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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


So pissed off with my shit life!!!!!!!!!!!!!!!!!

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So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  helen4444 on Sun Nov 14, 2010 1:36 pm

Hi,I thought life couldn't get any fucking worse= how wrong was I. Yet again I have been unsuccessful in getting my pension,some unqualified git seems to think that by some miracle this horrendous condition is just going to go, wonder when she suddenly became such an expert!! One of my friends mum was diagnosed with lung cancer on friday and another friend is undergoing tests ? MS ? something worse. It's not easy telling the kids they can't have what their friends have cos a)can't afford to and b) too restricted by this fucking twat pain- Fuck,shit,bollocks,fuck,fuck,fuck-AHHHH that feels a bit better- think i,ll have some chocolate fuck the diet!

helen4444

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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Mouse on Tue Nov 16, 2010 1:35 am

Helen, can you appeal? It would be fab if this person with knowledge of a cure could share it with us. Do you have a specialist that can provide a letter to support you?

Chocolate sounds like a bloody good idea.

Mouse

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So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  helen4444 on Tue Nov 16, 2010 11:09 am

Hi
Thanks 4 your reply- this was my first appeal can appeal once more.The letter from my gyno is fab clearly stating this condition will be life long and I will not be able to fulfil the role I had, they (pension people) just keep saying i might get better.I have paid into this pension scheme for years.I need to look up about chronic pain and what research says but just can't bring myself to look properly for fear of getting even more down. My gyno thinks i may get better but wrote this letter to try and allieviate my financial stress.He says until stress is out of the equation i will not improve.Need more chocolate now Crying or Very sad

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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Mouse on Tue Nov 16, 2010 7:39 pm

FFS surely they will assess you again, by which time someone "might" have found a cure! It's a strange kind of logic that you might get better. Who would be more happy than you ....FFS!!!

Would it be helpful to become a patient at a pain clinic? Chronic pain can steal your soul, get some more experts on your team Smile Have you got a therapist? You can't have mine but god that's helpful.

I'm getting really chubby and I eat a sickening amount of fruit and vege.. how is that fair? Curse that bloody chocolate.

Mouse

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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  Sebby (Admin) on Tue Nov 16, 2010 9:17 pm


Hey Helen

Sorry to hear how shit things are for you..definitely appeal! That man obviously has no proper understanding of chronic pain conditions.

Is there anyway you can see another person to assess you if you are unhappy with how he has assessed you?

I also recommend the pain management clinic..they understand pain conditions and could help back up your assessment and also back up the gyneas letter!!

Let us know how you get on

Sebby
xxx
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Sebby (Admin)
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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

Post  helen4444 on Wed Nov 17, 2010 3:47 pm

Hi,
Thanks for all your suggestions, waiting for union response,unfortunatly i am not told who the medical assessors are.Will be seeing my gyno next month,think he may suggest a pain cons he has asked before only 1 prob-she is my old boss. I might have a go at putting a report about me together and ask my Gyno if he is willing to sign it.Apparently if you can breath your chances of getting pension is poor.
Can't believe I am fighting for a monthly amount that is a quarter of what i used to earn.

My car is costing me £500 and because of tax cock ups that another bill of £350

AHHHHHHHHHHHHHHHHHHHHHHHHHHHH














helen4444

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Re: So pissed off with my shit life!!!!!!!!!!!!!!!!!

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