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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Do I have vulvodynia?

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Do I have vulvodynia?

Post  Mvp1022 on Sun Apr 06, 2014 6:10 am

So, I have been to only 1 gyno (multiple times) for my symptoms, with no relief. So I took to searching on the internet. Right now I only have access to the one gyno I have been seeing. As of May I should be able to able to see other specialists. Please tell me what you guys think in the mean time.

First, i guess I'll start with the fact that i didn't get my period until freshman year of high school. And it was anything but normal i wouldn't get it for months and then I would get it for weeks at a time. I started the birth control my senior year to help regulate.
I didn't feel any symptoms. A couple months after I stopped taking them, I suppose just out of laziness and I was rarely, if ever having sex. I also don't believe ive ever had a uti or yeast infection. I don't know if this is relevant but I thought it was worth the mention.

I began seeing in my boyfriend in sept 2011. We began having sex in dec and by jan I began birth control pills again. After about 3 months of the pill I decided to try the depo shot.

February 2011 is the first "flare up" I can remember. I actually thought it was a uti (bc I never had one and just associated vaginal pain with utis. I also did have the urge to urinate frequently but nothing came out.) I took your standard uti medicine and within a couple days I felt better.

Until I felt the pain once again. The pain would be horrible and it would wake me up all through the night while I sat with a warm rag down there, crying my eyes out. It was occasionally a burning, raw feeling. Other times it felt like extreme irritation. This persisted until July which was the first time I saw my gyno about my pain. All she did was give me the standard talk no scented soaps and laundry detergents, cotton undies, etc. she also told me to try some light cream that was for irritated skin, not even specifically for your vagina, which worried me. I tried it anyway. The cream didn't help, but changing all my soaps and laundry detergent did help slightly.

I saw my gyno a couple more times, none of these visits helped at all. She would give me the yeast infection tests and all that good stuff. They all came back
Clean. She gave me a dose of yeast infection medicine "just in case." No surprise it didn't help. About a year later I got suspicious that depo shot made it worst, so
I decided to switch back to the pill. My gyno insists that if it was a reaction to my bc I would be seeing symptoms in other areas too. I think this helped a lot. My symptoms seemed to lessen from a pain scale of a constant 9
Or 10 to an occasional 7 or 8. I still feel the pain every day, but sometimes feel manageable, other days not so much

At the worst point of my pain I was irritated down there ALL THE TIME. Then at some points it would burn and feel raw down there. I've tried to look for triggers but honestly besides the depo I can't find a constant one. Also my change from thong to cotton under wear seemed to help. I always have used plain dove soap anyway. I try to use sensitive skin detergent but sometimes my laundry gets mixed in with the rest of the laundry and I notice no difference. Sex actually doesn't hurt that often. Though sometimes the day after it gets worst, but that's only sometimes. The final big thing I've noticed is it gets worst right before and in the beginning of my period. It also seems to get worse if I get very stressed and anxious. Oh and I have one last symptom that makes me question if I do have vulvodynia bc I haven't seen anyone else mention this system. Sometimes my pee smells very much like ammonia. I've been using Rephresh vaginal gel that's supposed to Help with balancing ph levels. This sometimes works.
Sometimes doesn't. This is ruining my life though. I rarely ever want sex. Work is miserable many days. I feel antisocial. I never want to go out bc that involves me wearing underwear and pants. Sometimes it
Makes me so sad that i might have to deal wth this pain forever.

I will go to a different dr when I am able until then what do
You think? I start my first full time job Monday and I'm literally terrified I'm going to be in pain all day.

Sorry this is so long and I probably seem
Illiterate. I'm tired and on my phone but I wants to get some feed back. Thanks in advanced.

Mvp1022

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Re: Do I have vulvodynia?

Post  Delilah1 on Fri Apr 11, 2014 9:26 pm

Hello and welcome to the forum. There are many wonderful ladies on here. Read through all the posts. I'm sure you will find hope and encouragement. I have been dealing with this condition for 18 months. I have been improving slowly. When this first started the pain and burning was constant at a level 9 or 10. Sex felt like being cut with razor blades. Now the rawness and irritation come and go. I have some days when I feel normal for hours. I continue to do the stretches and exercises, internal massage with dilators, Crisco for moisture, deep breathing, healthy diet. There are good books out there to read. Ending Female Pain by Isa Harera was most helpful to me. I am on no medication but continuing to get better. Don't lose hope. This is not a life sentence! Baking soda sits baths helped a lot too. Read some of my previous posts. Take care
Delilah

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Re: Do I have vulvodynia?

Post  Delilah1 on Fri Apr 11, 2014 9:28 pm

I forgot to add that my urine had an unusual odor too!!! No one else mentioned that. I no longer have that frequently. But once in a while it happens.

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Re: Do I have vulvodynia?

Post  LegendOfAspen on Sat Aug 15, 2015 4:29 am

I realize that this post is very old so you may not see it, and it's very possible you have vulvodynia, but given all of your UTI-like symptoms, habe you considered intersistial cystitis?? That also seems like a likely probability. Hope you're well by now!

LegendOfAspen

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Re: Do I have vulvodynia?

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