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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 6

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


First acupuncture

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First acupuncture

Post  Zbrown on Mon Mar 31, 2014 8:48 pm

Well I have a lot of trigger points and tension through out my body , after y first trip there has the needles put in at various points on my right leg and left arm but no relief from the v lol ! How many appointments before noticing a difference xox

Zbrown

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Re: First acupuncture

Post  bridget234 on Tue Apr 01, 2014 11:17 pm

Hi.. I tried acupuncture once a week for about 2 months. I honestly don't think it did anything except make me feel realized for about an hour.

I think it may also depend on your pain as well. For me, I have more external/nerve pain so the acupuncture can't really help with that. However, if your pain is more internal/muscle related, I think it could be beneficial. My acupuncurist said that it usually takes 8-12 weeks to see a difference though.

But everyone is different so it may work for you! Good luck!

bridget234

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 5:14 pm

Mine seems to be generalized external but idk about internal a bit bit definitely external , what kind do you have ?? I haven tried any medication like antidepressants ect yet so far just avoid some things eg tight clothes sex ect they want me to try acupuncture first before any medication they said because I'm only 22 :/ but idk do medications ever be a cure or just cover symptoms up so new to all this ! They haven't even diagnosed me with vulvodynia like they never said the word but all the treatments they have talked about eg acupuncture, Pilates, antidepressants ect sounds like a by of a give away ??? :/ xox

Zbrown

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 6:16 pm

I stopped going to it I would bleed and have horrendous cramps every time. And I'm pretty sure it was in my head when I did "feel better" after acupuncture. I wanted to believe it worked so it did, but not really. Medications can actually help it, but keep in mind there is not a cure for vulvodynia. There are things that can be done- I had surgery and even tho I'm 100% better I am not considered cured.

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 7:25 pm

Yeah I jw when people said thy where cured was confused ? I honestly can't remember what it feels like I be normal and it's only been five months lol ! They said if acupunture didn't work but gapenitn or something sorry for bad spelling ?? Mine seems to be more generalized inner thighs ect too but I do feel as I my pelvic floor muscles are contributing with the pain. Is there any surgery for generalized I guess not ? Xox

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 8:35 pm

More for local, but who knows. Try the gaba!

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 10:16 pm

Yeah well I'm back for acupuncture this Monday and then the following week after but I may schedule another apointment with the doctor see if there's anything I could do in conjunction get more relief , it's all very draining lol thanks Alana !!! Xo

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 11:44 pm

Trust me.I know and I wish I could help you but your problem was different than mine so I dont want to tell you wrong

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 3:11 am

I have more external pain but I also had some muscle related pain. Acupuncture didn't help with either. I would ask your doctor about physical therapy. I think it kind of has the same goal outcome as acupuncture for the muscle related pain but you're doing more hands on work that works for more than just a little bit after a session.

I am only 21 and have had this for almost 3 years so I know how you feel, zbrown Sad. Ask your doctor to prescribe you so lidocain for temporary relief here and there... at least that would help sometimes.

bridget234

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 10:34 am

Oh really are you only 21 too ?? It is frustrating like I had a normal life 5 months ago it's over welming sometimes . Where do you live yourself bridget234 xo

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 5:04 pm

Yeah I'm 21, almost 22. I am right outside of Philadelphia.. what about you?? I know its soooo frustrating! I get so upset about it all the time because I'm so young and feel like I should just have a normal life.
Feel free to private message me so we can talk!

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 9:26 pm

I'm in Ireland , how donee personal message sounds crazy idk ??? Yeah no up until 5 months ago I was perfectly fine :/ xox

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 9:42 pm

Personal massages? My physical therapist does this and it seems to help..

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 10:25 pm

Ohh I
Meant private message i don't
Know how to personal message on this forumn x

Zbrown

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Re: First acupuncture

Post  bridget234 on Fri Apr 04, 2014 1:55 am

I'll message you...next to your username at the top there should be something that says 'you have __ new messages' !

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Re: First acupuncture

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