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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


So pissed off with my shit life!!!!!!!!!!!!!!!!!

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So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  helen4444 on Sun Nov 14, 2010 1:36 pm

Hi,I thought life couldn't get any fucking worse= how wrong was I. Yet again I have been unsuccessful in getting my pension,some unqualified git seems to think that by some miracle this horrendous condition is just going to go, wonder when she suddenly became such an expert!! One of my friends mum was diagnosed with lung cancer on friday and another friend is undergoing tests ? MS ? something worse. It's not easy telling the kids they can't have what their friends have cos a)can't afford to and b) too restricted by this fucking twat pain- Fuck,shit,bollocks,fuck,fuck,fuck-AHHHH that feels a bit better- think i,ll have some chocolate fuck the diet!

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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Mouse on Tue Nov 16, 2010 1:35 am

Helen, can you appeal? It would be fab if this person with knowledge of a cure could share it with us. Do you have a specialist that can provide a letter to support you?

Chocolate sounds like a bloody good idea.

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So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  helen4444 on Tue Nov 16, 2010 11:09 am

Hi
Thanks 4 your reply- this was my first appeal can appeal once more.The letter from my gyno is fab clearly stating this condition will be life long and I will not be able to fulfil the role I had, they (pension people) just keep saying i might get better.I have paid into this pension scheme for years.I need to look up about chronic pain and what research says but just can't bring myself to look properly for fear of getting even more down. My gyno thinks i may get better but wrote this letter to try and allieviate my financial stress.He says until stress is out of the equation i will not improve.Need more chocolate now Crying or Very sad

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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Mouse on Tue Nov 16, 2010 7:39 pm

FFS surely they will assess you again, by which time someone "might" have found a cure! It's a strange kind of logic that you might get better. Who would be more happy than you ....FFS!!!

Would it be helpful to become a patient at a pain clinic? Chronic pain can steal your soul, get some more experts on your team Smile Have you got a therapist? You can't have mine but god that's helpful.

I'm getting really chubby and I eat a sickening amount of fruit and vege.. how is that fair? Curse that bloody chocolate.

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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Sebby (Admin) on Tue Nov 16, 2010 9:17 pm


Hey Helen

Sorry to hear how shit things are for you..definitely appeal! That man obviously has no proper understanding of chronic pain conditions.

Is there anyway you can see another person to assess you if you are unhappy with how he has assessed you?

I also recommend the pain management clinic..they understand pain conditions and could help back up your assessment and also back up the gyneas letter!!

Let us know how you get on

Sebby
xxx
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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  helen4444 on Wed Nov 17, 2010 3:47 pm

Hi,
Thanks for all your suggestions, waiting for union response,unfortunatly i am not told who the medical assessors are.Will be seeing my gyno next month,think he may suggest a pain cons he has asked before only 1 prob-she is my old boss. I might have a go at putting a report about me together and ask my Gyno if he is willing to sign it.Apparently if you can breath your chances of getting pension is poor.
Can't believe I am fighting for a monthly amount that is a quarter of what i used to earn.

My car is costing me £500 and because of tax cock ups that another bill of £350

AHHHHHHHHHHHHHHHHHHHHHHHHHHHH














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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

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