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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


First acupuncture

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First acupuncture

Post  Zbrown on Mon Mar 31, 2014 8:48 pm

Well I have a lot of trigger points and tension through out my body , after y first trip there has the needles put in at various points on my right leg and left arm but no relief from the v lol ! How many appointments before noticing a difference xox

Zbrown

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Re: First acupuncture

Post  bridget234 on Tue Apr 01, 2014 11:17 pm

Hi.. I tried acupuncture once a week for about 2 months. I honestly don't think it did anything except make me feel realized for about an hour.

I think it may also depend on your pain as well. For me, I have more external/nerve pain so the acupuncture can't really help with that. However, if your pain is more internal/muscle related, I think it could be beneficial. My acupuncurist said that it usually takes 8-12 weeks to see a difference though.

But everyone is different so it may work for you! Good luck!

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 5:14 pm

Mine seems to be generalized external but idk about internal a bit bit definitely external , what kind do you have ?? I haven tried any medication like antidepressants ect yet so far just avoid some things eg tight clothes sex ect they want me to try acupuncture first before any medication they said because I'm only 22 :/ but idk do medications ever be a cure or just cover symptoms up so new to all this ! They haven't even diagnosed me with vulvodynia like they never said the word but all the treatments they have talked about eg acupuncture, Pilates, antidepressants ect sounds like a by of a give away ??? :/ xox

Zbrown

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 6:16 pm

I stopped going to it I would bleed and have horrendous cramps every time. And I'm pretty sure it was in my head when I did "feel better" after acupuncture. I wanted to believe it worked so it did, but not really. Medications can actually help it, but keep in mind there is not a cure for vulvodynia. There are things that can be done- I had surgery and even tho I'm 100% better I am not considered cured.

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 7:25 pm

Yeah I jw when people said thy where cured was confused ? I honestly can't remember what it feels like I be normal and it's only been five months lol ! They said if acupunture didn't work but gapenitn or something sorry for bad spelling ?? Mine seems to be more generalized inner thighs ect too but I do feel as I my pelvic floor muscles are contributing with the pain. Is there any surgery for generalized I guess not ? Xox

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 8:35 pm

More for local, but who knows. Try the gaba!

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Re: First acupuncture

Post  Zbrown on Wed Apr 02, 2014 10:16 pm

Yeah well I'm back for acupuncture this Monday and then the following week after but I may schedule another apointment with the doctor see if there's anything I could do in conjunction get more relief , it's all very draining lol thanks Alana !!! Xo

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Re: First acupuncture

Post  Alana3 on Wed Apr 02, 2014 11:44 pm

Trust me.I know and I wish I could help you but your problem was different than mine so I dont want to tell you wrong

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 3:11 am

I have more external pain but I also had some muscle related pain. Acupuncture didn't help with either. I would ask your doctor about physical therapy. I think it kind of has the same goal outcome as acupuncture for the muscle related pain but you're doing more hands on work that works for more than just a little bit after a session.

I am only 21 and have had this for almost 3 years so I know how you feel, zbrown Sad. Ask your doctor to prescribe you so lidocain for temporary relief here and there... at least that would help sometimes.

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 10:34 am

Oh really are you only 21 too ?? It is frustrating like I had a normal life 5 months ago it's over welming sometimes . Where do you live yourself bridget234 xo

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 5:04 pm

Yeah I'm 21, almost 22. I am right outside of Philadelphia.. what about you?? I know its soooo frustrating! I get so upset about it all the time because I'm so young and feel like I should just have a normal life.
Feel free to private message me so we can talk!

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 9:26 pm

I'm in Ireland , how donee personal message sounds crazy idk ??? Yeah no up until 5 months ago I was perfectly fine :/ xox

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Re: First acupuncture

Post  bridget234 on Thu Apr 03, 2014 9:42 pm

Personal massages? My physical therapist does this and it seems to help..

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Re: First acupuncture

Post  Zbrown on Thu Apr 03, 2014 10:25 pm

Ohh I
Meant private message i don't
Know how to personal message on this forumn x

Zbrown

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Re: First acupuncture

Post  bridget234 on Fri Apr 04, 2014 1:55 am

I'll message you...next to your username at the top there should be something that says 'you have __ new messages' !

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Re: First acupuncture

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