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» Cleveland Clinic - Pain Management, Weston, FL
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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

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Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Chronic come and go itchiness - vulvodynia? Will Cymbalta help?

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Chronic come and go itchiness - vulvodynia? Will Cymbalta help?

Post  julie8495 on Mon Apr 21, 2014 3:35 am

Hello,

Like many of you my story is long, complicated and frustrating so I'll try to condense it to make this more efficient.

As of now I have suffered from chronic vulvar and vaginal itching for 11 months as well as the occasional discharge (suspiciously like yeast). Originally I was diagnosed at a free clinic with BV and a yeast infection. Without knowing  the ph scale for both of these diseases is on opposite ends I took flucanazole and a week's worth of antibiotics. I felt some relief from the itching and discharge that I believe was a yeast infection however it never fully went away. Now I have seen nearly a dozen doctors without relief. The tests for yeast have been coming back negative for the past couple of months but I feel no change. Below are more details treatments I've tried and their results but overall I have tried every variation of traditional azole treatment as well as antibiotics as well as changes in diet to cut out all forms of sugar.

Now my new doctor believes I have vulvodynia as tests for BV or yeast come back negative. I have significant tenderness particular around the vestibules but my main symptom is on again off again itchiness and possibly correlated discharge. She suggests Cymbalta because my nervous system has been rewired to associate touch with pain or itch. What is your experience with this? I'm nervous for the symptoms of such a serious medication - I'm in college and have never had to deal with anything this complicated. Will this help with itching? Are there are tried and true remedies?  

I really have no idea if it's a result of stress, newly developed food allergies or what. It's had an enormous toll on my emotional well being and so stress has been a near constant part of my life for the past year. Dealing with college, this and letting it destroy my relationship has eaten away at me for so long that I don't know how much longer I can deal with it without finding a cure.

April 28th 2013
Symptoms: Clumpy white discharge and severe itching
Diagnosis: BV & Yeast Infection
Treatment: 1 week of antibiotics 2x a day & fluconazole
Result: Significant decrease in discharge and itching but still present – has remained at this level ever since.

2nd Week of May

Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: BV
Treatment: 1 week of antibiotics x2 daily
Result: No change

3rd Week of May - \
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast infection
Treatment: Fluconazole
Result: No change

June
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast Infection
Treatment: Fluconazole every three days for a week and topical treatment
Result: No change

July
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast infection – specifically candida albicans
Treatment: Marigold suppositories for 1 week x2 daily & Vitanica Yeast Arrest suppositories 2 weeks x2 daily.
Results: Some relief but eventually returning to off and on again itching, slight clumpy white discharge

August:
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast Infection
Treatment: Fluconazole x1 per week for 6 months.
Results: No change

September – Present
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Hormone levels – normal, ultrasound – normal, Multiple tests for STIs & STDs – negative, Multiple tests for yeast – negative, Multiple tests for BV – positive
Treatment: Steroid cream daily then x2 week. Antibiotics for 1 week, x2 day. (Slight allergic reaction)
Results: Decrease in discharge, remaining itchiness

Additional treatment:
Dieting from August to December: Only meats, nuts, eggs and vegetables to avoid any forms of sugar
Results: Inconclusive

Colonic - March '14
Results: Inconclusive - better for a few days after but returned to symptoms

Additional supplements: Probiotics
Results: Inconclusive – does this help or harm the BV diagnosis?

Symptoms generally worsen at night or in the morning, after drinking, and when there is more discharge.
- After sex there are symptoms of severe itching and some swelling for several days.
Symptoms are generally relieved when loose clothing is worn.

julie8495

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Re: Chronic come and go itchiness - vulvodynia? Will Cymbalta help?

Post  aspaceodyssey on Wed May 07, 2014 6:19 pm

I came here to post about a similar issue. I believe I am having some recurring yeast issues and I doubted for a while that it was yeast because my doc did a test and said it was negative, but one day I broke down and bought an otc yeast kit and got significant relief from it. so I am at the point where I would not necessarily believe the test; from what I've learned here, yeast can persist under the skin and so a culture wouldn't necessarily come up positive even if there's yeast present (although someone please jump in and correct me if I'm wrong).

I would actually suggest giving the antidepressant a try. you could have neuropathic pain resulting from the initial infection--the infection could be gone but your nerves are still firing as if it's there, so you need to rewire them, as your doc said. I don't know much about cymbalta but if you're nervous about trying something like this, you could ask your doc to try something like nortriptyline instead, as you can start at a very low dose (10 mg, whereas a normal dose for depression is around 100 mg) and move up as needed to see how you tolerate it. I decided to try this recently because knowing it was such a low dose made me feel more comfortable, and I have noticed some improvement for it and very few side effects.

of course, if the yeast is still there, this won't be a full cure. that's a tricky issue and I'm still not quite sure what to do about it myself. I've tried garlic supplements, probiotics, eat yogurt every day, and none of that has really knocked it out, but I might keep trying different supplements and try to be more careful about my diet, which it seems like you have also already tried...

aspaceodyssey

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