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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Update on Women's Health Physio

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Update on Women's Health Physio

Post  Sarah001 on Tue Nov 02, 2010 8:39 pm

I've had my third appointment with my WH physio today and it's gone alot better. I think we all recall my shocking resting tone of 20 that kept rising to 29 and then my last appointment where I'd had so many SI joint flare ups I hadn't made alot of difference? Well, the last week or so I've had a reduction in pain, I wasn't sure if it was just a temporary fleeting thing or if I'd managed to reduce my pelvic floor spasm and the only way of knowing was to get myself back on that biofeedback machine. I had 3 nasty SI flare ups at the weekend which also made me wonder if I'd reduced the pelvic floor spasm and that had caused them and I was right, I've managed to get it down to 12-14 so it's now at the level where most other people start from ("normal high" the physio said as opposed to "astoundingly high"!!). Obviously it's still way too high but I'm heading in the right direction at last and it doesn't jump up and down so much now either! And the reduction in symptoms is so good I could cry! I haven't changed my meds, still on 50mg of Ami a day as I have been for a couple of months so it's definitely not anything to do with that, the Ami wasn't touching the soreness before. I still get really sore with provocation such as friction or sitting, or using the bio probe, but if not provoked my pain isn't quite so bad. She was thrilled I'd managed to get somewhere even with my unstable pelvic joints and I'm really pleased, it's the first success I've ever had in physio in the last 6 years!!

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Re: Update on Women's Health Physio

Post  tweety on Wed Nov 03, 2010 10:15 am

That's fabulous news Sarah! You must have been working heaps on it to reduce by so much! It's so encouraging when you get to see results from all your efforts and hard work.
Stay strong and keep it up


Sue I love you


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Re: Update on Women's Health Physio

Post  Sebby (Admin) on Sun Nov 07, 2010 11:08 pm

Wow great news!! am so pleased for you!!

Sebby (Admin)

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Re: Update on Women's Health Physio

Post  Sarah001 on Tue Dec 07, 2010 7:57 pm

I had another appointment booked in today with the WH Physio and I drove an hour in the ice only to get there and find the place dark and locked up! No-one has called me and the drive home was even worse because there was freezing fog to add to the problems by that time so I'm disappointed to say the least. I'm not going back until next year now so hopefully the snow and minus 10 temperature we've had here all week will be over by then. I delayed taking the pregabalin because I had to drive to this appointment too. Rolling Eyes Bloody British weather!

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