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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


How do you deal?

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How do you deal?

Post  Micrm on Sun Apr 20, 2014 8:17 am

I am in my 20s, a virgin and am completely overwhelmed with the thought that I may never have sex and therefore never have a functional relationship with a guy. How do you deal with this? I am rollercoastering between blocking out the thoughts and pretending everything is fine and completely breaking down and honestly not seeing a point to living.
Any help?

Micrm

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Re: How do you deal?

Post  alessandria on Mon Apr 21, 2014 2:31 am

We all deal in our own ways, I think. Many people on this forum do have great relationships with their significant others, and find ways to be sexual and intimate despite vulvodynia. I'm also in my twenties, and actually was fortunate to have lived for a while without vulvodynia. When it started and it became clear it wasn't going away, I originally was devastated about the idea of not being in a normal relationship ever again. I am in no pain anymore, but vulvodynia caused me to really redefine my life and my goals in a way that was ultimately positive. I have discovered that by following my passions in my career and by making better friends than I ever have before, I became happier than I ever had been before any of this even started. Even though my pain is in remission, I still have little to no interest in dating, and it's because I've realized how wonderfully fulfilling life can be without a boyfriend and without sex, even though those had been so central to my life before.

Think about it this way: there are countless paths to happiness and fulfillment, and ANY of those are valid. Relationships are an easy one for people to get. But how about a deeply fulfilling career doing what you love? Or learning everything there is to know about the things you're passionate about? Having friends to explore the city and world with, and sculpting memories of new adventures? Being in your twenties is actually an awesome time to be single, try not to let the societal notions that you need to have a boyfriend and you need to have sex get you down. It's just an easy way to be happy, but honestly, it's far from the only one. Do some soul searching as to what you love, and chase after your dreams -- it feels a thousand times better than a relationship ever has, trust me. Smile You will be okay, do not despair. I'm always here by PM, if you want to talk.

alessandria

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Re: How do you deal?

Post  Micrm on Mon Apr 21, 2014 3:05 am

Thank you so much for the reply. It gives me hope and I'm sure I will be contacting you. If I may ask, what did you do to get rid of your pain?

Micrm

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Re: How do you deal?

Post  alessandria on Mon Apr 21, 2014 4:05 am

I think much like everyone else with vulvodynia, I tried a million different things. In brief, what I really thought the biggest things were:

1) Changing my diet and lifestyle: I became much more physically active, and just went to eating healthier foods (lots of vegetables, lean meat, less processed and refined stuff).

2) Changing clothing and cleaning: I honestly wore a lot of ultra tight jeans and lacy/synthetic panties before this all started, and continued to do so for a while. I only wear 100% cotton panties now, and don't wear anything that has any potential to chafe or compress the area. It's more important to be comfortable than to squeeze into the size 2 jeans that don't really fit. Smile I also stopped having sex, and did my best to stop irritating the area. Water is all you need to clean your genital region, soaps can and will irritate you if chemical sensitivity contributes to your pain. (Also, hypoallergenic laundry detergent is a good idea!)

3) This is by far the biggest one: I started doing physical therapy with a pelvic floor specialist. She was able to figure out weak muscle groups and postural issues throughout my body that were all contributing to increased pressure and dysfunction of my pelvic floor. The exercises we did together included a combination of core strengthening and determining how to walk/sit/move, and reacclimatizing my brain to equating a touch in my vestibule as simply being touch, rather than scary and painful. We also worked with dilators, and have gone from barely being able to tolerate the smallest one, to the largest one no longer causing pain. I cannot begin to tell you how wonderful a well-trained physical therapist can be in helping with vulvodynia, and especially in younger women, it seems to have pretty good success rates.

(This is very abridged, but I'm happy to give more specifics!)

alessandria

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Re: How do you deal?

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