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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


How do you deal?

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How do you deal?

Post  Micrm on Sun Apr 20, 2014 8:17 am

I am in my 20s, a virgin and am completely overwhelmed with the thought that I may never have sex and therefore never have a functional relationship with a guy. How do you deal with this? I am rollercoastering between blocking out the thoughts and pretending everything is fine and completely breaking down and honestly not seeing a point to living.
Any help?

Micrm

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Re: How do you deal?

Post  alessandria on Mon Apr 21, 2014 2:31 am

We all deal in our own ways, I think. Many people on this forum do have great relationships with their significant others, and find ways to be sexual and intimate despite vulvodynia. I'm also in my twenties, and actually was fortunate to have lived for a while without vulvodynia. When it started and it became clear it wasn't going away, I originally was devastated about the idea of not being in a normal relationship ever again. I am in no pain anymore, but vulvodynia caused me to really redefine my life and my goals in a way that was ultimately positive. I have discovered that by following my passions in my career and by making better friends than I ever have before, I became happier than I ever had been before any of this even started. Even though my pain is in remission, I still have little to no interest in dating, and it's because I've realized how wonderfully fulfilling life can be without a boyfriend and without sex, even though those had been so central to my life before.

Think about it this way: there are countless paths to happiness and fulfillment, and ANY of those are valid. Relationships are an easy one for people to get. But how about a deeply fulfilling career doing what you love? Or learning everything there is to know about the things you're passionate about? Having friends to explore the city and world with, and sculpting memories of new adventures? Being in your twenties is actually an awesome time to be single, try not to let the societal notions that you need to have a boyfriend and you need to have sex get you down. It's just an easy way to be happy, but honestly, it's far from the only one. Do some soul searching as to what you love, and chase after your dreams -- it feels a thousand times better than a relationship ever has, trust me. Smile You will be okay, do not despair. I'm always here by PM, if you want to talk.

alessandria

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Re: How do you deal?

Post  Micrm on Mon Apr 21, 2014 3:05 am

Thank you so much for the reply. It gives me hope and I'm sure I will be contacting you. If I may ask, what did you do to get rid of your pain?

Micrm

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Re: How do you deal?

Post  alessandria on Mon Apr 21, 2014 4:05 am

I think much like everyone else with vulvodynia, I tried a million different things. In brief, what I really thought the biggest things were:

1) Changing my diet and lifestyle: I became much more physically active, and just went to eating healthier foods (lots of vegetables, lean meat, less processed and refined stuff).

2) Changing clothing and cleaning: I honestly wore a lot of ultra tight jeans and lacy/synthetic panties before this all started, and continued to do so for a while. I only wear 100% cotton panties now, and don't wear anything that has any potential to chafe or compress the area. It's more important to be comfortable than to squeeze into the size 2 jeans that don't really fit. Smile I also stopped having sex, and did my best to stop irritating the area. Water is all you need to clean your genital region, soaps can and will irritate you if chemical sensitivity contributes to your pain. (Also, hypoallergenic laundry detergent is a good idea!)

3) This is by far the biggest one: I started doing physical therapy with a pelvic floor specialist. She was able to figure out weak muscle groups and postural issues throughout my body that were all contributing to increased pressure and dysfunction of my pelvic floor. The exercises we did together included a combination of core strengthening and determining how to walk/sit/move, and reacclimatizing my brain to equating a touch in my vestibule as simply being touch, rather than scary and painful. We also worked with dilators, and have gone from barely being able to tolerate the smallest one, to the largest one no longer causing pain. I cannot begin to tell you how wonderful a well-trained physical therapist can be in helping with vulvodynia, and especially in younger women, it seems to have pretty good success rates.

(This is very abridged, but I'm happy to give more specifics!)

alessandria

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Re: How do you deal?

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