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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


menopausal, need estrogen but each time get stinging not allergy

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menopausal, need estrogen but each time get stinging not allergy

Post  drruthfree on Wed May 14, 2014 1:01 am

I have tried literally everything anyone has posted. I am in menopause and need to use vaginal estrogen or feel like my bottom is falling out from inflammation. But, each time I use estrogen creams no matter how compounded, I get stinging and redness in vestibule. Diflucan helps some, although never tested positive for yeast. Anyone experience this?

drruthfree

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Vaginal estrogen compounded in coconut oil

Post  shesingsjazz on Sat Jun 07, 2014 1:12 pm

Have you tried having your doctor prescribe your vaginal estradiol in a coconut oil base from a compounding pharmacy? There are several I have used and could recommend.

shesingsjazz

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Re: menopausal, need estrogen but each time get stinging not allergy

Post  meelie on Sat Jun 07, 2014 2:11 pm

Please do recommend. Is it something I can take to my dr. for her to Rx?

meelie

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compound cream

Post  drruthfree on Sun Jun 08, 2014 2:36 pm

Thanks so much for suggestion of coconut oil. I was actually thinking about that the other day, as I have no problems with it. However, on Friday I got Estriol (.3) compounded in Natacream and for the first time, I did not get itching and it actually helped a lot! Of course, I now need to try it again, as I only put 1/2 the recommended amount. But this cream has no preservatives and is only made from vegetable stuff. So, hopefully it will put things right for me. I have a wonderful compounding pharmacist who works with me on this, with the permission of my most understanding gynecologist. He has given me just the bases to try and if I do OK, he makes up the base with .3 Estriol. Estriol seems to work better in the vagina than Estradiol, according to his research and others I have read recently. This is link to information about various bases: http://www.sobeapothecary.com/pdfs/97305_BaseCompChart_Top.pdf
I had to figure out that what I am getting is an irritant dermatitis. This is not allergic, as it doesn't respond to antihistamines.
I hope this stuff continues to work for me! Say a prayer.
Regarding the coconut oil; please add specifics in case I need to try that and for others, too.

drruthfree

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Stinging with vaginal/vulvar Estrogen application

Post  shesingsjazz on Sun Jun 08, 2014 4:20 pm

I forgot to mention in my last post that I also have stinging in the area where I have pain when I begin vaginal application of estradiol/estrogen. I have read about it online (just a few posts here and there) as well as confirmed it both with my reproductive endocrinologist who is my gyn and the compounding pharmacist at Hobbs Pharmacy in Merritt Island, FL. Their phone is 321-452-0010 and they are the same pharmacy that my other gyn, Dr. Georgine Lamvu, sent me to initially to fill this with a coconut oil base. They use several bases depending on what works for you. Apparently the stinging comes from either estrogen receptors being bombarded in tissue that doesn't have nearly enough (hence the pain we have) or from the increase of blood flow to tissues as estrogen does increase blood flow. I was able to test this theory that it was the estrogen causing it and not the coconut oil or other base as I also used the Estring which is the vaginal estrogen ring that only supplies estrogen to the vaginal area, it's not systemic. And when I used that, I burned for several weeks as well. I too thought that somehow the estrogen was having an allergic/irritant dermatitis reaction, until I was able to talk with the reproductive endocrinologist and compounding pharmacist. This only happens with some women, not all. And unfortunately I am one of those that apparently it gets worse before it gets better. I'm sticking with it this time though, because I know that it does work as I used the estradiol for 3 weeks and then quit (due to increased burning) and slowly over another 2-3 weeks my pain was down by 95%! But because I was not continuing to use the vaginal estrogen, the pain came back. Feel free to ask me any questions about it as I've done nothing but research this for the last 10 months and have tried everything, finally to get a diagnosis of vaginal atrophy. And just fyi, I'm not in menopause and only 44. But apparently in the premenopausal years, estrogen levels start to decline and so you can start to have the atrophic symptoms. If you can bear with the increase in pain for a little while, I believe your symptoms will disappear like mine did. Crossing my fingers for both of us!

shesingsjazz

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vaginal estrogen compounded

Post  drruthfree on Sun Jun 08, 2014 9:03 pm

So interesting. I began this misery 5 years ago when Vagifem stopped working at age 60. I got the original problem at age 50 or so but then the Estrace worked. I had to go on systemic bio-identical hormones for almost two years, as with Estrace everything just swelled up. I have read this happens to some women who have extreme atrophy. I was not really happy on systemic hormones, as I felt tired all the time. I am so interested in your experience. I do think that the itching I have had is contact dermatitis, as it happened with the base alone and when I tried Replens it was unbearable explosive itching. Stinging is another story, however, but so far with the natacream and Estriol, I have not gotten eiher. So now I have found a base that doesn't cause itching or stinging for me. Hallelujah! However, I am unsure of just how often to use it till this thing gets better without causing yeast from too much estrogen. My doctor says everything looks well estrogenized in there, but nevertheless, I get uncomfortable in only a couple of days without direct application to the tissues. From your post, I am surmising that I need to use it every night for a while.
I have also read that testosterone works best in the hymenal ring area. So, specifically, have you found that you need to use estradiol every night for a certain amount of time or just all the time? I know everyone is different so what may work for one person does not necessarily apply to all. Do you have any thoughts on testosterone for the vestibule area?
I have also thought that maybe I need to keep using systemic because it seems my body doesn't produce hardly any hormones now. I am a DES daughter and our hormones are generally all screwed up. A reproductive endocrinologist sounds like a good idea, if I can find one here. I had not thought about seeing someone in that field. But will try anything at this point. Thanks for the pharmacy number. I am going to call them tomorrow for suggestions, too.
I feel for you, believe me. I, too, am obsessed with my vagina. Totally ridiculous. I see you sing jazz? My hobby is ballroom dancing.

drruthfree

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Re: menopausal, need estrogen but each time get stinging not allergy

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