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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Feeling like my life is out of control.....

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Feeling like my life is out of control.....

Post  hondachick96 on Mon Apr 07, 2014 11:10 pm

I will make this as brief as I can....last June I started experiencing symptoms of a yeast infection. I can usually tell if I have one as I have dealt with them my entire life. So, I took some Flagyl and Diflucan (sp). That wasn't working so, I decided to go to the GYN. She said that she didn't see anything under the microscope and said that she would prescribe me some more medication. That still didn't work. I found it uncomfortable to sit, ride a bike, have sex and sometimes run/stand/walk. I was miserable. I went back to the doctor and she did an STD test. Came back negative. So, she told me that she thinks she I suffer from Vulvadynia. She prescribed me  10 mg Antitripline. It made me soooo tired and I felt sluggish and more tired the next morning so I stopped taking it. She gave me anti-steroid creams, yeast infection medicine and anti-flammatory creams. Nothing was working. I changed my soap. I work out 5 times a week and would hurry back to my office/home to shower and make sure I was clean. I thought maybe that was aggravating me. Still, nothing...my GYN suggested that I take Probiotics. It still wasn't helping but the symptoms weren't as severe as before. For about 5 months I didn't have any issues. Back in 2011 I experienced this. I remember I thought I had a stubborn yeast infection that I couldn't get rid of. I went to the doctor several times, again, checked for STD's and yeast infection and everything came back normal. That particular instance only lasted 1 month. This time, it has been going on since last June.  Then, last Thursday, the symptoms started up again. Great....So, I am thinking I have another yeast infection because that's what it feels like. I will have pain inside my vagina on the left side near the opening. Then, it will change to tingling around my Clitoris and Vulva area...then it will move to my left side, then to the middle opening of my vagina. Sex is painful. I use Astro-glide whenever I have sex with my fiancé because it makes it easier but afterwards, omg, I am paying for it. It burns like crazy! But this doesn't happen every time we have sex. It's hit and miss. I hate that I have to use lubricant to have sex. I'm 36 years old. I do not have any medical problems. I have had my Thyroid checked, I work out, eat right. But I have found myself drinking 1-2 glasses a wine a night because it helps numb the pain. I don't want this to be  my relief. My Fiancé' has been very supportive despite my ways of thinking. This has caused me to feel somewhat depressed, anxious, lowered-self esteem and confidence because I can't perform sexually as I would like. I find myself stressing myself out because I worry about my Fiancé' just getting fed up and being like, "I can't deal with this. I want a woman who can please me." He has never said that I know deep down that he wouldn't but still, does it cross my mind, yes.  I get some solace from him still wanting to marry despite my condition. I know there is no cure for this condition. I guess I am more or less just venting because I feel so isolated and alone.....  Crying or Very sad 


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Re: Feeling like my life is out of control.....

Post  julesmp on Tue Apr 08, 2014 9:46 pm

So similar to how I have felt. Make sure first and foremost that you communicate with your fiance throughout this (my fiance and I have made sure to do so, and I've had this issue now for a bit over 4 years). I'd encourage you to try and work with your doctor or find one who can treat you better if you don't feel that this doctor is helping. Amitriptyline is an option but I had some bad side effects, as I did with other medications. I ended up having surgery, which has helped but not fixed things.

Push yourself to be positive; it's really hard, but once you can do it sometimes, life isn't as bad. <3


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