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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Would you say you're stressed?

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Would you say you're stressed?

Post  Micrm on Wed Apr 16, 2014 1:21 am

Just curious if general stress and tension is common among us all. Not afterwards but perhaps as a common cause/contributor?

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Re: Would you say you're stressed?

Post  Zbrown on Wed Apr 16, 2014 7:37 am

Yeah I would say I am a stressed person also a very big worrier over small things always have been :/ x

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Re: Would you say you're stressed?

Post  zarli on Wed Apr 16, 2014 10:22 am

Yes I was extremely stressed and anxiety when my v started

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Re: Would you say you're stressed?

Post  meelie on Thu Apr 17, 2014 2:35 pm

Yes, I was also extremely stressed at the time. Probably more stressed than I have ever been in my then 65 years on earth. I was thinking it was from holding muscles tight on the right side because of my left pelvic fx, but when I think of it, it is probably both together. Mine is from pelvic muscle dysfunction, we are 99% sure of this. Skin and tissue look fine, just had a gyn appointment on Monday. I am about sick to death of this. The only thing I think that keeps me from eating a bullet is that the burning goes away at night while I'm sleeping (not stress or pressure on the muscles) and usually does not start back until about 10 AM. I so feel for you guys that are hurting all the time and for such a long long time. I cannot not imagine such burning for such a long time. I do have some contact V when my husband wants sex but with lots of lub it is usually bearable.

meelie

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Re: Would you say you're stressed?

Post  bridget234 on Thu Apr 17, 2014 5:43 pm

Yes and a big worrier about every little thing!

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Re: Would you say you're stressed?

Post  Delilah1 on Thu Apr 17, 2014 10:22 pm

My V started after one of the most stressful times in my life.

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Re: Would you say you're stressed?

Post  meelie on Fri Apr 18, 2014 1:46 am

This is very interesting. I hope someone would do an investigation into this. I think we have hit upon a very common thing. All the girls answering yet to this, have you come to the conclusion that it is pelvic floor dysfunction/muscle underlying cause?

meelie

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Re: Would you say you're stressed?

Post  meelie on Fri Apr 18, 2014 1:47 am

one more question, have any of your taken a warm bath with soda to help relieve the inflamation in there?

meelie

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Re: Would you say you're stressed?

Post  zarli on Sat Apr 19, 2014 11:25 am

A bath of any sort for me is off limits. I seriously believe vulvodynia is caused by stress affecting the nervous system. I am a sufferer of anxiety but I went through the worst time of my life then vulvodynia started. There has to be a link I am convinced.

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Re: Would you say you're stressed?

Post  Micrm on Sun Apr 20, 2014 8:12 am

thanks for posting everyone. I too am a worrier/clencher and have many tight muscles. My stress was something I never noticed until my vulvodynia flared up again in my 20s. It's interesting that so far we all share this commonality.

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Re: Would you say you're stressed?

Post  meelie on Sun Apr 20, 2014 11:39 pm

okey dokey, now that we know it's stress and muscle clenching and the like, why can't someone come up with the answer to stop it, put it to rest, make it relax. Oh my God, I so need to find a way to make them relax and fix the nerves that I am sure it has affected.

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Re: Would you say you're stressed?

Post  aspaceodyssey on Wed May 07, 2014 6:07 pm

yes, I can be a very stressed out person, have always had anxiety problems, etc. but I try my best to manage it through various outlets like meditation, exercise, getting enough sleep...I think there's definitely a connection and I have read before that a lot of women with vulvodynia or chronic pain in general also have issues like anxiety, depression, etc.

in my particular case I don't think pelvic floor dysfunction is the root of the issue, I think it stems from autoimmunity and skin problems.

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Re: Would you say you're stressed?

Post  bridget234 on Wed May 07, 2014 10:40 pm

I did have pelvic floor dysfunction but physical therapy fixed that. The root of my problem is the nerves. My theory is that it is also caused by something autoimmune as I do have a few of those diseases.

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Re: Would you say you're stressed?

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