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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Chronic come and go itchiness - vulvodynia? Will Cymbalta help?

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Chronic come and go itchiness - vulvodynia? Will Cymbalta help?

Post  julie8495 on Mon Apr 21, 2014 3:35 am

Hello,

Like many of you my story is long, complicated and frustrating so I'll try to condense it to make this more efficient.

As of now I have suffered from chronic vulvar and vaginal itching for 11 months as well as the occasional discharge (suspiciously like yeast). Originally I was diagnosed at a free clinic with BV and a yeast infection. Without knowing  the ph scale for both of these diseases is on opposite ends I took flucanazole and a week's worth of antibiotics. I felt some relief from the itching and discharge that I believe was a yeast infection however it never fully went away. Now I have seen nearly a dozen doctors without relief. The tests for yeast have been coming back negative for the past couple of months but I feel no change. Below are more details treatments I've tried and their results but overall I have tried every variation of traditional azole treatment as well as antibiotics as well as changes in diet to cut out all forms of sugar.

Now my new doctor believes I have vulvodynia as tests for BV or yeast come back negative. I have significant tenderness particular around the vestibules but my main symptom is on again off again itchiness and possibly correlated discharge. She suggests Cymbalta because my nervous system has been rewired to associate touch with pain or itch. What is your experience with this? I'm nervous for the symptoms of such a serious medication - I'm in college and have never had to deal with anything this complicated. Will this help with itching? Are there are tried and true remedies?  

I really have no idea if it's a result of stress, newly developed food allergies or what. It's had an enormous toll on my emotional well being and so stress has been a near constant part of my life for the past year. Dealing with college, this and letting it destroy my relationship has eaten away at me for so long that I don't know how much longer I can deal with it without finding a cure.

April 28th 2013
Symptoms: Clumpy white discharge and severe itching
Diagnosis: BV & Yeast Infection
Treatment: 1 week of antibiotics 2x a day & fluconazole
Result: Significant decrease in discharge and itching but still present – has remained at this level ever since.

2nd Week of May

Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: BV
Treatment: 1 week of antibiotics x2 daily
Result: No change

3rd Week of May - \
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast infection
Treatment: Fluconazole
Result: No change

June
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast Infection
Treatment: Fluconazole every three days for a week and topical treatment
Result: No change

July
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast infection – specifically candida albicans
Treatment: Marigold suppositories for 1 week x2 daily & Vitanica Yeast Arrest suppositories 2 weeks x2 daily.
Results: Some relief but eventually returning to off and on again itching, slight clumpy white discharge

August:
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast Infection
Treatment: Fluconazole x1 per week for 6 months.
Results: No change

September – Present
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Hormone levels – normal, ultrasound – normal, Multiple tests for STIs & STDs – negative, Multiple tests for yeast – negative, Multiple tests for BV – positive
Treatment: Steroid cream daily then x2 week. Antibiotics for 1 week, x2 day. (Slight allergic reaction)
Results: Decrease in discharge, remaining itchiness

Additional treatment:
Dieting from August to December: Only meats, nuts, eggs and vegetables to avoid any forms of sugar
Results: Inconclusive

Colonic - March '14
Results: Inconclusive - better for a few days after but returned to symptoms

Additional supplements: Probiotics
Results: Inconclusive – does this help or harm the BV diagnosis?

Symptoms generally worsen at night or in the morning, after drinking, and when there is more discharge.
- After sex there are symptoms of severe itching and some swelling for several days.
Symptoms are generally relieved when loose clothing is worn.

julie8495

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Re: Chronic come and go itchiness - vulvodynia? Will Cymbalta help?

Post  aspaceodyssey on Wed May 07, 2014 6:19 pm

I came here to post about a similar issue. I believe I am having some recurring yeast issues and I doubted for a while that it was yeast because my doc did a test and said it was negative, but one day I broke down and bought an otc yeast kit and got significant relief from it. so I am at the point where I would not necessarily believe the test; from what I've learned here, yeast can persist under the skin and so a culture wouldn't necessarily come up positive even if there's yeast present (although someone please jump in and correct me if I'm wrong).

I would actually suggest giving the antidepressant a try. you could have neuropathic pain resulting from the initial infection--the infection could be gone but your nerves are still firing as if it's there, so you need to rewire them, as your doc said. I don't know much about cymbalta but if you're nervous about trying something like this, you could ask your doc to try something like nortriptyline instead, as you can start at a very low dose (10 mg, whereas a normal dose for depression is around 100 mg) and move up as needed to see how you tolerate it. I decided to try this recently because knowing it was such a low dose made me feel more comfortable, and I have noticed some improvement for it and very few side effects.

of course, if the yeast is still there, this won't be a full cure. that's a tricky issue and I'm still not quite sure what to do about it myself. I've tried garlic supplements, probiotics, eat yogurt every day, and none of that has really knocked it out, but I might keep trying different supplements and try to be more careful about my diet, which it seems like you have also already tried...

aspaceodyssey

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