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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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I think the amitriptline has failed :(

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I think the amitriptline has failed :(

Post  tinkerbelle2 on Fri Apr 04, 2014 6:50 am

Just got up to 75mg and had the worst week of depression I have ever experienced. Hardly able to sleep or eat when before I had no trouble sleeping even on the ami and I love food. Nothing is reassuring or comforting me Sad I am obsessing about things and having horrible intrusive thoughts.
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Re: I think the amitriptline has failed :(

Post  Alana3 on Fri Apr 04, 2014 8:35 am

If the lower dose was helping go back to that...

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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Fri Apr 04, 2014 5:32 pm

I don't think it really was Sad
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Re: I think the amitriptline has failed :(

Post  Alana3 on Fri Apr 04, 2014 9:08 pm

Try something else maybe gaba?

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Re: I think the amitriptline has failed :(

Post  zarli on Sun Apr 06, 2014 10:51 am

Hi Tinks
Sorry to hear your not well. I have had a bout of depression for the very first time and I know its a horrible place to be in. I think you need to try new medication such as lyirca and also switch to nortriptyline and take them together. I have just had an appointment last week with the best of the best in Australia and that is what they recommend for nerve pain in vulvodynia. I take these and I have no pain. I am just on a quest to find a cure with out medication. I hope you are able to get a doctor to prescribe these for you. I feel control of the pain is obviously the very first priority. I wish you all the best and am here for you, Z

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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Fri Apr 11, 2014 9:45 pm

zarli wrote:Hi Tinks
Sorry to hear your not well. I have had a bout of depression for the very first time and I know its a horrible place to be in. I think you need to try new medication such as lyirca and also switch to nortriptyline and take them together. I have just had an appointment last week with the best of the best in Australia and that is what they recommend for nerve pain in vulvodynia. I take these and I have no pain. I am just on a quest to find a cure with out medication. I hope you are able to get a doctor to prescribe these for you. I feel control of the pain is obviously the very first priority. I wish you all the best and am here for you, Z

Alana I tried Gaba and had really bad headaches and blurry sight when i was on 2x 300mg a day! it was really bad.
Zarli sorry to hear you've been feeling low too Sad it's very horrible and isolating isn't it?

I think that is a very good suggestion about trying 2 meds at once! that's what a lot of women who had success stories did. I will definitely be mentioning nori and lyrica to gp. I agree, I hate being on such heavy duty meds!! it's serious stuff. I am going to try some vitamins that some of the girls have some relief with like magnesium and calcium citrate Smile x
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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Mon Jun 16, 2014 7:22 pm

Girls I'm now on Prozac.(not for V) and maybe hoping to try lyrica at some stage...
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Re: I think the amitriptline has failed :(

Post  zarli on Tue Jun 17, 2014 1:52 pm

Hi Tink
so sorry your still looking for relief. Keep going your doing a great job. I know its exhausting trying new things and you can feel like your getting know where but then out of the blue something with work for you. How is your support network around you ? Here for you any time xx

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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Wed Jun 18, 2014 2:13 am

zarli wrote:Hi Tink
so sorry your still looking for relief. Keep going your doing a great job. I know its exhausting trying new things and you can feel like your getting know where but then out  of the blue something with work for you. How is your support network around you ? Here for you any time xx

Thanks Zarl, same to you hon!!! You're doing amazing too.i dont know if you have facbook but HAve you joined the secret fb group yet?Its been really helpful x
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Re: I think the amitriptline has failed :(

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