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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


getting better slowly..

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getting better slowly..

Post  lavrose on Thu Mar 27, 2014 1:54 pm

Getting better slowly but surely. Been able to have sex a few times a week, for about a year now. Ive been using Boric acid suppositories, 2 caps inserted in the vag morning and evening and for a while (about 2 months) yeast arrest suppositories along with them twice a day, now Im using carlsons Vitamin e suppositories with the boric acid. The only downside is, its messy, especially during sex, and its embarrassing, because, he has this powder all over him after, and its greasy and overly wet, so sometimes he cant really get friction..which sux, lol, but I feel extremely normal and comfortable "down there" when I am using them. If I go a day or 2 without them, symptoms come back, and Im extremely uncomfortable again.
However..my periods used to feel uncomfortable (for the last 3 years) since Ive had this burning vagina thing, but in the last 3 months or so, they almost feel normal again, so I think these suppositories might cure me one day, who knows..I do feel good, and am able to have sex while they are in, and live a normal life without feeling awful, so I never miss a day. Morning and evening. I still cry and get depressed cuz I have to wear pads also( been wearing cotton menstrual pads) to catch the excess discharge, ( so embarrassing), just everyday, its wet, and will soil your pants, so wear cotton pads.
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Re: getting better slowly..

Post  julesmp on Thu Mar 27, 2014 8:01 pm

It's so great that you are doing better! It sucks having to do all of those things but any progress is wonderful. What do you think helps the most?

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Boric acid

Post  lavrose on Fri Mar 28, 2014 6:14 pm

Well, recently I came off the yeast arrest and sex feels better, cuz that "grease" factor isn't there, and can get some friction. Hes used to the Boric acid powder thing by now, after, and sex is actually great!

Prolly Boric acid..but the key for me was using 2 00 gelcaps twice a day, instead of 1 00 gelcap inserted twice a day, which is what I started out with, and altho I felt a whole lot better, I really felt great and can even do marathon sex even nowadays, with 2 Boric Acid up in there, haha!
Another important thing is, it gave me my life back to wear im not irritated at my daughter and feeling constantly uncomfortable, and just lying in bed, I feel normal all day, and can sleep thru the night without that awful feeling in my crotch, that I lived with for so many years. When I first started on the boric acid, it kinda dried me out and burned me a bit, but it felt better than the Vulvodynia, so I trecked on and I seemed to get used to it. Then I started the yeast arrest and things felt even better, and moisterized as there is cocoa butter and vitamin E in the suppositories. Then that seemed to burn me too a bit after a while, so then I started up the Vitamin E suppositories (find them on Amazon), and that was better. When I started on 2, twice a day, it didn't hurt me, and everything just felt so much better, except Im wet and disgusting sometimes, like Im having my period,lol. I take 2 showers a day. .
I used to do essential oils, and concoted all sorts of things together to put in my vag, like a mad scientist over the years, and so far, this has been the best combination for me.
Ive recently started on Sachomycis Boulardii, and Caprilic Acid and Im also gonna start up on a product called Parastroy, I heard a couple people got rid of their yeast and fungus infections after using this product. (yeast starts in the intestines) You can get all these things on Vitacost.
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Re: getting better slowly..

Post  tinkerbelle2 on Sat Mar 29, 2014 8:26 am

Will try this! X
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I"m confused :(

Post  hondachick96 on Thu Apr 10, 2014 10:58 pm

Hello! I was reading your post and suddenly felt that there may be a little hope...I've been dealing with this for almost a year now. It's frustrating because I don't know what to do. I want to make sure that I'm understanding what you're saying. Did you have a constant yeast infection or actual Vulvadynia? I have never heard of the suppositories that you are referring to. Do you use them for the yeast infection or for the Vulvadynia symptoms? Sorry, I know I am asking a lot of questions...just want to make sure that I'm understanding and want to try anything!! Glad this is working for you because this really sucks!!

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..

Post  lavrose on Wed Apr 16, 2014 11:57 pm

It started with a yeast infection that was very stubborn when I lost my virginity. I did monistat and it did not help at all. Then I went to the doctor and did a few rounds of diflucan, and they said I was clear of yeast, but I still had some pain, itching. A few years after that , and multiple rounds of medications and sometimes negative, sometimes positive yeast results, they diagnosed me with Vulvodynia. Ive had these problems all my life, but Ive learned now, that sometimes its not always a yeast infection, it might be BV, ( a bacterial infection) You might have an infection that doesn't show up in tests (yeast or BV), doctors are not always right, you should, trust your body, if you know somethings not right, SOMETHINGS NOT RIGHT. The V meds do nothing but drug you and cover up the symptoms. Also, I learned about Candida, and yeast in the gut, caused by improper diet lacking probiotics foods such as yogurt, kefir, and sourkrout, and OVERUSE OF ANTIBIOTICS. Ive had tons of antibiotics thruout my life since childhood, for acne, etc, etc.
antibiotics kill good bacteria in the gut and cause yeast and other bacteria to flourish.
Poor nutrition is another factor.
Antibiotic and antifungal resistance is another factor! (why aren't these medications working??)
Doctors not caring.
Exploring homeopathic medicine, etc. You have to put something RIGHT IN THE VAG TO DESTROY THE BAD BACTERIA... That's causing your problem.
Also, the VAG is a warm, dark place, that has strange things inserted into it fairly frequently, sometimes not under the most clean conditons (sex on the bathroom floor, dirty fingers, etc) it stands to reason, women can get BV pretty easily, and if you don't have the proper vaginal healthy flora to ward it off, you can get sick.
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Re: getting better slowly..

Post  Alana3 on Thu Apr 17, 2014 1:40 pm

Did you know that its possible to over indulge in "good bacteria" and that can also cause pain? If you take in too many probiotics they can wind up hurting you too- be careful! Its a happy medium. But I have new found love for sauerkraut haha..

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...

Post  lavrose on Fri Apr 18, 2014 5:56 pm

Just google Boric Acid and chronic yeast or bv infections, and youll find a lot of information on there. I felt better after the first day using it, (just one capsule at night) is how I started. Midwives prescribe it and you can even have it compounded for you at certain pharm-
It makes sex possible, and after long term use, has cured some people of their problems..
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Re: getting better slowly..

Post  Delilah1 on Mon May 05, 2014 8:37 pm

That's wonderful Lavrose! So glad you are feeling better! Thanks for sharing your good news.
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Re: getting better slowly..

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