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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Magnesium oil/flakes

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Magnesium oil/flakes

Post  Sunflower82 on Tue Apr 22, 2014 5:06 pm

Hi,
I've been reading about magnesium and how increase you intake can generally help!
Has anyone had any expeience of using the oil or flakes as a soak in the bath? I would like to give it a try but I don't use anything in the bath and I wonder if it can affect the skin around the vulvar ?

Many thanks

Katie

Sunflower82

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Re: Magnesium oil/flakes

Post  meelie on Wed Apr 23, 2014 1:01 am

As a nurse, I'm thinking you should, and I do, take magnesium by mouth not in a bath. It will help relax muscles. I cannot not say if it is helping or not as I have had an interruption in my daily routine. I do know it is taken to help relax and also will help you not be constipated when taking calcium which constipates. I have taken as much as 400 mg daily but not lately. If you get diarriah cut back.

meelie

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Magnesium flakes/oil

Post  Sunflower82 on Wed Apr 23, 2014 7:35 am

Hi,
Thanks for your reply, I tested out the flakes last night only used half a bag but it felt ok down below! Hoping it will help to relax me, I am taking a pre natal vitamin with magnesium in but when I checked the level it's only 35mg so I may start an additional supplement but I think I have to be careful as I'm 5 and a half weeks pregnant!

Thanks

Katie

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Re: Magnesium oil/flakes

Post  meelie on Wed Apr 23, 2014 1:57 pm

oh yes, please be careful. please consult with your ob. most definitely don't forget your folic acid. right now, that baby inside you is the most important thing you got. take care of him/her and God bless, have a healthy happy baby.

meelie

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Re: Magnesium oil/flakes

Post  Takver on Thu May 01, 2014 12:08 pm

Right now I'm actually trying magnesium oil directly onto my vulva, actually. I'll report back on how it works, but I think it might be helping.

As for whether you should get the extra magnesium, the vast majority of people are very low in magnesium, if not deficient. Calculate how much you're getting through other sources, look up how much is the ideal amount for a pregnant woman, and then check how much you'll get from the magnesium oil. I think it's easier to calculate with the oil in spray form than it is if you put Epsom salts into the bath. My guess is that you'd still be fine.

It can be a skin irritant, though. If it is for you, there are two things you can do. One is to put on a layer of plain vegetable oil first. I'm finding hempseed oil from the supermarket to be great for that, it's very light and absorbs fast. (And I end up with beautifully moisturised skin.) The other is to dilute the magnesium oil by adding a bit of water to it.
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