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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


C.A.T therapy

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C.A.T therapy

Post  naomi on Mon Nov 08, 2010 11:36 pm

So my usual head doctor has referred me to a friend of hers who works as a psychotherapeutic cousellor. Not that she wanted to bunk me off to someone else, but she thought it might be good to gain another persons perspective on my situation etc.

So I went today (dragging my heals - I hate change!) and the lady seemed really lovely... she completely 'gets' me and is going to work with the below...CAT

•Cognitive Analytic Therapy (CAT)
CAT focuses its attention on discovering how problems have evolved and how the procedures devised to cope with them may be ineffective. It is designed to enable clients to gain an understanding of how the difficulties they experience may be made worse by their habitual coping mechanisms.

In my life i feel like im just treading water to keep my head just above water to stop my drowning!! I know that sounds a bit dramatic but thats how it feels. So she intends to help me find coping stratorgies (spelling!?!) etc.

I think im going to have a good stab at it. Its the only thing i have going on a weekly basis...the medical side of all this has ground to a halt practically and its so frustrating as my consultant wont reply my letters or phone messages....do that actually give a flying fuck about helping me?!!! tossers.
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Re: C.A.T therapy

Post  naomi on Mon Nov 08, 2010 11:37 pm

sorry bit of a rant on there! Just makes me so angry I could punch something!!

Bed for me anyhooz Im shattered

hope u guys r ok xxxxxx
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Re: C.A.T therapy

Post  tweety on Tue Nov 09, 2010 12:02 pm

Hey Naomi,

That sounds interesting... it sounds like something I should prolli try too if I can learn better coping strategies.

Let me kno how your first session goes.

Cheers,

Sue

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Re: C.A.T therapy

Post  Sarah001 on Tue Nov 09, 2010 2:37 pm

It's good that you've found someone to talk through coping with, I think we all understand the treading water feeling. Have you thought about getting or borrowing a copy of Amy Stein's Heal Pelvic Pain? It's full of good advice and exercises if you don't fancy going to a Women's Health Physio, she covers exercises for the external muscles to help the pelvic floor relax and massage for internal and external to help the pelvic floor relax. The great thing about the book is it doesn't cost much either, I think my copy was about £7 and it's a really good book. Like most of us you've been let down by conventional doctors so it's probably time to start looking at your options to help yourself. Hope you at least have a read through it in a library to get some handy hints on things to try, and inflamed skin is mentioned too!
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Re: C.A.T therapy

Post  Sebby (Admin) on Tue Nov 16, 2010 8:48 pm


That sounds great Naomi! I get cbt with my therapist who also takes a person centered approach so its a mix really

I find it very helpful so I wish you luck!!!!

Sebby
xxx
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