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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Would you say you're stressed?

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Would you say you're stressed?

Post  Micrm on Wed Apr 16, 2014 1:21 am

Just curious if general stress and tension is common among us all. Not afterwards but perhaps as a common cause/contributor?

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Re: Would you say you're stressed?

Post  Zbrown on Wed Apr 16, 2014 7:37 am

Yeah I would say I am a stressed person also a very big worrier over small things always have been :/ x

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Re: Would you say you're stressed?

Post  zarli on Wed Apr 16, 2014 10:22 am

Yes I was extremely stressed and anxiety when my v started

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Re: Would you say you're stressed?

Post  meelie on Thu Apr 17, 2014 2:35 pm

Yes, I was also extremely stressed at the time. Probably more stressed than I have ever been in my then 65 years on earth. I was thinking it was from holding muscles tight on the right side because of my left pelvic fx, but when I think of it, it is probably both together. Mine is from pelvic muscle dysfunction, we are 99% sure of this. Skin and tissue look fine, just had a gyn appointment on Monday. I am about sick to death of this. The only thing I think that keeps me from eating a bullet is that the burning goes away at night while I'm sleeping (not stress or pressure on the muscles) and usually does not start back until about 10 AM. I so feel for you guys that are hurting all the time and for such a long long time. I cannot not imagine such burning for such a long time. I do have some contact V when my husband wants sex but with lots of lub it is usually bearable.

meelie

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Re: Would you say you're stressed?

Post  bridget234 on Thu Apr 17, 2014 5:43 pm

Yes and a big worrier about every little thing!

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Re: Would you say you're stressed?

Post  Delilah1 on Thu Apr 17, 2014 10:22 pm

My V started after one of the most stressful times in my life.

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Re: Would you say you're stressed?

Post  meelie on Fri Apr 18, 2014 1:46 am

This is very interesting. I hope someone would do an investigation into this. I think we have hit upon a very common thing. All the girls answering yet to this, have you come to the conclusion that it is pelvic floor dysfunction/muscle underlying cause?

meelie

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Re: Would you say you're stressed?

Post  meelie on Fri Apr 18, 2014 1:47 am

one more question, have any of your taken a warm bath with soda to help relieve the inflamation in there?

meelie

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Re: Would you say you're stressed?

Post  zarli on Sat Apr 19, 2014 11:25 am

A bath of any sort for me is off limits. I seriously believe vulvodynia is caused by stress affecting the nervous system. I am a sufferer of anxiety but I went through the worst time of my life then vulvodynia started. There has to be a link I am convinced.

zarli

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Re: Would you say you're stressed?

Post  Micrm on Sun Apr 20, 2014 8:12 am

thanks for posting everyone. I too am a worrier/clencher and have many tight muscles. My stress was something I never noticed until my vulvodynia flared up again in my 20s. It's interesting that so far we all share this commonality.

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Re: Would you say you're stressed?

Post  meelie on Sun Apr 20, 2014 11:39 pm

okey dokey, now that we know it's stress and muscle clenching and the like, why can't someone come up with the answer to stop it, put it to rest, make it relax. Oh my God, I so need to find a way to make them relax and fix the nerves that I am sure it has affected.

meelie

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Re: Would you say you're stressed?

Post  aspaceodyssey on Wed May 07, 2014 6:07 pm

yes, I can be a very stressed out person, have always had anxiety problems, etc. but I try my best to manage it through various outlets like meditation, exercise, getting enough sleep...I think there's definitely a connection and I have read before that a lot of women with vulvodynia or chronic pain in general also have issues like anxiety, depression, etc.

in my particular case I don't think pelvic floor dysfunction is the root of the issue, I think it stems from autoimmunity and skin problems.

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Re: Would you say you're stressed?

Post  bridget234 on Wed May 07, 2014 10:40 pm

I did have pelvic floor dysfunction but physical therapy fixed that. The root of my problem is the nerves. My theory is that it is also caused by something autoimmune as I do have a few of those diseases.

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Re: Would you say you're stressed?

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