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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Best treatments for breakthrough pain while on medication and painful sex

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Best treatments for breakthrough pain while on medication and painful sex

Post  Londa07 on Mon Apr 21, 2014 5:14 am

I am 25 years old and have been diagnosed with Vulvodynia last year after suffering for 24 years of pain, burning and extreme discomfort. Even as a baby, I remember having to get a cold compress put on my vagina almost everyday at daycare and home. I don't feel surgery is an option for me because 100% of my vulva area and vaginal opening is affected by the pain this condition brings. Right now I am taking a antidepressant and it has significantly decreased my pain and increased my quality of life. My only problem is, the medicine only works about 85% of the time. I still have very severe "breakthrough" pain even while on my medication, especially when I am about to menstruate; the vulva pain is worse then any normal period pain  . Sex is out of the question because this medicine doesn't help this. When I attempt to have sex the penetration makes me swell shut and get infections because of how irritated I get. Has anyone else had this problem and found a treatment to assist with these issues?

Londa07

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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Alana3 on Mon Apr 21, 2014 1:53 pm

See if you can skip periods on birth control if its linked to your period maybe eliminating that problem will help Smile

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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Londa07 on Thu Apr 24, 2014 4:58 am

I guess that would make sense

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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Londa07 on Thu Apr 24, 2014 4:59 am

Any recommendations for the painful sex part?

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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Alana3 on Thu Apr 24, 2014 1:45 pm

I got a vestibulectomy and it def helped! Maybe try a lidocaine patch to numb the area (or lubricated lidocaine) but you would probably need to use a condom because his penis would go numb! Or try a Xanax to calm you down, but that probably wouldn't do much for you just help you relax more....

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painful sex..

Post  lavrose on Fri Apr 25, 2014 2:25 pm

Boric acid and vitamin e helped with the painful sex. Coconut oil (as a lube) works well too, def invest in a water based all natural lube. I would have never been able to have sex without some kind of lubrication..
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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Londa07 on Sat Apr 26, 2014 10:18 pm

Ok I will try these out, thanks ladies

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Re: Best treatments for breakthrough pain while on medication and painful sex

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