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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Suffering 2 years, diagnosed 5 months ago

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Suffering 2 years, diagnosed 5 months ago

Post  cndianwoman on Wed Apr 16, 2014 2:32 am

My name is Sara.

I'm in a relationship of 4.5 years, about 2 years in (shortly after moving in together) our sexlife went downhill on his part. I was always up for it and was turned on by him and wanted sex but he only wanted it sometimes and eventually after being turned away so many time I realised it was really hurting my self esteem and making myself feel unwanted and unnatractive so I stopped purseuing him for sex and just let him come to me. Eventually I felt like it was no longer that he was attracted to me but instead that he just was horny and wanted sex. I spoke to him about it several times and he would get better for a while but then things would always go back to how they were.

Then 2-3 years into the relationship it suddenly started hurting to have sex. Sometimes it would get better enough with enough lube and patience that I could actually enjoy myself but it got worse. When our sex life was in severe decline and I tried to talk to him about it once more he tried to blame the pain I had and "not wanting to hurt me" I called him on that and said no, this started long before the pain did I WANTED to have sex. But still out sex life petered out and finally stopped.

Over the period of about 5 months I went to my nurse practitioner who sent me to a gynaecologist who diagnosed me with Vestibulodynia. We hadn't had sex once during that time and after the diagnosis I felt hopeless and blindsided.. I expected her to tell me this was something in my head or that it was vaginismus (the only thing my own research sounded similar to). She told me there was no tightening of the walls like you often see when people start having vaginal pain (which becomes the vicious cycle of your body expects pain, so it tenses, which causes pain, etc.).

She mentioned that maybe surgery could help and I was in shock. I came home with an appointment for 3 months later and instructions to avoid any soaps, bubble baths.. etc etc. She told me to do exercises with numbing stuff and to try to stretch my entrance but the whole thing appals me plus I can't help but wonder what this can honestly do in the long run. I can't bring myself to do them at all.

I thought about the option of surgery and finally decided that this is what I wanted to do. I went back to my appointment ready to tell her to schedule me in. Instead she did another physical exam and told me she now did not think surgery would be an option because of WHERE the pain was, there's really nothing they could remove.

I went home with a prescription for a low dose of amitriptyline to try to numb the nerve endings and treat the pain (and with the plus of being a mild antidepressant to help deal with all of this) I've now been on it for about a month but have noticed no difference, except a bit in my mood.

Tonight though, I'm feeling lost and like my boyfriend is completely insensitive to how I feel.

What drove me to look for support right now is that for the last three nights in a row he (so romantically) said something like "So, wanna fuck?" Knowing full well that I will say no. He then says, "Well you're no fun." And sometimes that's it and sometimes he bugs me more. It doesn't help that his approach is so blunt and in no way trying to get me in the mood but also his physical approach is to just grab part of me, like it's some giant turn on for him to just reach for my lady parts.

He knows what I have and that I feel awful and I've even outright told him that it makes me feel worse when he pressures me and then huffs and turns away. I've told him it makes things even worse for me but just like every problem we discuss he gets better for a while and then goes back to old habits again. I want to scream at him to not touch me every time he does this but he just doesn't get it or doesn't care. I'm going away for 5 months in May for a job and I can't tell you how much I'm looking forward to not having to worry every time I get into bed that he's going to ask me to have sex and turn away with both of us feeling resentful. I haven't even tried to have sex in so long and I know the pain has only gotten worse (each exam I had was worse than the last) and I'm too afraid to even try.
I just don't want to be touched but all he does is moan that I won't have sex and I feel awful.

I'll add that I'm currently waiting for an appointment with another gynaecologist who is apparently a bit of an expert with this and I'm hoping that he has some answers. I was told it's about a 6 month waiting list to see him.

cndianwoman

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Re: Suffering 2 years, diagnosed 5 months ago

Post  zarli on Wed Apr 16, 2014 10:29 am

I think the time away will be great for you to get to know your self again without him being your focus. Just out of interest is he like into himself such as fitness and looks ?

zarli

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Re: Suffering 2 years, diagnosed 5 months ago

Post  meelie on Wed Apr 16, 2014 9:43 pm

I will be 67 in June, life 4Love is patient, love is kind. It does not envy, it does not boast, it is not proud. 5It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. 6Love does not delight in evil but rejoices with the truth. 7It always protects, always trusts, always hopes, always perseveres.is short.
Honey, I know you love him but I also know there are better people out there. You should not have to live like this, you should not have to keep "explaining" this to him. Get out now and find someone who deserves you. "This ain't a dress rehersal it's the real thing, the only life you will have, find someone who deserves you.
Sorry, I don't know how to sugar coat anything.

meelie

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Re: Suffering 2 years, diagnosed 5 months ago

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