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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


I'm New and need my fellow V's

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I'm New and need my fellow V's

Post  nanmark3 on Fri Apr 11, 2014 3:16 am

Hi Ladies, I’m so glad to know I’m not alone in this journey! For 24 years I’ve had signs of V, but just here and there.
26 months ago it felt like my body totally turned on me! I had slowly built up to walking 5 miles, so proud of myself! Then my world crashed! **My vulva and inner thighs were so painful and swollen! **My fibromyalgia flared big time! **My painful feet all of the sudden had big, painful lumps in the middle of my arches. **My seborrhea dermatitis erupted all over my face.
So here I was, it was too painful to walk or stand, too painful to sit, too painful to wear panties let alone pants, no more sitting like a lady with my knees together not even in a dress! Sad to say, that’s still my story, though I‘m not still falling apart emotionally.
After various doctors and a lot of research… mine is Generalized V. -constant vulva pain often times into the inner thighs. Painful sex is more common now and dryness, which I use Coconut oil for. Mine stems from 24 yrs. of unresolved hip and pelvis pain, I’m doing 2 treatments that are showing promise and the low oxalate diet. (because with the FM I had IBS for 22 yrs.) which has lessened the extreme V pain by 1/2 so far. My heart goes out to all of you dear women! I hope I'm not going on too long for my intro! Nancy

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Re: I'm New and need my fellow V's

Post  Delilah1 on Fri Apr 11, 2014 9:02 pm

Hello Nancy! Welcome to the forum. You are not alone. There are many wonderful ladies on here. Read through all the posts and I'm sure you will find inspiration, hope and comfort in that we all understand what you are going through. What treatments are you doing that have helped? I too found that coconut oil was helpful. Now I use Crisco which is a little more emollient which makes it last longer.
Delilah

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Re: I'm New and need my fellow V's

Post  tinkerbelle2 on Fri Apr 11, 2014 9:40 pm

hello Nancy! Sorry to hear you have been suffering too and for so long! I currently can't say anything has substantially helped me.. yet ! Trying to stay hopeful x
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re: I'M NEW AND NEED MY FELLOW V'S

Post  nanmark3 on Sat Apr 12, 2014 1:05 am

Thank you so much for your replies Delilah and Tinkerbelle Smile Yes, I've been reading for weeks, gaining knowledge and strength. Delilah the two therapies that I've started are by the same practitioner, 30 minutes of PRRT (pronounced 'pert') Primal Reflex Release Technique then 30 min. of Bowen Therapy. PRRT because of previous unresolved trauma causing my pelvis and sacrum to constantly rotate out. They are both forms of soft tissue massage but so much more. I'm pleasantly shocked at how powerful they each are! If you look into Bowen at Bowen directory .com thoroughly look into their training, the 2 in my area both had the same title "advanced training" though looking into their schools programs - one had only basic training and mine had the most extensive training at a different school. It's the first time I've had real hope for relief in this old system for so long!!!
The only downside - the very evening after my first treatment I broke out with an extreme rash where my vv connects to my inner thighs. I've never seen anything like it, not painful - since 95% of the time I'm in bed but after Castor oil not clearing it up I tried Fluocinonide until she told me it was my body releasing toxins so not to try to get rid of it but to let it run it's course with natural oil to sooth it. That gave me a lot of peace, I have no doubt that is the most toxic area of my body especially with all of those sharp oxalate crystals and what a big sign of how quickly it's working on my stubborn system. I've had other major signs of their having good work in me too. How good to be able to share therapies and encouragement!!!
xo Nancy


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Re: I'm New and need my fellow V's

Post  Sebby (Admin) on Thu May 08, 2014 1:35 pm

Welcome to the forum  Smile 
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Re: I'm New and need my fellow V's

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