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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Best treatments for breakthrough pain while on medication and painful sex

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Best treatments for breakthrough pain while on medication and painful sex

Post  Londa07 on Mon Apr 21, 2014 5:14 am

I am 25 years old and have been diagnosed with Vulvodynia last year after suffering for 24 years of pain, burning and extreme discomfort. Even as a baby, I remember having to get a cold compress put on my vagina almost everyday at daycare and home. I don't feel surgery is an option for me because 100% of my vulva area and vaginal opening is affected by the pain this condition brings. Right now I am taking a antidepressant and it has significantly decreased my pain and increased my quality of life. My only problem is, the medicine only works about 85% of the time. I still have very severe "breakthrough" pain even while on my medication, especially when I am about to menstruate; the vulva pain is worse then any normal period pain  . Sex is out of the question because this medicine doesn't help this. When I attempt to have sex the penetration makes me swell shut and get infections because of how irritated I get. Has anyone else had this problem and found a treatment to assist with these issues?

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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Alana3 on Mon Apr 21, 2014 1:53 pm

See if you can skip periods on birth control if its linked to your period maybe eliminating that problem will help Smile

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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Londa07 on Thu Apr 24, 2014 4:58 am

I guess that would make sense

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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Londa07 on Thu Apr 24, 2014 4:59 am

Any recommendations for the painful sex part?

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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Alana3 on Thu Apr 24, 2014 1:45 pm

I got a vestibulectomy and it def helped! Maybe try a lidocaine patch to numb the area (or lubricated lidocaine) but you would probably need to use a condom because his penis would go numb! Or try a Xanax to calm you down, but that probably wouldn't do much for you just help you relax more....

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painful sex..

Post  lavrose on Fri Apr 25, 2014 2:25 pm

Boric acid and vitamin e helped with the painful sex. Coconut oil (as a lube) works well too, def invest in a water based all natural lube. I would have never been able to have sex without some kind of lubrication..
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Re: Best treatments for breakthrough pain while on medication and painful sex

Post  Londa07 on Sat Apr 26, 2014 10:18 pm

Ok I will try these out, thanks ladies

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Re: Best treatments for breakthrough pain while on medication and painful sex

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