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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Feeling like my life is out of control.....

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Feeling like my life is out of control.....

Post  hondachick96 on Mon Apr 07, 2014 11:10 pm

I will make this as brief as I can....last June I started experiencing symptoms of a yeast infection. I can usually tell if I have one as I have dealt with them my entire life. So, I took some Flagyl and Diflucan (sp). That wasn't working so, I decided to go to the GYN. She said that she didn't see anything under the microscope and said that she would prescribe me some more medication. That still didn't work. I found it uncomfortable to sit, ride a bike, have sex and sometimes run/stand/walk. I was miserable. I went back to the doctor and she did an STD test. Came back negative. So, she told me that she thinks she I suffer from Vulvadynia. She prescribed me  10 mg Antitripline. It made me soooo tired and I felt sluggish and more tired the next morning so I stopped taking it. She gave me anti-steroid creams, yeast infection medicine and anti-flammatory creams. Nothing was working. I changed my soap. I work out 5 times a week and would hurry back to my office/home to shower and make sure I was clean. I thought maybe that was aggravating me. Still, nothing...my GYN suggested that I take Probiotics. It still wasn't helping but the symptoms weren't as severe as before. For about 5 months I didn't have any issues. Back in 2011 I experienced this. I remember I thought I had a stubborn yeast infection that I couldn't get rid of. I went to the doctor several times, again, checked for STD's and yeast infection and everything came back normal. That particular instance only lasted 1 month. This time, it has been going on since last June.  Then, last Thursday, the symptoms started up again. Great....So, I am thinking I have another yeast infection because that's what it feels like. I will have pain inside my vagina on the left side near the opening. Then, it will change to tingling around my Clitoris and Vulva area...then it will move to my left side, then to the middle opening of my vagina. Sex is painful. I use Astro-glide whenever I have sex with my fiancé because it makes it easier but afterwards, omg, I am paying for it. It burns like crazy! But this doesn't happen every time we have sex. It's hit and miss. I hate that I have to use lubricant to have sex. I'm 36 years old. I do not have any medical problems. I have had my Thyroid checked, I work out, eat right. But I have found myself drinking 1-2 glasses a wine a night because it helps numb the pain. I don't want this to be  my relief. My Fiancé' has been very supportive despite my ways of thinking. This has caused me to feel somewhat depressed, anxious, lowered-self esteem and confidence because I can't perform sexually as I would like. I find myself stressing myself out because I worry about my Fiancé' just getting fed up and being like, "I can't deal with this. I want a woman who can please me." He has never said that I know deep down that he wouldn't but still, does it cross my mind, yes.  I get some solace from him still wanting to marry despite my condition. I know there is no cure for this condition. I guess I am more or less just venting because I feel so isolated and alone.....  Crying or Very sad 

hondachick96

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Join date : 2014-04-07
Location : Texas

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Re: Feeling like my life is out of control.....

Post  julesmp on Tue Apr 08, 2014 9:46 pm

So similar to how I have felt. Make sure first and foremost that you communicate with your fiance throughout this (my fiance and I have made sure to do so, and I've had this issue now for a bit over 4 years). I'd encourage you to try and work with your doctor or find one who can treat you better if you don't feel that this doctor is helping. Amitriptyline is an option but I had some bad side effects, as I did with other medications. I ended up having surgery, which has helped but not fixed things.

Push yourself to be positive; it's really hard, but once you can do it sometimes, life isn't as bad. <3

julesmp

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Join date : 2014-03-27
Location : Virginia, USA

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