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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


First acupuncture

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First acupuncture

Post  Zbrown on Mon Mar 31, 2014 8:48 pm

Well I have a lot of trigger points and tension through out my body , after y first trip there has the needles put in at various points on my right leg and left arm but no relief from the v lol ! How many appointments before noticing a difference xox

Zbrown

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Re: First acupuncture

Post  bridget234 on Tue Apr 01, 2014 11:17 pm

Hi.. I tried acupuncture once a week for about 2 months. I honestly don't think it did anything except make me feel realized for about an hour.

I think it may also depend on your pain as well. For me, I have more external/nerve pain so the acupuncture can't really help with that. However, if your pain is more internal/muscle related, I think it could be beneficial. My acupuncurist said that it usually takes 8-12 weeks to see a difference though.

But everyone is different so it may work for you! Good luck!

bridget234

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 5:14 pm

Mine seems to be generalized external but idk about internal a bit bit definitely external , what kind do you have ?? I haven tried any medication like antidepressants ect yet so far just avoid some things eg tight clothes sex ect they want me to try acupuncture first before any medication they said because I'm only 22 :/ but idk do medications ever be a cure or just cover symptoms up so new to all this ! They haven't even diagnosed me with vulvodynia like they never said the word but all the treatments they have talked about eg acupuncture, Pilates, antidepressants ect sounds like a by of a give away ??? :/ xox

Zbrown

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 6:16 pm

I stopped going to it I would bleed and have horrendous cramps every time. And I'm pretty sure it was in my head when I did "feel better" after acupuncture. I wanted to believe it worked so it did, but not really. Medications can actually help it, but keep in mind there is not a cure for vulvodynia. There are things that can be done- I had surgery and even tho I'm 100% better I am not considered cured.

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 7:25 pm

Yeah I jw when people said thy where cured was confused ? I honestly can't remember what it feels like I be normal and it's only been five months lol ! They said if acupunture didn't work but gapenitn or something sorry for bad spelling ?? Mine seems to be more generalized inner thighs ect too but I do feel as I my pelvic floor muscles are contributing with the pain. Is there any surgery for generalized I guess not ? Xox

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 8:35 pm

More for local, but who knows. Try the gaba!

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 10:16 pm

Yeah well I'm back for acupuncture this Monday and then the following week after but I may schedule another apointment with the doctor see if there's anything I could do in conjunction get more relief , it's all very draining lol thanks Alana !!! Xo

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 11:44 pm

Trust me.I know and I wish I could help you but your problem was different than mine so I dont want to tell you wrong

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 3:11 am

I have more external pain but I also had some muscle related pain. Acupuncture didn't help with either. I would ask your doctor about physical therapy. I think it kind of has the same goal outcome as acupuncture for the muscle related pain but you're doing more hands on work that works for more than just a little bit after a session.

I am only 21 and have had this for almost 3 years so I know how you feel, zbrown Sad. Ask your doctor to prescribe you so lidocain for temporary relief here and there... at least that would help sometimes.

bridget234

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 10:34 am

Oh really are you only 21 too ?? It is frustrating like I had a normal life 5 months ago it's over welming sometimes . Where do you live yourself bridget234 xo

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 5:04 pm

Yeah I'm 21, almost 22. I am right outside of Philadelphia.. what about you?? I know its soooo frustrating! I get so upset about it all the time because I'm so young and feel like I should just have a normal life.
Feel free to private message me so we can talk!

bridget234

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 9:26 pm

I'm in Ireland , how donee personal message sounds crazy idk ??? Yeah no up until 5 months ago I was perfectly fine :/ xox

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 9:42 pm

Personal massages? My physical therapist does this and it seems to help..

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 10:25 pm

Ohh I
Meant private message i don't
Know how to personal message on this forumn x

Zbrown

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Re: First acupuncture

Post  bridget234 on Fri Apr 04, 2014 1:55 am

I'll message you...next to your username at the top there should be something that says 'you have __ new messages' !

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Re: First acupuncture

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