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» Anyone been to see Dr.Claire Bailey in Birmingham?
Yesterday at 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Yesterday at 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


C.A.T therapy

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C.A.T therapy

Post  naomi on Mon Nov 08, 2010 11:36 pm

So my usual head doctor has referred me to a friend of hers who works as a psychotherapeutic cousellor. Not that she wanted to bunk me off to someone else, but she thought it might be good to gain another persons perspective on my situation etc.

So I went today (dragging my heals - I hate change!) and the lady seemed really lovely... she completely 'gets' me and is going to work with the below...CAT

•Cognitive Analytic Therapy (CAT)
CAT focuses its attention on discovering how problems have evolved and how the procedures devised to cope with them may be ineffective. It is designed to enable clients to gain an understanding of how the difficulties they experience may be made worse by their habitual coping mechanisms.

In my life i feel like im just treading water to keep my head just above water to stop my drowning!! I know that sounds a bit dramatic but thats how it feels. So she intends to help me find coping stratorgies (spelling!?!) etc.

I think im going to have a good stab at it. Its the only thing i have going on a weekly basis...the medical side of all this has ground to a halt practically and its so frustrating as my consultant wont reply my letters or phone messages....do that actually give a flying fuck about helping me?!!! tossers.
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Re: C.A.T therapy

Post  naomi on Mon Nov 08, 2010 11:37 pm

sorry bit of a rant on there! Just makes me so angry I could punch something!!

Bed for me anyhooz Im shattered

hope u guys r ok xxxxxx
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Re: C.A.T therapy

Post  tweety on Tue Nov 09, 2010 12:02 pm

Hey Naomi,

That sounds interesting... it sounds like something I should prolli try too if I can learn better coping strategies.

Let me kno how your first session goes.

Cheers,

Sue

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Re: C.A.T therapy

Post  Sarah001 on Tue Nov 09, 2010 2:37 pm

It's good that you've found someone to talk through coping with, I think we all understand the treading water feeling. Have you thought about getting or borrowing a copy of Amy Stein's Heal Pelvic Pain? It's full of good advice and exercises if you don't fancy going to a Women's Health Physio, she covers exercises for the external muscles to help the pelvic floor relax and massage for internal and external to help the pelvic floor relax. The great thing about the book is it doesn't cost much either, I think my copy was about £7 and it's a really good book. Like most of us you've been let down by conventional doctors so it's probably time to start looking at your options to help yourself. Hope you at least have a read through it in a library to get some handy hints on things to try, and inflamed skin is mentioned too!
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Re: C.A.T therapy

Post  Sebby (Admin) on Tue Nov 16, 2010 8:48 pm


That sounds great Naomi! I get cbt with my therapist who also takes a person centered approach so its a mix really

I find it very helpful so I wish you luck!!!!

Sebby
xxx
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