Log in

I forgot my password

Latest topics
New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


So pissed off with my shit life!!!!!!!!!!!!!!!!!

Go down

So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  helen4444 on Sun Nov 14, 2010 1:36 pm

Hi,I thought life couldn't get any fucking worse= how wrong was I. Yet again I have been unsuccessful in getting my pension,some unqualified git seems to think that by some miracle this horrendous condition is just going to go, wonder when she suddenly became such an expert!! One of my friends mum was diagnosed with lung cancer on friday and another friend is undergoing tests ? MS ? something worse. It's not easy telling the kids they can't have what their friends have cos a)can't afford to and b) too restricted by this fucking twat pain- Fuck,shit,bollocks,fuck,fuck,fuck-AHHHH that feels a bit better- think i,ll have some chocolate fuck the diet!

helen4444

Posts : 11
Join date : 2010-09-26
Age : 51
Location : Leeds, uk

View user profile

Back to top Go down

Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Mouse on Tue Nov 16, 2010 1:35 am

Helen, can you appeal? It would be fab if this person with knowledge of a cure could share it with us. Do you have a specialist that can provide a letter to support you?

Chocolate sounds like a bloody good idea.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  helen4444 on Tue Nov 16, 2010 11:09 am

Hi
Thanks 4 your reply- this was my first appeal can appeal once more.The letter from my gyno is fab clearly stating this condition will be life long and I will not be able to fulfil the role I had, they (pension people) just keep saying i might get better.I have paid into this pension scheme for years.I need to look up about chronic pain and what research says but just can't bring myself to look properly for fear of getting even more down. My gyno thinks i may get better but wrote this letter to try and allieviate my financial stress.He says until stress is out of the equation i will not improve.Need more chocolate now Crying or Very sad

helen4444

Posts : 11
Join date : 2010-09-26
Age : 51
Location : Leeds, uk

View user profile

Back to top Go down

Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Mouse on Tue Nov 16, 2010 7:39 pm

FFS surely they will assess you again, by which time someone "might" have found a cure! It's a strange kind of logic that you might get better. Who would be more happy than you ....FFS!!!

Would it be helpful to become a patient at a pain clinic? Chronic pain can steal your soul, get some more experts on your team Smile Have you got a therapist? You can't have mine but god that's helpful.

I'm getting really chubby and I eat a sickening amount of fruit and vege.. how is that fair? Curse that bloody chocolate.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Sebby (Admin) on Tue Nov 16, 2010 9:17 pm


Hey Helen

Sorry to hear how shit things are for you..definitely appeal! That man obviously has no proper understanding of chronic pain conditions.

Is there anyway you can see another person to assess you if you are unhappy with how he has assessed you?

I also recommend the pain management clinic..they understand pain conditions and could help back up your assessment and also back up the gyneas letter!!

Let us know how you get on

Sebby
xxx
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  helen4444 on Wed Nov 17, 2010 3:47 pm

Hi,
Thanks for all your suggestions, waiting for union response,unfortunatly i am not told who the medical assessors are.Will be seeing my gyno next month,think he may suggest a pain cons he has asked before only 1 prob-she is my old boss. I might have a go at putting a report about me together and ask my Gyno if he is willing to sign it.Apparently if you can breath your chances of getting pension is poor.
Can't believe I am fighting for a monthly amount that is a quarter of what i used to earn.

My car is costing me £500 and because of tax cock ups that another bill of £350

AHHHHHHHHHHHHHHHHHHHHHHHHHHHH














helen4444

Posts : 11
Join date : 2010-09-26
Age : 51
Location : Leeds, uk

View user profile

Back to top Go down

Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum