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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


I think the amitriptline has failed :(

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I think the amitriptline has failed :(

Post  tinkerbelle2 on Fri Apr 04, 2014 6:50 am

Just got up to 75mg and had the worst week of depression I have ever experienced. Hardly able to sleep or eat when before I had no trouble sleeping even on the ami and I love food. Nothing is reassuring or comforting me Sad I am obsessing about things and having horrible intrusive thoughts.
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Re: I think the amitriptline has failed :(

Post  Alana3 on Fri Apr 04, 2014 8:35 am

If the lower dose was helping go back to that...

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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Fri Apr 04, 2014 5:32 pm

I don't think it really was Sad
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Re: I think the amitriptline has failed :(

Post  Alana3 on Fri Apr 04, 2014 9:08 pm

Try something else maybe gaba?

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Re: I think the amitriptline has failed :(

Post  zarli on Sun Apr 06, 2014 10:51 am

Hi Tinks
Sorry to hear your not well. I have had a bout of depression for the very first time and I know its a horrible place to be in. I think you need to try new medication such as lyirca and also switch to nortriptyline and take them together. I have just had an appointment last week with the best of the best in Australia and that is what they recommend for nerve pain in vulvodynia. I take these and I have no pain. I am just on a quest to find a cure with out medication. I hope you are able to get a doctor to prescribe these for you. I feel control of the pain is obviously the very first priority. I wish you all the best and am here for you, Z

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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Fri Apr 11, 2014 9:45 pm

zarli wrote:Hi Tinks
Sorry to hear your not well. I have had a bout of depression for the very first time and I know its a horrible place to be in. I think you need to try new medication such as lyirca and also switch to nortriptyline and take them together. I have just had an appointment last week with the best of the best in Australia and that is what they recommend for nerve pain in vulvodynia. I take these and I have no pain. I am just on a quest to find a cure with out medication. I hope you are able to get a doctor to prescribe these for you. I feel control of the pain is obviously the very first priority. I wish you all the best and am here for you, Z

Alana I tried Gaba and had really bad headaches and blurry sight when i was on 2x 300mg a day! it was really bad.
Zarli sorry to hear you've been feeling low too Sad it's very horrible and isolating isn't it?

I think that is a very good suggestion about trying 2 meds at once! that's what a lot of women who had success stories did. I will definitely be mentioning nori and lyrica to gp. I agree, I hate being on such heavy duty meds!! it's serious stuff. I am going to try some vitamins that some of the girls have some relief with like magnesium and calcium citrate Smile x
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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Mon Jun 16, 2014 7:22 pm

Girls I'm now on Prozac.(not for V) and maybe hoping to try lyrica at some stage...
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Re: I think the amitriptline has failed :(

Post  zarli on Tue Jun 17, 2014 1:52 pm

Hi Tink
so sorry your still looking for relief. Keep going your doing a great job. I know its exhausting trying new things and you can feel like your getting know where but then out of the blue something with work for you. How is your support network around you ? Here for you any time xx

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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Wed Jun 18, 2014 2:13 am

zarli wrote:Hi Tink
so sorry your still looking for relief. Keep going your doing a great job. I know its exhausting trying new things and you can feel like your getting know where but then out  of the blue something with work for you. How is your support network around you ? Here for you any time xx

Thanks Zarl, same to you hon!!! You're doing amazing too.i dont know if you have facbook but HAve you joined the secret fb group yet?Its been really helpful x
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Re: I think the amitriptline has failed :(

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