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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Update on Women's Health Physio

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Update on Women's Health Physio

Post  Sarah001 on Tue Nov 02, 2010 8:39 pm

I've had my third appointment with my WH physio today and it's gone alot better. I think we all recall my shocking resting tone of 20 that kept rising to 29 and then my last appointment where I'd had so many SI joint flare ups I hadn't made alot of difference? Well, the last week or so I've had a reduction in pain, I wasn't sure if it was just a temporary fleeting thing or if I'd managed to reduce my pelvic floor spasm and the only way of knowing was to get myself back on that biofeedback machine. I had 3 nasty SI flare ups at the weekend which also made me wonder if I'd reduced the pelvic floor spasm and that had caused them and I was right, I've managed to get it down to 12-14 so it's now at the level where most other people start from ("normal high" the physio said as opposed to "astoundingly high"!!). Obviously it's still way too high but I'm heading in the right direction at last and it doesn't jump up and down so much now either! And the reduction in symptoms is so good I could cry! I haven't changed my meds, still on 50mg of Ami a day as I have been for a couple of months so it's definitely not anything to do with that, the Ami wasn't touching the soreness before. I still get really sore with provocation such as friction or sitting, or using the bio probe, but if not provoked my pain isn't quite so bad. She was thrilled I'd managed to get somewhere even with my unstable pelvic joints and I'm really pleased, it's the first success I've ever had in physio in the last 6 years!!
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Re: Update on Women's Health Physio

Post  tweety on Wed Nov 03, 2010 10:15 am

That's fabulous news Sarah! You must have been working heaps on it to reduce by so much! It's so encouraging when you get to see results from all your efforts and hard work.
Stay strong and keep it up

*hugz*

Sue I love you

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Re: Update on Women's Health Physio

Post  Sebby (Admin) on Sun Nov 07, 2010 11:08 pm


Wow great news!! am so pleased for you!!

cheers
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Re: Update on Women's Health Physio

Post  Sarah001 on Tue Dec 07, 2010 7:57 pm

I had another appointment booked in today with the WH Physio and I drove an hour in the ice only to get there and find the place dark and locked up! No-one has called me and the drive home was even worse because there was freezing fog to add to the problems by that time so I'm disappointed to say the least. I'm not going back until next year now so hopefully the snow and minus 10 temperature we've had here all week will be over by then. I delayed taking the pregabalin because I had to drive to this appointment too. Rolling Eyes Bloody British weather!
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