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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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First acupuncture

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First acupuncture

Post  Zbrown on Mon Mar 31, 2014 8:48 pm

Well I have a lot of trigger points and tension through out my body , after y first trip there has the needles put in at various points on my right leg and left arm but no relief from the v lol ! How many appointments before noticing a difference xox

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Re: First acupuncture

Post  bridget234 on Tue Apr 01, 2014 11:17 pm

Hi.. I tried acupuncture once a week for about 2 months. I honestly don't think it did anything except make me feel realized for about an hour.

I think it may also depend on your pain as well. For me, I have more external/nerve pain so the acupuncture can't really help with that. However, if your pain is more internal/muscle related, I think it could be beneficial. My acupuncurist said that it usually takes 8-12 weeks to see a difference though.

But everyone is different so it may work for you! Good luck!

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 5:14 pm

Mine seems to be generalized external but idk about internal a bit bit definitely external , what kind do you have ?? I haven tried any medication like antidepressants ect yet so far just avoid some things eg tight clothes sex ect they want me to try acupuncture first before any medication they said because I'm only 22 :/ but idk do medications ever be a cure or just cover symptoms up so new to all this ! They haven't even diagnosed me with vulvodynia like they never said the word but all the treatments they have talked about eg acupuncture, Pilates, antidepressants ect sounds like a by of a give away ??? :/ xox

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 6:16 pm

I stopped going to it I would bleed and have horrendous cramps every time. And I'm pretty sure it was in my head when I did "feel better" after acupuncture. I wanted to believe it worked so it did, but not really. Medications can actually help it, but keep in mind there is not a cure for vulvodynia. There are things that can be done- I had surgery and even tho I'm 100% better I am not considered cured.

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 7:25 pm

Yeah I jw when people said thy where cured was confused ? I honestly can't remember what it feels like I be normal and it's only been five months lol ! They said if acupunture didn't work but gapenitn or something sorry for bad spelling ?? Mine seems to be more generalized inner thighs ect too but I do feel as I my pelvic floor muscles are contributing with the pain. Is there any surgery for generalized I guess not ? Xox

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 8:35 pm

More for local, but who knows. Try the gaba!

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 10:16 pm

Yeah well I'm back for acupuncture this Monday and then the following week after but I may schedule another apointment with the doctor see if there's anything I could do in conjunction get more relief , it's all very draining lol thanks Alana !!! Xo

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 11:44 pm

Trust me.I know and I wish I could help you but your problem was different than mine so I dont want to tell you wrong

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 3:11 am

I have more external pain but I also had some muscle related pain. Acupuncture didn't help with either. I would ask your doctor about physical therapy. I think it kind of has the same goal outcome as acupuncture for the muscle related pain but you're doing more hands on work that works for more than just a little bit after a session.

I am only 21 and have had this for almost 3 years so I know how you feel, zbrown Sad. Ask your doctor to prescribe you so lidocain for temporary relief here and there... at least that would help sometimes.

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 10:34 am

Oh really are you only 21 too ?? It is frustrating like I had a normal life 5 months ago it's over welming sometimes . Where do you live yourself bridget234 xo

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 5:04 pm

Yeah I'm 21, almost 22. I am right outside of Philadelphia.. what about you?? I know its soooo frustrating! I get so upset about it all the time because I'm so young and feel like I should just have a normal life.
Feel free to private message me so we can talk!

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 9:26 pm

I'm in Ireland , how donee personal message sounds crazy idk ??? Yeah no up until 5 months ago I was perfectly fine :/ xox

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 9:42 pm

Personal massages? My physical therapist does this and it seems to help..

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 10:25 pm

Ohh I
Meant private message i don't
Know how to personal message on this forumn x

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Re: First acupuncture

Post  bridget234 on Fri Apr 04, 2014 1:55 am

I'll message you...next to your username at the top there should be something that says 'you have __ new messages' !

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Re: First acupuncture

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