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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


getting better slowly..

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getting better slowly..

Post  lavrose on Thu Mar 27, 2014 1:54 pm

Getting better slowly but surely. Been able to have sex a few times a week, for about a year now. Ive been using Boric acid suppositories, 2 caps inserted in the vag morning and evening and for a while (about 2 months) yeast arrest suppositories along with them twice a day, now Im using carlsons Vitamin e suppositories with the boric acid. The only downside is, its messy, especially during sex, and its embarrassing, because, he has this powder all over him after, and its greasy and overly wet, so sometimes he cant really get friction..which sux, lol, but I feel extremely normal and comfortable "down there" when I am using them. If I go a day or 2 without them, symptoms come back, and Im extremely uncomfortable again.
However..my periods used to feel uncomfortable (for the last 3 years) since Ive had this burning vagina thing, but in the last 3 months or so, they almost feel normal again, so I think these suppositories might cure me one day, who knows..I do feel good, and am able to have sex while they are in, and live a normal life without feeling awful, so I never miss a day. Morning and evening. I still cry and get depressed cuz I have to wear pads also( been wearing cotton menstrual pads) to catch the excess discharge, ( so embarrassing), just everyday, its wet, and will soil your pants, so wear cotton pads.
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Re: getting better slowly..

Post  julesmp on Thu Mar 27, 2014 8:01 pm

It's so great that you are doing better! It sucks having to do all of those things but any progress is wonderful. What do you think helps the most?

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Boric acid

Post  lavrose on Fri Mar 28, 2014 6:14 pm

Well, recently I came off the yeast arrest and sex feels better, cuz that "grease" factor isn't there, and can get some friction. Hes used to the Boric acid powder thing by now, after, and sex is actually great!

Prolly Boric acid..but the key for me was using 2 00 gelcaps twice a day, instead of 1 00 gelcap inserted twice a day, which is what I started out with, and altho I felt a whole lot better, I really felt great and can even do marathon sex even nowadays, with 2 Boric Acid up in there, haha!
Another important thing is, it gave me my life back to wear im not irritated at my daughter and feeling constantly uncomfortable, and just lying in bed, I feel normal all day, and can sleep thru the night without that awful feeling in my crotch, that I lived with for so many years. When I first started on the boric acid, it kinda dried me out and burned me a bit, but it felt better than the Vulvodynia, so I trecked on and I seemed to get used to it. Then I started the yeast arrest and things felt even better, and moisterized as there is cocoa butter and vitamin E in the suppositories. Then that seemed to burn me too a bit after a while, so then I started up the Vitamin E suppositories (find them on Amazon), and that was better. When I started on 2, twice a day, it didn't hurt me, and everything just felt so much better, except Im wet and disgusting sometimes, like Im having my period,lol. I take 2 showers a day. .
I used to do essential oils, and concoted all sorts of things together to put in my vag, like a mad scientist over the years, and so far, this has been the best combination for me.
Ive recently started on Sachomycis Boulardii, and Caprilic Acid and Im also gonna start up on a product called Parastroy, I heard a couple people got rid of their yeast and fungus infections after using this product. (yeast starts in the intestines) You can get all these things on Vitacost.
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Re: getting better slowly..

Post  tinkerbelle2 on Sat Mar 29, 2014 8:26 am

Will try this! X
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I"m confused :(

Post  hondachick96 on Thu Apr 10, 2014 10:58 pm

Hello! I was reading your post and suddenly felt that there may be a little hope...I've been dealing with this for almost a year now. It's frustrating because I don't know what to do. I want to make sure that I'm understanding what you're saying. Did you have a constant yeast infection or actual Vulvadynia? I have never heard of the suppositories that you are referring to. Do you use them for the yeast infection or for the Vulvadynia symptoms? Sorry, I know I am asking a lot of questions...just want to make sure that I'm understanding and want to try anything!! Glad this is working for you because this really sucks!!

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..

Post  lavrose on Wed Apr 16, 2014 11:57 pm

It started with a yeast infection that was very stubborn when I lost my virginity. I did monistat and it did not help at all. Then I went to the doctor and did a few rounds of diflucan, and they said I was clear of yeast, but I still had some pain, itching. A few years after that , and multiple rounds of medications and sometimes negative, sometimes positive yeast results, they diagnosed me with Vulvodynia. Ive had these problems all my life, but Ive learned now, that sometimes its not always a yeast infection, it might be BV, ( a bacterial infection) You might have an infection that doesn't show up in tests (yeast or BV), doctors are not always right, you should, trust your body, if you know somethings not right, SOMETHINGS NOT RIGHT. The V meds do nothing but drug you and cover up the symptoms. Also, I learned about Candida, and yeast in the gut, caused by improper diet lacking probiotics foods such as yogurt, kefir, and sourkrout, and OVERUSE OF ANTIBIOTICS. Ive had tons of antibiotics thruout my life since childhood, for acne, etc, etc.
antibiotics kill good bacteria in the gut and cause yeast and other bacteria to flourish.
Poor nutrition is another factor.
Antibiotic and antifungal resistance is another factor! (why aren't these medications working??)
Doctors not caring.
Exploring homeopathic medicine, etc. You have to put something RIGHT IN THE VAG TO DESTROY THE BAD BACTERIA... That's causing your problem.
Also, the VAG is a warm, dark place, that has strange things inserted into it fairly frequently, sometimes not under the most clean conditons (sex on the bathroom floor, dirty fingers, etc) it stands to reason, women can get BV pretty easily, and if you don't have the proper vaginal healthy flora to ward it off, you can get sick.
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Re: getting better slowly..

Post  Alana3 on Thu Apr 17, 2014 1:40 pm

Did you know that its possible to over indulge in "good bacteria" and that can also cause pain? If you take in too many probiotics they can wind up hurting you too- be careful! Its a happy medium. But I have new found love for sauerkraut haha..

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...

Post  lavrose on Fri Apr 18, 2014 5:56 pm

Just google Boric Acid and chronic yeast or bv infections, and youll find a lot of information on there. I felt better after the first day using it, (just one capsule at night) is how I started. Midwives prescribe it and you can even have it compounded for you at certain pharm-
It makes sex possible, and after long term use, has cured some people of their problems..
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Re: getting better slowly..

Post  Delilah1 on Mon May 05, 2014 8:37 pm

That's wonderful Lavrose! So glad you are feeling better! Thanks for sharing your good news.
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Re: getting better slowly..

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