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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Update on Women's Health Physio

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Update on Women's Health Physio

Post  Sarah001 on Tue Nov 02, 2010 8:39 pm

I've had my third appointment with my WH physio today and it's gone alot better. I think we all recall my shocking resting tone of 20 that kept rising to 29 and then my last appointment where I'd had so many SI joint flare ups I hadn't made alot of difference? Well, the last week or so I've had a reduction in pain, I wasn't sure if it was just a temporary fleeting thing or if I'd managed to reduce my pelvic floor spasm and the only way of knowing was to get myself back on that biofeedback machine. I had 3 nasty SI flare ups at the weekend which also made me wonder if I'd reduced the pelvic floor spasm and that had caused them and I was right, I've managed to get it down to 12-14 so it's now at the level where most other people start from ("normal high" the physio said as opposed to "astoundingly high"!!). Obviously it's still way too high but I'm heading in the right direction at last and it doesn't jump up and down so much now either! And the reduction in symptoms is so good I could cry! I haven't changed my meds, still on 50mg of Ami a day as I have been for a couple of months so it's definitely not anything to do with that, the Ami wasn't touching the soreness before. I still get really sore with provocation such as friction or sitting, or using the bio probe, but if not provoked my pain isn't quite so bad. She was thrilled I'd managed to get somewhere even with my unstable pelvic joints and I'm really pleased, it's the first success I've ever had in physio in the last 6 years!!
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Re: Update on Women's Health Physio

Post  tweety on Wed Nov 03, 2010 10:15 am

That's fabulous news Sarah! You must have been working heaps on it to reduce by so much! It's so encouraging when you get to see results from all your efforts and hard work.
Stay strong and keep it up

*hugz*

Sue I love you

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Re: Update on Women's Health Physio

Post  Sebby (Admin) on Sun Nov 07, 2010 11:08 pm


Wow great news!! am so pleased for you!!

cheers
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Re: Update on Women's Health Physio

Post  Sarah001 on Tue Dec 07, 2010 7:57 pm

I had another appointment booked in today with the WH Physio and I drove an hour in the ice only to get there and find the place dark and locked up! No-one has called me and the drive home was even worse because there was freezing fog to add to the problems by that time so I'm disappointed to say the least. I'm not going back until next year now so hopefully the snow and minus 10 temperature we've had here all week will be over by then. I delayed taking the pregabalin because I had to drive to this appointment too. Rolling Eyes Bloody British weather!
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Re: Update on Women's Health Physio

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