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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» What's next?
Sat Apr 14, 2018 4:28 pm by sally_jane

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


C.A.T therapy

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C.A.T therapy

Post  naomi on Mon Nov 08, 2010 11:36 pm

So my usual head doctor has referred me to a friend of hers who works as a psychotherapeutic cousellor. Not that she wanted to bunk me off to someone else, but she thought it might be good to gain another persons perspective on my situation etc.

So I went today (dragging my heals - I hate change!) and the lady seemed really lovely... she completely 'gets' me and is going to work with the below...CAT

•Cognitive Analytic Therapy (CAT)
CAT focuses its attention on discovering how problems have evolved and how the procedures devised to cope with them may be ineffective. It is designed to enable clients to gain an understanding of how the difficulties they experience may be made worse by their habitual coping mechanisms.

In my life i feel like im just treading water to keep my head just above water to stop my drowning!! I know that sounds a bit dramatic but thats how it feels. So she intends to help me find coping stratorgies (spelling!?!) etc.

I think im going to have a good stab at it. Its the only thing i have going on a weekly basis...the medical side of all this has ground to a halt practically and its so frustrating as my consultant wont reply my letters or phone messages....do that actually give a flying fuck about helping me?!!! tossers.
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Re: C.A.T therapy

Post  naomi on Mon Nov 08, 2010 11:37 pm

sorry bit of a rant on there! Just makes me so angry I could punch something!!

Bed for me anyhooz Im shattered

hope u guys r ok xxxxxx
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Re: C.A.T therapy

Post  tweety on Tue Nov 09, 2010 12:02 pm

Hey Naomi,

That sounds interesting... it sounds like something I should prolli try too if I can learn better coping strategies.

Let me kno how your first session goes.

Cheers,

Sue

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Re: C.A.T therapy

Post  Sarah001 on Tue Nov 09, 2010 2:37 pm

It's good that you've found someone to talk through coping with, I think we all understand the treading water feeling. Have you thought about getting or borrowing a copy of Amy Stein's Heal Pelvic Pain? It's full of good advice and exercises if you don't fancy going to a Women's Health Physio, she covers exercises for the external muscles to help the pelvic floor relax and massage for internal and external to help the pelvic floor relax. The great thing about the book is it doesn't cost much either, I think my copy was about £7 and it's a really good book. Like most of us you've been let down by conventional doctors so it's probably time to start looking at your options to help yourself. Hope you at least have a read through it in a library to get some handy hints on things to try, and inflamed skin is mentioned too!
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Re: C.A.T therapy

Post  Sebby (Admin) on Tue Nov 16, 2010 8:48 pm


That sounds great Naomi! I get cbt with my therapist who also takes a person centered approach so its a mix really

I find it very helpful so I wish you luck!!!!

Sebby
xxx
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Re: C.A.T therapy

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