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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Would you say you're stressed?

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Would you say you're stressed?

Post  Micrm on Wed Apr 16, 2014 1:21 am

Just curious if general stress and tension is common among us all. Not afterwards but perhaps as a common cause/contributor?

Micrm

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Re: Would you say you're stressed?

Post  Zbrown on Wed Apr 16, 2014 7:37 am

Yeah I would say I am a stressed person also a very big worrier over small things always have been :/ x

Zbrown

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Re: Would you say you're stressed?

Post  zarli on Wed Apr 16, 2014 10:22 am

Yes I was extremely stressed and anxiety when my v started

zarli

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Re: Would you say you're stressed?

Post  meelie on Thu Apr 17, 2014 2:35 pm

Yes, I was also extremely stressed at the time. Probably more stressed than I have ever been in my then 65 years on earth. I was thinking it was from holding muscles tight on the right side because of my left pelvic fx, but when I think of it, it is probably both together. Mine is from pelvic muscle dysfunction, we are 99% sure of this. Skin and tissue look fine, just had a gyn appointment on Monday. I am about sick to death of this. The only thing I think that keeps me from eating a bullet is that the burning goes away at night while I'm sleeping (not stress or pressure on the muscles) and usually does not start back until about 10 AM. I so feel for you guys that are hurting all the time and for such a long long time. I cannot not imagine such burning for such a long time. I do have some contact V when my husband wants sex but with lots of lub it is usually bearable.

meelie

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Re: Would you say you're stressed?

Post  bridget234 on Thu Apr 17, 2014 5:43 pm

Yes and a big worrier about every little thing!

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Re: Would you say you're stressed?

Post  Delilah1 on Thu Apr 17, 2014 10:22 pm

My V started after one of the most stressful times in my life.

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Re: Would you say you're stressed?

Post  meelie on Fri Apr 18, 2014 1:46 am

This is very interesting. I hope someone would do an investigation into this. I think we have hit upon a very common thing. All the girls answering yet to this, have you come to the conclusion that it is pelvic floor dysfunction/muscle underlying cause?

meelie

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Re: Would you say you're stressed?

Post  meelie on Fri Apr 18, 2014 1:47 am

one more question, have any of your taken a warm bath with soda to help relieve the inflamation in there?

meelie

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Re: Would you say you're stressed?

Post  zarli on Sat Apr 19, 2014 11:25 am

A bath of any sort for me is off limits. I seriously believe vulvodynia is caused by stress affecting the nervous system. I am a sufferer of anxiety but I went through the worst time of my life then vulvodynia started. There has to be a link I am convinced.

zarli

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Re: Would you say you're stressed?

Post  Micrm on Sun Apr 20, 2014 8:12 am

thanks for posting everyone. I too am a worrier/clencher and have many tight muscles. My stress was something I never noticed until my vulvodynia flared up again in my 20s. It's interesting that so far we all share this commonality.

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Re: Would you say you're stressed?

Post  meelie on Sun Apr 20, 2014 11:39 pm

okey dokey, now that we know it's stress and muscle clenching and the like, why can't someone come up with the answer to stop it, put it to rest, make it relax. Oh my God, I so need to find a way to make them relax and fix the nerves that I am sure it has affected.

meelie

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Re: Would you say you're stressed?

Post  aspaceodyssey on Wed May 07, 2014 6:07 pm

yes, I can be a very stressed out person, have always had anxiety problems, etc. but I try my best to manage it through various outlets like meditation, exercise, getting enough sleep...I think there's definitely a connection and I have read before that a lot of women with vulvodynia or chronic pain in general also have issues like anxiety, depression, etc.

in my particular case I don't think pelvic floor dysfunction is the root of the issue, I think it stems from autoimmunity and skin problems.

aspaceodyssey

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Re: Would you say you're stressed?

Post  bridget234 on Wed May 07, 2014 10:40 pm

I did have pelvic floor dysfunction but physical therapy fixed that. The root of my problem is the nerves. My theory is that it is also caused by something autoimmune as I do have a few of those diseases.

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Re: Would you say you're stressed?

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