast arrest and sex feels better, cuz that "grease" factor isn't there, and can get some friction. Hes used to the Boric acid powder thing by now, after, and sex is actually great!

Prolly Boric acid..but the key for me was using 2 00 gelcaps twice a day, instead of 1 00 gelcap inserted twice a day, which is what I started out with, and altho I felt a whole lot better, I really felt great and can even do marathon sex even nowadays, with 2 Boric Acid up in there, haha!
Another important thing is, it gave me my life back to wear im not irritated at my daughter and feeling constantly uncomfortable, and just lying in bed, I feel normal all day, and can sleep thru the night without that awful feeling in my crotch, that I lived with for so many years. When I first started on the boric acid, it kinda dried me out and burned me a bit, but it felt better than the Vulvodynia, so I trecked on and I seemed to get used to it. Then I started the yeast arrest and things felt even better, and moisterized as there is cocoa butter and vitamin E in the suppositories. Then that seemed to burn me too a bit after a while, so then I started up the Vitamin E suppositories (find them on Amazon), and that was better. When I started on 2, twice a day, it didn't hurt me, and everything just felt so much better, except Im wet and disgusting sometimes, like Im having my period,lol. I take 2 showers a day. .
I used to do essential oils, and concoted all sorts of things together to put in my vag, like a mad scientist over the years, and so far, this has been the best combination for me.
Ive recently started on Sachomycis Boulardii, and Caprilic Acid and Im also gonna start up on a product called Parastroy, I heard a couple people got rid of their yeast and fungus infections after using this product. (yeast starts in the intestines) You can get all these things on Vitacost.
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Re: getting better slowly..

Post  tinkerbelle2 on Sat Mar 29, 2014 8:26 am

Will try this! X
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I"m confused :(

Post  hondachick96 on Thu Apr 10, 2014 10:58 pm

Hello! I was reading your post and suddenly felt that there may be a little hope...I've been dealing with this for almost a year now. It's frustrating because I don't know what to do. I want to make sure that I'm understanding what you're saying. Did you have a constant yeast infection or actual Vulvadynia? I have never heard of the suppositories that you are referring to. Do you use them for the yeast infection or for the Vulvadynia symptoms? Sorry, I know I am asking a lot of questions...just want to make sure that I'm understanding and want to try anything!! Glad this is working for you because this really sucks!!

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..

Post  lavrose on Wed Apr 16, 2014 11:57 pm

It started with a yeast infection that was very stubborn when I lost my virginity. I did monistat and it did not help at all. Then I went to the doctor and did a few rounds of diflucan, and they said I was clear of yeast, but I still had some pain, itching. A few years after that , and multiple rounds of medications and sometimes negative, sometimes positive yeast results, they diagnosed me with Vulvodynia. Ive had these problems all my life, but Ive learned now, that sometimes its not always a yeast infection, it might be BV, ( a bacterial infection) You might have an infection that doesn't show up in tests (yeast or BV), doctors are not always right, you should, trust your body, if you know somethings not right, SOMETHINGS NOT RIGHT. The V meds do nothing but drug you and cover up the symptoms. Also, I learned about Candida, and yeast in the gut, caused by improper diet lacking probiotics foods such as yogurt, kefir, and sourkrout, and OVERUSE OF ANTIBIOTICS. Ive had tons of antibiotics thruout my life since childhood, for acne, etc, etc.
antibiotics kill good bacteria in the gut and cause yeast and other bacteria to flourish.
Poor nutrition is another factor.
Antibiotic and antifungal resistance is another factor! (why aren't these medications working??)
Doctors not caring.
Exploring homeopathic medicine, etc. You have to put something RIGHT IN THE VAG TO DESTROY THE BAD BACTERIA... That's causing your problem.
Also, the VAG is a warm, dark place, that has strange things inserted into it fairly frequently, sometimes not under the most clean conditons (sex on the bathroom floor, dirty fingers, etc) it stands to reason, women can get BV pretty easily, and if you don't have the proper vaginal healthy flora to ward it off, you can get sick.
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Re: getting better slowly..

Post  Alana3 on Thu Apr 17, 2014 1:40 pm

Did you know that its possible to over indulge in "good bacteria" and that can also cause pain? If you take in too many probiotics they can wind up hurting you too- be careful! Its a happy medium. But I have new found love for sauerkraut haha..

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...

Post  lavrose on Fri Apr 18, 2014 5:56 pm

Just google Boric Acid and chronic yeast or bv infections, and youll find a lot of information on there. I felt better after the first day using it, (just one capsule at night) is how I started. Midwives prescribe it and you can even have it compounded for you at certain pharm-
It makes sex possible, and after long term use, has cured some people of their problems..
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Re: getting better slowly..

Post  Delilah1 on Mon May 05, 2014 8:37 pm

That's wonderful Lavrose! So glad you are feeling better! Thanks for sharing your good news.
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Re: getting better slowly..

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