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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Feeling like my life is out of control.....

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Feeling like my life is out of control.....

Post  hondachick96 on Mon Apr 07, 2014 11:10 pm

I will make this as brief as I can....last June I started experiencing symptoms of a yeast infection. I can usually tell if I have one as I have dealt with them my entire life. So, I took some Flagyl and Diflucan (sp). That wasn't working so, I decided to go to the GYN. She said that she didn't see anything under the microscope and said that she would prescribe me some more medication. That still didn't work. I found it uncomfortable to sit, ride a bike, have sex and sometimes run/stand/walk. I was miserable. I went back to the doctor and she did an STD test. Came back negative. So, she told me that she thinks she I suffer from Vulvadynia. She prescribed me  10 mg Antitripline. It made me soooo tired and I felt sluggish and more tired the next morning so I stopped taking it. She gave me anti-steroid creams, yeast infection medicine and anti-flammatory creams. Nothing was working. I changed my soap. I work out 5 times a week and would hurry back to my office/home to shower and make sure I was clean. I thought maybe that was aggravating me. Still, nothing...my GYN suggested that I take Probiotics. It still wasn't helping but the symptoms weren't as severe as before. For about 5 months I didn't have any issues. Back in 2011 I experienced this. I remember I thought I had a stubborn yeast infection that I couldn't get rid of. I went to the doctor several times, again, checked for STD's and yeast infection and everything came back normal. That particular instance only lasted 1 month. This time, it has been going on since last June.  Then, last Thursday, the symptoms started up again. Great....So, I am thinking I have another yeast infection because that's what it feels like. I will have pain inside my vagina on the left side near the opening. Then, it will change to tingling around my Clitoris and Vulva area...then it will move to my left side, then to the middle opening of my vagina. Sex is painful. I use Astro-glide whenever I have sex with my fiancé because it makes it easier but afterwards, omg, I am paying for it. It burns like crazy! But this doesn't happen every time we have sex. It's hit and miss. I hate that I have to use lubricant to have sex. I'm 36 years old. I do not have any medical problems. I have had my Thyroid checked, I work out, eat right. But I have found myself drinking 1-2 glasses a wine a night because it helps numb the pain. I don't want this to be  my relief. My Fiancé' has been very supportive despite my ways of thinking. This has caused me to feel somewhat depressed, anxious, lowered-self esteem and confidence because I can't perform sexually as I would like. I find myself stressing myself out because I worry about my Fiancé' just getting fed up and being like, "I can't deal with this. I want a woman who can please me." He has never said that I know deep down that he wouldn't but still, does it cross my mind, yes.  I get some solace from him still wanting to marry despite my condition. I know there is no cure for this condition. I guess I am more or less just venting because I feel so isolated and alone.....  Crying or Very sad 

hondachick96

Posts : 2
Join date : 2014-04-07
Location : Texas

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Re: Feeling like my life is out of control.....

Post  julesmp on Tue Apr 08, 2014 9:46 pm

So similar to how I have felt. Make sure first and foremost that you communicate with your fiance throughout this (my fiance and I have made sure to do so, and I've had this issue now for a bit over 4 years). I'd encourage you to try and work with your doctor or find one who can treat you better if you don't feel that this doctor is helping. Amitriptyline is an option but I had some bad side effects, as I did with other medications. I ended up having surgery, which has helped but not fixed things.

Push yourself to be positive; it's really hard, but once you can do it sometimes, life isn't as bad. <3

julesmp

Posts : 6
Join date : 2014-03-27
Location : Virginia, USA

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