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Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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I think the amitriptline has failed :(

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I think the amitriptline has failed :(

Post  tinkerbelle2 on Fri Apr 04, 2014 6:50 am

Just got up to 75mg and had the worst week of depression I have ever experienced. Hardly able to sleep or eat when before I had no trouble sleeping even on the ami and I love food. Nothing is reassuring or comforting me Sad I am obsessing about things and having horrible intrusive thoughts.
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Re: I think the amitriptline has failed :(

Post  Alana3 on Fri Apr 04, 2014 8:35 am

If the lower dose was helping go back to that...

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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Fri Apr 04, 2014 5:32 pm

I don't think it really was Sad
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Re: I think the amitriptline has failed :(

Post  Alana3 on Fri Apr 04, 2014 9:08 pm

Try something else maybe gaba?

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Re: I think the amitriptline has failed :(

Post  zarli on Sun Apr 06, 2014 10:51 am

Hi Tinks
Sorry to hear your not well. I have had a bout of depression for the very first time and I know its a horrible place to be in. I think you need to try new medication such as lyirca and also switch to nortriptyline and take them together. I have just had an appointment last week with the best of the best in Australia and that is what they recommend for nerve pain in vulvodynia. I take these and I have no pain. I am just on a quest to find a cure with out medication. I hope you are able to get a doctor to prescribe these for you. I feel control of the pain is obviously the very first priority. I wish you all the best and am here for you, Z

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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Fri Apr 11, 2014 9:45 pm

zarli wrote:Hi Tinks
Sorry to hear your not well. I have had a bout of depression for the very first time and I know its a horrible place to be in. I think you need to try new medication such as lyirca and also switch to nortriptyline and take them together. I have just had an appointment last week with the best of the best in Australia and that is what they recommend for nerve pain in vulvodynia. I take these and I have no pain. I am just on a quest to find a cure with out medication. I hope you are able to get a doctor to prescribe these for you. I feel control of the pain is obviously the very first priority. I wish you all the best and am here for you, Z

Alana I tried Gaba and had really bad headaches and blurry sight when i was on 2x 300mg a day! it was really bad.
Zarli sorry to hear you've been feeling low too Sad it's very horrible and isolating isn't it?

I think that is a very good suggestion about trying 2 meds at once! that's what a lot of women who had success stories did. I will definitely be mentioning nori and lyrica to gp. I agree, I hate being on such heavy duty meds!! it's serious stuff. I am going to try some vitamins that some of the girls have some relief with like magnesium and calcium citrate Smile x
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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Mon Jun 16, 2014 7:22 pm

Girls I'm now on Prozac.(not for V) and maybe hoping to try lyrica at some stage...
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Re: I think the amitriptline has failed :(

Post  zarli on Tue Jun 17, 2014 1:52 pm

Hi Tink
so sorry your still looking for relief. Keep going your doing a great job. I know its exhausting trying new things and you can feel like your getting know where but then out of the blue something with work for you. How is your support network around you ? Here for you any time xx

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Re: I think the amitriptline has failed :(

Post  tinkerbelle2 on Wed Jun 18, 2014 2:13 am

zarli wrote:Hi Tink
so sorry your still looking for relief. Keep going your doing a great job. I know its exhausting trying new things and you can feel like your getting know where but then out  of the blue something with work for you. How is your support network around you ? Here for you any time xx

Thanks Zarl, same to you hon!!! You're doing amazing too.i dont know if you have facbook but HAve you joined the secret fb group yet?Its been really helpful x
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Re: I think the amitriptline has failed :(

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