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» Vulvodynia is a secret
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» Looking for a friend..... and new problems
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» Vestibulectomy today and no pain
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» Why don't more women know about pelvic pt?
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

I'm New and need my fellow V's

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I'm New and need my fellow V's

Post  nanmark3 on Fri Apr 11, 2014 3:16 am

Hi Ladies, I’m so glad to know I’m not alone in this journey! For 24 years I’ve had signs of V, but just here and there.
26 months ago it felt like my body totally turned on me! I had slowly built up to walking 5 miles, so proud of myself! Then my world crashed! **My vulva and inner thighs were so painful and swollen! **My fibromyalgia flared big time! **My painful feet all of the sudden had big, painful lumps in the middle of my arches. **My seborrhea dermatitis erupted all over my face.
So here I was, it was too painful to walk or stand, too painful to sit, too painful to wear panties let alone pants, no more sitting like a lady with my knees together not even in a dress! Sad to say, that’s still my story, though I‘m not still falling apart emotionally.
After various doctors and a lot of research… mine is Generalized V. -constant vulva pain often times into the inner thighs. Painful sex is more common now and dryness, which I use Coconut oil for. Mine stems from 24 yrs. of unresolved hip and pelvis pain, I’m doing 2 treatments that are showing promise and the low oxalate diet. (because with the FM I had IBS for 22 yrs.) which has lessened the extreme V pain by 1/2 so far. My heart goes out to all of you dear women! I hope I'm not going on too long for my intro! Nancy


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Re: I'm New and need my fellow V's

Post  Delilah1 on Fri Apr 11, 2014 9:02 pm

Hello Nancy! Welcome to the forum. You are not alone. There are many wonderful ladies on here. Read through all the posts and I'm sure you will find inspiration, hope and comfort in that we all understand what you are going through. What treatments are you doing that have helped? I too found that coconut oil was helpful. Now I use Crisco which is a little more emollient which makes it last longer.


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Re: I'm New and need my fellow V's

Post  tinkerbelle2 on Fri Apr 11, 2014 9:40 pm

hello Nancy! Sorry to hear you have been suffering too and for so long! I currently can't say anything has substantially helped me.. yet ! Trying to stay hopeful x

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Post  nanmark3 on Sat Apr 12, 2014 1:05 am

Thank you so much for your replies Delilah and Tinkerbelle Smile Yes, I've been reading for weeks, gaining knowledge and strength. Delilah the two therapies that I've started are by the same practitioner, 30 minutes of PRRT (pronounced 'pert') Primal Reflex Release Technique then 30 min. of Bowen Therapy. PRRT because of previous unresolved trauma causing my pelvis and sacrum to constantly rotate out. They are both forms of soft tissue massage but so much more. I'm pleasantly shocked at how powerful they each are! If you look into Bowen at Bowen directory .com thoroughly look into their training, the 2 in my area both had the same title "advanced training" though looking into their schools programs - one had only basic training and mine had the most extensive training at a different school. It's the first time I've had real hope for relief in this old system for so long!!!
The only downside - the very evening after my first treatment I broke out with an extreme rash where my vv connects to my inner thighs. I've never seen anything like it, not painful - since 95% of the time I'm in bed but after Castor oil not clearing it up I tried Fluocinonide until she told me it was my body releasing toxins so not to try to get rid of it but to let it run it's course with natural oil to sooth it. That gave me a lot of peace, I have no doubt that is the most toxic area of my body especially with all of those sharp oxalate crystals and what a big sign of how quickly it's working on my stubborn system. I've had other major signs of their having good work in me too. How good to be able to share therapies and encouragement!!!
xo Nancy


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Re: I'm New and need my fellow V's

Post  Sebby (Admin) on Thu May 08, 2014 1:35 pm

Welcome to the forum  Smile 
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Re: I'm New and need my fellow V's

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