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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Do I have vulvodynia?

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Do I have vulvodynia?

Post  Mvp1022 on Sun Apr 06, 2014 6:10 am

So, I have been to only 1 gyno (multiple times) for my symptoms, with no relief. So I took to searching on the internet. Right now I only have access to the one gyno I have been seeing. As of May I should be able to able to see other specialists. Please tell me what you guys think in the mean time.

First, i guess I'll start with the fact that i didn't get my period until freshman year of high school. And it was anything but normal i wouldn't get it for months and then I would get it for weeks at a time. I started the birth control my senior year to help regulate.
I didn't feel any symptoms. A couple months after I stopped taking them, I suppose just out of laziness and I was rarely, if ever having sex. I also don't believe ive ever had a uti or yeast infection. I don't know if this is relevant but I thought it was worth the mention.

I began seeing in my boyfriend in sept 2011. We began having sex in dec and by jan I began birth control pills again. After about 3 months of the pill I decided to try the depo shot.

February 2011 is the first "flare up" I can remember. I actually thought it was a uti (bc I never had one and just associated vaginal pain with utis. I also did have the urge to urinate frequently but nothing came out.) I took your standard uti medicine and within a couple days I felt better.

Until I felt the pain once again. The pain would be horrible and it would wake me up all through the night while I sat with a warm rag down there, crying my eyes out. It was occasionally a burning, raw feeling. Other times it felt like extreme irritation. This persisted until July which was the first time I saw my gyno about my pain. All she did was give me the standard talk no scented soaps and laundry detergents, cotton undies, etc. she also told me to try some light cream that was for irritated skin, not even specifically for your vagina, which worried me. I tried it anyway. The cream didn't help, but changing all my soaps and laundry detergent did help slightly.

I saw my gyno a couple more times, none of these visits helped at all. She would give me the yeast infection tests and all that good stuff. They all came back
Clean. She gave me a dose of yeast infection medicine "just in case." No surprise it didn't help. About a year later I got suspicious that depo shot made it worst, so
I decided to switch back to the pill. My gyno insists that if it was a reaction to my bc I would be seeing symptoms in other areas too. I think this helped a lot. My symptoms seemed to lessen from a pain scale of a constant 9
Or 10 to an occasional 7 or 8. I still feel the pain every day, but sometimes feel manageable, other days not so much

At the worst point of my pain I was irritated down there ALL THE TIME. Then at some points it would burn and feel raw down there. I've tried to look for triggers but honestly besides the depo I can't find a constant one. Also my change from thong to cotton under wear seemed to help. I always have used plain dove soap anyway. I try to use sensitive skin detergent but sometimes my laundry gets mixed in with the rest of the laundry and I notice no difference. Sex actually doesn't hurt that often. Though sometimes the day after it gets worst, but that's only sometimes. The final big thing I've noticed is it gets worst right before and in the beginning of my period. It also seems to get worse if I get very stressed and anxious. Oh and I have one last symptom that makes me question if I do have vulvodynia bc I haven't seen anyone else mention this system. Sometimes my pee smells very much like ammonia. I've been using Rephresh vaginal gel that's supposed to Help with balancing ph levels. This sometimes works.
Sometimes doesn't. This is ruining my life though. I rarely ever want sex. Work is miserable many days. I feel antisocial. I never want to go out bc that involves me wearing underwear and pants. Sometimes it
Makes me so sad that i might have to deal wth this pain forever.

I will go to a different dr when I am able until then what do
You think? I start my first full time job Monday and I'm literally terrified I'm going to be in pain all day.

Sorry this is so long and I probably seem
Illiterate. I'm tired and on my phone but I wants to get some feed back. Thanks in advanced.

Mvp1022

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Re: Do I have vulvodynia?

Post  Delilah1 on Fri Apr 11, 2014 9:26 pm

Hello and welcome to the forum. There are many wonderful ladies on here. Read through all the posts. I'm sure you will find hope and encouragement. I have been dealing with this condition for 18 months. I have been improving slowly. When this first started the pain and burning was constant at a level 9 or 10. Sex felt like being cut with razor blades. Now the rawness and irritation come and go. I have some days when I feel normal for hours. I continue to do the stretches and exercises, internal massage with dilators, Crisco for moisture, deep breathing, healthy diet. There are good books out there to read. Ending Female Pain by Isa Harera was most helpful to me. I am on no medication but continuing to get better. Don't lose hope. This is not a life sentence! Baking soda sits baths helped a lot too. Read some of my previous posts. Take care
Delilah

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Re: Do I have vulvodynia?

Post  Delilah1 on Fri Apr 11, 2014 9:28 pm

I forgot to add that my urine had an unusual odor too!!! No one else mentioned that. I no longer have that frequently. But once in a while it happens.

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Re: Do I have vulvodynia?

Post  LegendOfAspen on Sat Aug 15, 2015 4:29 am

I realize that this post is very old so you may not see it, and it's very possible you have vulvodynia, but given all of your UTI-like symptoms, habe you considered intersistial cystitis?? That also seems like a likely probability. Hope you're well by now!

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Re: Do I have vulvodynia?

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