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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Feeling like my life is out of control.....

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Feeling like my life is out of control.....

Post  hondachick96 on Mon Apr 07, 2014 11:10 pm

I will make this as brief as I can....last June I started experiencing symptoms of a yeast infection. I can usually tell if I have one as I have dealt with them my entire life. So, I took some Flagyl and Diflucan (sp). That wasn't working so, I decided to go to the GYN. She said that she didn't see anything under the microscope and said that she would prescribe me some more medication. That still didn't work. I found it uncomfortable to sit, ride a bike, have sex and sometimes run/stand/walk. I was miserable. I went back to the doctor and she did an STD test. Came back negative. So, she told me that she thinks she I suffer from Vulvadynia. She prescribed me  10 mg Antitripline. It made me soooo tired and I felt sluggish and more tired the next morning so I stopped taking it. She gave me anti-steroid creams, yeast infection medicine and anti-flammatory creams. Nothing was working. I changed my soap. I work out 5 times a week and would hurry back to my office/home to shower and make sure I was clean. I thought maybe that was aggravating me. Still, nothing...my GYN suggested that I take Probiotics. It still wasn't helping but the symptoms weren't as severe as before. For about 5 months I didn't have any issues. Back in 2011 I experienced this. I remember I thought I had a stubborn yeast infection that I couldn't get rid of. I went to the doctor several times, again, checked for STD's and yeast infection and everything came back normal. That particular instance only lasted 1 month. This time, it has been going on since last June.  Then, last Thursday, the symptoms started up again. Great....So, I am thinking I have another yeast infection because that's what it feels like. I will have pain inside my vagina on the left side near the opening. Then, it will change to tingling around my Clitoris and Vulva area...then it will move to my left side, then to the middle opening of my vagina. Sex is painful. I use Astro-glide whenever I have sex with my fiancé because it makes it easier but afterwards, omg, I am paying for it. It burns like crazy! But this doesn't happen every time we have sex. It's hit and miss. I hate that I have to use lubricant to have sex. I'm 36 years old. I do not have any medical problems. I have had my Thyroid checked, I work out, eat right. But I have found myself drinking 1-2 glasses a wine a night because it helps numb the pain. I don't want this to be  my relief. My Fiancé' has been very supportive despite my ways of thinking. This has caused me to feel somewhat depressed, anxious, lowered-self esteem and confidence because I can't perform sexually as I would like. I find myself stressing myself out because I worry about my Fiancé' just getting fed up and being like, "I can't deal with this. I want a woman who can please me." He has never said that I know deep down that he wouldn't but still, does it cross my mind, yes.  I get some solace from him still wanting to marry despite my condition. I know there is no cure for this condition. I guess I am more or less just venting because I feel so isolated and alone.....  Crying or Very sad 

hondachick96

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Join date : 2014-04-07
Location : Texas

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Re: Feeling like my life is out of control.....

Post  julesmp on Tue Apr 08, 2014 9:46 pm

So similar to how I have felt. Make sure first and foremost that you communicate with your fiance throughout this (my fiance and I have made sure to do so, and I've had this issue now for a bit over 4 years). I'd encourage you to try and work with your doctor or find one who can treat you better if you don't feel that this doctor is helping. Amitriptyline is an option but I had some bad side effects, as I did with other medications. I ended up having surgery, which has helped but not fixed things.

Push yourself to be positive; it's really hard, but once you can do it sometimes, life isn't as bad. <3

julesmp

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Join date : 2014-03-27
Location : Virginia, USA

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