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» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

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Sun Aug 13, 2017 4:27 am by Hopeitworks

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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Chronic come and go itchiness - vulvodynia? Will Cymbalta help?

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Chronic come and go itchiness - vulvodynia? Will Cymbalta help?

Post  julie8495 on Mon Apr 21, 2014 3:35 am

Hello,

Like many of you my story is long, complicated and frustrating so I'll try to condense it to make this more efficient.

As of now I have suffered from chronic vulvar and vaginal itching for 11 months as well as the occasional discharge (suspiciously like yeast). Originally I was diagnosed at a free clinic with BV and a yeast infection. Without knowing  the ph scale for both of these diseases is on opposite ends I took flucanazole and a week's worth of antibiotics. I felt some relief from the itching and discharge that I believe was a yeast infection however it never fully went away. Now I have seen nearly a dozen doctors without relief. The tests for yeast have been coming back negative for the past couple of months but I feel no change. Below are more details treatments I've tried and their results but overall I have tried every variation of traditional azole treatment as well as antibiotics as well as changes in diet to cut out all forms of sugar.

Now my new doctor believes I have vulvodynia as tests for BV or yeast come back negative. I have significant tenderness particular around the vestibules but my main symptom is on again off again itchiness and possibly correlated discharge. She suggests Cymbalta because my nervous system has been rewired to associate touch with pain or itch. What is your experience with this? I'm nervous for the symptoms of such a serious medication - I'm in college and have never had to deal with anything this complicated. Will this help with itching? Are there are tried and true remedies?  

I really have no idea if it's a result of stress, newly developed food allergies or what. It's had an enormous toll on my emotional well being and so stress has been a near constant part of my life for the past year. Dealing with college, this and letting it destroy my relationship has eaten away at me for so long that I don't know how much longer I can deal with it without finding a cure.

April 28th 2013
Symptoms: Clumpy white discharge and severe itching
Diagnosis: BV & Yeast Infection
Treatment: 1 week of antibiotics 2x a day & fluconazole
Result: Significant decrease in discharge and itching but still present – has remained at this level ever since.

2nd Week of May

Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: BV
Treatment: 1 week of antibiotics x2 daily
Result: No change

3rd Week of May - \
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast infection
Treatment: Fluconazole
Result: No change

June
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast Infection
Treatment: Fluconazole every three days for a week and topical treatment
Result: No change

July
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast infection – specifically candida albicans
Treatment: Marigold suppositories for 1 week x2 daily & Vitanica Yeast Arrest suppositories 2 weeks x2 daily.
Results: Some relief but eventually returning to off and on again itching, slight clumpy white discharge

August:
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Yeast Infection
Treatment: Fluconazole x1 per week for 6 months.
Results: No change

September – Present
Symptoms: Off and on again itching, slight clumpy white discharge
Diagnosis: Hormone levels – normal, ultrasound – normal, Multiple tests for STIs & STDs – negative, Multiple tests for yeast – negative, Multiple tests for BV – positive
Treatment: Steroid cream daily then x2 week. Antibiotics for 1 week, x2 day. (Slight allergic reaction)
Results: Decrease in discharge, remaining itchiness

Additional treatment:
Dieting from August to December: Only meats, nuts, eggs and vegetables to avoid any forms of sugar
Results: Inconclusive

Colonic - March '14
Results: Inconclusive - better for a few days after but returned to symptoms

Additional supplements: Probiotics
Results: Inconclusive – does this help or harm the BV diagnosis?

Symptoms generally worsen at night or in the morning, after drinking, and when there is more discharge.
- After sex there are symptoms of severe itching and some swelling for several days.
Symptoms are generally relieved when loose clothing is worn.

julie8495

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Re: Chronic come and go itchiness - vulvodynia? Will Cymbalta help?

Post  aspaceodyssey on Wed May 07, 2014 6:19 pm

I came here to post about a similar issue. I believe I am having some recurring yeast issues and I doubted for a while that it was yeast because my doc did a test and said it was negative, but one day I broke down and bought an otc yeast kit and got significant relief from it. so I am at the point where I would not necessarily believe the test; from what I've learned here, yeast can persist under the skin and so a culture wouldn't necessarily come up positive even if there's yeast present (although someone please jump in and correct me if I'm wrong).

I would actually suggest giving the antidepressant a try. you could have neuropathic pain resulting from the initial infection--the infection could be gone but your nerves are still firing as if it's there, so you need to rewire them, as your doc said. I don't know much about cymbalta but if you're nervous about trying something like this, you could ask your doc to try something like nortriptyline instead, as you can start at a very low dose (10 mg, whereas a normal dose for depression is around 100 mg) and move up as needed to see how you tolerate it. I decided to try this recently because knowing it was such a low dose made me feel more comfortable, and I have noticed some improvement for it and very few side effects.

of course, if the yeast is still there, this won't be a full cure. that's a tricky issue and I'm still not quite sure what to do about it myself. I've tried garlic supplements, probiotics, eat yogurt every day, and none of that has really knocked it out, but I might keep trying different supplements and try to be more careful about my diet, which it seems like you have also already tried...

aspaceodyssey

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